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AIs - trading one problem for another
Please let me know if I am understanding this correctly. I am at low risk for recurrence. 7% risk of recurrence in 10 years with AIs, and 14% without. That means I have an 86% chance of NOT having a recurrence without AIs. If this means that out of 100 women, 86 will NOT have a recurrence without AIs, then 86 women will…
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Osteoporosis
This is my first post here. I was diagnosed on 7/22 with left side IDC, E+P-HER2- and I'm having a lumpectomy next Wednesday 8/28. No genetic markers for cancer. I've had an MRI, the Savi Scout placed yesterday, the sentinel node injection next Tuesday. This morning I had a Dexascan and my surgeon called this afternoon and…
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Post Lumpectomy Pain
Hi, Please be gentle 😉this is my first post. I had a lumpectomy on 7/31/2024 (almost three weeks ago). I didn't have much pain immediately after the surgery, but I have gotten what I've been told is nerve-ending pain. I've been to the surgeon and I get it; it's gonna take time for the nerves to heal. I take gabapentin for…
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Concerns about microcalcification cluster ignored by doctors for over a year
Hi there, I'm roughly 18 months out from my original diagnosis of IDC Grade 1, Stage (Onco 9) and have some concerns. My initial biopsy was for a group of microcalcifications (turned out benign) and architechtural distortion (maligant). However, during this initial the biopsy, the radiologist found a second set of…
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How often do you think about recurrence?
Hi all, I'm just wondering how much you think or don't think about recurrence. We are all different, and we have different chances of recurrence, but I wonder if you think about it. I was diagnosed in February. DMX in March, currently on Tamoxifen for five years. Taking a daily pill is a great way to think about the…
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AWAITING SECOND OPINION
Is there a cancer hiding somewhere in this moderate to highly dense Fibroglandular breast tissue of mine? From Sydney, Australia HISTORY: Age: 36yo Menstruating since 11yo Endometriosis - surgery in 2022. 2 children - 10yo and 5yo Recurrent mastitis infections since the birth of first child. Spontaneous and recurrent…
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Tamoxifen is making me feel awful AND I'm at the angry stage
It took me a while to get here, I was diagnosed on 2/11 - and BMX on 3/13. Low Onco Type, so taking Tamoxifen for 5 years. I am 30 days into Tamoxifen, and it's making me feel awful. Tired, moody, LOTS of nausea and brain fog. The Tomaxifen is harder than the mastectomy recovery. In the mornings I sometimes feel like I…
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Help regarding kisqali medication
I have an aunt suffering from breast cancer, which discovered recently , the doctor prescribed her a medicine called kisqali, the problem is the price of this medicine is very high, about 3000 dollars here in Morocco , and the financial situation of the family is very difficult, my question is Are there associations that…
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Tamoxifen and Ovary Pain
Hi all, I am 52 next month, premenopausal, and on Tamoxifen. I have been on it for about 2 months. For the last 2 weeks, I've had off-and-on ovarian pain. Last week, it coincided with my cycle. Yesterday it started up again. It's. Sharp pain in left ovary. I used to get cysts a lot. I think this is also a cyst and may be…
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Finishing Anastrozole (7yrs) and considering breast reduction on non-Lumpectomy side
Hi everyone. I am finally going to be finished with Anastrozole (with my Oncologist's agreement after Breast Cancer Index test) this October. Here's my 1st question to the women who stopped taking the med after 5, 7, or 10 years: Did you feel or see any difference, in what way and how long did it take to be noticeable? Did…
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Did your doctor talk about your Ki67 %
Hello - I have IDC Stage 2 (++-), and I am one week out from my bilateral mastectomy. My lymph Node pathology reports were posted online, and from what I can read, there is no cancer in my lymph nodes. However, my Ki67% - was reported at 43%. so I have a Ki67: 43%. Is that bad? Did your doctor put much stock into your Ki67…
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Did you get a 2nd Opinion regarding Oncology Report?
Hello, My onctype report should be back this week, and I am scheduled to meet with an Oncologist. I am just wondering if people get second opinions on oncology and the steps taken after mastectomy or lumpectomy.
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Reoccurrence after 26 years
Hello to the community. I was only 43 at first diagnosis, IDC, Stage 1, Lumpectomy and radiation. At that time I was not given any medication because my doctor felt it would put me into early menopause and risk of uterine cancer. I am 69 and Recently diagnosed with IDC Stage 1, 3 spots in same breast. I have only met with…
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Drains out today - started to cry
Double Mastectomy was on March 13th. My drains were removed today, and saline was injected into the expanders. All is going well with recovery from surgery. When my husband and I left the office and walked to the elevator, I started crying. Tears of joy, tears of exhaustion. When I was first diagnosed and met with my…
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BMX with DIEP Flap reconstruction at later date question
Unfortunately I’ve had a decent wait for surgery because I decided to do the BMX with DIEP flap reconstruction. So we have come to the conclusion I’m going to have to do it separately because they just can’t do it all at once in a reasonable time period. has anyone been flat and still was successful with the DIEP flap…
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I am lost and scared that my next option is chemo. Emotional Yo-Yo and I have chemo PTSD
Hi there i just need to vent my fears. Not even 2 years with MBC and i am about to quit all treatments. Emotional Yo-Yo takes tall. Back in 2016 chemos were rough but i was going for the win. But this time around is different. There is no end of treatment and there is no win per se. I am lost and scared that my next option…
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Magtrace?
