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Topic: My Husband, My Life, My Love, My Family, My Cancer

Forum: Stage IV/Metastatic Breast Cancer, Open to All To Contribute —

Topics here are started by members with a Stage IV/Metastatic Breast Cancer diagnosis, but open to all members to contribute to discussions. Please note that there is a separate forum, Stage IV/Metastatic Breast Cancer ONLY, where topics are open only to those members.

Posted on: Jul 6, 2017 08:38PM - edited Oct 28, 2019 12:42PM by Micmel

Micmel wrote:

As I go through this forced path I have been thrown down, I have come to realize the love I have always had for my husband was strong. He is amazing and I love him with my very soul and entire heart. Never would I ever imagine the thought of dying and him being alone. Then the worst part hit me!! I can't seem to shake the horrible sorrow of thinking of another woman taking my place in his life and his heart, and if I Am honest his bed. He is my best friend and the love of my life, I would never need another for any reason. He makes my life complete, and then this happens. How do I process that I most likely won't be the one growing old on the porch that we have talked about, how do I process, someone else sitting in that chair? I hate this trajectory path I've been spun onto, and everyday I feel grief and deep sorrow. How do I live everyday knowing in the back of my mind, I feel like a place holder, for another woman who will be stepping into my life when I die of this horrible disease, more sooner than later. Why would I even want to take any medicines or treatments, when the answer is pretty obviously in front of my face.? Why do we fight so hard for something we cannot control ? Why do we hurt so badly thinking about letting go, or giving up? It's a four letter word that holds so much power. That word is LOVE..... If you have ever felt this way. Share with me, because I understand, I feel this way everyday. I also don't know what to do with the sadness of loss or how to process the process of dying. However slow or fast it may be. Please share your love stories with me, how did you meet? How long together? I want to know your stories, everyone has their person. Everyone loves.....tell me about your family, your friends, your life too, as if this was your living room. ♥️

We are team FU cancer (Named by Parry, our sweet sister) and this is our Lol pub and living room. Welcome, put your feet up and just be you!

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Nov 27, 2021 09:55PM santabarbarian wrote:

Candy: can your pastor help you? Surely there are other congregants w immune compromise, elderly relatives, or other reasons to be careful who might love a buddy too. Or possibly your cancer treatment center knows others - support group?- who are being cautious.

I am very selective who I see -- but in CA it's easier as the vaccine compliance is high here.

Mel, I think you should foster a dog or maybe a cat (easier!) and then foster fail, and keep them. Nothing puts you in to the moment, and nothing brings laughter as a critter does.

pCR after neoadjuvant chemo w/ integrative practices; Proton rads. Dx 7/13/2018, IDC, Left, 3cm, Stage IIB, Grade 3, ER-/PR-, HER2- (FISH) Chemotherapy 8/12/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 12/27/2018 Lumpectomy: Left Radiation Therapy 2/10/2019 Whole-breast: Breast, Lymph nodes
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Nov 27, 2021 10:36PM Micmel wrote:

I wish everyone had a cancer buddy. I believe it would truly help. Then only issue I would have would be getting too close and feeling a terrible loss and sadness perhaps at some point. That. Would be my only second thought. It kinda happened with Philly. We talked on Instagram and we comment on a lot of things together and even talked on the phone a few times. She was special to me. But IfI had a cancer buddy I think I might be a lot happier knowing that what’s being said is truly understood and my poor DH isn’t stuck seeing me break down in his arms time and time again. I just think it would do me good to have someone locally. But the other problem is compatibility, will you like them? Age could be a factor for some it’s a difficult thing to match. I’ve been asking palliative Care for years now. I guess there is no one that fits the bill. My age. My stage. I even hate saying that. My stage. I didn’t audition for anything. Ugh! Glass is half full. That’s what I’m going to say.

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Nov 27, 2021 10:43PM Micmel wrote:

Santa~ hello my Friend. I would love to rescue a dog. My DH has too much going on to take on a dog. He works too many hours. I could help some with the dog, but I nap a lot. He would have to help me. He has too much on his plate. Traveling back and forth mondays to tuesdays. For work now Big boss wants optics. In the office. I’ll pop him in the eye. Give him optics. Ruined my plan. So for the unseen future I’m dogless. And jealous of all dog owners. ! I so badly want one.

