Ringworm drug for dogs (Fenbendazole) might also cure cancer
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Simone, we got rain, plenty of it and still raining. We live 6 miles down a dirt road, mostly clay, up here in the mountains, my vehicle is a mess. We went to Moab, 6 hour drive for us.
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Thanks Goldie I am feeling better today. You look great there!!!!
So for those of you doing the COC and doing chemo/supplements/off labels...can you please take a look at my post in the Jane Thread to see if you might have some info for me? I do not want to hijack this thread
Thanks
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Dear Goldie, thanks, I'll keep fingers crossed for you on Monday... You look really cool in the photo!
Nicole, I think you have to minimize (avoid?) antioxidants while on Xeloda but there are not many in your list (like ALA) on another thread. But you still have some time to take them till your liver recovers more after surgeries before you start Xeloda.
Saulius
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Thanks Saulius!
Yes I will take the ALA now until I start December 2nd. Then I will only take the ALA B12 & B6 on the week off of chemo.0 -
Nichole, wanted to apologize. I have not been keeping up on these threads. I use my computer, not my iPhone and I knocked my computer use way back to see if headaches would stop. Which they did but now they are coming back. sigh
I wanted to comment on your pictures with your gorgeous husband. They were excellent. Hope you had a grand time. Also, just read about your troubles with surgery (not surgery, you called it something else). You've really been through the ringer these last few weeks, I really feel for you. (bye the way, you don't look old enough to have an adult child) Hope your stomach issues are clearing up.
No anti oxidants on Zeloda? Oh no I need to go thru my list of supplements and see which are and which aren't.
I stopped FZ a month ago, process of elimination. Don't think FZ was causing dizziness, headaches, blurry vision. Long distance vision going bad. (that's a surprise, I had cataracts surgery three years ago and my vision for time in about 50yrs, I was 20/20 again. It was magical)
I am restarting FZ since I don't think that's an issue.
Went to eye doc last Fri. and don't know if this has been mentioned. I have extremely dry eyes. That's what causing the blurriness. He gave me sample drops. If they don't work, he wants me to take a prescription med.
Husband, VERY happy for your wife's recent scan results. Praise God.
I am going back to painting. Layed down my brushes 5 yrs ago,(long story) and I miss it so bad. My creative side, it's like part of me is missing. I know this Is dangerous for potential HFS, but what the hey, I'll wear gloves a mask whatever it takes. For whomever is curious, I'm an oil painter on canvas and boards. Last night I started arranging/setting up my studio. It was so exciting.
Wow, I'm chatty Kathy this morning.
Hope everyone has a good Friday.
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Hi Snooky,
So glad to see you posting. I used to paint years ago, in my 20s, mostly acrylics. Now that I'm retired I thought about picking it up again. Sounds like you have a nice space to paint in. What type\ style of art do you paint? What does HIS stand for?
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Just sayin' (again): that I was put on so, so many antioxidants DURING chemo by a MO who specializes in Integrative Oncology... had a fabulous outcome.... so, I think the standard advice against antioxidants is wrong.
For accurate guidance, consult an expert in BOTH oncology AND supplements. I find it so frustrating to witness this "it hasn't been proved in a double blind clinical trial" negative advice. My hometown MO (not the integrative MO) raised the same "objections" to antioxidants-- which are not proved, but theoretical -- but I decided to favor the advice of the person who has been recommending antioxidants for 30 years with excellent stats.
Why guess about this?? Anyone who wants to pay for a consult can have Dr Keith Block on speed dial. My consult was $1800. Best money I've spent in my life.
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Snooky, I have dry eyes too. SE of Xeloda. Use drops, preservative free. This is the one I have. And there is a gel you can put in your eyes at bedtime, both by Refresh and both preservative free.
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I have dry eyes too...it's the drying effect of chemotherapy...my hands are dry too..
I agree with Santabarbarian....without the complimentary medications that I've been taking since diagnosis I would have died a long time ago...they remedy the terrible problems that conventional treatments cause...
