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Topic: My Husband, My Life, My Love, My Family, My Cancer

Forum: Stage IV/Metastatic Breast Cancer, Open to All To Contribute —

Topics here are started by members with a Stage IV/Metastatic Breast Cancer diagnosis, but open to all members to contribute to discussions. Please note that there is a separate forum, Stage IV/Metastatic Breast Cancer ONLY, where topics are open only to those members.

Posted on: Jul 6, 2017 08:38PM - edited Oct 28, 2019 12:42PM by Micmel

Micmel wrote:

As I go through this forced path I have been thrown down, I have come to realize the love I have always had for my husband was strong. He is amazing and I love him with my very soul and entire heart. Never would I ever imagine the thought of dying and him being alone. Then the worst part hit me!! I can't seem to shake the horrible sorrow of thinking of another woman taking my place in his life and his heart, and if I Am honest his bed. He is my best friend and the love of my life, I would never need another for any reason. He makes my life complete, and then this happens. How do I process that I most likely won't be the one growing old on the porch that we have talked about, how do I process, someone else sitting in that chair? I hate this trajectory path I've been spun onto, and everyday I feel grief and deep sorrow. How do I live everyday knowing in the back of my mind, I feel like a place holder, for another woman who will be stepping into my life when I die of this horrible disease, more sooner than later. Why would I even want to take any medicines or treatments, when the answer is pretty obviously in front of my face.? Why do we fight so hard for something we cannot control ? Why do we hurt so badly thinking about letting go, or giving up? It's a four letter word that holds so much power. That word is LOVE..... If you have ever felt this way. Share with me, because I understand, I feel this way everyday. I also don't know what to do with the sadness of loss or how to process the process of dying. However slow or fast it may be. Please share your love stories with me, how did you meet? How long together? I want to know your stories, everyone has their person. Everyone loves.....tell me about your family, your friends, your life too, as if this was your living room. ♥️

We are team FU cancer (Named by Parry, our sweet sister) and this is our Lol pub and living room. Welcome, put your feet up and just be you!

Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Hormonal Therapy Arimidex (anastrozole) Surgery Chemotherapy Chemotherapy
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Jan 13, 2020 07:58PM Frisky wrote:

Mae....so sorry to hear your story...I hope it all gets strengthened out quickly so you can concentrate on your health....this level of stress and cruelty exceeds all expectations...

May you get only excellent results from the operation.


“Things are not always what they seem; the first appearance deceives many; the intelligence of a few perceives what has been carefully hidden.” Phaedrus Dx 3/9/2015, ILC, Left, Stage IV, metastasized to bone/liver, ER+/PR+, HER2- Hormonal Therapy 3/14/2015 Femara (letrozole) Targeted Therapy 3/9/2017 Ibrance (palbociclib) Hormonal Therapy 3/9/2017 Faslodex (fulvestrant) Surgery 4/4/2017 Radiation Therapy 4/9/2017 External: Bone Hormonal Therapy 1/4/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy 2/9/2018 Afinitor (everolimus) Chemotherapy 6/1/2018 Xeloda (capecitabine) Chemotherapy 7/19/2019 Doxil (doxorubicin) Chemotherapy 12/14/2019 Navelbine (vinorelbine)
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Jan 13, 2020 08:29PM Chicagoan wrote:

Mae-That just sucks that you had to deal with all that insurance BS on top of everything else. Glad you were your persistent self and at least got the form. Unbelievable to be treated that way after all your years of hard work!

Hope all goes well next week with your craniatomy.

Dx 9/21/2016, IDC, Left, Stage IV, metastasized to bone, Grade 1, ER+/PR+, HER2- Radiation Therapy 9/26/2016 Hormonal Therapy 10/5/2016 Femara (letrozole) Targeted Therapy 10/26/2016 Ibrance (palbociclib)
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Jan 13, 2020 08:47PM Tanya_Djamila wrote:

Hello all,

Mara those words of wisdom and experience that you send to Mae were so comforting.
Mae I hope all goes well with your surgery. I get so stressed over insurance stuff. It’s kind of like the last straw kind of thing. I hope they get it all sorted out for you pronto.

