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Is there molecular subtyping for ductal carcinoma in situ (DCIS) in breast cancer?
GPT gave me a definite answer, but I can't find any related information on the web. Pretty puzzled…
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Mastectomy with close margins
Hi, I recently had a bilateral mastectomy to remove a large section of DCIS in my right breast. My surgeon said the margins were clear and that’s all that matters (the closest ones were the superior at 1mm clearance and the deep at 2mm clearance). He said the recurrence rate is less than 5%. However, I’m 35 and the dcis…
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Bio markers for DCIS
hi everyone, I found out my bio markers for a large area of dcis were estrogen positive (11-33%) and progesterone negative, her2 status ( not tested). Does this matter with a dcis diagnosis? There does not seem to be a lot of people with this type of hormone status (er pos, pr neg). Trying to navigate this new normal of…
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Super Confused: Reconstruction vs Flat
Hello Warriors, I am extremely new and learning all the terms, jargons, abbreviations here. Please excuse me for any ignorance. Recently diagnosed: 43 yr old, F. Right: Stage 1, grade 3 Microinvasive. DCIS. Macrocalcification span of 8 CM Left: Microcalcifications. 11 mm mass. Multiple cysts are Benign. Genetic Test:…
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Just diagnosed DCIS grade 3 after many benign biopsies
I joined here in 2017 with questions after finding out I was CHEK2 positive and a many-year (close to 20) history of nipple discharge. I had I think 3 ultrasound guided biopsies around that time and all came back benign intraductal papillomas. Although the CHEK2 put me in a higher risk category there is no breast cancer…
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DCIS with possible Microinvasion
Hi all, so glad to have found this community. Got the horrible news and been on an emotional roller coaster ever since.diagnosis- DCIS right breast confirmed with biopsy. Tumor area spans almost 10mm so mastectomy is recommended. MRI showed invasion of 1.5. Thinking about Bilateral Mastectomy with immediate reconstruction.…
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New grouping of linear and punctuate microcalcifications
my mom had bc in 2003 stage 2. Last month she had her annual mammogram and the report had several findings. -post therapeutic changes in posterior right upper outer quadrant -skin thickening which was present previously but slightly more pronounced on right breast -new grouping of linear and punctuate microcalcifications…
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DCIS, too much info, just saw biopsy result, confused
I just saw my biopsy result on the medical page. My Dr appointment is not till Tues the 29th. I had rt breast discharge, MRI showed 'something"..so decided to do a excision biopsy. Had that the 18th...still sore! Results show DCIS, grade 2. there's a bunch of other stuff I don't understand, even with looking it up. There's…
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Re-incision
Hello, I was recently diagnosed with DCIS. I had my lumpectomy on 10/31/2022. My labs resulted in margins that were not clear. The lateral was on the rim and the other 2 slides (superior/inferior) were 1.5 CM with DCIS. Radiation oncologist wants me to have re-incision but surgeon is not sure that is the answer. The DCIS…
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A laypersons guide to DCIS
This is a reposting and updating of my "DCIS facts and misconceptions" thread. In setting up that thread, I wanted to share basic information about DCIS that I'd learned from my research and in my years on this board. I also wanted to provide links to reliable websites that have good general information about DCIS - there…
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Experience to share about how to find a timely second opinion?
I'm recently dragonized as DCIS after lumpectomy. DCIS, nuclear grade 1, present in 2/13 slices, 8mm, ER+/PR+, Distance from Closest Margin (Millimeters): 1mm Closest Margin(s): Superior = 1mm Distance from Other Margins > 5mm (BTW, I am a little bit concerned about the Superior margin < 2mm; would it play a major role in…
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Delaying surgery to "shrink" DCIS with letrazole?
Has anyone else ever heard of such a thing? My sister was diagnosed with DCIS several months ago and still has not gotten surgery. She has 4cm of grade 2 DCIS. She really, really, *really* does not want surgery and has had a mental breakdown over her diagnosis. She found a doctor willing to prescribe her letrazole for the…
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Can you have DCIS only & not be put on a hormone blocker?
or even referred to an oncologist? Hi guys. My fraternal twin sister just got diagnosed with what appears to be 6mm of DCIS. I was diagnosed with both IDC and DCIS in 2020, and we have no other family history. My sister said her doctor told her she may need just the breast surgeon, and the surgeon may not even refer her to…
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Boost Dose After Radiation for Some DCIS Reduces Recurrence Risk
Boost Dose After Radiation for Moderate- or High-Grade DCIS Reduces Recurrence Risk Aug 15, 2022 After whole-breast radiation, a boost dose to the area where the tumor was further reduced the risk of moderate- or high-grade DCIS coming back. Read more...
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Decided to do BMX, but scared. Advice?
