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Topic: My Husband, My Life, My Love, My Family, My Cancer

Forum: Stage IV/Metastatic Breast Cancer, Open to All To Contribute —

Topics here are started by members with a Stage IV/Metastatic Breast Cancer diagnosis, but open to all members to contribute to discussions. Please note that there is a separate forum, Stage IV/Metastatic Breast Cancer ONLY, where topics are open only to those members.

Posted on: Jul 6, 2017 08:38PM - edited Oct 28, 2019 12:42PM by Micmel

Micmel wrote:

As I go through this forced path I have been thrown down, I have come to realize the love I have always had for my husband was strong. He is amazing and I love him with my very soul and entire heart. Never would I ever imagine the thought of dying and him being alone. Then the worst part hit me!! I can't seem to shake the horrible sorrow of thinking of another woman taking my place in his life and his heart, and if I Am honest his bed. He is my best friend and the love of my life, I would never need another for any reason. He makes my life complete, and then this happens. How do I process that I most likely won't be the one growing old on the porch that we have talked about, how do I process, someone else sitting in that chair? I hate this trajectory path I've been spun onto, and everyday I feel grief and deep sorrow. How do I live everyday knowing in the back of my mind, I feel like a place holder, for another woman who will be stepping into my life when I die of this horrible disease, more sooner than later. Why would I even want to take any medicines or treatments, when the answer is pretty obviously in front of my face.? Why do we fight so hard for something we cannot control ? Why do we hurt so badly thinking about letting go, or giving up? It's a four letter word that holds so much power. That word is LOVE..... If you have ever felt this way. Share with me, because I understand, I feel this way everyday. I also don't know what to do with the sadness of loss or how to process the process of dying. However slow or fast it may be. Please share your love stories with me, how did you meet? How long together? I want to know your stories, everyone has their person. Everyone loves.....tell me about your family, your friends, your life too, as if this was your living room. ♥️

We are team FU cancer (Named by Parry, our sweet sister) and this is our Lol pub and living room. Welcome, put your feet up and just be you!

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Oct 13, 2021 11:18AM illimae wrote:

Shetland, we checked everything and I made a list of pesticides, cleaning/polishing chemicals, supplements/protein mixed and medications (only found for allergy and cough). DH says he wouldn’t have experimented on himself and is not anti-vax, just anti forced vax. Another possibility is contact with something while they were camping a couple weeks ago, maybe Lyme? Still waiting for more info from the hospital.

Also, here’s Captain Kirk going into space on the Blue Origin rocket this morning.


Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Targeted Therapy 1/2/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/20/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/23/2019 External: Brain Surgery 1/22/2020 Radiation Therapy 2/17/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Oct 13, 2021 11:45AM moth wrote:

the feral cat rescue that does trap/neuter/release here uses grocery store rotisserie chicken in their live cat traps. Might be worth a try ..

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External Hormonal Therapy 12/16/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
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Oct 13, 2021 12:56PM OhioNana1605 wrote:

Mae, what a cool pic. Will have to watch some news to hear his interview. Thanks for posting. I also want to add I think what you all did for your friend is amazing and would all have friends like you. Good luck with cat search. Missed you on Monday’s zoom. Be

Dx 3/1/2013, DCIS, Left, 1cm, Stage 0, Grade 1, 0/1 nodes Dx 2/4/2021, Stage IV, metastasized to liver, Grade 3, ER+/PR+, HER2+ Targeted Therapy 4/30/2021 Perjeta (pertuzumab) Chemotherapy 5/20/2021 TAC
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Oct 13, 2021 01:19PM mara51506 wrote:

That is an amazing picture Mae, cool to see a rocket going to space.

I am very happy for two reasons. They weighed me at the cancer clinic and I have lost some weight, 7 lbs. The other thing that makes me happy is that I do not need to testify in court. My previous statement was sufficient so the crown does not need me, I am happy about that since I was feeling stressed about that.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Oct 13, 2021 01:37PM KBL wrote:

Awesome picture, Mae!