Waving hello to all.

Tanya

Tanya Dx 8/19/2003, ILC, Right, 6cm+, Stage IIIA, metastasized to bone/other, 28/28 nodes, ER+, HER2+ (IHC) Dx 4/19/2017, Stage IV, metastasized to bone/other, 0/0 nodes, ER+, HER2+ (IHC) Hormonal Therapy 6/20/2017 Faslodex (fulvestrant)
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Jan 13, 2020 10:05PM DodgersGirl wrote:

Illimae— OMG. Hate that you encountered the insurance crap today. I can only imagine how awful that news was to hear. Hoping that is all worked out ASAP.

Surgery next week. Will be praying for you and know that we are all here, if you need us.

Maybe we should move Micmel’s living room to your hospital room so you will know how much you mean to us. Kick butt and tell cancer to f—- off and leave you alone.

Wish there were words I could write that would make it all go away for you and all of us. The best I can do is be in your pocket and send you virtual hugs.

Dx 3/10/2017, IDC: Mucinous, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Surgery 9/11/2017 Mastectomy: Right Dx 12/2019, IDC, Right, Stage IV, metastasized to bone Hormonal Therapy Arimidex (anastrozole) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy AC + T (Taxol)
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Jan 13, 2020 10:26PM Micmel wrote:

Mae~I am so sorry you had to deal with the money trap cobra,during this frustrating time. I just want your surgery over. You're a killer strong woman so I can Agree on that being in your corner! I know it's hard , but Mara has a good point with your stamina and your drive. Insurance companies suck royally and it's never about the patient , always money. Am sending hugs and support,,!!!

Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Hormonal Therapy Arimidex (anastrozole) Surgery Chemotherapy Chemotherapy
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Jan 13, 2020 11:10PM illimae wrote:

Thanks ladies 🙂

Not sure how I’m gonna handle multiple days in the hospital but at least MDA has a great breakfast. I’ll have s solid plan on Tuesday when we meet with the neurosurgeon. Until then I’ll be teetering between “I got this” and &!$@!!!!!!!

The Laughlin trip is off though, bummer.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, Stage IV, metastasized to brain Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/23/2019 External: Brain Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 13, 2020 11:10PM MJHJAN1014 wrote:

Mae, what a horrible gut punch. My heart is aching for you. Hugs....Mary jane


Dx 1/10/2014, IDC, 1cm, Stage I, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 1/29/2014 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 2/9/2014 Breast Chemotherapy 3/4/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 6/10/2016, IDC, Right, 1cm, Stage IV, metastasized to bone/liver, Grade 3, 0/1 nodes, ER+/PR+, HER2- Hormonal Therapy 11/14/2017 Faslodex (fulvestrant) Chemotherapy 3/21/2018 Xeloda (capecitabine) Dx 3/7/2019, IDC, Stage IV, metastasized to other, Grade 3, ER+/PR+, HER2- Chemotherapy 3/8/2019 Doxil (doxorubicin) Chemotherapy 8/21/2019 Taxol (paclitaxel) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole)
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Jan 13, 2020 11:40PM LoveFromPhilly wrote:

ugh Mae totally feeling your pain with you. F-ing insurance companies!!! 😤😠😡🤬

This is all seriously like criminal that anyone would do something like this to a person diagnosed with stage 4 with BRAIN METS. Like how much more bananas does it get here?

I am sorry I’m a little miffed right now - my insurance is now asking my MOs office to mail (that’s right mail) paper copies of my records. They are saying that faxing (which is the norm) is not allowed.

So the Petscan is getting pushed back another week at the least...third time needing to reschedule due to the insurance company denial. So weird! Why would they do something like this? Trying to wrap my head around it and make sense of it?

