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Topic: My Husband, My Life, My Love, My Family, My Cancer

Forum: Stage IV/Metastatic Breast Cancer, Open to All To Contribute —

Topics here are started by members with a Stage IV/Metastatic Breast Cancer diagnosis, but open to all members to contribute to discussions. Please note that there is a separate forum, Stage IV/Metastatic Breast Cancer ONLY, where topics are open only to those members.

Posted on: Jul 6, 2017 08:38PM - edited Oct 28, 2019 12:42PM by Micmel

Micmel wrote:

As I go through this forced path I have been thrown down, I have come to realize the love I have always had for my husband was strong. He is amazing and I love him with my very soul and entire heart. Never would I ever imagine the thought of dying and him being alone. Then the worst part hit me!! I can't seem to shake the horrible sorrow of thinking of another woman taking my place in his life and his heart, and if I Am honest his bed. He is my best friend and the love of my life, I would never need another for any reason. He makes my life complete, and then this happens. How do I process that I most likely won't be the one growing old on the porch that we have talked about, how do I process, someone else sitting in that chair? I hate this trajectory path I've been spun onto, and everyday I feel grief and deep sorrow. How do I live everyday knowing in the back of my mind, I feel like a place holder, for another woman who will be stepping into my life when I die of this horrible disease, more sooner than later. Why would I even want to take any medicines or treatments, when the answer is pretty obviously in front of my face.? Why do we fight so hard for something we cannot control ? Why do we hurt so badly thinking about letting go, or giving up? It's a four letter word that holds so much power. That word is LOVE..... If you have ever felt this way. Share with me, because I understand, I feel this way everyday. I also don't know what to do with the sadness of loss or how to process the process of dying. However slow or fast it may be. Please share your love stories with me, how did you meet? How long together? I want to know your stories, everyone has their person. Everyone loves.....tell me about your family, your friends, your life too, as if this was your living room. ♥️

We are team FU cancer (Named by Parry, our sweet sister) and this is our Lol pub and living room. Welcome, put your feet up and just be you!

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Feb 14, 2021 09:40PM tangandchris wrote:

I'm in a low place tonight. I overheard DH on the phone talking to his brother. He was apparently asking DH about me and treatment. I heard dh trying to explain my stage 4 diagnosis and what it meant. I have not been right since hearing him. I'm not even clear why I am so upset. It just hurt my heart to hear him talking about it.

I needed to get this off my chest. Thx for listening.

My reconstruction with TE's failed...had them removed because of infection. I am still unsure of if or when I will try again. Dx 10/24/2013, IDC, 2cm, Stage IIIA, Grade 2, 6/25 nodes, ER+/PR+, HER2- Surgery 11/23/2013 Lymph node removal: Left; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement Chemotherapy 2/13/2014 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 10/2020, Stage IV, metastasized to other, ER+/PR-, HER2-
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Feb 14, 2021 09:42PM illimae wrote:

Micmel, it’s stuffed with a seasoned butter ball (salt, pepper, garlic & chives) and a slice of Swiss cheese. The sauce really makes it and I’m so full. I make it about once a year, it’s taste is wonderful and made better by its rarity.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/1/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/1/2017 Herceptin (trastuzumab) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/22/2019 External: Brain Surgery 1/21/2020 Radiation Therapy 2/16/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 14, 2021 10:30PM Micmel wrote:

Mae~SOUNDS LIKE My kinda meal. Funny how suggestions make us hungry.

Tang~ sometimes it just hits us. I sit and say out loud to myself. You have stage four cancer. Because. I still can’t believe it and it’s been five years of dealing with it. It’s just heavy to carry around all the time. Hearing your husband speak of it, makes it even more real. Not to mention you don’t want him to hurt over it or even have to talk about it at all. I’m sorry. I’m sending huge hugs to let you know you’re not alone. I’ve been there. Much love
Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Feb 14, 2021 10:58PM Elderberry wrote:

mae: that meal looks so good with that gorgeous glistening sauce.

