Ringworm drug for dogs (Fenbendazole) might also cure cancer
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In my second week of Ibrance (plus faslodex, which I started a month earlier). Coincidentally, the pharmacist linked to the breast cancer center at Hopkins called me today to check on side effects of the ibrance. While I was on the phone with her, I asked her if milk thistle would interact with Ibrance. She didn't jump on that (and hence, I think the answer was no) but she did say that there is some evidence that milk thistle can operate like a phytoestrogen. The studies are inconclusive. Because I have fatty liver (and have for many years) and because I have some tiny lesions on my liver, I was considering taking it. While we were on the phone, she looked up the resource that they use at Hopkins and read me the phytoestrogen part. She did acknowledge that it can aid in liver disease, but her source (some paid source that Hopkins uses) didn't explain what "liver disease" was. She also looked at the MSK website that some have mentioned -- in there, it didn't mention the phytoestrogen part, nor did it say anything about milk thistle interacting with ibrance.
Just wanted to put this out there. I think I'll hold off on the milk thistle for now, although I realize that many are using it.
Bev
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Bev...that is similar to what I had read about THC. I read some stuff (don't remember now the exact articles) but it was saying that THC can be bad for Hormone Positive BC..thats why I am thinking of leaving it out...yet people with Hormone Positive BC do use it. I have been emailing with Jeff the guy from Joe's FB that Goldie posted here about and his wife does take it. Anyway I get it...it's so hard when there is even the slightest thing saying it could interact whether or not we should risk it...
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What is the name of the Facebook group that Joe Tippens, or that his followers set up? I searched on Facebook, but I wasn't sure which one was the group.
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Husband11: Mycancerstory.rocks facebook group
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Husband, you have to read the blog first, and then when you ask to join the group, they ask you some questions, then they ask you for the password posted on the blog. They want to be sure you read it.
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wow So much has been happing the last two days. FRISKY and GOLDIE, I am so sorry,my friends, that I could not be there to offer you support on Mon.
wow. I missed a lot yesterday! Frisky glad your Pet scan is over and pray you do not have to wait long for results. Getting back to your peaceful retreat in the country an excellent idea. Thank you for the current info on Joe's blog. Considering bumping my dose also, currently Fen 4on/3 off, Vit E, and the theracurim every other day. No CBC oil. When you wrote about going back to Italy to help with cancer patients, it made my heart skip with joy. That is so biblical, it' exactly what Jesus wants for us. " he said if we take our deepest sorrow and use the experience correctly it will turn into our greatest Joy" I think the Holy Spirit is leading you, my friend. I believe that you will get your healing because you're wanting it for the correct reason now, in order to help others. That's a prayer that GOD will answer.
Welcome to our little group BenJen
Goldie I truly hope that you DD finds the medical issue and the doctors can help her. My friend, albeit a lot older lady, was hospitalized 3 days ago with fainting episodes... Turned out, after every test they had, that it was High Bl Pressure and dehydration.
Olkie…..welcome and thanks for the important info that you shared about Joe.
Dear Sonia, So sorry for your recent development. But you know what to do you're very savvy on supplements. And your belief in GOD are your saving graces. You'll be fine.
Husband, Yes do join the group, lots of success stories and lots of heartbreak too. Sometimes I need to stay away from it. I hurt so for the folks who post there.
Well, I need to leave this here. Owner of duplex has called for an inspection today so, I have just a bit of tidying up to do. Then I'll come back and tell you how my Mon and Tues went!!!!
HUGS and Many Positive thoughts girls and guys
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Thanks all, found it!
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Well wanted to share my Monday's ONc appt news. I saw the Nurse Prac instead of the ONC. (fine by me I love her and her knowledge about alternatives) She agreed with my ONC that I should have no more Taxol because of my left leg. I mentioned the word Neuropathy and she said well there's another possibility. The way you're explaining the pain, I'm thinking "BLOOD CLOTS". She knows how to get my attention. So, I had a Doppler Sonogram on Tues. a 4pm. (that was a long 36 hrs) I was blessed no blood clots. Thank You, Jesus.
