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Topic: My Husband, My Life, My Love, My Family, My Cancer

Forum: Stage IV/Metastatic Breast Cancer, Open to All To Contribute —

Topics here are started by members with a Stage IV/Metastatic Breast Cancer diagnosis, but open to all members to contribute to discussions. Please note that there is a separate forum, Stage IV/Metastatic Breast Cancer ONLY, where topics are open only to those members.

Posted on: Jul 6, 2017 08:38PM - edited Oct 28, 2019 12:42PM by Micmel

Micmel wrote:

As I go through this forced path I have been thrown down, I have come to realize the love I have always had for my husband was strong. He is amazing and I love him with my very soul and entire heart. Never would I ever imagine the thought of dying and him being alone. Then the worst part hit me!! I can't seem to shake the horrible sorrow of thinking of another woman taking my place in his life and his heart, and if I Am honest his bed. He is my best friend and the love of my life, I would never need another for any reason. He makes my life complete, and then this happens. How do I process that I most likely won't be the one growing old on the porch that we have talked about, how do I process, someone else sitting in that chair? I hate this trajectory path I've been spun onto, and everyday I feel grief and deep sorrow. How do I live everyday knowing in the back of my mind, I feel like a place holder, for another woman who will be stepping into my life when I die of this horrible disease, more sooner than later. Why would I even want to take any medicines or treatments, when the answer is pretty obviously in front of my face.? Why do we fight so hard for something we cannot control ? Why do we hurt so badly thinking about letting go, or giving up? It's a four letter word that holds so much power. That word is LOVE..... If you have ever felt this way. Share with me, because I understand, I feel this way everyday. I also don't know what to do with the sadness of loss or how to process the process of dying. However slow or fast it may be. Please share your love stories with me, how did you meet? How long together? I want to know your stories, everyone has their person. Everyone loves.....tell me about your family, your friends, your life too, as if this was your living room. ♥️

We are team FU cancer (Named by Parry, our sweet sister) and this is our Lol pub and living room. Welcome, put your feet up and just be you!

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Nov 22, 2020 10:36AM Tanya_Djamila wrote:

Mel sorry for the loss of your friend.

Moth thanks for all the pain info. I’ll pass it along. The opioids are making her nauseous constipated and groggy.

Nopink I gave her some MM to try.

Mae what do they come to eat? That’s an amazing herd.

Tanya

Tanya Dx 8/19/2003, ILC, Right, 6cm+, Stage IIIA, metastasized to bone/other, 28/28 nodes, ER+, HER2+ (IHC) Dx 4/19/2017, Stage IV, metastasized to bone/other, 0/0 nodes, ER+, HER2+ (IHC) Hormonal Therapy 6/20/2017 Faslodex (fulvestrant)
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Nov 22, 2020 11:52AM Micmel wrote:

Thank you Tanya. It was sudden. Life is so weird.

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Nov 22, 2020 11:57AM moth wrote:

Oh Mel, how awful to hear about this sudden death :(

Initial dx at 50. Seriously???? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: nevertellmetheodds2017.tumblr.... Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/10/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Radiation Therapy 12/10/2020 External Hormonal Therapy 12/16/2020 Femara (letrozole)
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Nov 22, 2020 12:03PM - edited Nov 22, 2020 12:04PM by moth

speaking of DNRs and DNIs, I have one but I actually keep suspending it when admitted for minor procedures. I feel it's too black & white. Like if my lung collapsed during my biopsy and I needed a short term vent, I would want it. If it's a perceived short term intervention that has a reasonable chance of success, then I'm not ready to say no, don't.. Similarly if I had an arrhythmia during some procedure and just needed a small shock to re-pace the heart....that's different than being down with a massive MI. And even with covid, not all cancer patients die, not even those admitted to ICU. I look at all those other risk factors ( I just posted an infographic on breaking research from other sources thread) and say Hmmmm, if covid strikes me, I'm suspending my DNR/DNI again because I could still fight this off