To all: mentioning the cold snap. moth and I know what weaklings we West Coasters are when it comes to snow and cold. I have lived in Edmonton, Winnipeg, Ottawa and 170 miles north of Ottawa. I have grown thin blooded in the years since being there but I still laugh at folks who whine when it hits just the freezing point and we get more than 3 inches of snow. I have a friend in Saskatoon who keeps me balanced. Last week the city hit -48 C (I think that is about -54 F) Brrrrr

I had a thin slice of some flourless chocolate cake. It may as well be called fudge. I buy a whole slice then cut it into thinner slices and freeze them. So rich. So yummy. I figure the salad I made with mini greens, strawberries, feta cheese, almonds and red onions might have off-set the other indulgence.

Eat, drink and be merry for tomorrow we may diet.

De Novo - this isn't a "brave battle" - it is a "furious struggle" Dx 3/6/2019, IDC, Left, 5cm, Stage IV, metastasized to liver, HER2+ Targeted Therapy Herceptin (trastuzumab) Chemotherapy Taxol (paclitaxel) Targeted Therapy Perjeta (pertuzumab)
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Feb 15, 2021 12:28AM emac877 wrote:

Tangandchris - I get it. I feel like I bear the burden of cancer pretty well myself and I have a few memorized phrases I use when explaining it to people. I crack though when I hear either of my parents try to explain life right now to their friends. This diagnoses has been hard on me physically but I think emotionally it's been equally as hard on my family as it has for me and that just makes me tear up every time. I can be a stoic rock about cancer most of the time until I have to see it involving my family and then I'm done.

I'm sorry, I know I've missed a ton of stuff. I was in a pretty dark place and I had to just shut myself off for a while. I have very few answers, just support and solidarity for those of us struggling. Stupid cancer. I feel slightly guilty hearing about this polar vortex thing. I was complaining the other day that our weather in southern Oregon is boring. Wet and a bit cold (30-40s) but that's the worst of it in the valleys anyway. I would bargain hard for some snow to come our way and break up the rain we've been having. I hope you all are staying warm and have a soft blanket and good soup!

Dx 2/8/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/3 nodes, ER+/PR+, HER2- (IHC) Surgery 3/21/2018 Lumpectomy: Right; Lymph node removal: Underarm/Axillary Chemotherapy 6/7/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 8/26/2018 Whole-breast: Breast, Chest wall Dx 12/4/2019, IDC, Stage IV, metastasized to bone Surgery 12/11/2019 Radiation Therapy 12/22/2019 External: Bone Hormonal Therapy 1/6/2020 Faslodex (fulvestrant) Targeted Therapy 1/6/2020 Verzenio Hormonal Therapy 11/10/2020 Aromasin (exemestane)
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Feb 15, 2021 07:52AM illimae wrote:

Welcome back emac.


we got snow! This is a very exciting event for Houston and I’m loving it.


Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/1/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/1/2017 Herceptin (trastuzumab) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/22/2019 External: Brain Surgery 1/21/2020 Radiation Therapy 2/16/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 15, 2021 08:42AM candy-678 wrote:

Morning all.

tangandchris- This cancer is so crappy. I too get in a bad place sometimes. I just say aloud (I live alone) " I have cancer--Stage 4 cancer". I never thought I would get cancer. We do not have it in our family tree. I thought a bad heart would finally get me, not cancer. I guess it was good that your DH could say it, could talk about it. Not in denial, at least. My family never discusses it, at least around me. They are in denial. If I mention it the response I get is "Oh you will live another 30 years". Not helpful.

Mae- Supper looked yummy. I am not a cook. Wish I was. Miss the foods my mom made as I was growing up--- big pots of homemade stew (with everything but the kitchen sink), homemade chicken pie, pork cutlet meals.