I just got this email in case anyone is interested.

https://embraceforumseries-2021.eventbrite.com/

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- (FISH) Hormonal Therapy 6/24/2019 Femara (letrozole) Targeted Therapy 6/24/2019 Ibrance (palbociclib) Hormonal Therapy 9/19/2021 Faslodex (fulvestrant) Chemotherapy 9/26/2021 Xeloda (capecitabine)
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Oct 13, 2021 02:13PM SondraF wrote:

I started watching Judgement at Nuremberg last night (you know, light viewing for a Tuesday evening) and marveled at how a movie made 60 years ago and one of the supporting actors on the screen was to be launched into space in 2021! What a life that guy has led.

Mara - those are two great bits of news!

"The closer we come to the negative, to death, the more we blossom" - Montgomery Clift Dx 9/27/2019, IDC, Right, 5cm, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- Hormonal Therapy 11/29/2019 Femara (letrozole) Targeted Therapy 11/29/2019 Ibrance (palbociclib) Surgery Prophylactic ovary removal
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Oct 13, 2021 02:45PM moth wrote:

good news Mara, happy for you esp about the trial. What a headache that would have been - a whole bunch of unnecessary stress.

Speaking of trials, my dd was called up for jury duty. As a critical care nurse she might get exempted though.

Saw my oncologist for probably the last time before she goes on mat leave. She said she'd still be floating around in the office until she gives birth, and consulting with the other oncs but she's probably going to be stopping seeing patients. She cheerily said "see you in a year" ( we have 12 mos maternity here) and I loved her optimism about that.

Haven't met her replacement yet. It looks like it won't be the ones who covered for her in the past so I'll be breaking in another MO.

Labs are ok so I get chemo tomorrow - yay!. Yesterday I felt really unwell. I'd had the 3rd covid shot on Monday & it really dumped me on my ass. Even had a fever. Feeling much better today. I've a flu shot booked for later this month.

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External Hormonal Therapy 12/16/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
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Oct 13, 2021 02:59PM illimae wrote:

Got the cat! Closing up the cabin now and heading to the hospital 3 hours away to visit and talk to doctors. We discovered a dead bird that wasn’t there yesterday, so we bagged it and got a water sample to take too.


Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Targeted Therapy 1/2/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/20/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/23/2019 External: Brain Surgery 1/22/2020 Radiation Therapy 2/17/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Oct 13, 2021 05:53PM Kikomoon wrote:

Mae - What's going to happen with the cat?? He/She's a cutie! Looks like my Maudie.

Dx 10/16/2020, IDC, Left, 6cm+, Stage IV, metastasized to brain/bone/liver/lungs, Grade 2, ER-/PR-, HER2+ Chemotherapy Xeloda (capecitabine) Targeted Therapy Herceptin (trastuzumab) Targeted Therapy Tukysa (tucatinib) Radiation Therapy External: Brain Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab) Chemotherapy Taxol (paclitaxel)
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Oct 13, 2021 06:30PM Karenfizedbo15 wrote:

Wow lots going on!Mae you and your DH are just stars ⭐️

Surgery 9/7/2007 Lymph node removal: Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Latissimus dorsi flap Dx 4/2018, IDC, Right, Stage IV, metastasized to lungs, 1/17 nodes, ER+/PR+, HER2- Dx 2021, Stage IV, metastasized to bone Chemotherapy 2/4/2021 Xeloda (capecitabine) Hormonal Therapy Femara (letrozole) Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Ibrance (palbociclib)
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Oct 13, 2021 07:19PM illimae wrote:

Monkey the cat will stay with us until our friend is able to care for himself and her but if that doesn’t happen, then we will keep her. His family seems uninterested and a shelter is out of the question. We’ll know more in the coming days/weeks but it’s ok, not in our plans but this is no one’s fault. She’s been sweet and quiet though, I think she’ll like us.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Targeted Therapy 1/2/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/20/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/23/2019 External: Brain Surgery 1/22/2020 Radiation Therapy 2/17/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Oct 13, 2021 07:20PM Micmel wrote:

yay @ they got the cat! Good people. For sure

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Oct 13, 2021 08:21PM Tanya_Djamila wrote:

Just checking in to our exciting thread.

