Mar 21, 2019 11:49PM - edited Mar 21, 2019 11:53PM by skitzblitz
Donna - I just finished 7 rounds of ac and I guess I'm still here to tell-
My doctors didn't give me an echo before bc it was simply put the liver is so bad the heart isn't priority. I'd probably die from one or the other if I didn't try the ac combo. I did just have an echothis week and I do have some issues from the chemo. Normal LVEF is 55-70 or 75, can't remeber, and mine is 48. So it did cause some damage but nothing of huge concern.
I did find, for me, the ac chemo was easier than abraxane really. It took a lot out of me and I did have a week in the hospital after the first round. I had a fever and low low, scary low red and white blood cell counts. Low platelets and then low potassium. Every round of chemo I then went for two bags of blood. I'd say that was maybe what made the ac easier bc I kept blood counts Up then.
It was a long haul but my cat scan just showed some spots in my liver we're a bit bigger and some a bit smaller. It wasn't the magic I hoped it would be. My tumor markers went up from 40.3 to 44.6 and the heart issue on top of it made the doctor feel I got all I could from ac. It basically ended up just holding me stable is what it came to. For many it does magic. I'm so waiting for my magic chemo!
I am leaving to see my son tomorrow in Colorado Springs. My daughter has spring break and I'm ready for a vaca! I'm on a chemo break till I get back and it scares the hell out of me. I told the doctor it worried me bc I feel these liver mets are aggressive. He said that the ac chemo could have at least halted the aggressiveness if nothing much else. He told me I need the break, I need the time off for counts to recoup, and try to leave cancer behind. He said sometimes time away is the best thing of all.
So, I'll be starting halaven when i come back. Anyone who can lead me to some good threads for that, please? Any tips or ideas for help?
Good luck with the ac. I never slept much more than normal on it. I'm kind of weird i guess. The only one so far that made me want to just lay down and sleep is abraxane. Sounds like halaven will do the same to me though.
I'd just like another long run on a chemo. I don't care if it keeps me stable it's better than bad news.
Stupid liver of mine, just cooperate!
Thinking of you all everyday as we travel our road. Up hills, down hills, around the corners we go. Sometimes the road is closed for construction or IT may have detours but we keep traveling and hoping to never get lost. Never run out of gas.