The other thing that bothered me is, I need my 3mos Ct/ Nuclear Bone Scan. But now she also wants a MRI of my brain (I mentioned headaches) and a MRI of my Cervical Spine. (radiologist wanted that one) The tests are fine but normally they get me scheduled in 3 to 4 days,, Not this time. The tests are scheduled for Aug 8th. Ugh . Long wait. Insurance won't pay for PET/CT. Stupid. But there it is.
Also Frisky, they are putting me on Zeloda! Yes. That's what I wanted. I saw the order in my portal but, I have no pills and no start date as yet. But I do know, I'll be taking 3pills am and 3 in pm,, so it's 3000. And I couldn't talk her into 7/7, she said lets first do standard of care and go on from there. (I think that dose is high for me. I'm 5'3" ---128#) So I've been reading the Zeloda thread on which lotions and potions lol I need to order. I'm keeping track or all your advice that you posted over the months that you were on it!
One post last week I mentioned my bl sugar being low from Taxol. So on Mon appt, I knew they'd do a blood draw, and I purposely ate 3 cookies and a piece of coffee cake! (not normal for me) I wanted to see if I could spike the glucose reading.. But still bl glucose was just 84. Before Taxol my reading were always right in the 90's.
So I've been rereading Joe's blog. One of the ways Fen Ben works is by stopping the cancer cells access to glucose. But, I'm not sure HOW the FenBen does that. Is it at all possible that Fenben is lowering my blood sugar? I had thought I was the Taxol but now I don't know. Need to research my numbers in my portal.
Hope everyone has a wonderful stress free week-end.
HUGS, my friends
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Xeloda dosage is like most other drugs, something of guesswork. They typically put you on the highest dose and see how you do in terms of side effects. There have been cases where women who weren't responding to xeloda on one dosage and schedule began to respond when they switched to something else. However, University of Southern California Hospitals has been routinely prescribing 1000 mg twice a day and they report they are getting as good of results as anyone. Compliance with treatment is definitely a factor, and if a patient can't tolerate the drug, they stop taking it. Not recommending this, but my wife took matters into her own hands and did 1250 7 days on and 7 days off and continued to get good results without failing on the drug. She eventually switched to letrozole and palbo because the xeloda had worked so well and gotten her cancer so hammered down. She definitely tolerated the 7 on 7 off better than the longer time on. However, she had burning feet the whole time, which interfered with her sleep and walking long distances. Fortunately she could tolerate riding her bike, so we went for long bike rides instead.
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whao Snooky you have a lot going on....and in a way it's all good. Getting all those tests done at once will give you an idea of how to use the FZ. To either stay the course or increase the dose. We need those tests to keep track of our alternative therapy as much as the traditional ones. Wouldn't it be great if they revealed you were NED? Let me tell you...we would all celebrate in grand style...
You know, about xeloda...people react in many different ways. 14/7 is a lot, but you might not suffer any SE. If you do, then you can tell them that MSK came up with the 7/7 because of quality of life issues and no one complains on 7/7 .
And Husband is absolutely right...amounts and results as usual don't correlate. They tell us that the reason the medications don't work is because our cancers are all different, yet they want to treat us all the same based on these crazy clinical trials, where the goal is approval and quality of life secondary
As far as low blood sugar is concerned, the likely culprit are the Beta Glucan, they come with a warning. In my case lower BS is great, but if you're normal, you will need to pay attention it doesn't get too low. All medicinal mushrooms lower BS levels
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I'm sorry for not commenting on everyone. Again thank you so much for your concerns and prayers for my DD. They have done labs, EEG, EKG, heart monitor and they can't find anything wrong and she has been cleared for surgery tomorrow. The only thing they contribute it to is lack of sleep, stress and caffiene. She's one of those that drink Red Bull and energy drinks. I told her no more of that. So I will be worried tomorrow as well. So hard to see one of your kids go through so much and you can't be there with/for them.