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Nov 27, 2021 10:52PM - edited Nov 27, 2021 10:56PM by mara51506

Well another lazy day for me. Aside from laundry and surveys, did not do much but listen to heavy tools doing god knows what with the empty apartments. My cats were very frightened, both shaking like leaves. Hopefully the lazies go away soon, quite boring in the house but not going out unless I need something.

I also was dreaming just before I woke up about my diner being robbed by a couple of fellows, the most gentle robbers ever. I collapsed out of stress and my heart stopped in the dream. The one robber started giving super gentle chest compressions. The funniest part was I woke up to my cat tigger kneading my chest, guess that was where the chest compressions came from. I usually block the door so they cannot get in, forgot to do it last night. Just kind of a funny start to the day.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Nov 27, 2021 11:39PM - edited Nov 27, 2021 11:43PM by ShetlandPony

Mara, what a cat person kind of dream, with the kitty paw chest compressions. Poor kitties, I hope the noisy work is over very soon.

Yes, candy, I do have stuff going on. After 1 1/2 years I'm off the trial because of progression, and it is not liver mets waking up but new ones in colon and peritoneum. I had to have surgery to remove a blockage, so I am on a strict low fiber diet while I heal from that. Much of my attention goes to getting enough nourishment. I can't do much work in my garden yet because of the surgery which is hard because that is “my happy place". I must be content with planting a couple pots, and am grateful to some helpers for other garden work. I have not decided if I can go camping as planned next month. So, just kind of spinning my wheels and trying to figure out what I can do.

2011 Stage I ITCs sn, premenopausal, Oncotype 16. 2014 Stage IV mets breast,liver. TaxolNEAD. Ibrance+letrozole 2yrs. Fas+afinitor nope. XelodaNEAD 2yrs. Eribulin,Doxil nope. SUMMIT FaslodexHerceptinNeratinib for Her2mut NEAD 1 1/2yrs. GI/perit mets Dx 2011, ILC, 1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 2014, ILC, 2cm, Stage IV, metastasized to liver/other, Grade 2, ER+/PR+, HER2- Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast: Breast Surgery Lumpectomy
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Nov 28, 2021 08:55AM - edited Nov 29, 2021 08:45AM by candy-678

Sorry guys. I posted and then got pulled away from online and could not respond till now.

Santabarbarian- My church is small. I live in a rural community. Maybe 50 members, and all are elderly. My Pastor just retired after 60 years in the ministry (not all at our church of course) and we are looking for an interim Pastor now. Not much choices within my church. I just started attending my cancer center's support group, but we are meeting per Zoom. Which is good since I live 2 hours from the center. We meet weekly per Zoom. It is nice, but, yet again, limited on what I could do in person with the group.

Mel- Good point about compatibility. We need more in common than MBC. Age. Likes. Interests. AND MBC.

Mara- Good grief about your dream. I too have a cat and I get it about the kneading.

ShetlandPony- I am sorry you are having to go thru so much. I am fortunate, so far, that I have had it so good. Just mainly fatigue and mild nausea. This cancer sucks.

"Pocket Duty" for week of Nov 29---

Kittykat- bloods on Wednesday, MO Thursday, chemo Friday.


Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Xgeva use for bone mets. Liver bx Apr 2021 shows ER- now. Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 7/11/2017 Lymph node removal: Sentinel; Mastectomy: Left Chemotherapy 8/1/2017 AC Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy 11/1/2017 Ibrance (palbociclib) Hormonal Therapy 11/1/2017 Femara (letrozole), Zoladex (goserelin) Dx 4/2021, ILC/IDC, Stage IV, metastasized to bone/liver, ER-/PR+, HER2- (FISH) Hormonal Therapy 9/4/2021 Zoladex (goserelin) Targeted Therapy 9/4/2021 Lynparza
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Nov 28, 2021 09:12PM illimae wrote:

No pocket duty for me, nothing medical this week.

