Ringworm drug for dogs (Fenbendazole) might also cure cancer
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I have been using CBD. Nuleaf brand. The most reliably sound one I could find online. Once I got high on it - I could not believe it , was yappy and did not want to sleep and had a dry mouth and had a peaceful and deep conversation with a now ex partner laying in bed while he still lived with me. I was very surprised when I realised the effect it had. I was watching the dosage since 😁. If someone has an opinion on this brand or will be welcome.
Cheers all in a new place by the way. When are the next scans, Frisky?
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Husband: Could you send me the link of the artemisinin facebook group? I grow artemisa annua at home, I didn't know there was a group. Do they have good results published there?
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Hello all my friends, I've really missed being on the thread talking and sharing with all of you! As you know, I started zeloda in August. I'm into my second cycle now. I'm having a lot of physical /mental systoms….from Zeloda? I don't know. I have a lot of serious financial issues right now. And these damn headaches! I know headaches can be caused from anything but my OCD has gone to brain mets, of course. I canceled the last two MRI"S . I decided to be a grown up and told him to schedule the MRI again... I would be there.
I saw my oNC for the first time since starting zeloda. I had labs which I scheduled wrong. You're suppose to have them during your week off! Inside, I had mine today on day 9 of my Zeloda cycle. My ONC was frankly amazed, he said they were good. Very good he said. I also told him that although he wrote the Zeloda script for 3000 per day, (1500am and 1500 pm) I am only taking 2000 per day. ( explained the difficulty of obtaining the meds due to insurance issues. Surprisingly, he was fine with that. He did say NO LOWER. He also was against 7on, 7off. So it was a good visit.
So it helps to know that the systems I've been experiencing are probably not from the Zeloda, just my old nemesis, stress and panic issues. That I know how to handle and with Frisky's encouragement I've been taking Ashwagandha.. That's a great herbal med. itt really does help. I have a lot of questions but enough about me!
I"ve read all the pages that I've missed and frankly, lol, I know nothing about the OCD protocol. So I'm playing catch up. I'm still taking the FZ, Vit E and curcumin from Joe's protocol, although I took a two week break.
I been wanting to share that there is a poll on Joe's Fb page asking you to check what type of cancer do you have. BC comes in second with 300+. I don't see many of them posting but then again,, I've stayed off that thread for about ten days it was depressing me too much. I've been feeling better for the last two days so it looks like the dark cloud is lifting. Praise God
I wish all of you on you're various protocols so much good success! Once, my brain fog clears I'll be back in the game with you.
I think of all of you daily. So much love and well wishes for you all
Oh, Joe did post a few days ago that after scans he is THIRTY MONTHS NED. He really is such a special person.
Well the nights about over for me,
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Oh I had to add: due to insurance mix-up, I had to buy my first cycle Zeloda, the ONC's pharmacist sold me 84 pill for HIS price---$240.
When Medicaid stepped in and purchased the second cycle the same 84 pills cost $4,373. !!!!!!!
Unbelieveable , the mark-up
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Its called
Artemisinin & cancer help info
https://www.facebook.com/groups/996420527154034/?r...
I'm just starting to read the posts. Not a lot going on there.
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thank you for an update, Snooky. Sending you strength vibes.
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Dear All, I think I have something to say about CBD. I have a very good gut feeling about it. Our story is... my wife, when she was diagnosed never could get her chemo (docetaxel) because of low neutrophil counts, we always had to postpone it for days and were very stressed (not to say how much were we stressed because of the diagnosis). After 5 months of suffering and going back and forth from the hospital we have decided to try it, and started a week before 8th chemo. Then we came for the chemo, did blood work and when went in for MO's consultation, her first sentence was "did you really give your blood today"? We were in shock like "what's wrong!?". And she said "well, so strange, for the first time, all parameters are perfect"... that could not have been a coincidence! She looked at us with a smile, already knowing we were using something but did not ask. Since then, my wife has never skipped a chemo (next 11 very harsh chemos!) or had it postponed. Morover... she's NED in her liver, which was the only site of metastases for her... NED for past 1.5 years, although liver was full of scattered 5 mm metastases and doctors were very pessimistic. I have a feeling CBD has to do a lot of with all of this... A LOT OF! That is why I was so interested in Joe's protocol... we already used curcumin constantly, then CBD, so if we wanted we had to add only FenBen with VitE, things that are already in my drawer... I have a very good CBD supplier, actually I know them - they are very serious scientists who know what they do, and yes, they say (said 2 years ago when I first met them), that CBD inhibit metastases. I know even names of their clients... many of them are oncologists with cancer...
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tx for info, salius .
Wishing you good days with wife not clouded by cancer too much
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Great info Saulius, thank you for sharing!
I used cbd from different sources during my chemo and it worked for nausea, appetite etc, but then I stopped taking it ... very expensive! I think I will use it again, your results are very encouraging.