We got another couple of inches of snow overnight and more on the way. Maybe 5 inches total when done. And still cold---yesterday morning 15 below wind chill. Today windy with the snowfall. I have no where to go, thanks to Covid isolation, but still, it will be a week inside due to the snow and bitter cold. But kind of comforting knowing several are homebound with the weather, makes me feel I am not alone. In good weather my friends are out and about and I sit at home-- Covid fears and crappy feelings with the cancer meds. Now, they get a taste of what I live with--homebound.

Any scans or appts for anyone this week???

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Also using Xgeva injections for bone mets Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole), Zoladex (goserelin) Chemotherapy AC Surgery Lymph node removal: Sentinel; Mastectomy: Left
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Feb 15, 2021 08:59AM candy-678 wrote:

Just heard my forecast. Expecting another 6 inches of snow today-- so 8 inches total. Highs in the single digits today and tomorrow with wind chills 15 below. Then another snow on Wednesday with maybe 6 more inches of snow. We do not usually have this kind of weather, so we are in for some major winter weather this week.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Also using Xgeva injections for bone mets Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole), Zoladex (goserelin) Chemotherapy AC Surgery Lymph node removal: Sentinel; Mastectomy: Left
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Feb 15, 2021 10:18AM Kittykat9876 wrote:

Candy, we have the opposite here, it was 98 here today.

I'm finally home and feeling much better thank goodness. I see my oncologist on Thursday to see if we need to delay the next cycle.

Mae, that looks delicious, I bought Chinese takeaway on the way home for my dinner tonight.

Mel, Wentworth is based on an Aussie show called Prisoner that ran from 1979-1986. I loved that show, I haven't seen this new show yet.

Surgery 5/23/2013 Lumpectomy Dx 10/31/2017, Left, 6cm+, Stage IV, metastasized to bone/lungs/other, Grade 3, 2/22 nodes Chemotherapy 1/28/2021 Navelbine (vinorelbine) Targeted Therapy Afinitor (everolimus) Radiation Therapy External: Bone Hormonal Therapy
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Feb 15, 2021 11:04AM Micmel wrote:

I have blood work on Wednesday with markers being drawn. Which is a great guide for me. Just want to get it over with. Then I scan March 4th. So here comes all the scariest scanxiety because I feel it creeping. And I can’t stop it. Argghhhhhhhhhh...


Snow for Mae that’s awesome.

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Feb 15, 2021 11:29AM mara51506 wrote:

Mae enjoy the snow, when it is a novelty it is quite enjoyable for sure. Not honestly sure if it snowed here but what they get chicago area usually makes its way to us a day or two later.

Mel, sorry about your scanxiety, it sucks when scans cause such worry for us. Hugs for you.

I am happy to say I am really happy with my clip on bucket washer. Have used it all weekend and getting used to it, bought a back up already. Using the portable washer that does work for the rinse cycle, makes it all go faster, clothes are well cleaned. If the wash side of the working twin tub stops working, I will get another 5 gallon bucket and use that for the rinse and spin. Kept the first broken washer as the spinner works. Fits well in the front closet after a lot of purging junk out and breaking down giant boxes I had.

Might walk to the burger joint for a couple of things. It is sunny here so need to take advantage of that. Have to call first as it is Family Day here in ontario which is a stat holiday, most places are closed.

Hope all have a good day.


2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Feb 15, 2021 12:09PM Rosie24 wrote:

Mel, I have to check out the Wentworth show. We’re always looking for something to watch at night. Last night we watched a movie called “I See You” with Helen Hunt. Boy does she look different. She had some kind of “work” done,I guess. Movie was kind of intense but kept us watching.

Candy, we have snow coming overnight tonight too, up to 10 inches they say. I’m glad not to have to be anywhere in the morning.

Mae, Dinner looked and sounded delish. We had my brother over & had lasagna. We don’t do a lot for Valentine’s Day. Enjoy the snow!