I posted on Steam room but since this is my home, I’ll update here. My brother, who has only briefly had his shit together in his 52 years is currently in jail. He lives with my parents (as do his teen sons), he was drunk and high when an argument broke out into s fight. I’m told he tried to strangle my dad and punched my mom in the head, when she attempted to break it up. Now, you all know that I don’t like my parents as people but they’re in their 70’s and any elder abuse is heinous. I am absolutely livid. Sadly, an addict abusing family, grandparents raising grandkids and children growing up with reckless egomaniacs is not so uncommon these days. WTF?!

On s brighter note, it was s beautiful and warmer day today. Tomorrow, we’ll stop by the hospital to see our friend and take him thanksgiving leftovers (he can eat soft things on his own now) and head back to Houston in the afternoon.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/23/2019 External: Brain Surgery 1/22/2020 Radiation Therapy 2/16/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine)
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Nov 28, 2021 09:12PM Micmel wrote:

I hope everyone had a nice holiday weekend. I have so many aches and pains I don’t know which end is up. But I had a wonderful thanksgiving with my children and DH and his sister and her DH and son. Dss brought his girlfriend and she is as cute as can be. Wish my son could meet someone, I think it may help mature him. But I realized I had mostly all of my favorite people in one room together. Those moments are special. I did have the “will I see another”? moment, but I pushed it out of my mind. I paid the price for eating too much or too fast. But it felt like I had swallowed a balloon. Terrible gas pains and bloating. It was awful. The human body when not functioning correctly really does quite hurt. Hours or waiting it out. Some pain felt like labor pains. Seems like my system is never at peace. But over all the weekend was a great time and I am thankful for it.

I’m available for pocket duty first thing ! Hugs to all

Thanks to the person who sent me the sweet personal message. I am looking forward to corresponding more.

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Nov 28, 2021 09:20PM - edited Nov 28, 2021 09:25PM by mara51506

Mae, I'm sorry and horrified to hear about what went on with your brother and abusing his parents. Agreed that even if you are not a good person, does not mean you should be abused at any age let alone in your 70's. Drugs are definitely ugly.

Mel, glad the company at your house this weekend was good, such a nice Holiday weekend you had. As far as the pain, understandable for sure.

I did not do much today, Bought another wig from my survey money since I am so far ahead on grocery gift cards from surveys. Will have two coming in the mail, same style as the one in my avatar though the wig itself is much lighter than the picture in my avatar.


2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Nov 28, 2021 09:27PM Tanya_Djamila wrote:

Mae I’m so sorry that happened to your parents. I’m glad you are safe and living your life to the fullest.

Tany

Tanya Dx 8/19/2003, ILC, Right, 6cm+, Stage IIIA, metastasized to bone/other, 28/28 nodes, ER+, HER2+ (IHC) Dx 4/19/2017, Stage IV, metastasized to bone/other, 0/0 nodes, ER+, HER2+ (IHC) Hormonal Therapy 6/20/2017 Faslodex (fulvestrant)
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Nov 28, 2021 09:40PM candy-678 wrote:

Mae- That is awful about your family. Family can really be complicated sometimes. I know. This life is so hard.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Xgeva use for bone mets. Liver bx Apr 2021 shows ER- now. Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 7/11/2017 Lymph node removal: Sentinel; Mastectomy: Left Chemotherapy 8/1/2017 AC Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy 11/1/2017 Ibrance (palbociclib) Hormonal Therapy 11/1/2017 Femara (letrozole), Zoladex (goserelin) Dx 4/2021, ILC/IDC, Stage IV, metastasized to bone/liver, ER-/PR+, HER2- (FISH) Hormonal Therapy 9/4/2021 Zoladex (goserelin) Targeted Therapy 9/4/2021 Lynparza
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Nov 29, 2021 01:17AM Micmel wrote:

Mae~ we must have been posting at the same time. As I read along and I was jaw dropped. I'm so sorry to hear all that went on. You just don't know what someone will do. Even if they are family. Of course you wouldn't want to see them harmed. I hope things settle down for your parents. But it sounds like a hairy situation there. Hope your brother figures his shit out. Very sorry for your family. Going through this is hard stuff traumatized the kids are I am sure. Hugs to you.