But I am doing good distracting myself and trying to enjoy every day and every moment. 💕


💫 🧚🏾‍♀️ 💫 🧚🏾‍♀️ 💫 🧚🏽‍♂️ 💫 🧚🏽‍♂️ 💫 🧚🏾‍♀️ 💫 🧚🏾‍♀️ 💫 🧚🏾‍♀️ 💫 🧚🏾‍♀️ Dx 3/25/2017, IDC, Right, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- (IHC) Hormonal Therapy 4/4/2017 Femara (letrozole) Targeted Therapy Ibrance (palbociclib)
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Jan 14, 2020 12:43AM runor wrote:

Hating this for you, Mae. Sitting glumly by your side, hoping to grab a lobster that might exit your pocket. Hugs to all.

Dx 3/23/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 7/4/2017 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 14, 2020 05:53AM SondraF wrote:

Hang tough Mae - this is a lot of scary stuff and insurance malarky to deal with first of the year, but you can do it. What a disappointment about the Laughlin trip, though, that sounded like such fun and a great break. Can you plan something else to look forward to in a few months?

Take care of yourself.

Dx 9/27/2019, IDC, Right, 5cm, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- Targeted Therapy 11/29/2019 Ibrance (palbociclib) Hormonal Therapy 11/29/2019 Femara (letrozole), Zoladex (goserelin)
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Jan 14, 2020 10:30AM Simone80 wrote:

Mea,

Sorry to hear of the insurance issues. Hang in there, I hope your surgery goes well.

Philly,

That is crazy. I've never heard of a MO having to mail in information. Enjoy your time off though.

Dx 7/2001, IDC, Right, 1cm, Stage IIIA, Grade 3, 7/13 nodes, ER+/PR+, HER2- Dx 1/2019, IDC, 1cm, Stage IV, metastasized to bone/other, ER+/PR+, HER2- (FISH) Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib)
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Jan 14, 2020 11:25AM booboo1 wrote:

Mae

We are all in your corner. Sending big love and calming thoughts. Everything will work out. I just know it...but agree that you should not have to go through this crap.

I'll be thinking of you and in your pocket on surgery day.


Laurie Dx 3/1/2013, IDC, Left, 1cm, Stage IIA, Grade 2, 1/4 nodes, ER+/PR+, HER2- (FISH) Surgery 5/15/2013 Lumpectomy: Left; Lymph node removal: Sentinel Dx 1/2017, IDC, Left, 1cm, Stage IV, metastasized to bone, Grade 2, 1/4 nodes, ER+/PR+, HER2- (FISH) Chemotherapy Xeloda (capecitabine) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole) Hormonal Therapy Faslodex (fulvestrant) Chemotherapy AC + T (Taxol) Radiation Therapy 3DCRT: Breast
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Jan 14, 2020 06:24PM Micmel wrote:

I am in a funk. I want to shop lol I got so many nice gifts that I’m obsessed with my skin regimen. My bff enrolled me into fab fit fun. I’m loving it so much talk about pampering yourself Just heavenly

Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Hormonal Therapy Arimidex (anastrozole) Surgery Chemotherapy Chemotherapy
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Jan 14, 2020 07:31PM - edited Jan 14, 2020 07:33PM by Karenfizedbo15

I thought I was alone in the skincare obsession Micmel! I've spent so long being pumped full of drugs that I'm damned if I'm going to put crap on my skin too...my husband is flummoxed by the whole thing as I'm such a no make up and outdoors person!

I actually spent yesterday afternoon at a look good feel better workshop at Maggies centre in Glasgow. Only 8 of us ( I was the only stage 4 so kept that quiet), with volunteer Beauty therapists and a free big bag of high quality skincare and cosmetics. I especially loved learning how to properly put on eyeliner and mascara and deal with the thinning brows. Plus we had such a laugh.... it's Glasgow women, so impossible not to!

Beats the usual crappy reasons we spend time on hospital campuses by a country mile!

Surgery 9/8/2007 Lymph node removal: Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Latissimus dorsi flap Dx 4/2018, IDC, Right, Stage IV, metastasized to lungs, 1/17 nodes, ER+/PR+, HER2-
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Jan 14, 2020 07:53PM - edited Jan 14, 2020 07:58PM by Micmel

Karen~I am constantly moisturizing my hands, arms, elbows, feet, face . I am always trying new skin care lotions and eye creams. Some have been sheer heaven. For my Hands. Omfg. Omfg. I'll show you. It works lovely. I am so obsessed with this especially since winter hands are here in full swing. ! I'll show you my new favorite items. Lol.


