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Seeking Advice After Being Newly Diagnosed with DCIS
Greetings y'all, I learned on Thursday that the pathologist found DCIS in two biopsy samples taken from a clumped 3.6 cm lesion in my left breast (which was discovered via a MRI scan). The radiologist was unable to biopsy an additional 0.9 cm area of nonmass enhancement noted posterior along the pectoralis muscle 1.1 cm…
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DCIS size affect choice in lumpectomy+radiation or mastectomy
Hey group! I was just recently diagnosed with DCIS grade 2. Met with the BS yesterday and the area she has to remove is 4.6cm. She seemed slightly concerned about the amount she’ll be removing but said since my breasts are slightly above average (D cup), she “thinks” she can make my breast look okay. I’m only 41. I want…
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DCIS Grade 3, why did you choose radiation or mastectomy?
All: I am new here, and am having a very hard time deciding what treatment I want to do for my DCIS, Grade 3. My malignancy was 8 mm, margins were clear, cells ER/PR+. They also removed a small fibroadenoma. I met with two plastic surgeons yesterday and am more confused than ever about what to do. I have a DNA mismatch…
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DCIS, Radiation therapy on left side versus mastectomy
hello, this is my second time with DCIS, almost exactly same as about 7 years ago , but this time is on the left side... last time I had lumpectomy and radiation, which all went well. I’m concerned, does anyone know if it’s more harmful to your heart , getting radiation on the left side? Are there different types of…
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MSK Surgeons - Personal experience
Hello, I have been recently diagnosed with DCIS on 5/17. I initially made an appointment with a surgeon recommended by my radiologist. But decided I needed to slow things down and do some research first. I live in NJ and have decided on MSK Monmouth for the convenience of location. But I am able to go to NYC for surgery.…
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OBG Oncologist want to remove my uterus and ovaries
I'm 57 and had a lumpectomy for grade 2 DCIS (4mm, clear margins) in January. No radiation. Started taking low dose Tamoxifan. For an unrelated issue, my OBG has been recommending that I get my ovaries removed since I was about 52 ( I've had two simple cysts). Reading about all the bad side effects involved in getting…
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Thank you!
I was diagnosed with DCIS in January and had a mastectomy on the left breast last week. This forum is a wonderful resource! I have spent the last two hours parked on the couch, just reading article after article and post after post. Especially in the time of COVID it's great to find factual information. The only downside…
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Can DCIS be felt?
Hi Friends: I know this may be a very stupid question. But I haven’t had any dcis only idc. Is it possible to catch DCIS earlyby feeling it or seeing it (breast disfigured)?? I haven’t studied about it. I know it can be seen on mammo and mri. But not seen on ultrasound. Or that’s what I’ve heard. Just thought I’d ask those…
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Anyone a long way out from a DCIS diagnosis?
Is anyone years from a diagnosis of DCIS still posting on this board? By years, in this case I mean like 10 years or more after diagnosis. I would love to find out how things have worked out for you.
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Anyone ER+ PR+ opting out of hormone therapy?
Hi, I just had surgery for DCIS last Thursday. Unfortunately, didn't get clear margins, so more is scheduled in a couple of weeks. After that I am agreeing to radiation therapy as all the literature I can find supports that treatment. However, I read such mixed reveiws on hormone therapy. And my gut says putting these meds…
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Anyone choosing no radiation after lumpectomy?
