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Topic: My Husband, My Life, My Love, My Family, My Cancer

Forum: Stage IV/Metastatic Breast Cancer, Open to All To Contribute —

Topics here are started by members with a Stage IV/Metastatic Breast Cancer diagnosis, but open to all members to contribute to discussions. Please note that there is a separate forum, Stage IV/Metastatic Breast Cancer ONLY, where topics are open only to those members.

Posted on: Jul 6, 2017 05:38PM - edited Oct 28, 2019 09:42AM by Micmel

Micmel wrote:

As I go through this forced path I have been thrown down, I have come to realize the love I have always had for my husband was strong. He is amazing and I love him with my very soul and entire heart. Never would I ever imagine the thought of dying and him being alone. Then the worst part hit me!! I can't seem to shake the horrible sorrow of thinking of another woman taking my place in his life and his heart, and if I Am honest his bed. He is my best friend and the love of my life, I would never need another for any reason. He makes my life complete, and then this happens. How do I process that I most likely won't be the one growing old on the porch that we have talked about, how do I process, someone else sitting in that chair? I hate this trajectory path I've been spun onto, and everyday I feel grief and deep sorrow. How do I live everyday knowing in the back of my mind, I feel like a place holder, for another woman who will be stepping into my life when I die of this horrible disease, more sooner than later. Why would I even want to take any medicines or treatments, when the answer is pretty obviously in front of my face.? Why do we fight so hard for something we cannot control ? Why do we hurt so badly thinking about letting go, or giving up? It's a four letter word that holds so much power. That word is LOVE..... If you have ever felt this way. Share with me, because I understand, I feel this way everyday. I also don't know what to do with the sadness of loss or how to process the process of dying. However slow or fast it may be. Please share your love stories with me, how did you meet? How long together? I want to know your stories, everyone has their person. Everyone loves.....tell me about your family, your friends, your life too, as if this was your living room. ♥️

We are team FU cancer (Named by Parry, our sweet sister) and this is our Lol pub and living room. Welcome, put your feet up and just be you!

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Apr 30, 2021 05:41AM GoldensRBest wrote:

Good news - my scans and CT are stable! MO is moving me to 6 month re-scan plan with the assumption I will notify her if there are any concerns that cropped before then. My bone scan was a whole different story for arthritic findings. Name a joint, it has arthritis. Going to surgery center today to get steroid injection in areas of spinal stenosis. Praying these do something.

Meanwhile, hubs has been back in a-fib. 3 failed cardioversions. Pulse is still in 135 range and BP is all over the place. He meets with doc who does cardiac ablation on Monday and is scheduled for a cardiac MRI a week after. For those who don’t like MRIs, he was told the cardiac test would take a minimum of 2 hours.

Wishing all a lovely weekend as we try to deal with our diseases

Dx 6/1990, IDC, Right, 2cm, Stage IIA, 1/20 nodes, ER+/PR+ Dx 7/1999, IDC, Right, <1cm Dx 7/26/2019, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- (IHC) Hormonal Therapy 9/1/2019 Femara (letrozole) Targeted Therapy 9/25/2019 Ibrance (palbociclib) Hormonal Therapy 1/30/2020 Arimidex (anastrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy CMF Surgery Mastectomy Surgery Lumpectomy; Lymph node removal Radiation Therapy Whole-breast: Breast, Lymph nodes
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Apr 30, 2021 06:04AM - edited Apr 30, 2021 06:07AM by candy-678

Dutchiris- The waiting is the worse. My prayers to you, my friend.

runor- Yeah, I am not a drinker, but a stiff one sounded good after the biopsy. I am partly responsible for the continued attempts as I said to keep going. But, WOW, 3 hours of digging seems almost inhumane. Like, when is enough enough. I wonder how long had this IR would have kept trying if I would not have had the bleeding. He just kept going and going.

Goldens- WOOHOO for stable. WOW your poor DH. Hope they can finally get it fixed. So much stress for you.