Has anyone here had a magtrace done instead of sentinel lymph node biopsy? I'm scheduled for bilateral mx at the end of this month. They're doing the slnb on my left, since that side has invasive cancer, but on the right where they've found only DCIS the doctor has mentioned doing a magtrace instead. She says this will…
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Medicaid Application/Renewal Survivorship Anxiety
I am a 39-year-old cancer survivor, and due to my BRCA mutation, extensive family history, and the fact that my cancer was triple negative, my oncologist has me under observation for the foreseeable future. I originally lived in Wisconsin, but moved to Texas in early 2019. I was transferred from the Wisconsin Well Woman…
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Triple Positive IDC > No neoadjuvant chemotherapy offered??
Hi Everyone, I wanted to explain my situation and hoping anyone in the same situation could answer my questions.. SUPER stressed ! 🙄 I was diagnosed in September 2023 with Triple Positive IDC, ER+ 90%, PR+ 50%, and HER2+ (3+). So Anatomic stage 2B.. Now here is the deal… the biopsy and initial tests showed a mass of…
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Just got Pathology report, Invasive Ductal Carcinoma, looking for others with similar diagnosis
Hello friends, I just found out earlier today via a Pathology report that my biopsy came back as Invasive Ductal Carcinoma. My tumour is approx 4cm wide, and it seems like I also have abnormal axillary lymph node. These are my results and I am trying to understand them before I go in and speak with the Surgeon on Friday:…
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TNBC for my Birthday! Scared and Confused.
I've been searching everywhere to find a peer to peer group, to maybe find someone who has been diagnosed with my same form of breast cancer as I figure out what treatment path to take. I was diagnosed with TNBC on September 18th. I have since been on a whirlwind ride of getting doctors to respond etc. Here are my details:…
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Occipital neuralgia (maybe)?
I was just recently diagnosed with IDC (grade 3 breast mass, also found in lymph node biopsy grade 2). I see a surgeon in two days. Over the past 3 weeks or so, I've had an on-and-off sharp, stabbing pain up the back right side of my head. It started while I was getting over a head cold, which was a slow process… lymph…
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BRCA2 mutation, IDC and lumpectomy and sentinel node
I found out that I had IDC and then through genetic testing, found out I have the BRCA2 mutation. After research and multiple discussions with surgeon and oncologist, I have decided to have lumpectomy and sentinel node biopsy at this time. Now waiting for pathology report and will do every 6 month surveillance. Have others…
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Newly diagnosed HR- HER2+ with questions
Hi everyone - I was just diagnosed with HR-/HER2+ IDC/ILC, and have been reading up in these forums, seeking wisdom from people who have already been thru this. I have a couple questions I haven't been able to find answers for: 1. Is permanent chemo-brain inevitable (eg from TCHP or AC-THP)? Some of the discussion forums…
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Just Diagnosed IDC - Grade 2
I was just diagnosed on Thursday 6/22/23 with IDC Grade 2. I have an initial appointment with a breast surgeon this week but haven't seen my films or pathology report yet. Have filled out forms to get copies. Trying to only deal with the information I have right now and not worry about other things that are unknown at this…
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Scared and Worried
I have just been diagnosed with an Invasive Ductal Carcinoma which resulted in also being a Triple Negative Breast Cancer. I will be seeing my oncologist for the first time on Monday. Not sure what to expect, the information out there seems to be a little scary. Any thoughts with the same problem as me. Thanks.
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Possible Recurrence
I was diagnosed with Stage 1 IDC and high grade DCIS in August of 2022. I had a lumpectomy to remove both spots in September and additional surgery to get clear margins on the DCIS in October. I had 4 weeks of radiation and I am taking Letrozole since the IDC was estrogen positive. I had my first mammogram this week and…
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Invasive ductal carcinoma AND Brca-2 gene mutation
I was scheduled for a lumpectomy next Friday for my ER/PR + and HR- breast cancer but today the genetic counselor called me with some devastating news and that is I have the BRCA-2 gene mutation. I haven’t spoken to the surgeon yet but I’m assuming I will have to have a double mastectomy and I have been crying we unite a…
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Ear pressure on TCHP
Hi everyone! I’m a lurker on this group and am so thankful for all of the help I’ve gotten as I go through treatment. Did anyone have ear pressure issues on chemo? I’ve had what feels like clogged ears for the past month nonstop and it’s driving me nuts. 🤣😩 I can still hear fine, nothing sounds muffled, it’s just pressure…
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IDC Grade 3
Hi everyone, I’m new and just beginning this journey. Had a callback from mammogram, and then biopsy after. Got pathology report today and it’s IDC, Grade 3. Mass is 6.5mm. The report says lymph nodes not identified but is that because they haven’t checked yet? Will I find out more on that later? I have to call an…