Initial dx at 50. Seriously???? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: nevertellmetheodds2017.tumblr.... Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/10/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Radiation Therapy 12/10/2020 External Hormonal Therapy 12/16/2020 Femara (letrozole)
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Nov 22, 2020 12:38PM candy-678 wrote:

Rosie- Did you have your scans Friday? When will you know results? With this week being the Holiday things get delayed.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Also using Xgeva injections for bone mets Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole), Zoladex (goserelin) Chemotherapy AC Surgery Lymph node removal: Sentinel; Mastectomy: Left
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Nov 22, 2020 03:19PM mara51506 wrote:

Well, made it back home. A lot of wet slushy snow right now so very sloppy and slippy. I found the new boots very comfortable to walk in and I felt secure. I did find my feet tired quickly due to slipping slightly backwards when walking. Where I live, I live on a side street so road and sidewalk not plowed. Talked to a few neighbours who are not enjoying this weather due to having to shovel. I got home fine, walk was kept short. If I go out tomorrow morning, may add cleats to reinforce traction as it will probably freeze up some. I really want to train my feet for all weather conditions. Done walking for today though.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Nov 22, 2020 03:35PM Rosie24 wrote:

Hi Candy, Yes I had my scans on Friday. I’m planning to call my MO’s office to get some info tomorrow afternoon. I don’t really know how quick they get results but I definitely hope to know before Thanksgiving. Thanks for asking about me!

Mel, I’m adding my sympathy for the loss of your friend. 🌺. Sudden death of a loved one is so shocking for those left to mourn.

Mae, The donkeys are cool. I hope Thanksgiving with your small group at your new place is nice.

Moth, I agree with your thinking on Dnr or dni orders. For me it would be all about my condition and quality of life potential. I don’t have either one in place at this time.

We have the solid rain today that others have mentioned, and it’s cold too. I need to move more with my stiffness and aches, but just feel like staying in today. Tried to start the new season of The Crown last night but Netflix wasn’t loading it. Hello to everyone here in Mel’s living room. 👋

Dx 1/23/2019, DCIS/IDC, Left, 3cm, Stage IV, metastasized to liver, Grade 2, ER+/PR-, HER2- (FISH) Hormonal Therapy 1/24/2019 Femara (letrozole) Targeted Therapy 1/24/2019 Ibrance (palbociclib) Surgery 12/3/2019 Lumpectomy: Left Surgery 12/3/2019 Lymph node removal: Sentinel Radiation Therapy Whole-breast
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Nov 22, 2020 03:39PM booboo1 wrote:

Moth,

The wording is important. Mine states that if there is no/little chance of recovery, then I don’t want to be kept alive by a machine. It does not allow a doctor to stop with saving my life. So there shouldn’t be any worries about going in for routine surgeries. But it is worth checking the wording in your own.

Mae,

I meant to say how cool it must be to have animals like that stroll in your yard. I am so happy for you and your DH. I can’t wait to see what else strolls in!


Laurie (aka Booboo) Dx 3/1/2013, IDC, Left, 1cm, Stage IIA, Grade 2, 1/4 nodes, ER+/PR+, HER2- (FISH) Surgery 5/14/2013 Lumpectomy: Left; Lymph node removal: Sentinel Dx 1/2017, DCIS, Left, 1cm, Stage 0, metastasized to bone/liver, Grade 2, 1/4 nodes, ER+/PR+, HER2- (FISH) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib) Chemotherapy AC + T (Taxol) Radiation Therapy 3DCRT: Breast
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Nov 22, 2020 03:56PM candy-678 wrote:

Rosie- Let us know what you find out. Yes, I hope you find out before the Holiday. In your pocket for the results.

I do not have a Living Will set up yet, so I am still a Full Code. In my thinking, I am doing well with MBC, for now. So if I would get sick from Covid, or code during a procedure, or have a car accident, I want them to do everything. Give me all the chances I can get. I am not there yet to say I am a DNR. I am not ready yet to write that.