I don't know about you, but my cancer medications arrive with the danger nuclear symbols and warnings on their containers, the nurses at MSK don an additional uniform on top of what they typically wear, they use thick plastic gloves and masks when they are handling Doxil...meanwhile this so called medicine is being dripped in my blood....and we're worried about the effects of anti-oxidants on our TXs? Hummm....each one of us should, of course, do what we deem best...
The reason they discourage the use of all complimentary medicine is because they are utterly ignorant of what they are what they do...and let's face it, who is going to spend millions of dollars and years of clinical trials to prove that Phosphatidyl Serine is safe in reversing Chemobrain? Isn't much better to have compliant patients whose brains are fried and don't ask any embarrassing questions?
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Snooky thank you for the compliments
So sorry you are not feeling well with headaches again..ughh that stinks!!I have dry eyes too but had that before cancer I use Systelene moisture drops.
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simone , I think it stands for Hands and Feet Syndrome , side effect of xeloda.
What Santa and Frisky say makes perfect sense...
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Hello everyone! I've been on this site for over a year now getting good advice but today was a terrible day. I was originally diagnosed in Feb 2018 tnbc and did the standard tnbc treatments even xeloda and 5 treatments in a keytruda trial but today my petscan showed mets to lung, liver and bones. I started fenben tonight and other supplements Joe took because we knew the mri last week showed mets to bones. Monday they're scheduling me for a lung biopsy. They think this might be lung cancer instead of tnbc mets. I have it everywhere. Please, any advice on fenben and liver or in general would be very much appreciated. I'm devastated but following here, I know it's a great place to deal with this. Thank you, GraceMO
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Grace, sorry to hear about your progression and current worries. Why do the doctors suspect you may have lung cancer rather than lung mets from TNBC? I hope your next treatment, along with the fenben, beat back all of the nasty cancer cells.
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Grace, I'm so sorry to read about your progression, I hope FZ makes a difference to your predicament. We honestly haven't seen any signs YET that the whole FZ protocol is making a big difference. What I mean is that no one, like Joe, has stopped taking medications and going in and out of hospitals. Many are adding other off-labels meds as prescribed by the COC.
....I'm getting a pet scan in early dec, six months after the start of FZ, that will shed some light on my situation....According to my TM I shouldn't expect anything major, I would be happy with some stability.Since we are all different, and undergoing various TX what works for a patient might not work for another...I hope FZ works for you! Keep us posted
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Such a weird monster this is, I have never and still don't, have pain, yet my TM's jump every 6 weeks, and lately it's a lot. I will get my results on labs later this morning. I don't want to even look tho! I have never been told I was stable or NED.
Thanks to all the kind words about my picture. I'll remove it in a few days.
Niclole, I believe you have the constipation issue resolved? If not, I wanted to mention a tea, Smooth Move, that is supposed to be good.
I'm heading out tomorrow to Phoenix, 4 hour drive. Nuclear bone scan Monday and MO on Tuesday.
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Goldie...yes TM are as weird of a measure as is everything else about this disease...I wish you the best of luck with the results of the scans...no pains and no major fatigue is close to hitting the jackpot to me...
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Goldie I have heard of smooth move thank you I may get that just so it would be nice to have something hot to drink and help with constipation. I did go thanks to miralax (was doing twice a day but yesterday just did once) and eating some prunes during day and 4 oz of prune juice I know...they are high in sugar but i do not have a choice right now... I NEED IT. I literally wake up every day praying to feel the urge to go...its kind of sad.
Goldie BEST WISHES for good scans. I kind of envy you even having tumor markers that move..mine have never moved and have been normal since day one so it doesn't ever indicate things for me.
Grace..I am sorry for what you are going through. How scared you must feel. I don't know your story its not in your profile (how long you have stage 4 etc...) I can tell you people with liver mets do take fenben and when their levels rise they take milk thistle to help and so far, from the people I spoke to, it helps but again not everyone has liver mets or high liver numbers to begin with. I know the dose is low and safe so I personally would try it if I were you.