Crazy alignment. Doesn’t look like that on my phone. These are amazing products. For cracked feet and hands. I mean mine were terrible and they have helped me. So much within. A week. Love them both.

Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Hormonal Therapy Arimidex (anastrozole) Surgery Chemotherapy Chemotherapy
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Jan 14, 2020 08:03PM - edited Jan 14, 2020 08:12PM by Micmel

I also attended the look good feel good presentation. And trust me you got over $600 of prime make up. I'm so happy that you signed up for that. I loved mine and still use some of the unopened products as I cycled through them as needed. I became very good at application of make up once self taught from that class and the wonderful make up kit they have Given to us ladies! I can't rave enough over how great that program is. Everyone should go. Pampering ourselves is important. And why shouldn't we. We fight every single day. Why not have smooth ass skin and hands And look good while trying to live. It's fun to put on make up. I never was a make up gal either. But it's growing on me A light amountr of course. Not too much. But it does give you a pep. so many nice things, they provided me I was lucky enough to get two kits Because I knew the facilitator and she had an extra, Little things make big differences for sure !

Packed with Lancôme and top of the line make up. Such a wonderful program.

I've also come across hopes scarves. They send a scarf with a a story. You use the scarf until you don't need it anymore, or you send your own scarf in with your story and they send it to someone else. They ask favorite colors and etc. it's really very sweet. I had mine done and received a beautiful blue scarf. I sent my story with my scarf. They ran it. Should be more like these things.

Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Hormonal Therapy Arimidex (anastrozole) Surgery Chemotherapy Chemotherapy
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Jan 14, 2020 08:11PM Moomala wrote:

Mae Big Hug! Stupid Insurance. I look forward to seeing pics of breakfast at MDA. Gotta have something to look forward to in the situation

Oh man Mel how i wish I could use all that skin care. I'm a Cerave girl becuase I have so many allergies. I don't wear much make-up-it just all makes me break out.

Pockets Pockets! Tomorrow is MRI of my hip. Thursday is CT and Nuclear Bone Scan. I'm pretty sure I'm moving on to a new medication but I won't know for another week AND you just never know. I've been wrong before. I hate hate HATE when my MO can' t see me for a week after scans. It's barbaric when I KNOW the scan results will be in THIS Friday. Ugh.

I also have a dentist appointment and a haircut this week. Beezay!

I sent off my packet to Dana Farber today. I can't wait to go there!

Dx 3/1995, IDC, Right, 2cm, Stage IIB, Grade 1, 1/17 nodes, ER+/PR+ Dx 3/2019, IDC, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Targeted Therapy Afinitor (everolimus) Hormonal Therapy Aromasin (exemestane) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole)
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Jan 14, 2020 08:13PM Micmel wrote:

available For pocket duty!!!

Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Hormonal Therapy Arimidex (anastrozole) Surgery Chemotherapy Chemotherapy
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Jan 14, 2020 08:41PM Frisky wrote:

Reporting for pocket duty Moomala...count on me to be there bright and early!

“Things are not always what they seem; the first appearance deceives many; the intelligence of a few perceives what has been carefully hidden.” Phaedrus Dx 3/9/2015, ILC, Left, Stage IV, metastasized to bone/liver, ER+/PR+, HER2- Hormonal Therapy 3/14/2015 Femara (letrozole) Targeted Therapy 3/9/2017 Ibrance (palbociclib) Hormonal Therapy 3/9/2017 Faslodex (fulvestrant) Surgery 4/4/2017 Radiation Therapy 4/9/2017 External: Bone Hormonal Therapy 1/4/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy 2/9/2018 Afinitor (everolimus) Chemotherapy 6/1/2018 Xeloda (capecitabine) Chemotherapy 7/19/2019 Doxil (doxorubicin) Chemotherapy 12/14/2019 Navelbine (vinorelbine)
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Jan 14, 2020 09:00PM Tanya_Djamila wrote:

Moomala I’m in with gourmet miniature cupcakes-dozens of them!