I am feeling more upbeat today. I think it is because I have kept my mind busy. I ordered my groceries online this morning, then watched church online. This afternoon I called 2 friends and chatted. I think I do much better when I can keep my mind active. That is why I want Covid gone. I want to volunteer again, even if only 1 day a week. Be able to go to church on Sundays. I do better when I have something to do. Tomorrow will be quieter as people will be at their jobs and living their lives. I will try to keep the upbeat feeling, but it will be hard.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Also using Xgeva injections for bone mets Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole), Zoladex (goserelin) Chemotherapy AC Surgery Lymph node removal: Sentinel; Mastectomy: Left
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Nov 22, 2020 06:53PM Karenfizedbo15 wrote:

Mel another very hard few days for you and the family : friendsof your friend.

Candy and Mara you are sounding OK just now. Good to hear.

Everyone.... pause here...all we can do right now.

Surgery 9/6/2007 Lymph node removal: Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Latissimus dorsi flap Dx 4/2018, IDC, Right, Stage IV, metastasized to lungs, 1/17 nodes, ER+/PR+, HER2-
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Nov 22, 2020 07:12PM moth wrote:

I'm having one of those super anxious days. I'm feeling run down physically - is it fatigue? Is it a cold? Is it covid? Is it my mets all waking up? WHO knows but I can convince myself it's all of these plus TB and some fungal lung infection on top....

I'm worried that the lung mets were early to wake up and top responding to treatment and that my liver mets will also be growing by the next scan. Or maybe I'll have new mets somewhere else?

I'm worried that I won't be randomized to the SABR arm of the rads trial. So far none of these odds have gone my way. I should not have even got cancer in the first place if you looked at my odds and risk factors .... & why triple neg? ... and why a recurrence? Statistically it all seems so unlikely that I'm looking at my papers and going - did they test something wrong? Am I really BRCA+? Am I Ashkenazi Jewish? WHY is this happening. Why did my necrotic lung met wake up? Literally nobody expected that - my MO was quite surprised. She was also kind of depressing on my appt on Friday - or maybe I just read her that way because I was feeling crappy by then; the freezing was wearing off the lung biopsy, I was tired and hungry and just stressed from a long day alone in the medical system. She just seemed to circle back over and over again "you *need* radiation on the lung met" and I'm like yes, I know that....

& all the covid whiners are just wearing my patience. I'm all stay home and watch Netflix, how is this so hard????

so yeah, lots of crying in the bathroom here today

Initial dx at 50. Seriously???? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: nevertellmetheodds2017.tumblr.... Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/10/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Radiation Therapy 12/10/2020 External Hormonal Therapy 12/16/2020 Femara (letrozole)
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Nov 22, 2020 07:21PM BevJen wrote:

Aw, Moth, tomorrow will be another day. It sounds like you are having acute breastcanceritis today. It's inevitable for all of us in this situation.

I hope that you are feeling better tomorrow, and that some things start going your way. We can all relate to what you are saying -- just know that we are out in cyberspace giving you a big hug.

Microwave Ablations of the Liver: 7/2019; 10/2020; 12/2020 Dx 11/2003, ILC, Left, Stage IIIC, 13/18 nodes, ER+/PR+, HER2- Dx 6/2006, ILC, Stage IV, metastasized to other, ER+, HER2- Dx 5/2019, ILC, Stage IV, metastasized to liver, ER+/PR+, HER2- Surgery 7/4/2019 Targeted Therapy 7/31/2019 Ibrance (palbociclib) Immunotherapy Radiation Therapy Surgery Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Chemotherapy TAC Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Hormonal Therapy Femara (letrozole)
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Nov 22, 2020 09:13PM - edited Nov 22, 2020 09:53PM by mara51506

Moth, I am sorry for everything you are worrying about right now. Crying is unpleasant but really is a good stress reliever we all need from time to time. It does not make us necessarily feel emotionally better in the midst of the tears but after, I think for most people, it gives a calmer perspective. It always has done so for me. I still cry if I have had a bad day or gone to bed late. Those are definite triggers to cause my own anxious mind to go on a hamster wheel of obsessions to worry about. I just take as it comes, cry it out, feel the feeling and move on calmer than before the cry.

