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All TopicsForum: Acknowledging and honoring our Community → Topic: Light from around the world for LongTermSurvivor/Stephanie

Topic: Light from around the world for LongTermSurvivor/Stephanie

Forum: Acknowledging and honoring our Community — Share accomplishments, milestones, goals of community members, family members or yourself. Just finished treatment? Just got married? Watched your child graduate? Ran a big run? Been a huge help to members in our community? Let's honor our members here!

Posted on: Mar 31, 2016 10:57AM - edited Mar 31, 2016 11:22AM by farmerlucy

farmerlucy wrote:

Remember President Bush's Point of Light initiative? That is what Stephanie has been for many of us on these boards. Let's shine the light for her by way of greetings and love from around the world.

http://www.cmt.com/videos/randy-travis/35896/point...


Dx at 51 after a preventive mx that wasn't. Oncotype dx 3. 3D tattoos from Vinnie! PTSD?? You are not alone! Surgery 2/21/2012 Prophylactic mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 2/24/2012, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (FISH) Surgery 3/11/2012 Lymph node removal: Sentinel Surgery 7/22/2012 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 4/10/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 4/14/2015 Prophylactic ovary removal
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Nov 21, 2016 10:30PM Tomboy wrote:

What a beautiful light you were, Stephanie.

"I will sit right down, waiting for the gift of sound & vision" David Bowie, Rest in pax, my beloved changeling... Dx 6/8/2012, IDC, Right, 1cm, Stage IIIC, Grade 3, 25/30 nodes, ER+/PR+, HER2+
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Nov 21, 2016 11:05PM Bestbird wrote:

Thank you, dearest Stephanie, for all you have done. Now it is your turn to rest.

Stephanie, you truly held us in your arms, and we will forever hold you in our hearts.

Dx 10/6/2011, IDC, Left, Stage IV, ER+/PR+, HER2-
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Nov 22, 2016 05:42AM Wicked wrote:

Thank you for posting that, Katty.

Taking early retirement from having boobs! Dx 5/2016, LCIS, Both breasts Surgery 7/26/2016 Lumpectomy: Left, Right Dx 8/9/2016, ILC, Left, <1cm, Stage IA, 0/5 nodes, ER+/PR+, HER2- Surgery 11/15/2016 Lymph node removal: Sentinel; Mastectomy: Left, Right
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Nov 22, 2016 04:42PM AnimalCrackers wrote:

Yes Kattysmith thank you for posting Stephanie's speech. What a blessing to have known her through this forum.

Cathy, diagnosed Stage IV de novo June 2014 (age 52). Bone mets at initial diagnosis (2014). Progression to Liver April 2017. Bisphosphonate infusions (Zometa) every 3 months. Clinical Trial 5/18/17 LSZ102 (oral SERD) and Kisqali (Ribociclib). Dx 6/23/2014, IDC, Left, 4cm, Stage IV, metastasized to bone, mets, ER+/PR+, HER2- Hormonal Therapy 6/23/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/5/2016 Femara (letrozole) Targeted Therapy 1/5/2016 Ibrance (palbociclib) Dx 4/2017, IDC, metastasized to liver, ER+/PR+, HER2- Hormonal Therapy 5/18/2017 Targeted Therapy 5/18/2017
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Nov 22, 2016 08:35PM KDs-Husband wrote:

Forever grateful to have crossed paths with you, Dear Stephanie. You have taught me so much about living and dying. Love and Light for Eternity,

Louis

"There are two ways to face the future: One is with apprehension, The other is with anticipation." ~ Jim Rohn ~ Just so you know, I choose anticipation. Dx 2/2016, IDC, Left, Stage IV, metastasized to bone/liver, ER+/PR+, HER2- Chemotherapy 3/13/2016 AC Chemotherapy 6/26/2016 Taxol (paclitaxel) Chemotherapy 4/3/2017 Halaven (eribulin) Radiation Therapy External: Bone
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Jan 14, 2017 09:54AM Mominator wrote:

I wanted to pass this along to all of Stephanie's friends:

Stephanie's Memorial

Posted by Melody Sugars on

Stephanie's dear friend Angela, a member of her Circle of Care, has reserved a space at Summerfield Waldorf School, west of Santa Rosa, for Saturday, April 22, 2017 for her Memorial. The serendipity of that being Earth Day can't go unnoticed.

