Ringworm drug for dogs (Fenbendazole) might also cure cancer
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I would think some of the value of going COC under their guidance would be the monitoring of blood test results and knowing what to look for or ask for. They might know what to look for if the drugs are aggrevating liver values or some other value for instance.
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Frisky , I do not think there are any variations in COC protocol. They are exploring one particular protocol , that is it.
Husband , disappointingly nobody from COC advised me anything on blood tests . As it stands I had no input from them whatsoever since initial consultation and receiving medication. I guess if I had concerns I could contact them and see how my concerns are dealt with...
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I thought the whole COC treatment is a virtual one...they might specify what tests to run, but if they are out of network, the costs of paying for recurrent tests without insurance would bankrupt us soon...
I have to take metformin to control my BS levels, so that's a given.
100mg of doxycycline is protecting me from the potential infections that Doxil could be creating by lowering my immune system...so all I have to do is take probiotics at night to restore the flora.
Although I don't have a huge cholesterol problem, I started the statin at 40mg —before I knew how much the coc prescribes— to test the SE. since I've had none, I will ask my Doctor to raise it to 80mg.
The minuscule amount ofFZ has no SE whatsoever—so far...so good...I wish I could say the same about what the Doxil is doing to my liver....but I'm going to be generous and disassociated and believe that it's killing only cancer cells and sparing my heart and all the other organs...
The truth is, we don't stay on these medications for life...it's supposed to work after a few months....that's the real beauty...and now we have Simone as our NED Saint and role model forthe COC...
Freedom...freedom...freedom...freedom....I can taste it already!
Anotherone, thank you for confirming what I intuited, they block all pathways and hope for the best! Use a meter to measure your BS levels...and if they are too low—80 is normal—eat a piece of fruit, like banana or watermelon, that should do it! Have a nice risotto with shiitake mushrooms and imported aged Parmesan cheese ...takes care of BS and cancer at the same time...go to an Italian bakery and treat yourself to a piece of Focaccia Bread.... yummy delight and theinstant raising BS levels 😋😊😊😊 🇮🇹🇮🇹🇮🇹😎😎😎
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That's disappointing to hear about the COC. I thought the quarterly fees you pay would be for guidance, and not just renewal of the prescription. In any event, it would be a challenge for most patients to get prescriptions for those 4 drugs through their oncologist or primary care physician. My wife currently gets metformin, prescribed by her personal physician, purely for the cancer fighting properties. I'm not sure if he would add in a statin and antibiotic though.
To be realistic about the price they charge for their consultations, it isn't a crazy price. I've heard of some cancer specialists charging a lot more. Demanding a deposit of $25,000 or more to take you on. Even a naturopath isn't cheap. We paid $150 / hour for a consultation, and thereafter nearly a $1,000 a week for his infusions. That would bankrupt most of us in a year or two unless you start selling off assets.
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dear Husband,
I brought supporting evidence to my primary physician, she studied the material and decided to help me as long as she supervises me, which of course I welcomed.
Don't forget, these doctors fear cancer for themselves and their loved one as well. So, if they're smart, they will appreciate the knowledge and power they will derive from observing a willing participant.
After all, doxycycline is very cheap and is not the type of antibiotic that does a lot of damage, it's used profilattically. 100mg is not a lot either. The statin is not a big deal either, since it's not to be taken continually and the results should manifest after a few months..
The FZ you can buy on line, and it's used in such small quantities, there's no SE to speak of...
Considering what the SE of years of conventional treatments do to our bodies, taking a small health risk, in order to be cured is fine with me...a no brainer considering the alternative....
I suggest you print the clinical trial results conducted by MD Lisanti on doxycycline, that should take care of that, for the statin use the COC protocol posted by Simone this morning, and tell the doctor that a few month’s later she was NED from stage 4...
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infusions? What infusions?,my impression was infusions supposed to be shortlasting- a month or two here and there. Frisky , simone's news are great. I would not attribute them to COC though as she was on a standard medication and started COC just recently. Now you with your vivid food descriptions - I have not eaten since Sunday morning apart from a few slices of fruit and a couple of spoons of yogurt yesterday lunch because they were refusing to let me go after GA ( port insertion) until I eaten something
Risotto with mushrooms sounds heavenly, I will add it to the list of suitable food.
Edited to add - those are exactly the reasons why I went with COC, Frisky. These are widely used drugs with minimal side effects. Whoever prescribes us other drugs can keep an eye on interactions with these ones or there is Google in the worst case. Husband , may be they would participate more if I needed them - I never contacted them , too lazy.
I will start taking propranolol which should address adrenaline (and may be other stuff, I don't remember) - will check interactions. I reckon it should be good for me as I am quite fiery; I can physically feel my blood stumping in my ears instantly when something gets to me. Dipiridamole and hydroxyquinine agreed prescription; would need to think when I am taking them and check interactions- may be after vitC with artemisinin finished - will check with complementary therapy doctor again.