Booboo- Glad your surgery is behind you. Hoping for a speedy and fairly easy recovery. Post as much as you can to give us updates on how you are doing. :)

Well, my local friend with MBC to the bones (I posted about her here, right?) she got her PET results. No organ involvement, but more extensive to the bones. More of the spine and both hips. She met with radiation and got marked. She is having palliative rad on both hips next week. She is in so much pain she can hardly walk. I talked to her on the phone yesterday. She sounds so defeated. She was stable for over 8 years. I think she thought "I got this". Now reality struck.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Also using Xgeva injections for bone mets Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole), Zoladex (goserelin) Chemotherapy AC Surgery Lymph node removal: Sentinel; Mastectomy: Left
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Apr 30, 2021 06:29AM illimae wrote:

Karen, I love the parking guy story. My former boss has a garden and would occasionally bring me extra zucchini, squash and green beans and I loved it. I could easily buy it on my own but the gift of it was extra special.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Targeted Therapy 1/2/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/20/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/23/2019 External: Brain Surgery 1/22/2020 Radiation Therapy 2/17/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 30, 2021 06:42AM - edited Apr 30, 2021 06:43AM by Micmel

BooBoo~Glad you're on the mend hugs my friend

Goldens~congrats. On the 6 month scans ! Big deal there!!

Runor~no fires allowed yikes.

Karen~ I also enjoyed your story of Alan. We Meet friends in odd ways sometimes. Even if what we are going through is miserable... charming story.

Dutchiris~ sending a hug to you also

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Apr 30, 2021 08:30AM runor wrote:

Karen -  rhubarb is sour but sharing makes it sweet. Great story.

BooBoo - so glad you are on this side of the procedure and that whoosh of relief makes it all the better. Hope you have some pain meds that work and get rested up before you go to your first square dance. 

Golden - hooray for stable. Bad news about your Hub's heart beat and blood pressure. I suspect it's because you're super sexy and drive him wild. Hope they get him figured out soon.

Micmel - you're pretty low key these days. The living room feels the sorrow. We shall dust and vacuum and make some coffee and tea and little sandwiches with the crusts cut off and just be with you until your heart slowly begins to lift.

I have been babysitting the phone all week waiting for a call with results. NO call. I finally went bonkers and needed to get out of the house, needed a change of scenery so I called the office and left a message saying if the doc was calling today, I would stay home by the phone. But if not, I need to get out so do I have permission to go on a playdate? Receptionist called back laughing saying yes, she gives me permission to have a playdate. Will take up phone vigil again on Monday.

Dx 3/23/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 7/4/2017 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 30, 2021 08:34AM Tanya_Djamila wrote:

Booboo my friend so happy your getting up and about with good pain meds.

Dutchcris I hope things level out for you soon. In the meantime sending hugs.

Karen and Mae I love receiving and giving veggies it’s also nice to share the plant starters I usually have too many and have to use pots for florida garden. No soil sand only.

Goldens great news on your scans. I hope your husbands cardio tests aren’t too brutal. I did an hour and 45 in the MRI with my DH holding my foot and Valium.

Runor results on Monday?

Moth hope you’re feeling a little better.

Waving hello to all.

Tany

Tanya Dx 8/19/2003, ILC, Right, 6cm+, Stage IIIA, metastasized to bone/other, 28/28 nodes, ER+, HER2+ (IHC) Dx 4/19/2017, Stage IV, metastasized to bone/other, 0/0 nodes, ER+, HER2+ (IHC) Hormonal Therapy 6/20/2017 Faslodex (fulvestrant)
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Apr 30, 2021 11:07AM moth wrote:

booboo - yay, glad you're recovering. Keep that pain under control and keep on moving and soon you'll be jogging around!

Karen - you already have rhubarb? I don't know what's wrong with mine. Taking for.ever this year. It's not happy where it is - a bit too damp and shady so probably needs a move but i'm out of sun spots... I like your story about your reciprocal RAK with your parking guy

runor - enjoy your play date!