Breast cancer is turning out to be the worst cancer beast there is ...if you ask me. like Take Osephageal cancer sorry if that is spelled wrong..lol its fueled by glucose...so avoid sugar at all costs will be a major impact. Breast Cancer though...initially if you are say hormone positive you stop estrogen it helps..a little and sometimes NOT AT ALL..(like with me, or for a few months then not at all) so then it uses glucose, or fatty acids...breast cancer from what I have researched so far changes to a different pathway much faster. Even the low GI diet doesn't necessarily work positively for people with breast cancer because some loose too much wight and are not even healthy...some (like me) have inflammation even on healthy foods like green smoothies...its just crazy.
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Frisky, I am very grateful for no pain or fatigue, 5 yrs stage IV. The thing that scares me about that the most is that when my time does come, it is going to be a long painful journey, similar to what Patty went through or Lita, or will it be quick, like Z or Wendy?
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Thank you for responding everybody. I'll go back and get my profile to come up. I was diagnosed in the last 2 weeks as stage iv. I'm doing good today but its overwhelming how many spots showed up in my petscan. They think it might be a different cancer instead of tnbc because I've been on treatment for triple that ended in June/July and they think it looks like lung cancer possibly that has gone undetected because there's so much mets. The tumor board couldn't believe triple would spread this fast but I had a nasty tumor.
I started the fz because others saw good results and also because they take a while to get treatment going. I'll watch the liver numbers and take the thistle. Thank you for that. I knew triple was bad and I had residual after my mastectomy. I'm so happy for those without pain. This is hard but you all give me inspiration to fight the fight and I'm thankful for you.
Goldie, I was in AZ this summer. I love it out there. We flew into Vegas and I did the Zion Narrows, Horseshoe Bend and Sedona/Fladstaff. Loved it!
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Grace, glad you enjoyed AZ. We like Moab, it's Sedona on steroids!
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I need to see it then. I loved your picture!
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Goldie, you don’t have the lobular type like I do, therefore it’s less likely to sneak up on you....oncologists know very little about ILC and although it’s quite different they treat it as if it’s DCIS... with much horrific surprises toward the end...
Sometime I wonder, considering how little knowledge they really have, how much of what ends up happening to us is not suggestion....so let’s us stay as strong and active as we can, and let’s hope that sooner or later there will be a light at the end of tunnel.
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GraceMO adding you and Goldie to my HIPL--High Intensity Prayer List. Prayers GraceMO you determine what's going on and a good treatment plan and Goldie for good scans.
Separately has anyone here heard anything about DCA--Dichloroacetate sodium? Someone on my Repurposed Drugs Facebook group posted this today:
His case was melanoma. . but he credited IV C therapy and DCA with his recovery. . looks like the DCA can be an oral or IV treatment, but works against several types of cancers: breast, lung, brain etc. Here is a clinic in Canada doing the treatment:
https://medicorcancer.com/dca-dichloroacetate-frequently-asked-questions/
Medicor Cancer Centres was the first cancer clinic in North America to begin prescribing DCA "off label" to cancer patients (in April 2007) under the full supervision of a medical team. We consulted with the relevant regulatory bodies in Canada and have been following their guidelines and policies.
In 2007 it was discovered that the drug DCA (dichloroacetate sodium) induced the death of human breast, lung and brain cancer cells that were implanted into rats, while being non-toxic to healthy cells. This research was published in Cancer Cell, 11, 37–51, January 2007. DCA has been found to kill cancer cells by a newly discovered mechanism that appears to be common to several types of cancer. DCA works by turning on the natural cell suicide system (called apoptosis) which is suppressed in cancerous cells, thus allowing them to die on their own.
It can have some side effects. . but it looks like a very promising treatment.
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mysticalcity,
Had not heard of this one, but just did some quick research and it looks like it's been studied off and on for breast cancer along with metformin, tamoxifen, and other drugs. This looks like it may be another one that's difficult for those of us with liver mets -- a couple of things I saw talked about that.
Thanks for the information.
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Well, nothing good with TM's, jumped 150. I'll be back sometime after I get home on Tuesday.
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Sorry to hear that Goldie. So when would your onc decide to switch treatment plan? Would it be based solely on scans?