Mel I concur Mae and her husband are wonderful friends. Catching and Keeping the cat is a crown on top of Queen Mae.

Moth KBL Maemissed you guys Again Monday. So much going on. Grandkids got a cold again. Negative Covid test fir the 6 year old. The teenage twin girl bullied at school drama. I don’t know why but that got me so angry I was weepy all day.

Mara I am overjoyed that you don’t have to testify!!!

Booboo I hope 🤞🏾 things work out.

I see you all here waving hello and sending hugs. I’ll put a basket of baked goods on my beautiful living room friends doorstep!!

Sending hugs.

Tanya

Tanya Dx 8/19/2003, ILC, Right, 6cm+, Stage IIIA, metastasized to bone/other, 28/28 nodes, ER+, HER2+ (IHC) Dx 4/19/2017, Stage IV, metastasized to bone/other, 0/0 nodes, ER+, HER2+ (IHC) Hormonal Therapy 6/20/2017 Faslodex (fulvestrant)
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Oct 13, 2021 08:45PM - edited Oct 13, 2021 08:46PM by KBL

Mae, I'm so glad you got the cat and can care for him. I hope they find the reason your friend got so sick. I can't imagine how mentally exhausted you must be. What great friends.

Mara, I was posting at the same time as you were and didn't see you were able to be let go from testifying. I'm so happy for you, and congratulations on your weight loss

Tanya, we missed you as well. I’m sorry for your grandkids. I hope things get better for them and you

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- (FISH) Hormonal Therapy 6/24/2019 Femara (letrozole) Targeted Therapy 6/24/2019 Ibrance (palbociclib) Hormonal Therapy 9/19/2021 Faslodex (fulvestrant) Chemotherapy 9/26/2021 Xeloda (capecitabine)
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Oct 13, 2021 09:37PM Micmel wrote:

I want to know how to get to the meetings ? You all keep mentioning. I know I’m late to the party. Is it mondays ?? Where?

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Oct 13, 2021 09:54PM moth wrote:

Mel, you go to this page & register at the link in the first post. Then you'll get an email invite link to the zoom meeting

Mondays 2-3 ET

https://community.breastcancer.org/forum/8/topics/...


I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External Hormonal Therapy 12/16/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
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Oct 13, 2021 10:07PM - edited Oct 13, 2021 10:08PM by Micmel

thank you so much Moth. It's usually my nap time. But I would love to meet some of you wonderful ladies. Such a good idea. Thanks again

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Oct 13, 2021 11:25PM ShetlandPony wrote:

Illimae, congrats on rescuing the cat. I can't help wondering how to solve the mystery, and must add these ideas: Could your friend have eaten a poisonous plant by mistake, for example a mushroom or berry that looks like an edible plant? Any hunting or fishing, with the possibility of a poisoned animal? Any clues in the trash can? Also, it is possible for different chemicals used in the same day to combine in the body into something bad.

Mara, what a relief that you do not have to testify. And congrats on losing wight as you wished.

Tanya, I don't blame you for getting upset. I can't stand a bully!

Moth, I'm sure you are good at training new MOs. Somebody has go do it.

My goodness, you'd think the likes of us already have had our share of drama.

2011 Stage I ITCs sn, premenopausal, Oncotype 16. 2014 Stage IV mets breast,liver. TaxolNEAD. Ibrance+letrozole 2yrs. Fas+afinitor nope. XelodaNEAD 2yrs. Eribulin,Doxil nope. SUMMIT FaslodexHerceptinNeratinib for Her2mut NEAD Dx 2011, ILC, 1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 2014, ILC, 2cm, Stage IV, metastasized to liver/other, Grade 2, ER+/PR+, HER2- Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast: Breast Surgery Lumpectomy
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Oct 13, 2021 11:32PM mara51506 wrote:

Tanya, I am relieved as well. I am sorry about your grandchild being bullied. Hopefully someone can put a stop to it.

