Ringworm drug for dogs (Fenbendazole) might also cure cancer
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Nicole, it’s good to have an optimistic outlook, otherwise we would all get depressed, and that wouldn’t help us either...I want you to be hopeful about future TXs.
There are many patients on this site that are alive and well a decade after being diagnosed stage four, and that’s very encouraging. BUT, the truth is that we have also lost many voices since I’ve joined...sometimes they get quiet very quickly, sometimes after a long fight.....but one thing I’m certain of: the people publishing those statistics have no interest in downplaying the results.
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Husband11 yea I see what you mean. To be clear in my original post I said I was "I am actually considering emailing my MO in the next few weeks with an article about the Fenben and getting her take on it."
I wasn't going to ask her if I could/should do it. I just wanted to see what she thought of them saying :" Fenbendazole acts as a moderate microtubule destabilizing agent and causes cancer cell dealth by modulating multiple cellular pathways. That in itself is very interesting. All I wanted was her opinion on that study. There are a lot of studies I will be asking her about. Like another one that I read about using Antimalarial drugs for keeping dormant CTC's from waking up. Now that is pretty interesting. I am just glad people are finding these things to try its great.
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Yes, the antimalarial drugs are very interesting. All the ones based on quinine (chlorquinalones? I believe), the original "tonic" of tonic water show some activity against breast cancer in the laboratory. Artemesin I believe also falls into that category.
Hey, it can't hurt to ask. Just make sure to nod in approval of whatever they tell you!
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Laughing at "nod in approval of what ever they tell you" no worries there I certainly will. ha ha .
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Knowing my MO she would laugh in my face
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I read a article where the writer said something like "Breast cancer deaths have remained the same for the last 20 years at (I think he quoted) 45,000." That was like, wow, how awful then I realized the US population as grown by about a third since then.
Wife's going to get a dozen WBR's to radiate the cancer in her Dura. She has a poor prognosis and I've done a lot of crying lately.
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Maio
I'll certainly be thinking of and praying for you tomorrow. Hope that it passes quickly for you. And I, like the others, thank you for taking part in a trail that could help future generations of women as well as those on these boards.
Ah, my arm, well the redness has calmed down. But the inside of my arm feels funny. Hard to describe. Took the plunge and told the Radiologist to set it up to radiate my T10.
Sending you lots of love and HUGS...
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Mike, I am very sorry to hear that. You are in my prayers.
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My heart goes out to you and your wife. I am so sad for what you are both going through. (((hugs))) to you both.
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Mike, I'm so sorry for you and your wife. Start the fenben protocol, you don't have anything to loose. Perillyl alcohol (like orange terpenes or l-limonene) works well in cerebral tumors too. Melatonine, do wathever you can do. Cut sugar and carbs. Don't give up!
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https://www.cancertreatmentsresearch.com/perillyl-...
It had to be ihaled, don't use oraly
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mike I'm sorry about your wife predicament, my heart goes out to you and her
many people on this board have faced similar treatments and have rebounded stronger and better than before...I hope your wife is one of them.
Snooky good luck with the radiation tx. I'll pray that It stops progression and the pain at the same time.
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Those stats are very disheartening, however, that is why we have to try everything we can to help ourselves be outliers. The fenben is just one of those things. The people who live longer are quite frequently adding to their treatment and many don't tell their Drs. Some do though. I will tell mine about all my supplements and he usually says it won't help but it won't hurt. If it's something he's never heard of he will ask me what it's for. I gave up years ago trying to get an actual opinion other than "there's no evidence". The only evidence he will accept is phase 3 trials with FDA approval. I am skeptical that those stats are still accurate, especially only 1 in 5 making it 5 years. There's just so many of us out there!
Mike, just keep plugging away with the reds and whatever other treatment she is doing. I don't like that phrase poor prognosis. I don't think it's helpful. Really, I think in medical terms we all have a poor prognosis! If you haven't read it yet, you might find the book Radical Remission to be helpful. Not only for the hope it gives, but they tell you HOW they did it.
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Thanks Frisky and HLB, you made some great points.
As much as I know it's WBR to eradicate the mets from her Dura. About the bone mets to the rest of her body; I'm getting conflicting signals. My wife's last PET, which was less than a month ago, showed only three active cancer spots in her body. Yet, when an MRI was done just last week it showed extensive mets? My wife's TNBC is aggressive but not that aggressive. Something just isn't right here. I do remember my wife's oncologist saying a PET scan shows only active cancer.