Goldens - hurrah for stable!!!!! boooooooo for your dh's continued cardiac troubles. I hope this cardiologist figure out what to do

dutchiris - how are you feeling? I hope you can find some joy and optimism

Tany - thanks for thinking of me! Chemo yesterday. Feeling ok so far today. It's my youngest's birthday. We're having curry takeout tonight, dd is baking a special cake and then we're doing some game thing that he's organized. This is the 2nd birthday in lockdown for him - no friends over or anything. I'm sad for him about that. Also, because of me he's been in total lockdown while some of his friends have been getting together with some precautions & so I think some friendships have sort of left him behind and that sucks...you know how quickly friendships can fizzle out. Anyway, hopefully things will improve soon. I think they're hoping first shot for everyone by Canada Day (July 1)

hugs


I take weekends off

Initial dx at 50. Seriously???? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: https://nevertellmetheodds2017.tumblr.com/

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/13/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab) Chemotherapy 11/25/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/8/2020 External Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Hormonal Therapy 12/15/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/2/2021 External: Bone
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Apr 30, 2021 11:37AM SondraF wrote:

Sitting in a really nice private recovery room post op. A few bobbles with timing but it's night jt and day compared to the general ward I was stuck on in 2019. I hope I get some food soon, I haven't eaten in about 24 hours.

A bit sore in the tummy but overall doing OK considering I came out of general a little over an hour ago. Zoladex shots be gone!

"The closer we come to the negative, to death, the more we blossom" - Montgomery Clift Dx 9/27/2019, IDC, Right, 5cm, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- Hormonal Therapy 11/28/2019 Femara (letrozole) Targeted Therapy 11/28/2019 Ibrance (palbociclib) Surgery Prophylactic ovary removal
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Apr 30, 2021 12:28PM Micmel wrote:

thinking about you ladies. Strong strong women.

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Apr 30, 2021 01:09PM - edited Apr 30, 2021 01:11PM by Rosie24

Booboo, I'm glad to hear your pain is under control (mostly?) and that you're able to move around. Will you be having PT or just recovering in your own?

Sondra, You must be feeling pretty clear headed to post for us so quick! I hope your pain doesn't increase at all. Was this surgery for ovaries? Sorry, my memory isn't always so great. I'm sure you'll appreciate having one less med to worry about!

Moth, Lockdowns have to be very tough on the younger set, especially birthdays where they'd normally see friends. How old is he? I hope things can return to close to normal for you all soon and that he and his friends can pick up where they left off.

Karen, I agree that you have a great parking attendant. I once had a dozen fresh eggs on my desk when I arrived in at work in the morning. It took all day to figure out who brought them. It was the night custodian (who worked 3pm- 11pm). So nice 😊 and they're definitely better than store bought.

My dental redo wasn't as bad as I was expecting. It wasn't the full mouth impression (which made me gag and my eyes water the first time), just an impression of the tooth needing the crown again. Two tries by the dentist herself and we were done. I can't say why I have this dental angst now but I do, maybe because this was something new for me. 😳




Dx 1/23/2019, DCIS/IDC, Left, 3cm, Stage IV, metastasized to liver, Grade 2, ER+/PR-, HER2- (FISH) Hormonal Therapy 1/24/2019 Femara (letrozole) Targeted Therapy 1/24/2019 Ibrance (palbociclib) Surgery 12/4/2019 Lumpectomy: Left Surgery 12/4/2019 Lymph node removal: Sentinel Radiation Therapy Whole-breast
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Apr 30, 2021 02:38PM Karenfizedbo15 wrote:

Thanks for your kind thoughts folks.

Candy and BooBoo....nightmare for you both!

Surgery 9/7/2007 Lymph node removal: Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Latissimus dorsi flap Dx 4/2018, IDC, Right, Stage IV, metastasized to lungs, 1/17 nodes, ER+/PR+, HER2- Dx 2021, Stage IV, metastasized to bone Chemotherapy 2/4/2021 Xeloda (capecitabine) Hormonal Therapy Femara (letrozole) Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Ibrance (palbociclib)
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Apr 30, 2021 02:52PM GoldensRBest wrote:

runor - I almost peed myself with your comments. A sense of humor can certainly change a bag o’ shit into a bag o’shit with a clothespin🤣.