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Nov 29, 2021 01:42AM jhl wrote:

Mae, I was so sorry to read about your family situation. I agree, any abuse is horrific. I don't mean to pry but what about your nephews? Are your parents safe in their home with these boys? Who will take over their supervision now their Dad is in jail? You are so very generous with your time, effort & heart. I know this is awful for you.

We had Thanksgiving at our DS, DIL & grandson's house. Our DD, her husband and children came as well. Like you Micmel, it was a delightful evening and I was just so happy to be joining in.

Jane

Dx 11/15/2019, IDC: Cribriform, Right, <1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- (FISH)
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Nov 29, 2021 06:00AM Kittykat9876 wrote:

Mae, like all the others, I'm sorry to hear about your parents and brother, but on the other hand I'm glad your friend is recovering well.

It'd good to hear of the good time with family for thanksgiving, I had a nice time with Finn over the weekend. I've got blood tests on Wednesday, onc visit Thursday and chemo Friday, lucky me, I get to go to the hospital 3 days in a row this week. I'm glad it's only a 10 min drive away. Here for pocket duty for anyone who needs it, take care everyone.


Surgery 5/23/2013 Lumpectomy Dx 10/31/2017, Left, 6cm+, Stage IV, metastasized to bone/lungs/other, Grade 3, 2/22 nodes Chemotherapy 1/28/2021 Navelbine (vinorelbine) Hormonal Therapy Targeted Therapy Afinitor (everolimus) Radiation Therapy External: Bone
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Nov 29, 2021 07:33AM KBL wrote:

Mae, I’m so sorry about your parents and the family situation. That’s awful. Hopefully, it could be a wake up call for your brother or your parents. It seems when parents try to help, it may end up as enabling. Ugh. Hope to see you this afternoon.

Candy, I’m glad you’ve got your group to talk to on Zoom. I go to the one from here and look forward to it every week.

Mel, that’s so awesome you had a good Thanksgiving. I’m sorry you had stomach issues after.

Kitty, yay for getting to spend time with Finn. Yuck for all the hospital stuff this week.

In for pocket duty for anyone who needs it.

Missed diagnosis from 8/2013 - De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- (FISH) Targeted Therapy 6/24/2019 Ibrance (palbociclib) Hormonal Therapy 6/24/2019 Femara (letrozole) Hormonal Therapy 9/20/2021 Faslodex (fulvestrant) Chemotherapy 9/26/2021 Xeloda (capecitabine)
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Nov 29, 2021 08:44AM candy-678 wrote:

KBL- I have read that some on here meet up on Mondays. I need to attend sometime. Not today though, I am busy. But soon maybe.

Kittykat- I will add you to the list.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Xgeva use for bone mets. Liver bx Apr 2021 shows ER- now. Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 7/11/2017 Lymph node removal: Sentinel; Mastectomy: Left Chemotherapy 8/1/2017 AC Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy 11/1/2017 Ibrance (palbociclib) Hormonal Therapy 11/1/2017 Femara (letrozole), Zoladex (goserelin) Dx 4/2021, ILC/IDC, Stage IV, metastasized to bone/liver, ER-/PR+, HER2- (FISH) Hormonal Therapy 9/4/2021 Zoladex (goserelin) Targeted Therapy 9/4/2021 Lynparza
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Nov 29, 2021 09:14AM - edited Nov 29, 2021 09:38AM by illimae

Jhl, my parents are safe with the boys, they're good enough kids and they've lived with my parents most of their lives. Custody is shared with their mom, she's no picnic either, drinking and yelling a lot. They're 15 and 17, hopefully they get far from all of them as soon as they can and start new.

KBL, my mom definitely enables, always has. There is no excuse for my brother but our parents are not good, they provoked him on many occasions, they told me “the wrong kid got cancer", they constantly tell him he lives like a dog on a couch in the garage (that's his “room"), they treat him like crap but keep him around, so they don't turn on each other probably.