Tanya

Tanya Dx 8/19/2003, ILC, Right, 6cm+, Stage IIIA, metastasized to bone/other, 28/28 nodes, ER+, HER2+ (IHC) Dx 4/19/2017, Stage IV, metastasized to bone/other, 0/0 nodes, ER+, HER2+ (IHC) Hormonal Therapy 6/20/2017 Faslodex (fulvestrant)
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Jan 14, 2020 09:21PM DodgersGirl wrote:

Moomala— reporting tonight for pocket duty tomorrow and Thursday.

Had rads and bone biopsy today so really feel worn out. Going to sleep in your pocket tonight to make sure I’m not late. Brought a thermos of hot tea for the morning

Best of luck to you on both days.

Dx 3/10/2017, IDC: Mucinous, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Surgery 9/11/2017 Mastectomy: Right Dx 12/2019, IDC, Right, Stage IV, metastasized to bone Hormonal Therapy Arimidex (anastrozole) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy AC + T (Taxol)
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Jan 14, 2020 09:25PM illimae wrote:

Me too, jumping in pockets with fudge pops! I’ll try my best not to make a mess 😋

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, Stage IV, metastasized to brain Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/23/2019 External: Brain Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 14, 2020 09:39PM Rosie24 wrote:

Mel and Karen, The look good feel better session sounds like it’s up my alley. I wear minimal makeup, often none, and wouldn’t mind some tips. There is a center in my area that may have it.

Mae, Joining everyone in pocket duty for your surgery day. That insurance mess was awful. Sounds like it started with your employer but kept on rolling?

Moomala, in for pocket duty for your tests. I totally agree on the week or more waits for results. I’m in that waiting mode now but will probably call sooner for some info. The first scan I was actually called with a very brief thumbs up message but no details. It did help, but now I have to do the asking if I’m anxious. Maybe you could give the office a call?

Philly, your insurance delays are maddening too. Have they denied other tests before? Glad you’re in a good place mentally. Keep on doing what makes you happy 😊.

Calm week (of waiting) here. DH is having a knee repair next week so I will become the support person instead of the patient next week. I definitely prefer that role.

Dx 1/23/2019, DCIS/IDC, Left, 3cm, Stage IV, metastasized to liver, Grade 3, ER+/PR-, HER2- (FISH) Targeted Therapy 1/24/2019 Ibrance (palbociclib) Hormonal Therapy 1/24/2019 Femara (letrozole) Surgery 12/4/2019 Lumpectomy: Left
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Jan 14, 2020 09:54PM LoveFromPhilly wrote:

jumping in pockets too! I would like to bring delicious popcorn with lots of butter and yummy toppings, whatever everyone prefers!!!

Rosie24 thank you for your sympathy. This is the first time I have encountered this issue. It turns out my MOs office faxed over my medical records that the insurance company requested, twice. And the insurance company is saying they never received them and now they have to send everything via regular mail (or maybe FedEx?) my MO team says this does happen all the time and has asked me to hang in there. I am doing my best! Today I did some yoga and got into the hot tub at my gym - always feels so good to me. Sleep has been difficult I think from nerves.

Mae how are you doing today? Any updates?

Mel thanks for sharing about that organization! If there's one thing for sure about the world of breast cancer is that there sure are a TON of amazing organizations out there trying to help us. I'm going to see if they are going to be in Philly!

I have been a lazy butt the rest of the day. Back is achy and I am resting on my one day off this week.

Yesterday I did a home visit for someone with stage 4 cancer. They are really having a tough time with the medications they are on. The whole family seemed like they were deers in the headlights. I am VERY grateful for the knowledge and experience I have so I can offer support and direction. 💕💕💕 we honestly cannot know what it's like unless we are going through it!