So far my stubborn wife refuses to take Fenben. Also she's on steroids now as part of her anti seizure medicine so it relaited to that. Roid rage!
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MRI's are good at showing the existence of a structure or anomaly, but typically tells you nothing about its level of activity, whether its scar tissue, benign growth or cancerous growth.
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mike - you may want to suggest a nuclear bone scan? I’m not sure I totally understand your wife’s situation but I’ve had many active bone mets that my mo uses a nuclear bone scan to keep track of.
I had to have a neck MRI back in the end of January so I could be cleared to do neck PT. The mri results said that I had “innumerable active metastatic lesions.”
Well that completely freaked me out. My mo called me and calmly told me we needed to do a follow up with another bone scan, as comparison. I did the bone scan and what it showed was that the mri was picking up on old inactive lesions, and the radiologist who reviewed it, I guess just wrote it like he interpreted it. But it was wrong.
Maybe a bone scan is in order for your wife to see what is happening?
Also, where were the spots of active cancer that the PET found?
It does sound confusing. Keep asking questions until the information is no longer confusing
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Love From Philly, you nailed it. My wife had to switch from Xeloda because it stopped working. Her PET done at that time showed extensive mets up and down her spine and in her hips. Next she was put on eribulin and she got two NED PET scans 4 months apart.
An oncologist, different from her own oncologist, recently had an MRI done as part her recovery from 4 seizures brought on by recently brain mets. This guy probably was looking at the damage done when the Xeloda stopped working. "Sigh of relief." I thought she'd have to be fighting two battles, one for her body and another for her brain.
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Mike, I so apologize, I've been reading about your wife and have said no words of encouragement to you. I hope you and your wife believe in the power of Hope, and thinking positively. Truly pray that your wife will decide to take the FenBen. I start week 4 today and have had no known SE's.
Sending lots of HUGS and prayers out for your wife.
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Husband-- Wow you just threw a monkey wrench into my brain. All scans are so confusing. 7/2017 my MRI showed no mets to my spine. Just three mos. later a Nuclear bone scan showed 4 different areas of mets. When I asked my ONC if cancer spreads that quickly, she said no but N Bone scans have the tracer and are better at picking it up.
Fast forward to current. Last three N bone tests have showed progression in my T10 area where I had a compression fracture. Onc worried about it eating thru spin send me to radiology. Three different radiologist looked at all previous bone scans and said " there's little or no cancer there, it's healing bone"
But just to make sure lets do an MRI an see what's going on in there. Two days later at results of Mri they decide it is full of cancer and have ordered 10 rad treatments.
I'll do the treatments figuring either way it's probably needed. But these scans are driving me crazy.
One thing that also is confusing, ONC's go by how you feel. There's little if any pain in my spine and hips most of the time.
I just give the whole mess to GOD because I do not understand.
But I thank you for giving me something to think about.
S
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Reporting live from location ....
At 10.15 Easter time I too 50mg of the mystery medication after sharing my tiramisu recipe and the best places to visit in Italy with my two young and caring Italian nurses...
At 12.15 I felt a cold coming on: dripping nose, sneezing, head in the clouds, and chills....even though I was under two warm blankets.
At 1.15 I ate some vegetables, I decided to go get a decaf coffee to warm up, and that's when without any warning, I had to rush into the nearest bathroom where I threw everything up....three nurses rushed to my rescue....they reassured me that nausea and throwing up was to be expected. I told them losing a few pounds wouldn't hurt me...we alllaughed...
At 1.45 still feeling queasy, I dissolved my first sublingual Zofran....immediately the nausea stopped, I walked around and I noticed my energy was still good and my head had cleared up.
Now I'm finishing up that dec coffee with a bunch of graham crackers....the chills and nose dripping have subsided.
More upcoming blood tests till 8.30 pm
At 10.15 pm, I will take two more pills, but this time I'll take the zofran one hour later, just to be on the safe side....
The lesson if this drug gets approved?
Take the zofran before eating regardless of the symptoms.....nurse said eventually the nausea goes away....
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Oh, Frisky, thank you for letting us know! Been thinking about you all day. Glad that you seem to be in good spirits. You got this. Eagerly awaiting more updates.
S
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Frisky, I wish you the best results and the less SE! HUGS
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thanks guys! I'm in the final inning...in ten minutes another blood draw...then I have 4 hours to myself before the last one...I will attempt to go out to dinner, there's a nice Italian restaurant right across the street from the breast cancer center...
Back from dinner...not very good Italian food, I'm afraid, but got me outdoors for a while...a little detail for you ladies...the Pfizer new palbo medication came in a pink bag!!