Shetland, yes, not having to testify is for sure a relief.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Oct 14, 2021 12:37AM illimae wrote:

Shetland, great ideas but no non grocery meat and no mushrooms or berries, he does grow tomatoes and peppers, both appeared normal and food was mostly standard stuff like canned chili and I saw pancake syrup on the kitchen counter but nothing odd. I didn’t notice anything in the trash but didn’t think to really go through it until you asked.

DH saw him today and he’s basically the same. A stroke was ruled out, so now we’re trying to figure out what could have caused the seizures, it appears he had several around the house from areas of soiled carpet and knocked over furniture. He wants desperately to speak but can’t and is having bad tremors, so pointing or nodding is not feasible at this time either. Doctors took the water sample we brought but did not want the dead bird.

The mystery continues but we welcome any ideas, we’re grasping at straws in a pile of straws.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Targeted Therapy 1/2/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/20/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/23/2019 External: Brain Surgery 1/22/2020 Radiation Therapy 2/17/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Oct 14, 2021 07:00AM KBL wrote:

Mel, I would love to meet you in the Zoom. It’s really a great meeting and goes as long as we need, sometimes over by a half hour.

Mae, I’m sorry about your friend not being able to talk. Hopefully things will turn the corner soon.

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- (FISH) Hormonal Therapy 6/24/2019 Femara (letrozole) Targeted Therapy 6/24/2019 Ibrance (palbociclib) Hormonal Therapy 9/19/2021 Faslodex (fulvestrant) Chemotherapy 9/26/2021 Xeloda (capecitabine)
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Oct 14, 2021 08:04AM Kittykat9876 wrote:

Mae, I'm sorry your friend isn't doing so well, with any luck the doctors will get to the cause of the seizures.sooner rather than later.

Mara, I'm glad you don't need to testify and that you've decided to deal with your family maybe moving if and when it happens.

They did the scan today, I either have fungal pneumonitis or medically induced pneumonitis, either way I don't think I'll be going home in a hurry, I really hope I'm wrong.

Tanya, I'm sorry to hear about your granddaughter being bullied.

Waving hi to everyone else and a big thanks to Mel for opening her living room to all of us.

Surgery 5/23/2013 Lumpectomy Dx 10/31/2017, Left, 6cm+, Stage IV, metastasized to bone/lungs/other, Grade 3, 2/22 nodes Chemotherapy 1/28/2021 Navelbine (vinorelbine) Targeted Therapy Afinitor (everolimus) Radiation Therapy External: Bone Hormonal Therapy
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Oct 14, 2021 08:12AM GoldensRBest wrote:

Mae - my mother always said she would rather have one true blue friend than a handful of fair-weathered friends. I am blessed to have 2 such friends (I’ve also had my share of the other kind and to those I’m happy to let go). You certainly fall in the category of the first! What a blessing you are to this man you helped. And what a blessing you are to us!

I hate any kind of bully. Our son-in-laws sister has a 1st grader (in a Christian school no less) who has started to get bullied. Fortunately the staff is on top of it but this is a child who will always be at risk. A super smart kid (he’s reading at a 5th grade level) with no athletic abilities, but so sensitive. So young to have this start. Lots of tears in his household. Breaks my heart. But bullying doesn’t surprise me when we see so much evidence of adults doing the same, especially after the covid experience

Dx 6/1990, IDC, Right, 2cm, Stage IIA, 1/20 nodes, ER+/PR+ Dx 7/1999, IDC, Right, <1cm Dx 7/26/2019, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- (IHC) Hormonal Therapy 8/31/2019 Femara (letrozole) Targeted Therapy 9/25/2019 Ibrance (palbociclib) Hormonal Therapy 1/30/2020 Arimidex (anastrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy CMF Surgery Mastectomy Surgery Lumpectomy; Lymph node removal Radiation Therapy Whole-breast: Breast, Lymph nodes
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Oct 14, 2021 08:32AM mara51506 wrote:

Goldens, you are definitely right about the adults bullying others too. I hope the child does not lose his love of books or become afraid to excel in class. I was picked on myself for being an advanced reader as well. When kids saw me reading my mother's books like Stephen King or John Saul, they made terrible fun of me. Even teachers did not like what I was reading but Mom told them she was OK with it, she knew I could understand what I was reading and actually enjoying them.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Oct 14, 2021 08:44AM Tanya_Djamila wrote:

Thanks for the support. We’re having a meeting with the school today. My GD is in 8th grade. An 11th grade boy talked to her and someone told his GF. She sent a threatening text. I take all threats seriously. GD had full blow anxiety attack day before school. They had a meeting with her and the student. By lunch same day no one sat with her. She sat with a teacher. Lots of gossip. My daughter didn’t send her back to school yet.