Husband: thanks for the Artemisinin group info. I already requested to join the group. Heard marvels about Artemisia Annua
Snooky: think about you... ❤
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Yndorian1, for me these results are also encouraging but they got even more encouraging when I found Joe's site and protocol. My jaw dropped when I have discovered that we have used 2-3 components of the same protocol even without knowing about it, I mean Joe's and our stories were happening in parallel almost at the same time, that is why it was so exciting. For sure, I don't deny chemotherapy and Her2+ targeted therapy. Also dendritic cell vaccine and cytokine induced killers (CIK) that we use, might have helped. We do everything, simply everything to heal. We even went for mastectomy and radiation on our own will and risk. I believe in a cure in MBC based on quite much evidence. I am sure the main tactics is to lower and keep tumor load as much as possible by any means, especially for younger people. All or nothing. This ,,let's wait and see, it is a marathon, not short distance, etc" tactics is not right, I am absolutely sure. With MBC first steps should be as aggressive as possible, to push people to NED, and then exploit all possible tactics to keep them in NED for as long as possible, to restore immune system, and then in many years your body will win over this disease, I am sure. Having tumors in your body and waiting - what sense does that make? We were lucky with our first MO, who was like ,,I believe in you, I believe in your healing, let's make everything we can to achieve it". And yes, CBD/CBDA is expensive (we use ~100-150 mg/day) but if it works (well, there has long been scientific proof they do but now more is coming, yay Frisky!) I am okay to pay for them... after all, who am I without my family?
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Yndorian1, for me these results are also encouraging but they got even more encouraging when I found Joe's site and protocol. My jaw dropped when I have discovered that we have used 2-3 components of the same protocol even without knowing about it, I mean Joe's and our stories were happening in parallel almost at the same time, that is why it was so exciting. For sure, I don't deny chemotherapy and Her2+ targeted therapy. Also dendritic cell vaccine and cytokine induced killers (CIK) that we use, might have helped. We do everything, simply everything to heal. We even went for mastectomy and radiation on our own will and risk. I believe in a cure in MBC based on quite much evidence. I am sure the main tactics is to lower and keep tumor load as much as possible by any means, especially for younger people. All or nothing. This ,,let's wait and see, it is a marathon, not short distance, etc" tactics is not right, I am absolutely sure. With MBC first steps should be as aggressive as possible, to push people to NED, and then exploit all possible tactics to keep them in NED for as long as possible, to restore immune system, and then in many years your body will win over this disease, I am sure. Having tumors in your body and waiting - what sense does that make? We were lucky with our first MO, who was like ,,I believe in you, I believe in your healing, let's make everything we can to achieve it". And yes, CBD/CBDA is expensive (we use ~100-150 mg/day) but if it works (well, there has long been scientific proof they do but now more is coming, yay Frisky!) I am okay to pay for them... after all, who am I without my family? Saulius
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Saulius,
Such a beautiful picture of you and your family! And so happy that you are having successes with healing. I totally agree with you about simply waiting for more to happen without lowering the tumor load! Makes sense to me.
Continued success for your wife.
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Great news Saulius, congratulations to you and your wife! What a beautiful family you have!
There's no doubt now that adding CBD oil is imperative for a successful outcome! And if it’s that useful, than paying for it it’s a no brainer, considering how much everything else costs
Please share the source of your CBD oil supplier? Hopefully, they can ship to everyone....
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Dear all, I don't want to advertise anything here, as I believe that in every country there are great and descent producers that are willing to implement and share good practices. We buy CBD/CBDA from https://www.satimed.eu/ for one reason - they are local here in Lithuania and I could go to them and get a consultation (which was pretty professional, and it was for free), they also have real scientists working for them in their labs. They export to all the world, they have sales offices here in Lithuania and in London (http://satimed.co.uk/), I believe also in US (https://satimedusa.com/). And thank you to all for best wishes, we'll do everything to beat this... for you, for the world, for our son...
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Saulius, your family is adorable. I'm sure you will win this battle 👪 ❤❤
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getting my infusion....almost done...how's everyone doing?
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Hi Frisky! What Italian delight are you planning to eat post infusion today?
I just came back from my 15/33 rads. My skin is very well ... today I saw my MO and she asked me: do you go every day? LOL would think I'm lying to her and I'm not doing my rads ...
Waiting news from your MO... ❤
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I am ingesting my 2nd slew of pills of the day. This is my routine, some SPECIFIC to TNBC so YMMV...
am: metformin, E, Pentoxifylline
noon w food: supplements (curcumin, ubiquinol, quercetin, egcg, rose hip, selenium, B6, D3, Calicium D Glucarate, luteolin, Alpha Lipoic Acid, Indol 3 Carbinol, berberine, sea buckthorn, Omega 3 -- from deep sea nordic wild caught fish, reishi mushroom, baby aspirin, ursolic acid , C, Feverfew, Resveratrol, Astragalus)
after dinner: supplements, as above
bedtime: metformin, pentoxyiylline, magnesium citrate, ashwaganda, melatonin. Will likely add CBD here.