Please save the date if you would like to attend. More details will follow as the time nears. Thank you.

https://www.mylifeline.org/StephanieSugars/updates/update/1519942


Mominator, BRCA2+, STK-11 VUS, wife, mom to 3 children of various special needs, musician, volunteer, 55 yrs young. My Mom dx DCIS at age 62, ILC stage IIIA at age 79. My Grandmother died of ovarian cancer at age 48. Friend to Lori M, died 5/25/16. Surgery 11/11/2015 Prophylactic mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 1/18/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Jan 14, 2017 10:01AM ruthbru wrote:

Thanks, Mominator. It's hard to believe that she is gone.

"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-
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Jan 14, 2017 10:17PM MinusTwo wrote:

Thank you Mominator. Missing her terribly.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Jan 15, 2017 04:58PM AnimalCrackers wrote:

Thank you Mominator.

Cathy, diagnosed Stage IV de novo June 2014 (age 52). Bone mets at initial diagnosis (2014). Progression to Liver April 2017. Bisphosphonate infusions (Zometa) every 3 months. Clinical Trial 5/18/17 LSZ102 (oral SERD) and Kisqali (Ribociclib). Dx 6/23/2014, IDC, Left, 4cm, Stage IV, metastasized to bone, mets, ER+/PR+, HER2- Hormonal Therapy 6/23/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/5/2016 Femara (letrozole) Targeted Therapy 1/5/2016 Ibrance (palbociclib) Dx 4/2017, IDC, metastasized to liver, ER+/PR+, HER2- Hormonal Therapy 5/18/2017 Targeted Therapy 5/18/2017
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Jan 24, 2017 01:57PM LuvMyFam wrote:

Stephanie, missing your incredibly informative and insightful posts and blog entries. Missing your strength and acceptance. I am at peace knowing that you have passed over the eternal light where you will be met by angels and loved for all eternity.

Eric

5/2013 - Added lymphedema to the mix..... Dx 3/20/2012, IDC, 2cm, Stage IIIC, Grade 2, 16/28 nodes, ER+/PR+, HER2- Dx 3/20/2012, IDC, Left, 3cm, Stage IIIC, Grade 3, ER-/PR-, HER2+ (FISH) Targeted Therapy 7/13/2012 Herceptin (trastuzumab) Chemotherapy 7/13/2012 Taxol (paclitaxel) Chemotherapy 10/5/2012 CEF Surgery 1/10/2013 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left, Right Dx 2/28/2016, IDC, Left, 3cm, Stage IV, metastasized to liver, 16/28 nodes, ER+/PR+, HER2- Hormonal Therapy 3/11/2016 Zoladex (goserelin) Hormonal Therapy 3/19/2016 Femara (letrozole) Targeted Therapy 8/16/2016 Ibrance (palbociclib)
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Jan 27, 2017 12:53PM RonnieKay wrote:

Though your body was weak, your voice was strong. Thank you, Stephanie, for your wisdom in living fully and preparing for when life on earth is finished. May you be whole again & your spirit and words forever comfort all! You were inspiring

Dx 6/1/2009, IDC, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER+/PR+, HER2+ Surgery 6/22/2009 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 8/9/2009 Breast Hormonal Therapy 1/5/2010 Femara (letrozole) Dx 6/9/2011, IDC, <1cm, Grade 1, 0/2 nodes, ER+/PR+, HER2+ Surgery 6/29/2011 Lymph node removal: Left; Mastectomy: Left; Reconstruction (left): Tissue expander placement Surgery 6/27/2012 Prophylactic mastectomy: Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Dx 12/21/2012, IDC, 6cm+, Stage IV, 0/0 nodes, mets, ER+/PR+, HER2+
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Feb 9, 2017 11:52AM fleur-de-lis wrote:

this woman was a wise elder, and a true sage. May she Rest In Peace and continue her journey as an guardian angel on the other side.