Mara, That’s nice that you can walk to the burger joint. For me it would be motivation to get out and walk. Also glad your new washer is working well.

I have a Covid test on Friday before my ablation on Monday. The doc said recovery was minimal but I do have some nervousness about it.

Hello to everyone 👋


Dx 1/23/2019, DCIS/IDC, Left, 3cm, Stage IV, metastasized to liver, Grade 2, ER+/PR-, HER2- (FISH) Hormonal Therapy 1/23/2019 Femara (letrozole) Targeted Therapy 1/24/2019 Ibrance (palbociclib) Surgery 12/3/2019 Lumpectomy: Left Surgery 12/3/2019 Lymph node removal: Sentinel Radiation Therapy Whole-breast
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Feb 15, 2021 12:34PM Micmel wrote:

Rosie~I honestly am addicted to this show. My sister is up until all hours watching it. , I got her hooked also. 8 seasons. Hopefully 9. I’m already on season 6. So I’m slowing down now. Don’t want it to be over . Give it a try you won’t be sorry. It’s a fantastic show. Grabs you right in.
Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Feb 15, 2021 12:38PM candy-678 wrote:

So Pocket Duty for Mel's bloods this week, and then scanning March 4. And Pocket Duty for Rosie's Covid test, and then ablation next Monday.

It is brutal out there. I went outside for a second. Snowing hard and blowing around and the cold wind takes your breath away. But Kittykat I would rather have this than your 98 degree weather. I dread summer coming. I just cannot tolerate the heat anymore.


Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Also using Xgeva injections for bone mets Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole), Zoladex (goserelin) Chemotherapy AC Surgery Lymph node removal: Sentinel; Mastectomy: Left
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Feb 15, 2021 01:33PM moth wrote:

candy - I will get results of my bone scan on Thursday which will hopefully give more insight into whatever shadow they saw on the CT on T10. Also of course hoping for negative results in the rest of the skeleton.

Tomorrow I have a telehealth with the radonc to talk about the lung met he treated. I'm still coughing and sometimes my breathing seems worse so I worry the treatment did not work. I will be asking him when he thinks a scan might tell us if it worked. I worry about this one as there's nothing else regional to do (unless I can convince a surgeon to remove that lobe) so it would likely mean change in systemic therapy

I'm still feeling a bit out of sorts - not sleeping well, not as energetic, mood a bit off. Now I wonder whether I had 4 good weeks in Jan - Feb and that was it, now I'm sliding back down to blah land. Other than appointments this week I have no chemo or immunotherapy so maybe I'll start bouncing back. I'm just suddenly tired of it all but at the same time I was sayng to someone on twitter, I feel the slogan 'we can sleep when we're dead' is really driving me to keep moving as much as I can and not waste a single day.

It's a long weekend here and we still have snow on the ground so I want to go out with Olive for some fun.

hugs everyone

Initial dx at 50. Seriously???? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: nevertellmetheodds2017.tumblr.... Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab) Chemotherapy 11/25/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External Hormonal Therapy 12/15/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone, Grade 3 Radiation Therapy 3/3/2021 External: Bone
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Feb 15, 2021 01:55PM illimae wrote:

No scans this week but I do have birthdays on Thursday and Friday, I’ll be turning 46!

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/1/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/1/2017 Herceptin (trastuzumab) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/22/2019 External: Brain Surgery 1/21/2020 Radiation Therapy 2/16/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 15, 2021 02:00PM candy-678 wrote:

moth- Pocket duty for you for the bone scan results on Thurs.

What systemic therapy are you on now? The profiles are sometimes hard to read-- Letrozole only? Or Letrozole and Abraxane?