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OMG Santabarbarian, where do you put all that? 😱
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hey Sonia, so happy your skin is holding up with the rads...it should be over soon right? I just reread your post...you are at 15 of 33...what?? Why so many sessions? It seems a lot of rads to me...but what do I know...no treats today...I gained 4 pounds in 3 weeks on French brioches..will be .drinking lemonade for a while...
I'm back home now, had quite a dispute with MO about EVERYTHING, he agreed that I should meet IR after pet scan, but he wanted me to have another one in 2 weeks...I've had 2 pet scans at a distance of 1 month already....so I said, no way! I'll do the pet scan 3 months from the last one and only if approved by my insurance company....
on the other hand I had a delightful time during the infusion talking to a caring nurse about our writing process and difficulties....
But now that I'm home resting on my bed, in my favorite position, I'm glad it's over, the weekend is upon us....and I won't have to deal with cancer care for the next three weeks....
Santa, that's a very disciplined and beautiful menu you have going there...I don't see how anything as mean as cancer can survive in that healthy and joyous atmosphere. It reminds me to organize my supplements better as well....I tend to alternate or jump to the next thing, which is not very wise.
t would be so much easier to schedule all the medications and supplements appropriately and not think about what I have taken when....
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I couldn't resist...my BF is in the Galapagos and sent me this photo...the seals are sleeping on lounge chairs!! I guess they're tired of being looked at by tourists on the beaches....and needed a little privacy!
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Looking at the clinical trial set up by COC, it does not appear they alternate the doxycycline with the mebendazole.
Subjects will take the following treatments and have their data collected from their medical records every 3 months.
- Oral atorvastatin up to 80mg uid, for study duration.
- Oral metformin up to 1000mg uid, increased to bid if tolerated after 2 weeks, for study duration.
- Oral doxycycline 100mg uid, for study duration.
- Oral Mebendazole 100mg uid, for study duration.
https://clinicaltrials.gov/ct2/show/NCT02201381
They run them both at the same time. Or is the trial description lacking that essential detail?
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Has anyone heard of interaction of CBD oil and Ibrance or just that CBD has grapefruit in it? I went to this website to check out some...and look what they say on there site about if you are not allowed to have grapefruit....
https://www.lazarusnaturals.com/shop/capsules/cbd-...
I asked the guy that Joe buys it from and he never heard of that? I emailed that company but haven't heard back yet.
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I"m cracking up! Today is Friday... they know it LOL
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maybe Anotherone can clarify the question about the rotation between doxy and the anti-parasitic medication.
JFL is consulting and will be able to shed some light as well...
Simone was very clear about the rotation.....
Edited: I just checked today's lab and all the TM are lower...SLIGHTLY! I'm not saying the situation has improved...but it has arrested progression and that's good....
BUT we're not supposed to trust TM right??
I'm happy to be working on the problem from every angle....
I’m starting to believe that cancer therapies are like the stock market, since our prospects can change on a dime.
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Nicole: Sorry if it's a silly question but do you have a chance to get what Rick Simpson manufactures? I get a bottle once, it is a very good cbd ... and they advise you very well, since it has different ratios, he has to be aware of what you need to know ...
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I found this on a website that sells a high quality vegan non goo etc... CBD...
CBD can have an interaction with certain drugs in a manner that is similar to grapefruit. Research has shown that certain compounds in grapefruit can interact with many common pharmaceutical drugs by inhibiting cytochrome P450 enzymes, a family of liver enzymes that metabolizes these drugs. However, CBD can also inhibit these enzymes when consumed at high enough dosages.
We always recommend checking with your physician before starting a new dietary supplement program. Any instructions you may have received from a medical professional regarding grapefruit should be treated with the same level of care when it comes to CBD products.
I wonder if this really happens? This would not pertain to those of you not on Ibrance I guess but for those that are.... My main concern with the COC and Joes protocol is my liver enzymes.
Anyone have any thoughts?
here is their website
https://www.lazarusnaturals.com/cbd-info#toggle-id...
Sonia, I didn't check Rick's but I did check Joes.
*****Edited to add in Randy's reply (the guy that Joe buys from*****
If you are concerned with interactions
Look up Epidiolex
The recently approved Rx product that contains CBD
It does Not list the enzyme induced by grapefruit
Epidiolex is FDA approved
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Rick Simpson oil is VERY high THC and a shit-ton is consumed. You have 1 G a day of the THC/CBD combo (which is a lot of weed) and is psychoactive. You will mostly sleep on that kind of dosing. You need to consume that kind of dosing for 30 straight days I believe. There are a lot of people pretending to have RS oil but he does not sell it commercially. Make sure to see labs on any purported RS oil. I couln't find a commercial source and I live in Ca!
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Oh, I didn't know. Mine said "Rick Simpson recipe" I guess I assumed the manufacturing was legitimate... I never smoked weed so I have no idea how it feels psychoactive ... I didn't feel anything weird but it helped me with the chemo body aches and appetite. I was also a little more sleepy but not much.
I will look for another source...
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Rick Simpson's approved web presence is I believe called "Phoenix Tears" Someone could make a recipe per his instructions.
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