6.15 two more hours to go....getting tired....I have by now met the whole staff....they love my playlists....no new symptoms to report...
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Way to go Frisky! You're in the home stretch. And I started week 4 of FenBen today.
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It would be nice if someone created links to labs and various clinics that have done some medical clinical research on Fenben. My wife, on roids now, needs some convincing. I really don't know where to look.
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Mike this is the link to the blog by the man that started this trend....start by reading his story to her....it's important to note that his is not the only success story...he has volunteers compiling the stats. Included in the blog are links to research studies. Other independent studies have been listed in the initial pages
Ultimately, she has nothing to lose...there's no side effects to worry about, when it works it does across all types of cancers and she doesn't have to stop the conventional therapy.
The fenben has no taste...easy to swallow with some water...
I'm in the final hour...I'm now playing Kiri Te Kanawa, italian arias...the whole ward has gotten quiet and all the doors of the cubicles are open....food for the soul after a long day for the patients and the nurses...
At suor Angelica I had them all tearing up....you can hear a pin drop....switching to Mozart now ...a little Serenade from the Marriage of Figaro...never hurt anyone...
Finally home in my comfortable bed...10.15 I have two more pills to take...hopefully will not get nausea..
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Just in case you didn't already know a large European study concluded that:
Chocolate, chips and hamburgers among 'ultra-processed' foods linked to early death
If you enjoy fast foods you might want to skip reading this....The statistics are staggering and horrifying....I'm gonna have to give up dark chocolate completely now...
https://www.cnbc.com/2019/05/30/chocolate-and-hamburgers-among-ultra-processed-foods-linked-to-death.html
I took the remaining two pills and now I have to wait one hour before I can eat somethingI'm starved....but I'm terribly afraid I will throw everything up again...and taking another zofran will mean more problems tomorrow morning...have not used the bathroom at all today...and I used to be very regular...
I've also noticed overall dull aches...like those from overworking the machines at the gym....but in weird places like my ankles and lower legs...my knees....and hands...
Another few minutes..and I will have a bowl of blueberries....can't wait! I've never looked so adoringly at blueberries before...
Muscles aches and pains are now increasing and spreading all over the major muscles groups.....will not be able to sleep if I continue feeling like this....11.30 now flu like symptoms are taking over—like this morning —stuffed nose, sneezing, head in the clouds, basically I'm feeling miserable...and achy all over....
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4.00 am....woke up to eat something and take my supplements.
All my bones and muscles, from my cranium down to my feet, feel still as if they were racked on some medieval torture machine...the pain and discomfort is immense and unbearable. I'm feeling intense pain and weakness especially in my femurs, feet and hands that undermine my ability to take care of myself.
In less than 24 hours, this drug has destroyed mystrength, well-being, and wholeness I had achieved with acupuncture sessions
I'm supposed to go through this ordeal again in 6 hours and I have not recovered from the previous session 6 hours earlier...
Assuming that this drug brings forth the second coming of Christ, no one is gonna wanna hang around to see that happen. It just doesn't make you want to live feeling like this.
I'm going to continue the protocol today, to ensure that the SE experienced are consistent, and then I will request a dose reduction. This type of torture is not for the living....
I wish I had better news to report...
Also, no sign of needing a bowel movement yet....
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Oh dear Frisky, wish I knew what words to say that would help you. It seems that you have tremendous inner strength to call upon. My heart aches for you. Could you tell us if you are to be taking the drug like this every day? for two months. You have my highest admiration.
Do the rules of this protocol allow you to use something to alleviate the constipation? Coffee enema.
Could this be die-off? or is it too early for that?
Do you have a friend who could stay with you?
You're In my prayers...
S
additional thought....I use psyllium whole husks (generic) to keep things moving along.
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the overall widespread level of bone pains is my primary concern right now. I'm not sure I will be taking the two pills again this morning. I'm in hell as it is already. I keep on tossing and turning trying to find relief but all the problems are on the inside. Blocking the formation of the marrow in the bones is not natural, in fact it's a terrible idea.
I believe the SE of this drug are damaging. This totally explains the lack on enthusiasm on the part of everyone involved on this trial. It's a Pfizer thing...I don't think the MSK doctors really believe in its efficacy. All questions are placed with the Pfizer rep. MSK is facilitating this experiment but are not really involved
They already know people are struggling with the dose...they said so yesterday....and when asked about efficacy....they went silent...not a good sign....I intuitively sense that patients are dropping out of the trial in large numbers...
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