Snookie, glad you don't have any blood clots and it sure pisses me off when insurance companies won't pay for a test. Happened to me before stage IV diagnosis, they would only cover for an x-ray. Finally my MO fudged the report so I could get scans. Praying the brain scans come with good news. Frisky is right about the Xeloda, everyone reacts differently on it, some good, some not. I've been on it for 4 years, along with Xgeva, which is an injection for the bones. I do it myself, it's monthly. I do 2500 on the Xeloda, and I'm 5'9" and 145lbs. I can't handle more than 5, I tried.
So far no fever today. Primary called and wanted to put me another AB (antibiotic). Was not happy about that, so he is going to call it in anyways, and if I decide to get it I can, and if not I can cancel it. It would be the 4th one. I've had these funnys feeling come over me, kind a dizzy/woozy feeling. Only lasts for a very short period and I was associating it with the AB. Then I thought, what if it's brain mets??? Something else for me to worry about. I see my MO end of August. I will monitor this and go from there.
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Hello my friends! I found a post on Joe's face. A melanoma with many metastases, which was NED 8 months later (I know, it isn't bc) I just wanted to say that this person didn't know joe's blog when he started with FZ. He was instructed by a parasitologist scientist, and his regimen was 3 weeks 1 gr. 7/7, then 13 weeks 3 on 4 off, and then once a week. He didn't take any other supplement. What I find most interesting in this story are the first 3 weeks 7/7, could that be a determining factor in the final result? Maybe increasing grs can be hard for liver, but I'll have 220 grs for 3 weeks without resting. I guess my liver could stand it.
You are all in my thoughts, wishing the best for each and every one of you in your own struggles! Love you
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Sonia thank you for sharing that extremely revealing piece of info. maybe going on 7 on 7 for 3 weeks is what we need to do in order to make an impact. We love you too
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I am on COC protocol now and they use mebendasol for a month daily. I think the month after they switch it to doxycycline.
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Thanks to everyone for thoughts and info on Zeloda. Husband it crossed my mind to do exactly what your wife did. At least in the beginning till I see how it effects me. I also will look for that study to have handy if I need it.
Goldie, they took me off Xgeva after 7mos. They said it wasn't working. They put me on the other one whose name escapes me, its a thirty minute drip.
Yes, Sonia, thank you for that extra info. I'd already decided that starting today, I'd do one gram in the am and one gram in the evening for 4/3. Its been 17 days since any Taxol so my liver should be able to handle that right now. Of course I'm doing M.Thistle and Selenium and my Serrapeptase arrived today so I'm starting that. I'm starting slow on re-adding all my supplements and taking notes.
Goldie I sure hope that get that fever issue figured out.
Warm affectionate Hugs to all of you
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Anotherone,
How did you get your MO to communicate with the COC people? I'm assuming you are doing it through them?
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I went to COC people myself , while I still even had no MO. Just sent them scans and letters from chest clinic and blood tests . I am in the UK. Having met since with an oncologist I found out she has not even heard about them.
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This is just a test. Last night, I tried 5 times to post a message and it would not work!
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Sharing positive news from Joe' FB page today!
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My wife has the same with (original) mets to the brain (17), liver (12), spine, and lung primary.
She is three years out and doing just fine. She just started a new business venture (which is growing like gangbusters). We had a scan 1 month ago now where the doctors were arguing whether she was NED, or the two BB sized spots on her brain were new tumors or simply blood vessels in crossection. We laughed and said either way we are good with it.
She has been on FZ since last December, and for the first time her lung tumor completely cleared up (something it never did on TKI drugs that have since "failed" according to the onc. She has had extremely high platelet counts (up to 1.6 million) since before the original diagnosis, and these are now normal for the first time in 4 years at 350 k.
FZ has been a miracle for us. But we are not standing still . . . we have started the McClelland protocol to attempt to eradicate the stem cells.