Tany


Tanya Dx 8/19/2003, ILC, Right, 6cm+, Stage IIIA, metastasized to bone/other, 28/28 nodes, ER+, HER2+ (IHC) Dx 4/19/2017, Stage IV, metastasized to bone/other, 0/0 nodes, ER+, HER2+ (IHC) Hormonal Therapy 6/20/2017 Faslodex (fulvestrant)
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Oct 14, 2021 08:53AM mara51506 wrote:

Not doing too much today, will probably do my at home workout of 10000 steps after breakfast and decide if I need to go anywhere after. I still like the steps at home as they are a terrific workout with plenty of small rest breaks, takes about 80 minutes.

Also going to try getting some chocolate and cutting it up into smaller pieces. I have been craving it and do not want to get a bar and eat it all. If I let myself eat smaller portions of chocolate or chips or whatever, it should satisfy the craving. I have done that with peanut butter and have not found myself wanting to eat it out of the jar. We will see. I also don't eat at the burger joint now, mostly because I got tired of it and I don't miss the food. If I want a long walk outdoors, I just go in for a drink, eat my granola bar and leave. We will see what happens.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Oct 14, 2021 10:35AM - edited Oct 14, 2021 10:51AM by Micmel

Tanya~I hate bullies. I used to stick up for the people. I'm so sorry your grandchild had to deal with that. I hope he gets kicked in the shin and falls off his bike. What a jerk. Kids can be so mean. Kharma is a bitc* !! Sending hugs.

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Oct 14, 2021 11:19AM Sunshine99 wrote:

I'm so sad to hear of kids (or anyone) being bullied. Life is hard enough, right?

Mae, I hope they can get to the bottom of your friend's symptoms.

Waving hi to everyone,

Carol


Cancer has progressed to my bones. I pray that it never enters my soul. Dx 11/2/2007, IDC, 3cm, Stage IIA, 0/3 nodes, ER+/PR+, HER2- Dx 3/26/2020, ILC/IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Hormonal Therapy 4/22/2020 Arimidex (anastrozole) Radiation Therapy 5/5/2020 External: Bone Radiation Therapy 5/12/2020 External: Bone Targeted Therapy 6/10/2020 Ibrance (palbociclib)
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Oct 14, 2021 11:31AM LivingIVlife wrote:

Mara- so glad you don't have to go to court and yay for losing 7 lbs. I wish I had the same will power as you!

Mae- Thank God you found the cat and thank God for such a special friend you are. My son has seizures and has to have an MRI which I am sure your friend has already had. Just to make sure there is no tumor etc

Tanya- I too was bullied when I was in school. It wasn't on school property as I was chased home and kids threw little stones etc at me. My mom had to talk to the parents directly but we figured the apple didn't fall far from the tree.

Deb Dx 5/1/2019, Right, Stage IV, metastasized to bone/other, 4/11 nodes, ER+/PR+, HER2+ Targeted Therapy 6/30/2019 Ibrance (palbociclib) Hormonal Therapy Femara (letrozole)
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Oct 14, 2021 11:48AM Micmel wrote:

Mara~very glad you don't have to go through that. No one wants to be apart of something like that. Weight loss. 🙌 whoop 🙌 whoop you go girl.

I agree being a teenager is hard enough no less add kids that just don't care into the mix. No wonder kids are depressed more now. When I was young we really didn't hear about that. We took our beating at school or wherever and went on about it. Now a days thirty people know everything going on within two seconds of it being posted .

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)

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