Had all kind of weird and wonderful tests done - intestinal microbiome , vitamin levels , lots of some enzyme levels. Have not yet discussed the results with a complementary therapy doctor that asked for them but they are quite an interesting reading; I could figure out certain things myself out of them. If anybody interested in what can be analysed I can PM them to you - or may be Geneva health has a list on their website with what they test.
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Well I finally got my stubborn wife to finally start taking FenBen. Too late I'm afraid. Her Oncologist suspended all chemo, he fears progression in the body and in the brain. She lost 30 lb's in one month, she shakes, sleeps all day and has mental problems (short term stuff like remembering what day it is, etc). She's to have a PET and a brain MRI within the next 30 days. My wife is not in good shape.
My daughter believes my wife is so skinny because she hasn't been eating, plain and simple. She's not been interested in food for the last 2 months and after the brain surgery and WBR. Her brother, a detective, says he's seen plenty of druggies look the same. Maybe, just maybe, it's just because she not eating and not the ravages of TNBC.
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anotherone, i choose to believe that the COC had something to do with getting Simone to NED, as I believe that you too will experience NED soon, but what exactly caused the NED we'll never know for certain...
What we know for certain is what the conventional medications are capable of..and what I know for sure, from talking to my previous 3 mos, is that they will NEVER tell a stage 4 patient that they'll survive more than five years, never mind be cured with letrozole and ibrance, those results just do exist otherwise they would be well publicized....
if you're so pessimistic, why are you on the protocol? Do you feel it's not working for you?
Jane got quick results once she learned how to block all the pathways, but we're all different, so don't give up, and enjoy some clean carbs once in a while, nothing like a Nutella sandwich to wipe out those doubts anddark clouds...
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Mike, I will think of you and your wife. Can not say "pray" as I am not religious. Good that you can start fenben now - you have nothing to lose. Good luck with getting food into your wife, of course if one did not eat for 2 months one would be out of this world even without cancer but cancer may have been the reason she has not eaten - I don't know much, I just know it is complicated . Sending you good wishes xx
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Mike your wife is suffering from cachexia, it's a serious condition. I have gotten over my cachexia twice after I lost 40 pounds after radiation therapy, by using an over the counter product called D-ribose. Look it up on amazon....I hope it's not too late...so sorry to hear her situation has deteriorated further, I wish you the best outcome..
FZ has to be taken with fatty foods..
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yeah , I guess once in a while is ok:)
I am not pessimistic , Frisky. I believe it does help to a degree, I am not sure which degree. May be for some people 100%, others 1%. Keeping in mind that all other treatment modalities help to a degree as well it may be no worse than anything that is in the standard of care. And as you rightly say COC thing has so ridiculously low side effects comparing with other modalities it is a no brainer
. As you can see from my quest I even added quite a few other meds so I do believe in this stuff. I almost delayed conventional treatment to test all complementary stuff but chickened out - I thought if something bad happens out of it I will never forgive myself. Chris Woolams the cancer knowledgeable person advised to do active treatment ( killing phase) after about 9 months of COC protocol ( starving phase) which tell me that there is an opinion that for it to kick in properly one needs quite a few months. Mind , I did not have any progression in 2 months that I was on complementary stuff exclusively and my cancer used to be G3, fast so that may be already an information in itself.0 -
Frisky, you seem an incredible fighter - getting over cachexia , twice and having 4 years under your belt with MBC, not the easiest type and not the luckiest response to treatments is amazing. Wishing you good luck for MO appointment, what is going to be discussed on it?
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Mike, I'm sorry to hear the news about your wife. I know that naturists also recommend a lot of vitamin B to overcome cachexia ... I hope she improves and then she can give FZ a chance. Love and thoughts to you0 -
Snooky, are you ok?
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It looks as if you have lots to celebrate already...and I’ve noticed you’re on Herceptin which is the only medication that actually does something good...
glad you are doing the traditional treatments, I see those as the killers of the cancer cells that the COC starves and weakens.
One thing should be obvious by now, cancer is unpredictable, thus no matter how illustrious a doctor's reputation is, I can assure you that he's been wrong probably 80% of the time....it just too painful to a doctor's ego to recognize that fact, especially for Mo's with the high death rates. They too have to survive psychologically....if they have any humanity left
Keep up your protocol and follow your guts and the information that makes sense to you...it will work out in the end, and in my case, if it doesn't, no one will be able to say that I didn't try....but today I'm celebrating Simone's victory over the disease.
On Friday, I will have to convince my mo, without hurting his feelings, that I'm not ready for Y90...not going to be easy...it's a very lucrative procedure....
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I have a feeling that she is going to see your point and offer may be something else or wait till next set of tests pretty quickly.
Yes , snookey disappeared - I remember in one of her last posts she was saying about being tired with treatment ..
Re trying- that's what I am saying to myself.
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Frisky, thanks for the information on D-ribose, I just ordered some from Amazon. If anything it makes me feel like I'm doing something. I just can't sit back and watch my poor wife waste away without trying something. How fast did it work? Any serious SE's?