💫 🧚🏾‍♀️ 💫 🧚🏾‍♀️ 💫 🧚🏽‍♂️ 💫 🧚🏽‍♂️ 💫 🧚🏾‍♀️ 💫 🧚🏾‍♀️ 💫 🧚🏾‍♀️ 💫 🧚🏾‍♀️ Dx 3/25/2017, IDC, Right, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- (IHC) Hormonal Therapy 4/4/2017 Femara (letrozole) Targeted Therapy Ibrance (palbociclib)
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Jan 14, 2020 10:47PM mara51506 wrote:

Please be in my pocket tomorrow. Get CT scan results tomorrow.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Jan 14, 2020 10:50PM LoveFromPhilly wrote:

jumping in Mara!!! 💕💕💕

💫 🧚🏾‍♀️ 💫 🧚🏾‍♀️ 💫 🧚🏽‍♂️ 💫 🧚🏽‍♂️ 💫 🧚🏾‍♀️ 💫 🧚🏾‍♀️ 💫 🧚🏾‍♀️ 💫 🧚🏾‍♀️ Dx 3/25/2017, IDC, Right, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- (IHC) Hormonal Therapy 4/4/2017 Femara (letrozole) Targeted Therapy Ibrance (palbociclib)
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Jan 15, 2020 12:14AM illimae wrote:

I’m good, ran errands with DH today. So, the insurance drama began with my applying for disability retirement with a date of 12/31. My MO completed the form and my employer sent everything in about mid December. Before Jan 1st, I received a letter that the doctors form was incomplete and my application was pending, upon review I discovered that the 1st question on two pages weren’t answered (I assume a paper clip prevented those from being noticed. Well, I’m sure you know it’s no quick or easy task to have the MO complete these AND get it notarized. In the meantime, 12/31 rolled around and my status in the HR computer system was changed to terminated but I couldn’t be moved to the retirement group either, so that triggered cancellation of medical, despite the check for January clearing on 12/31. Ugh, just a mess. I’ve completed the cobra continuation and sent a new check, hopefully to be reinstated tomorrow. Then, I’ll have to call retirement group, BCBS and MDA to make sure we’re all on the same page. I’m telling everyone it’s a matter of life or death, and I mean it but I’m not dwelling on surgery at the moment, so silver lining I guess.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, Stage IV, metastasized to brain Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/23/2019 External: Brain Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 15, 2020 07:16AM mara51506 wrote:

Thank you LovefromPhilly. I can feel you in my pocket.

Mae, I am in your pocket both for the insurance issue and of course your surgery. Will be sending healing thoughts toward the surgery.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Jan 15, 2020 08:48AM booboo1 wrote:

Mara,

Count me in for pocket duty. And anyone else who needs it. I LOVE the support we share in Mel’s living room. There is nothing else quite like it.

So, I saw my new MO yesterday. Friends, I strongly encourage you to look until you find an MO who you click with. Yesterday was like a breath of fresh air. I talked with her for over an hour about my wish for quality of life over quantity (of days), and we discussed so many things about her treatment process. In truth, I should have done this with my last MO...would have saved me a lot of time and heartache!

Anyway, she agreed we should start Abraxane immediately to get the bone mets under control. (The whole process at Baycare is so organized.) So I will lose my hair again, but that’s ok. I am just so darn happy to have found someone who will sit and listen, who wants to collaborate with me on my care options, and someone who appears to deeply care about her patients. I am feeling blessed and really excited about my future with this new doctor.

Love to all,

Boo


Laurie Dx 3/1/2013, IDC, Left, 1cm, Stage IIA, Grade 2, 1/4 nodes, ER+/PR+, HER2- (FISH) Surgery 5/15/2013 Lumpectomy: Left; Lymph node removal: Sentinel Dx 1/2017, IDC, Left, 1cm, Stage IV, metastasized to bone, Grade 2, 1/4 nodes, ER+/PR+, HER2- (FISH) Chemotherapy Xeloda (capecitabine) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole) Hormonal Therapy Faslodex (fulvestrant) Chemotherapy AC + T (Taxol) Radiation Therapy 3DCRT: Breast
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Jan 15, 2020 10:33AM mara51506 wrote:

Thanks Laurie, I appreciate it. I am also glad you found an MO that you like. That is so important.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+

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