I couldn't be bought, I saw it and moved far away, he thought it was easier to be taken care of but ended up trapped. It's just a mess.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/23/2019 External: Brain Surgery 1/22/2020 Radiation Therapy 2/16/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine)
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Nov 29, 2021 12:26PM LivingIVlife wrote:

I just read the posts over the weekend.

Mae- I am so sorry for this family mess. So many dysfunctional families and people. You are lucky you did get away from it. Yet we still get caught up in the drama.

Mel- I am glad you had your family around you for Thanksgiving. As for the dog maybe you could rescue an older dog that doesn't need alot of walking etc. There are so many older dogs that need rescued because people want puppies or younger dogs. Maybe someone would walk a dog once a day. Just a thought.

Kittykat- busy week coming up. Glad you had time with Finn.

On Saturday we took special son to a Victorian Christmas Market in town. The Market was outdoors but there were specialty shops opened for Christmas. The downtown was also decorated with Whoville characters. It was good but cold. Wore masks outside as well as inside.

Tomorrow isn't pocket duty for me but my special son has to travel to New Brunswick for an MRI. He has seizures (mostly focal ) but the specialist wants to make sure everything else is ok in the brain. He has to be put under with a general because there is no way he would lay down otherwise. His special workers are taking him so I'm going to be a nervous wreck all day. The hospital is about 3 hours away.

Want to join in on the Monday meetings but it is right in the middle of the afternoon here. Especially after a weekend I do rest in the afternoon. I find I need it to continue on with the rest of the day.

Deb Dx 5/1/2019, Right, Stage IV, metastasized to bone/other, 4/11 nodes, ER+/PR+, HER2+ Targeted Therapy 6/30/2019 Ibrance (palbociclib) Hormonal Therapy Femara (letrozole)
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Nov 29, 2021 04:15PM KBL wrote:

Candy, that would be great. Hope to meet you some day.

Mae, I am sorry you are dealing with the family drama. You would never know it unless you said something because I see your positiveness, and it always makes me smile. I feel bad for the kids, but hopefully they have your strength.

LivingIVLife, hope to meet you some day too in our Zoom

Missed diagnosis from 8/2013 - De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- (FISH) Targeted Therapy 6/24/2019 Ibrance (palbociclib) Hormonal Therapy 6/24/2019 Femara (letrozole) Hormonal Therapy 9/20/2021 Faslodex (fulvestrant) Chemotherapy 9/26/2021 Xeloda (capecitabine)
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Nov 29, 2021 09:30PM Micmel wrote:

I always seem to nap during the zoom time frame. No matter what I do I just wind up napping. I hope you all had a good meeting today. Hope everyone is doing well. haven't gone to bed yet which I'm hopeful I'll sleep.
moth ~ how are you doing ?

KBL~ nice to see you.

Goldens, living, Mara.Candy, SeeQ,Rosie,Tanya,BooBoo, kitty,jhl,

Santa, Shetland,Runor,I write , jensgothis njgirl💐

Sandibeaches, haven't seen you around much. Hope all is well. To anyone I've missed I'll be back But offer hugs and pocket duty to anyone who needs it. ! Love to all..

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Nov 29, 2021 10:28PM SeeQ wrote:

Mae - so sorry about the family problems. I hope your parents stand their ground for their own safety.

Zoom meetings - I'm going to measure it again... some day. Lol

Mel - I have terrible problems with digestive cramping sometimes; Gas-X (simethicone) really helps me - eases the pain.

Living - the Victorian Christmas Market sounds wonderful! I hope everything went well with your sis MRI.

Kittykat- sounds like a busy week at the hospital. It's nice that's it's close by m though.

Think good thoughts for us for closing on our Florida house. We've been delayed twice already, and now they're just getting stupid. We should close by the end of the week, if all goes well.