BTW . . . of all the things she has taken, the FZ has the LEAST side effects - she took up to two grams per day and never even noticed it.=======
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another one from Joe's page....this is BC...female....there were 68 responses to this post so, if I did thru them can probably find more info
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Yes!! My CEA started at 217. Dropped last month to 117, and today down to 53!
On standard Joe protocol plus irinotecan and Xeloda for stage 4 breast AND colon cancers. Mets to everywhere.
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Received an email from Chris Walke today:
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I have a HUGE announcement for you today!
I'm putting ALL 10 Video Modules of my SQUARE ONE: Healing Cancer Coaching Program online for FREE!
SQUARE ONE is the culmination of my own experience, plus over 15 years of research learning from doctors and experts, survivors who've healed naturally, and from personally coaching hundreds of cancer patients one-on-one.I've taken the best, most powerful, most effective healing strategies that I've seen work for the most people, and organized them into a simple straightforward plan for you to follow.
This course is not just for cancer patients and caregivers, it's also for anyone who is serious about prevention.
This is normally a paid program, but I'm putting the ENTIRE course online for you to watch for free in August.To your life and health!
(((c)))
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Anotherone,
I have a meeting scheduled with OCO next week. Do you have to take those meds for the rest of your life?
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Anotherone, please share your mebendazole and doxycyline doses (and durations) with us. Veery curious! I go to doc today and will be asking about it but it would be great to be able to share the doses COC has decided upon.
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thank you Snooky for posting all these good news! I’m excited now as we ourselves will start witnessing each other’s healing! Yeahhhhh
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I am not sure re rest of my life ; logically thinking it does not have to be because if one eliminated all the cells there is no reason to keep taking them but on another hand how would you know whether you did. Besides realistically most likely outcome could be that stuff that we take does not result in cure - hopefully stable or slowly diminishing so if it is then we may as well continue.
Both metformin and statin seem to have so many positives that even people without cancer or other disease take them for life.
In short - I thought asking about it would be way too premature and by the time I (in my dreams ) get to NED with my lungs and lymph nodes riddled with tumour now there surely will be more information so no point in asking now.
Dosage - mebendazole 100 mg once daily to chew the tablet for a month, then swap with doxycycline 100 mg daily for a month and keep alternating. Note that doxycycline not to be taken with indigestion remedies , Zn or Fe and to avoid sunlight.
I must say I am very tempted to have another CT scan/ Xray done before starting HPT may be even delaying HPT as if I do not and cancer decreases I will never know what was effective
Although one may tell it is madness to voluntarily delay mainstream treatment ...
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I spoke to my MO. No dice. he won't prescribe Mebendazole or Doxycycline , as he feels with me NED now it fails a risk/ benefit analysis. You can wind up with neuropathy from one lymphoma from the other over long term use. They consider 30-60 days long term use. I will talk to tmy integrative MO and see what he says...
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Sorry to hear about your Mo response Santa, keep us posted on the response by your integrative oncologist. Maybe they need to read some of the results coming out of medical research on the use of off label medications
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I also have that doubt ... for NED what would be the prevention protocol? (let's think big, folks!) If I were Ned, I wouldn't take doxycycline forever ... it's an antibiotic. But why not Mebendazol/Fenbendazol? At least one cycle of 3 days every 3 months? Come on!
A couple of years ago, a doctor prescribed me some drops for pain from a corneal ulcer. I read the safety sheet: possible side effects included coma and death ... Really? What is the logic behind all this? Ah! of course... Big Pharma
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Sonia, I believe, I would follow in Joe's footsteps. Would take 1g 3times @week as a maintenance program. After a year or two, if the scans revealed no evidence of disease, I would stop...or continue depending on the general consensus.
Snooky, that's a useful list of foods to know about, however, they don't specify what the protocol entails. Such as how many walnuts to eat @day to see results, or how much grams of green tea@day to drink. I wish they were specific..They are, nonetheless, delicious foods, so we’re going to eat them anyway
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