As far as the covidiots who whine about having to wear a mask and it being against their civil rights, I have one thing to say to them directly. Not my saying but is effective, Mask it or Casket.

Edited to remove the picture which I felt was a bit much.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Nov 23, 2020 12:47AM SeeQ wrote:

moth - I'm sorry you're having such a stressful day. It's hard when there seems to be no reason or logic to your situation. Sending a cyberhug your way and hoping the light of a new day will find you more at peace.

De Novo Stage IV; numerous mets in liver; single small breast tumor identified 4 weeks later Dx 6/2/2020, IDC, 6cm+, Stage IV, metastasized to liver, ER+/PR+, HER2- (IHC) Hormonal Therapy 7/3/2020 Arimidex (anastrozole) Targeted Therapy 7/10/2020 Verzenio
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Nov 23, 2020 05:29AM KBL wrote:

Moth, I’m sorry you are having such a tough time. I know I can’t say anything to make you feel better, but I’m also sending a cyber hug your way.

Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- (FISH) Hormonal Therapy 6/23/2019 Femara (letrozole) Targeted Therapy 6/23/2019 Ibrance (palbociclib)
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Nov 23, 2020 08:30AM - edited Nov 23, 2020 08:31AM by GoldensRBest

Mel - another loss - how devastating😓. In our hearts we ask why, why, why?

Moth - virtual hugs🤗.

Peace to all today and this Thanksgiving week. I'm grateful for all of you.

Dx 6/1990, IDC, Right, 2cm, Stage IIA, 1/20 nodes, ER+/PR+ Dx 7/1999, IDC, Right, <1cm Dx 7/26/2019, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- (IHC) Hormonal Therapy 9/1/2019 Femara (letrozole) Targeted Therapy 9/25/2019 Ibrance (palbociclib) Hormonal Therapy 1/30/2020 Arimidex (anastrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy CMF Surgery Mastectomy Surgery Lumpectomy; Lymph node removal Radiation Therapy Whole-breast: Breast, Lymph nodes
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Nov 23, 2020 08:34AM Micmel wrote:

hello ladies. ~It’s dreary and it’s bloodwork and xgeva day soooooo hoooray. I’m going to the fabric store before so that is the silver lining. Moth. You’re not alone sweet woman. Every age and pain I’m convinced it’s another met peeking up.... I’m sick of living with cancer. Because then I have to look forward to dying from it. Oh joy.... but then I have to thank god I haven’t left two beautiful daughters behind at younger ages. Life is so shitty sometimes you have to wonder how it also has such beauty in it too.

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Nov 23, 2020 08:56AM candy-678 wrote:

Moth- Oh my girl. I wish I would have been online when you posted. I am just now back online. I pray you have a better day today. I totally get it. Yesterday I had a good day (doesn't happen often). Usually I am the one posting about crying and depressed and others are upbeat. I just want you to know I understand the fatigue, the why, the what if. Cyber hug from here.

Mel- I know I get so tired of the "bloodwork and Xgeva" days. No appts for me this week. Do enjoy your fabric store though.


Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Also using Xgeva injections for bone mets Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole), Zoladex (goserelin) Chemotherapy AC Surgery Lymph node removal: Sentinel; Mastectomy: Left
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Nov 23, 2020 09:18AM mara51506 wrote:

Mel, enjoy the fabric store, still so sorry as well.

Moth I hope things will look better for you soon.


2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Nov 23, 2020 09:20AM BevJen wrote:

Mara,

YOu've inspired me. I did a mile walk this morning, with another one coming up later in the morning. I know that's not as much as you do, but every time I read about your exercise, I at least think about it. Today I'm actually doing something!

