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Just diagnosed... what should be the order of my treatment protocol?
Hi there… I was just diagnosed with DCIS, left breast. I'm not sure what my 1st, 2nd, 3rd, etc steps are - or should be - from here. Here are the medical notes from my diagnosis: Left breast calcifications:- Grade 3 ductal carcinoma in situ, solid type with comedonecrosis. - Numerous microcalcifications are identified. -…
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Breast Self-Exam, Mammogram Best for Finding Invasive Breast Cancer After DCIS
Breast Self-Exam, Mammogram Best for Finding Invasive Breast Cancer After DCIS Jan 15, 2024 After DCIS treatment, women who develop invasive breast cancer have the cancer found most often via mammogram or find it themselves, rather than during a doctor’s exam. Read more…
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lumpectomy vs mastectomy - why did you choose your route?
Hi all, i was wondering if anyone could elaborate on this question. i have multifocal, grade 3 DCIS, and am contemplating another lumpectomy vs a mastectomy. my surgeon is confident she can clear the margins with another lumpectomy, and recommends radiation afterward. BUT anecdotally, so many women I’ve talked to, even…
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Genomic Test Helps Decide Which DCIS Needs Radiation
Genomic Test Helps Decide Which DCIS Needs Radiation Dec 8, 2023 Dr. Seema Khan explains her research looking at the ability of a genomic test to help make radiation decisions for DCIS. The Oncotype DX Breast DCIS Score test is used to help people and their doctors make decisions about whether radiation after lumpectomy…
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Node Testing for Contralateral Prophylactic Mastectomy?
Hello! I am so grateful this board exists! I (48 yrs old) was just diagnosed with high grade, ER+/PR+ DCIS in my left breast (by mammogram and a stereotactic biopsy.) In hopes of avoiding radiation and hormone therapy, and for symmetry, I am wanting to do a bilateral mastectomy with aesthetic flat closure. I was told my…
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Suspicious lymphovascular invasion and Triple negative DCIS?
I am so sad that I returned to this board reporting after 3 years of left mastectomy, I just found from MRI that I have developed DCIS in my right breast and "suspicious for focal lymphovascular invasion". I did not have MRI in the past 3 years. All I had was diagnostic mamo and ultrasound which is all clear. I wonder what…
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Newly diagnosed DCIS
Hi all, I am newly diagnosed with DCIS and have had a few dismissive and unsupportive responses to the news from family and friends. Wondering if others may have also experienced this in regards to DCIS and how they have managed it please? While I understand DCIS may have very positive outcomes, it is still overwhelming…
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Upcoming Lumpectomy
Greetings, I am scheduled for a lumpectomy this coming Monday, September 25th. I was diagnosed with DCIS grade 0 and at this point even after reviewing as much information as possible, I am not sure if I want the traditional treatment such as radiation or chemotherapy. I am 67 years of age. With regards to radiation, I am…
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How long should I wait for an appt to get a second opinion?
Hi! I was diagnosed with high-grade DCIS by a local oncologist but I wanted a second opinion so I scheduled another appointment at a bigger cancer research center but the earliest appointment they have is one month and a week away. I’m nervous to wait that long since my local surgeon can do a lumpectomy this coming Monday.…
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Can a biopsy needle rupture the membrane of a DCIS and make it invasive?
Hi! I’m concerned about the consequences of having a biopsy. I know it is to lower the number of surgeries regarding benign lesions but I wonder: The definition of DCIS is (according to cancer.org) that “ the cells that line the ducts have changed to cancer cells but they have NOT spread through the walls of the ducts into…
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MRI Biopsy
Hi, I was diagnosed with ADH in June of this year after my mammogram, ultrasound and biopsy. I decided to get a second opinion for several reasons. The second Oncologist practice contacted me in July indicating after reviewing my images that I actually have DCIS stage 0. They recommended that I have an MRI and also…
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Has anybody decided to do excision only? Or active monitoring?
I have no intention of having radiation or hormone therapy. I am considering lumpectomy only or active monitoring. Has anyone else chosen this route?
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Lumpectomy - no rads age 40
I recently had a lumpectomy for low grade DCIS. The pathology results showed all DCIS was removed at biopsy, so clean margins with atypia only. BS thought I could avoid radiation provided these results and my history of uncommon reactions to medicines. RO states it is my choice, however, per my younger age would still…
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Breast cancer
Hello everyone I was diagnosed in 2020 with breast cancer. Did chemo, radiation, masectomy, removed lymph nodes, and did reconstruction in Nov 22. Of lately am not feeling 💯 so now u am scheduling an appointment to see my doc to get a X-ray or ultrasound done, the breasts pain every now and then and last night I started…
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Some discomfort
4 months ago, yearly mammo showed another dcis, behind my lumpectomy scar where my old dcis was —3 1/2 years ago. Surgeon wanted to watch it, and have me take a "baby" amt of tamox. Which I haven't. The dcis was very small. (I'm due for my 6 mos mammo follow up in two months.) But, I've noticed some pain in the breast, or…
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Age and DCIS Studies
Why do the DCIS monitoring vs. treatment studies all have an age cut off of 40 or 45 to qualify?