Hi All, I'm blown away by the amount of support on this website. Your feedback would be so helpful. My surgery is scheduled for April 15. I have DCIS stage zero and another spot that is DCIS with micro invasions at stage 1A -- both are grade 3. All of my factors added together have helped me make my decision -- plus my…
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Diagnosis in December, just home now to deal with it
I mentioned this in someone else's thread but just to recap…. I had my mammogram in October, called back a week later for another at the hospital. Not worried, this has happened twice before. It was recommended that I have a biopsy so I did…but that didn't happen until later in November. So I waited… Now, last year I had…
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What grade is “GRADE 1-2/3" DICU?
I just received a surgical pathology exam test result. The grade is “GRADE 1-2/3" and I don’t know what this means. Is it grade 1 to 2 out of 3? Or maybe grade 1 and ⅔ (1.67)? I’ve pasted below details from the test result, in case they’re helpful in answering my question. A. Breast, Right, Right breast- upper outer…
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After DCIS, About 1 in 5 Invasive BCs Unrelated to Original DCIS
After DCIS, About One in Five Invasive Breast Cancers Unrelated to Original DCIS June 15, 2022 In the years following a DCIS (ductal carcinoma in situ) diagnosis, about one in five invasive breast cancers that developed were not related to the original DCIS lesion. Read more...
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Unusual DCIS a presentation?
Hello this is my first post so hope it works. About a year ago I noticed clear nipple discharge on the left side of my bra. I was send for mammogram andultrasound which were negative but a MRI showed a 4.7x 4.2 x 2.5 suspicious area of tissue. ADH was found on needle biopsy then DCIS grade 1 on excision wire biopsy. My…
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Older w/ DCIS Have Low Invasive BC Risk, May Not Benefit From Tx
Older Women With DCIS Have Low Risk of Invasive Breast Cancer, May Not Benefit From Treatment Mar 17, 2022 Women ages 70 and older who were diagnosed with low- or intermediate-grade DCIS and didn't receive treatment had a very low risk of developing invasive cancer in the same breast. Read more...
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First post. Anyone have similar mammo. and biopsy results?
Hi all. I was diagnosed on May 12 and have not seen a surgeon yet (appt. this coming Thu). The diagnostic mammogram says "Mildly amorphous calcifications in the right breast retroareolar extending to the lower inner quadrant involving an area of up to 5 cm maximal dimension..." It goes on to say that there are two more…
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Hard lump after biozorb
I had a lumpectomy in July for DCIS. They put in a biozorb device. Since then, I have developed what feels like a golf ball in the surgical site, where the biozorb has been placed. Is this normal? Any thoughts about using massage therapy to soften it up? I don't want to dislodge it! Thanks for your thoughts.
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What test followups after initial DCIS 0??
So, a year and a half ago, had initial diagnosis of dcis, stage 0, very small---lumpectomy. I have had 6 mos. 3-D mammo's. Just had my last one in March it was ok. However, because I didn't want to take the tamox, and I asked the surgeon about follow up going forward, he suggested MRI. (I did have one when I was diagnosed…
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To MRI or not to MRI?
I had a lumpectomy 2 years ago for DCIS. I decided against radiation or Tamoxifen (though did take low does for 6 months). According to the Sloan Kettering risk calculator, my chances of DCIS returning are between 15-20% in the next 10 years. On my most recent yearly follow up appointment ( a clear mammogram after 2 years…
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Looks like DCIS again
Went for annual mammo/us this morning. Wasn't feeling particularly nervous as it has been 6 yrs since original diagnosis. I was recently diagnosed with an aortic aneurysm which has taken up the worry space in my brain. But looks like the DCIS is back. They were able to do the biopsy today and now I wait for results. The…
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HRT After DCIS
Ladies, you are a rich source of information when you have it, and a great help for research when you don't yet have it. I'm so grateful you are here. I'd like to open up a can of worms. Not for the sake of it, heaven knows, but for the sake of menopausal DCIS patients such as myself in dire need of symptom relief and the…
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Dcis high grade
About a month ago i did a mammogram and ultrasound that found a large area of my left breast had calcifications clustered, did a core biopsy with ultrasound guide and results came back DCIS high grade with comedo necrosis. Gen test came back negative so doctors recommended mastectomy of the left breast but since its a…
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Just Diagnosed
I'm 62 and had my excisional biopsy last week. Pathology report showed both invasive ductal carcinoma in situ and invasive ductal carcinoma. Second diagnostic re-excision to get the margins and sentinel lymph nodes (+3 additional lymph nodes) is scheduled in a couple days. If any cancer in lymph nodes, next step mastectomy…
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13 years out - 'all clear' mamm - DCIS - no additional treatment
Just wanted to share that I had my annual mammogram earlier this week and was given 'nothing suspicious' results and told to come back again in another year for annual screen. I was diagnosed with DCIS in my left breast (very tiny 1.6 mm single focus) in July of 2008 at age 46. At that time I had a lumpectomy but did no…
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Hydrolyzed Collagen
I'm a DCIS survivor, and I'm wondering if it's okay to take hydrolyzed collagen. I have read conflicting articles.