Love you guys - second Mel’s strong women

Dx 6/1990, IDC, Right, 2cm, Stage IIA, 1/20 nodes, ER+/PR+ Dx 7/1999, IDC, Right, <1cm Dx 7/26/2019, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- (IHC) Hormonal Therapy 9/1/2019 Femara (letrozole) Targeted Therapy 9/25/2019 Ibrance (palbociclib) Hormonal Therapy 1/30/2020 Arimidex (anastrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy CMF Surgery Mastectomy Surgery Lumpectomy; Lymph node removal Radiation Therapy Whole-breast: Breast, Lymph nodes
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May 1, 2021 01:45AM - edited May 1, 2021 01:46AM by SondraF

Rosie - yes the BSO finally happened. Some miscommunication with the start time as between Tuesday and Friday it was shifted from 7.30 am arrival to noon and THEN I was last on the roster, so I wasnt down to theatre (OR) until almost 4pm. Its also a long weekend here and I suspect I was the last of it. Feeling ok this morning, a bit tired and air crampy as that CO2 makes its way around, but otherwise ok.

Could have beat the crap out of Other Half last night when he showed up to pick me up. I knew he had been at a nearby pub waiting for the call (some miscommunication post recovery about when I could leave) and he showed up so loopy I thought he was drunk. Got into a cab and made it home and was very upset at what I thought was his (very,very unusual) irresponsibility, then this morning I realized he hadnt been drunk, he'd been running on almost no sleep. He'd got about 3 hours sleep the night before to see me out the door, thinking he wouldn't go back to sleep because of pick up duty at midday, but then didn't take a nap or anything when I told him expected pickup wasn't until after 5. When he is that tired he zones out, doesn't remember, doesn't follow a line of thought, but when he's actually drunk (not often) he talks more and follows through lines of thought very vigorously, so there is a distinct difference. We were at the front door and he got distracted by some people walking down the street, didn't understand why we couldn't close the windows in the cab, and he was momentarily confused by the pay machine. So I guess the lack of sleep on top of the two pints he had (which I believe, hes a very good social drinker, texted he was spending his time enjoyably talking to a group of French people he'd met at the pub, and he didn't smell at all like a booze), compounded to... mental shut down.

He got up this morning when I fed the cats at 530 (after a solid 7 hours of sleep) completely coherent and his normal self with only a vague memory of last night and that was when I realized, having seen this more than a few times, that he'd been sleep deprived. We talked it over and figured it out/cleared the air, but it was so annoying on top of a really long day!

"The closer we come to the negative, to death, the more we blossom" - Montgomery Clift Dx 9/27/2019, IDC, Right, 5cm, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- Hormonal Therapy 11/28/2019 Femara (letrozole) Targeted Therapy 11/28/2019 Ibrance (palbociclib) Surgery Prophylactic ovary removal
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May 1, 2021 07:04AM Micmel wrote:

wow that’s one hell of a day. My goodness. !

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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May 1, 2021 09:54AM mara51506 wrote:

Sondra, glad you and DH cleared the air. I am not surprised his brain did not work right on that little sleep and a couple of drinks, they hit harder when you are exhausted. Glad he was coherent today and you both cleared the air.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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May 1, 2021 10:04AM runor wrote:

Sondra - I swear my other half needs 12 hours of sleep or his brain melts like ice cream. But your other half was no doubt tired PLUS stressed. Being ill and needing treatment and care takes a toll on everyone. Glad you made it home safe and no one has a hangover!

I got a call from my regular doc yesterday, whom I was NOT expecting to hear from. NO CANCER!!!!  

However, as he stumbled and messed up the terms I realized that regular docs are likely not experts in deciphering pathology reports. I am going to speak to my oncologist and the gyno surgeon herself in the next while and they will give me a better understanding of the situation. As I grasped from the conversation, I do not have cancer. However there are other not- so- great things going on in my lady bits that they feel is directly related to  tamoxifen. The word adenomyosis was mentioned as well as a few others. I have never heard of adenomyosis. Brief research says it's not that uncommon to show up in postmeno ladies taking tamoxifen and can be a cause of bleeding. Who knew! So I do NOT have cancer, but  considering that I take less than the prescribed dose of tamox and still had this much effect on my girl parts, a hysterectomy is a reasonable outcome. And I can live with that.