She reached out to me regarding some alternative modalities when she was very ill...always wanting to help another thru her own experience and inner knowledge. The path she followed during her years spent battling BC is nothing short of legendary. I do hope that, someday, someone will chronicle her journey as a living testament to all of those who suffer from this disease. She was a living miracle, a very special soul.She will live on thru others in which she touched with her compassion and generosity.

High Risk due to family history, BRCA1+2 neg., P53 and PTEN neg., Phyllodes Tumor 2009, ALH 2010, Hemioanginonoma 2016, Second Phyllodes Tumor with ILC 2016.
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Feb 9, 2017 03:54PM Mominator wrote:

Dear fleur-de-lis:

You were hoping that "someone will chronicle her journey as a living testament to all of those who suffer from this disease." Actually, Stephanie did chronicle her journey.

You will find a lot of information on her personal blog:

https://www.mylifeline.org/StephanieSugars/

And there's much more information, including a collection of her writings on this page.  

https://www.mylifeline.org/StephanieSugars/learninglinks

About a month before she died, a collage came by to take boxes of her writings for their feminist collection. I don't remember the name of the college, but I will keep looking for you. Or perhaps someone remembers the name of the college.

Mominator, BRCA2+, STK-11 VUS, wife, mom to 3 children of various special needs, musician, volunteer, 55 yrs young. My Mom dx DCIS at age 62, ILC stage IIIA at age 79. My Grandmother died of ovarian cancer at age 48. Friend to Lori M, died 5/25/16. Surgery 11/11/2015 Prophylactic mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 1/18/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Feb 9, 2017 05:15PM lekker wrote:

Mominator- I had to search but I found Stephanie's post where she mentioned the organization that came to collect her papers. Here it is...

Three weeks ago, I turned over nine banker boxes of my private and published writing to the Gay and Lesbian History Project of the SF Bay Area. Getting it together for its departure was a huge undertaking, as it meant sorting through 40+ years of my personal and public past. It also meant letting go of many items (journals) that I will likely never see or touch or read again. It was like giving my shadow self up for adoption. Whew!

Colorectal carcinoma in situ January 2000 (age 30), and now this... Dx 7/2012, ILC, Right, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 8/6/2012 Lumpectomy: Right Surgery 10/3/2012 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 3/12/2013 Reconstruction (left); Reconstruction (right) Surgery 4/11/2013 Prophylactic ovary removal
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Feb 9, 2017 08:11PM Mominator wrote:

thanks, lekker, for finding that.

I remember how poignant that line "It also meant letting go of many items (journals) that I will likely never see or touch or read again." Stephanie was always thinking of ways to help others.

Mominator, BRCA2+, STK-11 VUS, wife, mom to 3 children of various special needs, musician, volunteer, 55 yrs young. My Mom dx DCIS at age 62, ILC stage IIIA at age 79. My Grandmother died of ovarian cancer at age 48. Friend to Lori M, died 5/25/16. Surgery 11/11/2015 Prophylactic mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 1/18/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Feb 9, 2017 11:44PM zarovka wrote:

Hey Stephanie! Thinking of you! Inspired by you.

>Z<

PM me if you would like to join a BCO Stage IV FitBit Community. Dx 12/28/2015, IDC, Left, 4cm, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 1/17/2016 Femara (letrozole) Targeted Therapy 2/2/2016 Ibrance (palbociclib)
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Feb 16, 2017 08:37PM Mominator wrote:

I received an update from Stephanie's blog:

We want to let you know about a conference about dying and death that was very close to Stephanie’s heart. She herself participated in and organized similar conferences and was very active in The Christian Community and a founding member of The Sacred Threshold Guild, both of which are co-sponsoring this conference. Many of Stephanie’s close friends who were with her during and after her death are helping to organize this conference and keeping her in their hearts as they do it.