Your "not waste a single day". That is what I think about a lot. Wasting my days. I am on an "easy" treatment now--- Ibrance/Letrozole/Lupron. Not that I feel great, I don't. But being inside isolated all the time I feel I am "wasting my days". I want to be able to at least volunteer again. Do something a few days a week. Now, my days just slide into another and I feel I am "wasting" my time.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Also using Xgeva injections for bone mets Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole), Zoladex (goserelin) Chemotherapy AC Surgery Lymph node removal: Sentinel; Mastectomy: Left
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Feb 15, 2021 02:01PM candy-678 wrote:

Mae- Thursday AND Friday??? 2 birthdays???

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Also using Xgeva injections for bone mets Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole), Zoladex (goserelin) Chemotherapy AC Surgery Lymph node removal: Sentinel; Mastectomy: Left
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Feb 15, 2021 02:17PM moth wrote:

candy, I'm on atezolizumab (every 2 weeks) + abraxane (every 3 weeks) + letrozole


illimae, are you a midnight baby???

Initial dx at 50. Seriously???? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: nevertellmetheodds2017.tumblr.... Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab) Chemotherapy 11/25/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External Hormonal Therapy 12/15/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone, Grade 3 Radiation Therapy 3/3/2021 External: Bone
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Feb 15, 2021 03:34PM illimae wrote:

Yeah, two birthdays 🥳

So, I was born on 2/19 in Seoul, Korea (dad was in the army) but here in the US, that very day is on 2/18 due to the time difference between countries. As soon as I was old enough to realize that, I began celebrating my American and Korean birthdays.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/1/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/1/2017 Herceptin (trastuzumab) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/22/2019 External: Brain Surgery 1/21/2020 Radiation Therapy 2/16/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 15, 2021 03:50PM BevJen wrote:

Mae,

Good for you for celebrating two birthdays! That's interesting -- never thought of the international dateline and how it could affect birthdays!

Hope you have a lovely celebration on each of "your" days.

Microwave Ablations of the Liver: 7/2019; 10/2020; 12/2020 Dx 11/2003, ILC, Left, Stage IIIC, 13/18 nodes, ER+/PR+, HER2- Dx 6/2006, ILC, Stage IV, metastasized to other, ER+, HER2- Dx 5/2019, ILC, Stage IV, metastasized to liver, ER+/PR+, HER2- Surgery 7/5/2019 Targeted Therapy 7/31/2019 Ibrance (palbociclib) Immunotherapy Radiation Therapy Surgery Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Chemotherapy TAC Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Hormonal Therapy Femara (letrozole)
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Feb 15, 2021 04:15PM illimae wrote:

Bevjen, I’m all about birthdays and started celebrating 1/2 birthdays too (8/18 & 8/19)

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/1/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/1/2017 Herceptin (trastuzumab) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/22/2019 External: Brain Surgery 1/21/2020 Radiation Therapy 2/16/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 15, 2021 04:18PM BevJen wrote:

Mae,

I remember that, but I didn't realize you doubled up at your half "birthdays" as well -- hey, go for it!

Hope you are holding up with the snow and the cold temps down in Texas -- some of us are used to getting this, but not so much in your area!

Microwave Ablations of the Liver: 7/2019; 10/2020; 12/2020 Dx 11/2003, ILC, Left, Stage IIIC, 13/18 nodes, ER+/PR+, HER2- Dx 6/2006, ILC, Stage IV, metastasized to other, ER+, HER2- Dx 5/2019, ILC, Stage IV, metastasized to liver, ER+/PR+, HER2- Surgery 7/5/2019 Targeted Therapy 7/31/2019 Ibrance (palbociclib) Immunotherapy Radiation Therapy Surgery Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Chemotherapy TAC Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Hormonal Therapy Femara (letrozole)
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Feb 15, 2021 06:40PM mara51506 wrote:

Mae, so cool about your dual birthdays.