Diagnosed de novo Stage IV; large liver mets; small breast tumor Dx 6/2/2020, IDC, 6cm+, Stage IV, metastasized to liver, ER+/PR+, HER2- (IHC) Hormonal Therapy 7/2/2020 Arimidex (anastrozole) Targeted Therapy 7/9/2020 Verzenio
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Nov 29, 2021 10:44PM Micmel wrote:

SeeQ~thanks for the suggestion, that is exactly what it was , digestive cramping. My oh my the pain. The air bubble was stuck under my rib. I was in agony. I’m going to stock up on that. I don’t want that happening. I thought I was getting a food allergy. Like gluten or dairy. Can you just develop that?? An allergy? I’ve never had any problems before but I’ve noticed sensitive stomach to certain things lately. I know I’m getting old but this crap is for the birds.

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Nov 29, 2021 10:55PM SeeQ wrote:

Mel - yes, it can be agonizing, and you know it will pass (literally <g>), but in the meantime...uggh

Diagnosed de novo Stage IV; large liver mets; small breast tumor Dx 6/2/2020, IDC, 6cm+, Stage IV, metastasized to liver, ER+/PR+, HER2- (IHC) Hormonal Therapy 7/2/2020 Arimidex (anastrozole) Targeted Therapy 7/9/2020 Verzenio
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Nov 29, 2021 11:03PM emac877 wrote:

Hello to the living room! I hope everyone had a good Thanksgiving and good start to the holidays for those not in the US. Ours was delayed because my brother and I both worked the holiday so we celebrated yesterday combined with his birthday. It was good. We did Costco chickens instead of cooking a turkey. I wasn't feeling well and my folks are older so Costco was a game changer for us this year. Still helped my dad make cornbread stuffing and green bean casserole. I think it was a good day.

I saw my MO this morning. I've had increasing pain and fatigue. My PET scan in May showed NED status but based on the bone scan I just had a few weeks ago that looks like it isn't the case. I have uptake still in the right hip and femur, several spots in the spine and my left tibia. My MO kept emphasizing this isn't a progression, it's all stuff that was already there and it's stable, so that's good news. There are no new mets. Even so, it's a little deflating to think that I'm not NED, maybe I never was. I'm wondering if I misunderstood the PET scan result in May. I am being scheduled for a T-spine MRI and he wants to do more radiation to the spine and left knee/tibia area. So, hopefully that will help.

Dx 2/8/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/3 nodes, ER+/PR+, HER2- (IHC) Surgery 3/22/2018 Lumpectomy: Right; Lymph node removal: Underarm/Axillary Chemotherapy 6/7/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 8/26/2018 Whole-breast: Breast, Chest wall Dx 12/4/2019, IDC, Stage IV, metastasized to bone Radiation Therapy 12/22/2019 External: Bone Surgery 12/31/2019 Hormonal Therapy 1/6/2020 Faslodex (fulvestrant) Targeted Therapy 1/6/2020 Verzenio Hormonal Therapy 12/9/2020 Aromasin (exemestane) Hormonal Therapy 6/23/2021 Faslodex (fulvestrant)
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Nov 29, 2021 11:38PM Micmel wrote:

Emac~It is all so confusing. It’s enough to drive you nuts. I’m glad nothing new showed up. If there was anything they would have seen it. Bones are a funny thing I think with keeping a handle and an eye on them. I think they are slow moving. (Thank goodness). I’m sorry if you’re having pain. I know it can also be maddening to be in constant pain and discomfort. Ned is my choice for you !!

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Nov 30, 2021 12:06AM moth wrote:

Mel, thanks for asking about me! It was my post chemo weekend & I was a limp noodle in bed for large chunks of it. I'm better today and made it without a nap or even a lie down.

but i managed to give myself an anxiety stomach headache from xmas shopping online. I'm so indecisive so I had a gazillion tabs open and things in carts and then pop up saying sale ends soon and ugh.... I'm trying to not let it get to me but there is a real possibility that this might be the last one so it's ramping up the desire to have it not be lame...