DCIS 0 low grade - lumpectomy left breast close to chest wall. Due to possible heart and lung damage and other side effects seriously considering no rads at age 65. Anyone gone this route? thanks
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Re-occuring DCIS in 2nd Year
In 2016 I was diagnosed with DCIS and had a wide local excision 2.5 mm high grade DCIS and radiotherapy. On my 2nd year mammogram have been diagnosed of intermediate grade DCIS and I believe 1.7mm however this has not been fully explained to me as to exactly where it is but possibly near the existing scar. I had a very bad…
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Bruising after MRI biopsy
I had an MRI guided biopsy done on my left breast 10 days ago --- and it is really bruised! The outer portion is black and blue, and I have a darker rim under the breast which my surgeon said was blood that had pooled there after the surgery. The surgeon looked at the breast on Tuesday of this week - and didn't seem…
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DCIS recurrence after a mastectomy
Hello ! I had a bilateral mastectomy 2 years ago when I was diagnosed with high grade DCIS. I lost my nipple so all that was left was the skin and I had immediate reconstruction. I am now waiting for the final pathology report following on my a lumpectomy. Never thought I’d have to have a lumpectomy after a mastectomy! My…
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What were your symtoms of DCIS
was just wondering what your ladies symtoms were with DCIS or if you had any st all besides a lump
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Breastfeeding trouble a sign of DCIS?
I wanted to bring over this discussion from the DCIS to Stage IV discussion because I think it is interesting on its own and important to me personally. I was diagnosed with DCIS about 1 1/2 years after weaning my twins... the first troublesome mammogram (calcifications) was seen more like 6 months after weaning, but they…
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Side Effects of Mammosite Radiation Therapy
It's been almot two years since I was diagnosed with DCIS. I had Mammosite Radiation Therapy. However, the area in which I had the radiation is still painful and "hard" to the touch. I've been told by my doctors that this is normal and one of the side effects of Mammosite Radiation Therapy, plus I have scar tissue in the…
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Drain Removal-- is it very painful???
Ok ladies, lay it on me. I am supposed to have my drain removed Monday morning and I need to know how painful the removal process is (so I can dread it and not sleep tomorrow night! ). And is the drain site numbed before removal? I plan to take my Percocet prior to the event! Thanks for your help!!!
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Drinking wine after bilateral mastectomy
What are the risks associated with breast cancer reoccurance and drinking a glass of wine or two if you have a bilateral mastectomy?
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Breast Cancer and Graves Disease
I had DCIS 6 years ago and developed Graves Disease at the same time. Since that time, I've run into quite a few other women who have had the double whammy of these two autoimmune diseases at the same time. Anyone else here have these 2 diseases appear at the same time?
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Incision location for lumpectomy
Have been diagnosed with DCIS, intermediate grade, under 1cm, Estrogen and Prog positive.. Been carefully researching, speaking with DCIS patients, interviewing Docs and have made my decision to have a lumpectomy, scheduled for March 8th... The area of DCIS was found on the 10 o'clock position on my left breast, on the…
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DCIS Double negative ER/PR... Anyone?
Is there anyone who can share their journey? My surgeon said this is not seen often and could mean if it came back as IDC it might come back as a triple negative. She's recommening DMX. Im meeting with the PS and the OCO next week with a long let of questions. So much confusion... Would love real life examples.
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Info and Experience with Apocrine DCIS?
Greetings all, I had my surgery last week and the path report shows I haved a rare form of DCIS - Apocrine DCIS - Cribriform, no necrosis, low and intermediate grade, ER/PR negative. It was 2.8 CM and 2 of the margins having only 1 mm clear to edge. So I need more surgery at least for cleaner margins and I need to decide…
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Breast Microbiome Different in Women With Breast Cancer
There's a breast microbiome, and it's different in women with breast cancer By Erin Blakemore October 19, 2016 (Washington Post) "In one of the most recent studies, researchers from the Mayo Clinic have identified significant differences in the breast bacteria of women with and without breast cancer. The paper, published…
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DCIS Treatment Plan: A New Standard of Care!
This thread is not intended to serve as guidance or provide any kind of recommendation for a woman trying to make a decision about DCIS treatment. I am not an expert on this topic, and I have only the most rudimentary grasp of the research being conducted on DCIS. This thread documents my recent visit to a comprehensive…
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Continuing the discussion... DCIS to Stage IV progression
There is a thread in the Stage IV forum that has caught the attention of a number of the DCIS women, and has raised a lot of concern. Although I have been posting in that thread, I don't feel that it's appropriate for a group of DCIS women to be discussing DCIS in the Stage IV forum. I requested to the DCIS women in that…