Microwave Ablations of the Liver: 7/2019; 10/2020; 12/2020 Dx 11/2003, ILC, Left, Stage IIIC, 13/18 nodes, ER+/PR+, HER2- Dx 6/2006, ILC, Stage IV, metastasized to other, ER+, HER2- Dx 5/2019, ILC, Stage IV, metastasized to liver, ER+/PR+, HER2- Surgery 7/4/2019 Targeted Therapy 7/31/2019 Ibrance (palbociclib) Immunotherapy Radiation Therapy Surgery Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Chemotherapy TAC Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Hormonal Therapy Femara (letrozole)
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Nov 23, 2020 10:23AM Micmel wrote:

Go BevJen. !!!!!

Go Mara!!! I think you’re both great......

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Nov 23, 2020 11:38AM - edited Nov 23, 2020 11:38AM by mara51506

BevJen, that is awesome to hear. I bet you feel better after having done it, I always find the same for myself. I am also altering my exercise to be shorter but multiple walks in a day. I prefer to go 20 mins to a half hour 3 to 4 times a day. When I do the elliptical, I count it as an hour of walking since the strides on the elliptical are 1/2 the number of steps.

I have not yet walked today, but I have been pedaling on the elliptical while filling out surveys. Had to stop at two hours. I am planning a short outdoor walk when it warms up a bit. Make sure not too icy. Might put cleats on inn an abundance of caution and see how they feel.

Thank you Mel!



2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Nov 23, 2020 12:42PM BevJen wrote:

Mara,

Yes, I feel better, but I am also tired. I think I overdid in in too short of a period. Once again, I'll learn from your pacing of your exercise, I think. Good ideas.

Microwave Ablations of the Liver: 7/2019; 10/2020; 12/2020 Dx 11/2003, ILC, Left, Stage IIIC, 13/18 nodes, ER+/PR+, HER2- Dx 6/2006, ILC, Stage IV, metastasized to other, ER+, HER2- Dx 5/2019, ILC, Stage IV, metastasized to liver, ER+/PR+, HER2- Surgery 7/4/2019 Targeted Therapy 7/31/2019 Ibrance (palbociclib) Immunotherapy Radiation Therapy Surgery Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Chemotherapy TAC Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Hormonal Therapy Femara (letrozole)
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Nov 23, 2020 01:02PM - edited Nov 23, 2020 01:04PM by KBL

Went for my monthly visit today, bloodwork, Zometa, doctor visit. When I was done with infusion, the nurse asked me if I had my Thanksgiving fixings. I said I had a Turkey breast but not much else. She had a ticket she gave me to go to the parking lot and pick up two bags, a whole turkey, pumpkin pie, stuffing, box of mashed potatoes, green beans, rolls, and cranberry sauce. One of their patient's husbands gives these out every Thanksgiving as a thank you to the center for how they cared for his wife. They are there from 9:30-2:30. How sweet is that????

Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- (FISH) Hormonal Therapy 6/23/2019 Femara (letrozole) Targeted Therapy 6/23/2019 Ibrance (palbociclib)
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Nov 23, 2020 01:09PM SondraF wrote:

I completely spaced taking my pills at 1 today and only realized at 4 when I looked at my calendar above the desk and noticed i hadn't written a D in the square for today. Quick threw down a babybel cheese and toast and took them but still, little concerning to forget like that! Mostly I think its due to cutting out breakfast and fasting from 6pm to noon or so which has helped cut down on the snacking - I like to get the pills done and over with but now it may be better to swap to after dinner.

Government here is planning to open EVERYTHING from next week which is concerning to say the least. Back to staying home and ordering gifts online I guess. Not happy about this in the slightest as people are going to go nuts trying to make Christmas happen. Some amazing airfare deals right now - one airline is offering London to Honolulu (stopping in LA) for £1K (about $1,350 or so) in business class, round trip, for dates up to October. All I have heard from MOs is that regarding travel over 4 hours flight time to wear compression socks and get some travel insurance, but how does Zoladex planning work around all that? Is there leeway there?