The Threshold of Life and Death: Bringing Death Home

Friday, March 10, from 7 pm to 9 pm and Saturday, March 11, from 1 pm to 5 pm

Summerfield Waldorf School & Farm, Sophia Hall,

655 Willowside Road, Santa Rosa, CA

Gain a spiritual understanding and anthroposophical perspective of what is involved in this sacred time. Caring for those we love during and after death can be simple, thoughtful and deeply meaningful. It is one of the ways we can heal ourselves and our community.

a conference co-sponsored by

The Christian Community in Santa Rosa and The Sacred Threshold Guild

There are more details on Stephanie's blog.

https://www.mylifeline.org/StephanieSugars/updates/update/1520866

---------------------------------------------------------------------------------------------------------------

How wonderful that Stephanie is still teaching us, through her friends, after her death.


Mominator, BRCA2+, STK-11 VUS, wife, mom to 3 children of various special needs, musician, volunteer, 55 yrs young. My Mom dx DCIS at age 62, ILC stage IIIA at age 79. My Grandmother died of ovarian cancer at age 48. Friend to Lori M, died 5/25/16. Surgery 11/11/2015 Prophylactic mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 1/18/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Feb 16, 2017 11:51PM ruthbru wrote:

That is wonderful. Thanks for posting it, Mominator!

"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-
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Mar 16, 2017 11:21AM Mominator wrote:

I received another update from Stephanie's blog:

=====================================

Stephanie's Memorial - Saturday, April 22, 2017
Posted by Elinor Biller on

Dear Friends,

Below is the Eventbrite link for Stephanie's Memorial on April 22nd. Please click on it to RSVP. Also you can see below the entire invitation to the memorial which you can print out as a remembrance of Stephanie.

We hope that all of you will be able to come and participate in this special day.

Please don’t forget to RSVP by April 10th and to bring a dish if you are staying for the potluck.

Love to all,

Angela, Meg, Melody and Liz (Memorial Committee)

https://www.eventbrite.com/e/stephanie-sugars-memorial-celebration-tickets-32612969269

Mominator, BRCA2+, STK-11 VUS, wife, mom to 3 children of various special needs, musician, volunteer, 55 yrs young. My Mom dx DCIS at age 62, ILC stage IIIA at age 79. My Grandmother died of ovarian cancer at age 48. Friend to Lori M, died 5/25/16. Surgery 11/11/2015 Prophylactic mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 1/18/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Mar 22, 2017 09:52PM Mominator wrote:

Here's the latest update from Stephanie's blog:

=====================================

Remembrances and Photos for Memorial

Posted by Melody Sugars on

Dear Friends of Stephanie,

Hopefully you can attend Stephanie’s memorial but, if not, you can be present and remember her by sending a story, letter, card, or remembrance that we’ll make available for memorial guests to read. Please send by April 14, to either Liz Larew at etl655@sonic.net. For those attending please feel free to also send items for display.

And, if you have one or two photos of Stephanie you would like included in the slide show please send to her brother Dan at dsugars@comcast.net or his address at 614B Mormon St., Folsom, CA 95630. Please write your first and last name on the back of the “hard” copies and he will return them to you at the memorial. Depending on the response, Dan may not be able to include all the photos he receives but he will do his best to include at least one of yours. Photos need to be received by him by April 8, 2017.

Thank you,

Memorial Planning Committee (Angela, Liz, Meg, and Melody)

www.mylifeline.org/StephanieSu...


Mominator, BRCA2+, STK-11 VUS, wife, mom to 3 children of various special needs, musician, volunteer, 55 yrs young. My Mom dx DCIS at age 62, ILC stage IIIA at age 79. My Grandmother died of ovarian cancer at age 48. Friend to Lori M, died 5/25/16. Surgery 11/11/2015 Prophylactic mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 1/18/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Mar 22, 2017 10:00PM ruthbru wrote:

I'm sure it will be a wonderful memoral!

"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-
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Apr 10, 2017 02:38PM Patrice2924 wrote:

wow your story is amazing you inspire me too keep fighting 😘😘

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