Hub and I are almost in denial over the good news. Afraid to believe it. Between emergency room doc telling me I didn't have a month to wait and the ultras report saying 'malignancy' and the vast amount of blood, well, you all know I was braced for the worst. I am not ready for the best. Going to have to get my head screwed on. I appreciate that you all let me be a wailing, flailing idiot for the past month. I was so scared.

Dx 3/23/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 7/4/2017 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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May 1, 2021 10:10AM - edited May 1, 2021 11:54AM by booboo1

Rosie,

I have in-home PT, and they've come once already....very good. They made a few suggestions about things to make it easier for me to get around, shower, etc., so I'm really glad to have them.

Runor, doubt I'll be doing any “doe-ce-doeing" in awhile, but who knows? Stranger things have happened.


Laurie (aka Booboo) Surgery 5/15/2013 Lumpectomy: Left; Lymph node removal: Sentinel Dx 1/2017, DCIS, Left, 1cm, Stage 0, metastasized to bone/liver, Grade 2, 1/4 nodes, ER+/PR+, HER2- (FISH) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib) Chemotherapy AC + T (Taxol) Radiation Therapy 3DCRT: Breast
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May 1, 2021 10:26AM candy-678 wrote:

runor- WOOHOO TO NO CANCER !!!!!! Yes, get clarification from onc and surgeon. But, breathe.

booboo- Glad you are slowly recovering from the surgery.

I am moving better. Thurs and Friday was very sore. Now, just sore when cough or move a certain way. Have not heard yet if they had enough specimen to send off. But, will just have to make due if not enough. Not going back in anytime soon for another biopsy !!!!

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Also using Xgeva injections for bone mets Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole), Zoladex (goserelin) Chemotherapy AC Surgery Lymph node removal: Sentinel; Mastectomy: Left
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May 1, 2021 10:54AM Tanya_Djamila wrote:

Sondra F glad you’re home on the mend after such a harrowing day.

Runor great news. I think all other doctors will concur and you can skip away joyfully.

Booboo that’s cool that someone’s coming in your home to assist and give pt. That’s reality based and really helpful.

Rosie that’s great that your dental appt wasn’t so bad. I didn’t get an all clear for my dental work which is minimal cleaning and cracked crown. Not so brave to go back yet anyway. I do hate all that stuff in my mouth too. Gag city.

Waving hello to all.

Tany

Tanya Dx 8/19/2003, ILC, Right, 6cm+, Stage IIIA, metastasized to bone/other, 28/28 nodes, ER+, HER2+ (IHC) Dx 4/19/2017, Stage IV, metastasized to bone/other, 0/0 nodes, ER+, HER2+ (IHC) Hormonal Therapy 6/20/2017 Faslodex (fulvestrant)
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May 1, 2021 12:06PM candy-678 wrote:

Tanya- You had a PET this week, right? Any news?

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Also using Xgeva injections for bone mets Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole), Zoladex (goserelin) Chemotherapy AC Surgery Lymph node removal: Sentinel; Mastectomy: Left
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May 1, 2021 12:20PM booboo1 wrote:

HiTanya,

Yeah, I was a bit surprised when I asked if I had the option of in-home PT and the answer was yes. As bad as COVID has been, this is a silver lining. Of course, it’s possible that it is offered even without COVID...

Mae, I didn’t get a chance to say how sorry I was to hear about your aunt. My sincere condolences.

Sondra, I hope your surgery was less painful than mine. Whew! I really do think that any surgery, no matter what you have, is so much harder as we age. Right now, I’m feeling about 90 years old!!!!


Laurie (aka Booboo) Surgery 5/15/2013 Lumpectomy: Left; Lymph node removal: Sentinel Dx 1/2017, DCIS, Left, 1cm, Stage 0, metastasized to bone/liver, Grade 2, 1/4 nodes, ER+/PR+, HER2- (FISH) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib) Chemotherapy AC + T (Taxol) Radiation Therapy 3DCRT: Breast
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May 1, 2021 02:33PM Micmel wrote:

hope everyone is recovering nicely. Resting and taking good care of themselves.. just say hello..

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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May 1, 2021 04:43PM dutchiris wrote:

Hello! I went to a bday party today. My abdomen is a little sore but it was fun. I might go to bed early. I hope everyone is relaxing and/or doing something they enjoy.