Moth - I hope you are having a better day today, though I had to smile just a little at the Ashkenazi Jewish question, because I wondered myself if some info got lost when folks got on the boat in the mid 19th century and appeared on American shores. Statistics suck when you are on the wrong side, and I know it doesn't help to think 'well, someone had to be in the <0.01%'. I consider it like being in a plane crash - for whatever reason, for all of us, genetic errors or environmental impacts or whatever lined up in the right way, the right sequence and we "won". But it doesn't always matter how you think about it, some days are just tougher than others to manage the feelings and massive sense of unfairness.

Off for dinner and then its my weekly grocery shop, hope everyone has a good day!

Dx 9/27/2019, IDC, Right, 5cm, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- Targeted Therapy 11/29/2019 Ibrance (palbociclib) Hormonal Therapy 11/29/2019 Femara (letrozole), Zoladex (goserelin)
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Nov 23, 2020 01:45PM SeeQ wrote:

SondraF- I was having a terrible time remembering both of my twice-a-day meds until I started using the Reminder app on my phone. It's compatible with Microsoft apps, but I'm not sure it's actually by Microsoft. It stays active unless you mark it complete, snooze it (up to an hour), or dismiss it - and it records it in your Microsft calendar, if you need that for tracking. Since I have my phone or my tablet in my hands multiple times throughout the day, I haven't missed a dose since then. :)

I can't believe your gov is opening everything. You all must be doing better than we are in the US, where MANY places are headed back into tighter controls.

De Novo Stage IV; numerous mets in liver; single small breast tumor identified 4 weeks later Dx 6/2/2020, IDC, 6cm+, Stage IV, metastasized to liver, ER+/PR+, HER2- (IHC) Hormonal Therapy 7/3/2020 Arimidex (anastrozole) Targeted Therapy 7/10/2020 Verzenio
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Nov 23, 2020 02:00PM candy-678 wrote:

KBL- That was nice of that man to give those away. Happy you could partake.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Also using Xgeva injections for bone mets Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole), Zoladex (goserelin) Chemotherapy AC Surgery Lymph node removal: Sentinel; Mastectomy: Left
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Nov 23, 2020 02:42PM Rosie24 wrote:

Hi All, I got a summary of my scan results and things are good. Nothing new and liver lesions are barely perceptible. I’ll take it 😊.

Dx 1/23/2019, DCIS/IDC, Left, 3cm, Stage IV, metastasized to liver, Grade 2, ER+/PR-, HER2- (FISH) Hormonal Therapy 1/24/2019 Femara (letrozole) Targeted Therapy 1/24/2019 Ibrance (palbociclib) Surgery 12/3/2019 Lumpectomy: Left Surgery 12/3/2019 Lymph node removal: Sentinel Radiation Therapy Whole-breast
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Nov 23, 2020 03:05PM BevJen wrote:

Rosie,

That's terrific news!

KBL,

What a nice person to do that for others! Warms your heart that someone is so thoughtful.

And Sondra -- as much as I love the UK, WTH is the government there doing? That is just crazy. You are wise to stay safe yourself.

Microwave Ablations of the Liver: 7/2019; 10/2020; 12/2020 Dx 11/2003, ILC, Left, Stage IIIC, 13/18 nodes, ER+/PR+, HER2- Dx 6/2006, ILC, Stage IV, metastasized to other, ER+, HER2- Dx 5/2019, ILC, Stage IV, metastasized to liver, ER+/PR+, HER2- Surgery 7/4/2019 Targeted Therapy 7/31/2019 Ibrance (palbociclib) Immunotherapy Radiation Therapy Surgery Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Chemotherapy TAC Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Hormonal Therapy Femara (letrozole)
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Nov 23, 2020 03:09PM mara51506 wrote:

KBL, that is an awesome thing he did, glad to hear you were able to benefit from his generosity

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+

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