We are going to be getting all that snow that some of you in the States received. Looks like I will be staying home for a couple of days til they dig us out. Treadmill and elliptical will have to do for exercise.
2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Feb 15, 2021 07:01PM runor wrote:

Running in to say hi. As usual I am out of the loop. Finally got the mamm that was 4 months late. The tech was new to me. As usual I'm sitting there after pics, waiting to get the all clear, to get the 'You can get dressed and go home."  Instead she comes out and says, "I need to get another view, he's going to want a better look at that."  Whaaattt did you just say?!  A better look at what?!  My heart fell in my shoes. Doc called me The Next Day! That NEVER happens and can only mean one thing, bad news. Second time my heart flopped on the floor. But he said everything is all good. I almost passed out with relief. However there is a note of 'extensive involution' and I'm not sure what that means. It was highlighted again that life is the stretch between mamms. Things have never gone back to normal. They can't. Hugs to all!

Dx 3/23/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 7/4/2017 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 15, 2021 07:10PM dutchiris wrote:

Dx 1/25/2013, IDC, Left, Stage IIIC, Grade 2, 19/24 nodes, ER+/PR+, HER2- Chemotherapy 2/22/2013 AC + T (Taxol) Surgery 6/19/2013 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 7/2/2013 Radiation Therapy 7/15/2013 Dx 7/26/2019, IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- (IHC) Hormonal Therapy 8/10/2019 Femara (letrozole) Targeted Therapy 8/17/2019 Ibrance (palbociclib)
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Feb 15, 2021 07:22PM candy-678 wrote:

Mae cool to have 2 birthdays!!!! Enjoy. I also celebrate 1/2 birthday. As a child we started doing that. On 1/2 birthday mom made cupcakes. No party, just a cupcake and recognition of the 1/2 birthday. I kept up the tradition thru my adulthood.

I went out and shoveled 3 times today-- continued snowing and also blowing snow. Just my porch, steps, and path to my truck in my driveway. Did not dig out truck or go anywhere. But wanted to have path in case. Measured 9-11 inches. If I would not have shoveled, it would have been against my door and I would have been stuck inside!!!!

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Also using Xgeva injections for bone mets Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole), Zoladex (goserelin) Chemotherapy AC Surgery Lymph node removal: Sentinel; Mastectomy: Left
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Feb 15, 2021 09:10PM Micmel wrote:

Chiris~ I don’t love the snow either and I’m so all about the fuzzy anything to be cozy with. We’re getting freezing rain now. So dangerous. Bad winter so far. A month left. Always get something on Presidents’ Day. Every year.

Candy~ I see you’re getting as much snow as we have been dealing with. It’s a monster when there is no place to put it.

Mae~ two birthdays. Now I’ve heard everything, sounds good to me. happy birthdays. Cake yummy. Cup cakes 🧁 yummy. Presents. Twice! Okay!!!

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Feb 15, 2021 10:58PM mara51506 wrote:

Rosie, will be in your pocket for the ablation. You are right, I enjoy the bucket washer. Fun to use.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Feb 15, 2021 11:16PM Bliss58 wrote:

Mae, enjoyed your two birthdays story. That's awesome thinking, so Happy Birthday and Happy Birthday again with two pieces of cake!

Dutchiris, I like your meme. It's very cold here, too, and fits me perfectly.

Rosie, In your pocket for the ablation, too!

Dx at 56 06/2015, IDC left, 4cm, de novo mets to bone; dx 04/2020 progression to liver. Dx 6/1/2015, IDC, Left, 4cm, Stage IIIA, Grade 2, ER+/PR+, HER2+ (FISH) Dx 6/30/2015, Stage IV, metastasized to bone Radiation Therapy 12/16/2015 External: Bone Surgery 2/17/2016 Lymph node removal: Sentinel; Mastectomy: Left Radiation Therapy 5/9/2016 External: Lymph nodes, Chest wall Hormonal Therapy 2/1/2018 Aromasin (exemestane) Dx 4/2020, IDC, Stage IV, metastasized to liver, Grade 3, ER+/PR+, HER2+ (IHC)

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