Wooho Runor! That is a relief. I'm so happy for you.

Dx 1/25/2013, IDC, Left, Stage IIIC, Grade 2, 19/24 nodes, ER+/PR+, HER2- Chemotherapy 2/22/2013 AC + T (Taxol) Surgery 6/19/2013 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 7/2/2013 Radiation Therapy 7/15/2013 Dx 7/26/2019, IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- (IHC) Hormonal Therapy 8/10/2019 Femara (letrozole) Targeted Therapy 8/17/2019 Ibrance (palbociclib) Dx 4/7/2021, IDC, Stage IV, metastasized to other, Grade 3, ER-/PR+, HER2- (FISH) Chemotherapy 5/14/2021 Xeloda (capecitabine)
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May 1, 2021 06:34PM - edited May 1, 2021 06:34PM by Micmel

so happy Runor. ATA girl. I am hugging you tightly you may even get annoyed with me. Lol.

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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May 1, 2021 06:38PM Micmel wrote:

any news Tanya~??? Awesome dutchiris. Take it easy now. Rest up. BooBoo~ thinking of you resting. BevJen,Sondra, hope you’re doing well. Karen. You tooo. Emac hellloo. SeeQ hello as well. Moth~ hope you’re well. Hi Lee~. Hi Rosie......Mara~💐 Candy~hello darling. I’ll be back for anyone I’ve missed.

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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May 1, 2021 08:06PM Rosie24 wrote:

Runor, Fabulous news that there’s no cancer! 👍👍

Hi back, Mel 😊

Dx 1/23/2019, DCIS/IDC, Left, 3cm, Stage IV, metastasized to liver, Grade 2, ER+/PR-, HER2- (FISH) Hormonal Therapy 1/24/2019 Femara (letrozole) Targeted Therapy 1/24/2019 Ibrance (palbociclib) Surgery 12/4/2019 Lumpectomy: Left Surgery 12/4/2019 Lymph node removal: Sentinel Radiation Therapy Whole-breast
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May 2, 2021 06:02AM - edited May 2, 2021 06:03AM by candy-678

Hello Sunday all.

So here is our list for this week--- Any edits, let me know---

Tanya- results of PET from last week?

Dutchiris- plan for going forward

Moth- Bone scan Wednesday and results of CT from last week

Intolight- MRI and CT, do not have date

BevJen and Booboo- recovery from surgeries


Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Also using Xgeva injections for bone mets Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole), Zoladex (goserelin) Chemotherapy AC Surgery Lymph node removal: Sentinel; Mastectomy: Left
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May 2, 2021 07:36AM mara51506 wrote:

Thank you for keep track of everyone Candy, I find it difficult sometimes so the list is appreciated. Will be in everyone's pocket with donuts until we know treatment plans and all info as well.

I am just going to walk today, little housework and laundry and my older DB and SIL will be doing a shopping trip and most likely a drive as well.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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May 2, 2021 07:38AM mara51506 wrote:

Runor, just saw the good news, a heavy weight has been lifted from you shoulders and heart and mind. Wonderful news. Hope you can have a nice meal to celebrate this news.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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May 2, 2021 09:25AM SeeQ wrote:

Hi everyone, I've been reading along, celebrating or agonizing with the different news. You all have been BUSY (Candy, Hope, Booboo, Dutch, runor...+++) .

OTOH, It's been a quiet week here. Routine dentist appt. I got my pharmacy to start processing my scrip for the dose reduction - not as easy as it sounds. A friend of mine found out her mother has colon cancer and will have a PET this week to see if it's spread - or not, hopefully. I have my first appointment with the endocrinologist on Wednesday. I don't know what to expect from that.

For my Mother's Day present, I just sent Echo Shows to my kids, so we'll be able to video call.

Waving hi to everyone.

Diagnosed de novo Stage IV; numerous liver mets; single small breast tumor identified 4 weeks later Dx 6/2/2020, IDC, 6cm+, Stage IV, metastasized to liver, ER+/PR+, HER2- (IHC) Hormonal Therapy 7/3/2020 Arimidex (anastrozole) Targeted Therapy 7/10/2020 Verzenio

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