I have a bone scan on Thursday. Still waiting on the CT appointment - they booked it in the wrong facility (they can't take pts with a port there) so I've been calling them back to reschedule at the other place but still no word.

hugs everyone


I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External: Chest wall Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
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Nov 30, 2021 01:30AM SondraF wrote:

Moth, I know what you mean about trying to Xmas shop o line and trying to cross compare. I usually give myself a whopper of a headache, get really irritable after too long and then it just becomes a bit of a chore! Short spurts works best but it's so easy to get sucked in.

Still in icu today waiting for a room to open up but doing well post mx. We are going to try sitting up in a chair again today as my first attempt yesterday I got really woozy and then second attempt didn't happen due to bed scheduling hokey pokey. But it's been pretty quiet down here so not a big deal. Hope I can brush my teeth soon!

"The closer we come to the negative, to death, the more we blossom" - Montgomery Clift Dx 9/27/2019, IDC, Right, 5cm, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- Targeted Therapy 11/29/2019 Ibrance (palbociclib) Hormonal Therapy 11/29/2019 Femara (letrozole) Surgery Prophylactic ovary removal
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Nov 30, 2021 06:57AM dutchiris wrote:

I have my CT and bone scan on Thursday. I wish I could say I'm not worried. My last bone scan two months ago showed increased activity in T11 so my upcoming scans are after 2 months instead of 3. If I have progression I will start IV chemo of some kind. Maybe if T11 is the only concern, I could get radiation to that vertebra.

I watch my 6 y/o granddaughter while her daddy (not my son) works full time. My daughter has issues. I really only wanted to do it a day or two a week. I strongly suggested he have another child care plan because my situation could change without much notice. I think he is procrastinating. I love my granddaughter with all my heart. She is a good kid so watching her isn't too difficult right now.

I feel selfish or something by just blurting it out here. I read here daily and and silently root for you all.

Dx 1/25/2013, IDC, Left, Stage IIIC, Grade 2, 19/24 nodes, ER+/PR+, HER2- Chemotherapy 2/21/2013 AC + T (Taxol) Surgery 6/18/2013 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 7/1/2013 Radiation Therapy 7/14/2013 Dx 7/26/2019, IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- (IHC) Hormonal Therapy 8/9/2019 Femara (letrozole) Targeted Therapy 8/16/2019 Ibrance (palbociclib) Dx 4/7/2021, IDC, Stage IV, metastasized to other, Grade 3, ER-/PR+, HER2- (FISH) Chemotherapy 5/13/2021 Xeloda (capecitabine)
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Nov 30, 2021 08:11AM booboo1 wrote:

Sondra,

I am sorry you are in the hospital. I must have missed why you are there. In any case, prayers for a quick recovery and hoping all was successful.


Laurie (aka Booboo) #metastaticbreastcancer Dx 3/1/2013, IDC, Left, 1cm, Stage IIA, Grade 2, 1/4 nodes, ER+/PR+, HER2- (FISH) Surgery 5/15/2013 Lumpectomy: Left; Lymph node removal: Sentinel Dx 1/2017, DCIS, Left, 1cm, Stage 0, metastasized to bone/liver, Grade 2, 1/4 nodes, ER+/PR+, HER2- (FISH) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib) Chemotherapy AC + T (Taxol) Radiation Therapy 3DCRT: Breast
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Nov 30, 2021 09:13AM candy-678 wrote:

Pocket duty for Moth for Thursday's bone scan. And for Dutchiris' CT and bone scan Thursday too. Emac sorry for the increased pain. Hope the radiation helps you. Sondra thinking of you as you recouperate in the hospital.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Xgeva use for bone mets. Liver bx Apr 2021 shows ER- now. Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 7/11/2017 Lymph node removal: Sentinel; Mastectomy: Left Chemotherapy 8/1/2017 AC Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy 11/1/2017 Ibrance (palbociclib) Hormonal Therapy 11/1/2017 Femara (letrozole), Zoladex (goserelin) Dx 4/2021, ILC/IDC, Stage IV, metastasized to bone/liver, ER-/PR+, HER2- (FISH) Hormonal Therapy 9/4/2021 Zoladex (goserelin) Targeted Therapy 9/4/2021 Lynparza

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