MikeW.
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Follow the instructions on the package...D-ribose is a natural sugar the body makes that greatly increases appetite....it also lowers blood pressure, so, you might want to use a blood pressure machine before and after to see how the d-ribose affects her.
If her BP is low, make sure that there's enough salt in whatever she eats. Otherwise, give her olives and other prepared foods that are salty on the side, after she has had a regular meal.
All you have to do is add the proper amount of the d-ribose in things like yoghurt, tea or lemonade.
It should work quickly, but don’t give up if it doesn’t, just keep on following the instructions on the package and checking her BP...it worked for me and I couldn’t put anything in my mouth...I had zero appetite
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Mike - I remembered reading quite some time ago about creatine for cachexia. I searched again and found this article: https://www.cancertreatmentsresearch.com/creatine-counteracts-cachexia-and-supports-methylglyoxal/. Might be worth considering. I wish you and your wife the best!
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For Sonia and all others that are not stage IV, I'm so glad you are able to stay. I would have started a new thread for us had the approval not happened. I have never felt offended by someone who was less than stage IV. I feel we all live with this disease, no matter what stage we are and NONE of us wants to be here.
Mike, sending all my love, prayers, good juju, and all things good for your wife, you and your family. Please keep us updated.
So can I assume one can do this COC protocol, without going through them? You just need a doctor to prescribe the medicines? I'm going to run it by my MO and give him the link to the website. I just hate that we have to try whatever and just hope that it works!
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I am going to cross post this in the Jane McElland thread..b/c that is also talk of the COC protocol right since they use the mebedazole?
I was wondering if anyone knows if the FenBen/Medben works well on rapidly dividing cells...Grade 3 cancers specifically? I realize that the fenben is mostly for targeting cancer stem cells but last night Jeff (from Joes page) and I were emailing and he mentioned that he is not sure how it works on Grade 3's or if it even does? Apparently his wife's BC is not liver mets and she is grade 2.
Any info/thoughts would be great.
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Nicole, when I took FZ for 2 full weeks I had a regrowth of my neuropathy (about 3 months I had finished with taxol). That made me think that FZ works as well as taxol. To me, that is a proof that FZ attacks rapidly dividing cells as Taxol does. It's just my experience of course
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Hello dear friends, I just typed a whole page and it "poofed" on me. I don't have the energy to retype. I've missed a lot in a week...so I'll need a few days to catch up.
One thing that I did see....SIMONE I can't say how terribly happy that I am for you! Your news really has warmed me heart.
I'll be back in a few days once this confusion in my brain clears.
God Bless everyone, and lots of HUGS
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thanks Sonia I'll take that as positive info .
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Snooky, glad to hear about you. I hope your new drug is working for you, sorry about your SEs ... You're very loved here.
Nicole, I am sure that an article was published somewhere about the fact that FZ blocks cancer cells microtubules and manages to starve them to death ... (it is the same mechanism by which it kills parasites too) I cannot find the link, but yes, FZ definitely kills fast-growing cells with less SE than taxanes.
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Hi everyone, I’m spending some time with bffs this week in co. I plan to eat and drink whatever I want. It has been awhile since I drank anything alcoholic so I should be a cheap drunk. I’ll get back to being good when I get home.
Anyways, I hope you don’t mind me chiming in. I just skimmed the posts.
Another one, I don’t know if the COC protocol helped put me into to NED. I would like to think it did. I know you spoke to Chris and he said it takes 8 months to weaken the cancer. But maybe that was for your situation? You haven’t started standard treatment yet. Just the fact you’re cancer hasn’t grown in 2 months without any chemo is amazing results. I have been taking I/L for 8 months. So in my mind the standard treatment has been weakening/killing cancer and the COC is helping cleanup what is left over.
For those of you on COC. They have an email you can send questions to. It should be listed in the follow up email they sent you from your meeting with the MO. I found them very responsive. You can also schedule a meeting with a nurse prior to your meeting with the COC MO but they wait is about a month.
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I have my COC consult after work today
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Hey All,
As a compromise, we started a new forum, Stage IV/Metastatic Breast Cancer, Open to All To Contribute and have moved this amazing Topic over. We are trying to respect all members and set rules, and feel this is a good solution. It becomes too confusing when some of the topics in the Stage IV forum are open to non-stage IV members, and some are not.
See you all over there.
Warmly,
The Mods
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Thanks Mods! That’s a brilliant solution! XXXOOO gratefully yours....🇮🇹🇮🇹🇮🇹❤️❤️❤️😎😎
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Simone have a wonderful time living a more normal and relaxed life, and enjoy your drink...
I miss my daily glass of Prosecco, the Cosmopolitans and dry martinis on weekends...now alcohol makes me very sick....
It didn't help that I worked on Sex and the City for couple years, there was always quite a bit of partying going on those sets....those were the days, when this cat could party.....
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