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DCIS & pregnancy?
Hi. New here and just diagnosed about 2 weeks ago with DCIS in left breast, 5cm, stage 2 with comedonecrosis. I have been trying to have a baby for over 3 years (just turned 40 this year) and was pursuing IVF before my diagnosis. It appears that my IVF treatments have been fueling the DCIS (estrogen positive at 81%,…
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Just found mass on forearm
I have been watching a mass/lump on my forearm for about 4-weeks, it is on the same side as my original breast cancer. I saw the doctor yester day and now I'm having an ultrasound of my lower forearm and upper area on Monday. The doctor said it is not lymphedema. Has anyone had this happen to them? July 2023 will mark my…
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Should I be concerned about the bad impact from compression as ABUS imaging is extremely painful
I did the breast ultrasound screening a few days ago. The breast ultrasound screening was *extremely* painful, much more painful than mammo. In the breast ultrasound screening, I felt that the compression was too much. And I felt so painful that I had to make a tight fist and make a sound. I told the lady I felt very very…
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Having swellings on fingers and arm 8 hours after surgery. Is it common?
Hi, I had a unilateral mastectomy today. Surgery was completed about 8 hours ago. I just noticed that my arm and fingers on the side where I had a surgery are slightly swollen. Before surgery I had read the symptoms of lymphedema. In my case, surgeon took 3 lymph nodes away. I’m at risk of developing lymphedema. I know I…
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Did you consider bilateral mastectomy for DCIS?
I am really struggling to make a decision about the best path forward, so I've come to learn from all of you. I am still waiting on genetic testing results to come through, but have no reason to believe that there will be anything of significance. If there is, I will pivot accordingly. I had a 1.2cm, grade 3 DCIS with…
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Another tiny calcification dcis in same spot 3 years out!
Hi, my yearly mammo just showed a tiny 2mm area of linear dcis behind my lumpectomy scar. I was finally stable and just started having a yearly mammo, and they found this....! So, just had a stereostatic biopsy and am waiting for results, but it's in the ducts and doctor feels it's dcis again. So, I wanted to know if…
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DCIS: choosing surgery only, followed by monitoring
Hi all, Would love to start a thread for those with DCIS who chose surgery only, no RT or HR meds. I've done a lot of research and am comfortable with my decision based on my pathology and low Oncotype score. I will have monitoring twice a year, once w GYN & mammogram and once w BS & ultrasound, so should anything change…
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Unilateral Mastectomy without Reconstruction - Mobility and Clothing
Hi everyone, I am a new member and was diagnosed with DCIS on the left breast couple weeks ago. I am still slowly digesting the "fact". Doctor suggested mastectomy, which is completely fine to me. I am 90% not going with reconstruction. So mostly likely I will be living with ONE breast. My main question is whether I will…
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Is there molecular subtyping for ductal carcinoma in situ (DCIS) in breast cancer?
GPT gave me a definite answer, but I can't find any related information on the web. Pretty puzzled…
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Mastectomy with close margins
Hi, I recently had a bilateral mastectomy to remove a large section of DCIS in my right breast. My surgeon said the margins were clear and that’s all that matters (the closest ones were the superior at 1mm clearance and the deep at 2mm clearance). He said the recurrence rate is less than 5%. However, I’m 35 and the dcis…
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Bio markers for DCIS
hi everyone, I found out my bio markers for a large area of dcis were estrogen positive (11-33%) and progesterone negative, her2 status ( not tested). Does this matter with a dcis diagnosis? There does not seem to be a lot of people with this type of hormone status (er pos, pr neg). Trying to navigate this new normal of…
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Super Confused: Reconstruction vs Flat
Hello Warriors, I am extremely new and learning all the terms, jargons, abbreviations here. Please excuse me for any ignorance. Recently diagnosed: 43 yr old, F. Right: Stage 1, grade 3 Microinvasive. DCIS. Macrocalcification span of 8 CM Left: Microcalcifications. 11 mm mass. Multiple cysts are Benign. Genetic Test:…
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Just diagnosed DCIS grade 3 after many benign biopsies
I joined here in 2017 with questions after finding out I was CHEK2 positive and a many-year (close to 20) history of nipple discharge. I had I think 3 ultrasound guided biopsies around that time and all came back benign intraductal papillomas. Although the CHEK2 put me in a higher risk category there is no breast cancer…
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DCIS with possible Microinvasion
Hi all, so glad to have found this community. Got the horrible news and been on an emotional roller coaster ever since.diagnosis- DCIS right breast confirmed with biopsy. Tumor area spans almost 10mm so mastectomy is recommended. MRI showed invasion of 1.5. Thinking about Bilateral Mastectomy with immediate reconstruction.…