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Sobering facts and statistics
TED Talks: What's Wrong With What We Eat
https://flipboard.com/@news/ted-talks-what-s-wrong-with-what-we-eat-h5t3uqrd1vkk9vjj
Goldie, sorry to read about the rising TM, But, we also know—by their own admission—that they are unreliable...I guess.... like everything else they put us through...
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Dear All, I am sorry, I did not want to say that antioxidants are bad in our situation, and I completely agree with you guys that most of their benefits outweigh cancer cell repair (which is not very much proven anyway). I have been working on and refining the list of supplements we take, which will be quite conservative in the beginning, here's what I think:
Strategy 1:
1.Curcumin + black pepper/ginger + drop of coconut oil, boiled every morning (we have been doing this for past 2.5 years EVERY DAY).
2.Green Tea (every morning).
3.Reishi, Shiitake, Maitake (200x200x200 mg/d).
4.Alpha-Lipoic-Acid (ALA): 100 mg/ d.
5.Balance Oil (Fish oil = Omega3+VitD), 10 ml/d.
6.Pomi-T (1 capsule/d).
7.Cordyceps Sinensis (1x2400 mg/d).
8.Zn, 80-120 mg/d (determined by blood counts).9.CBD/CBDA. 160 mg/d.
Strategy 2:
1.Metformin, 500 mg/d.
2.Aspirin, 100 mg/d.We'll be rotating on a two month basis like this:
Month1: Strategy 1.
Month2: Strategy1 + Strategy 2.
We have already started strategy 1 since 1/Nov/2019. If you have anything to add or comment, I'd be very thankful!
In the meantime my Sandra had her visceral organ MRI this morning, so time is ticking, waiting for results. Surprisingly... I am
Sincerely, Saulius
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Dear All, I am sorry, I did not want to say that antioxidants are bad in our situation, and I completely agree with you guys that most of their benefits outweigh cancer cell repair (which is not very much proven anyway). I have been working on and refining the list of supplements we take, which will be quite conservative in the beginning, here's what I think:
Strategy 1:
1.Curcumin + black pepper/ginger + drop of coconut oil, boiled every morning (we have been doing this for past 2.5 years EVERY DAY).
2.Green Tea (every morning).
3.Reishi, Shiitake, Maitake (200x200x200 mg/d).
4.Alpha-Lipoic-Acid (ALA): 100 mg/ d.
5.Balance Oil (Fish oil = Omega3+VitD), 10 ml/d.
6.Pomi-T (1 capsule/d).
7.Cordyceps Sinensis (1x2400 mg/d).
8.Zn, 80-120 mg/d (determined by blood counts).9.CBD/CBDA. 160 mg/d.
Strategy 2:
1.Metformin, 500 mg/d.
2.Aspirin, 100 mg/d.We'll be rotating on a two month basis like this:
Month1: Strategy 1.
Month2: Strategy1 + Strategy 2.
We have already started strategy 1 since 1/Nov/2019. If you have anything to add or comment, I'd be very thankful!
In the meantime my Sandra had her visceral organ MRI this morning, so time is ticking, waiting for results. Surprisingly... I am quite calm today, although heart is trembling a bit:/
Sincerely, Saulius0 -
Thank you Saulius for sharing your wife's protocol. It looks great to me....
May you receive only wonderful results from the recent scan! Much love!
I think Doxil has stopped working....on Saturday night I attended a great Friendsgiving party. Contrary to my expectations, the company—an International group of very smart people— turned out to be so excellent and stimulating, I end up staying all the way into one am. I felt like my old self again...
The large variety of foods were basically healthy, and I drank only couple glasses of wine....and a little dessert....
Well...this morning I was sore all over, painful lactic acid was being released throughout my body. My skin was hot to the touch, massive headache, and I suffered terribly...like I used to suffer before....overnight I went from being pain free to widespread lactic acid...and inflammation...
Worst yet, the acute pain under my left breast in my rib cage returned in full force....
So, I want to prepare myself for what's next....JFL what would be your choice at this juncture? What should I ask for that has the minimum SE and doesn't need frequent visits to the hospital? thank you...I wish I had better news...
Oh...And Happy Thanksgiving to you all!
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