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Oncotype delayed - 3 weeks
I think this is just a vent! But I had surgery May 12th. They said 2 weeks for oncotype score results. I called last Friday and they said they still didn't have results and as soon as nurses get it they let doctor know then I should know. So now its 3+ weeks post-op and still no score. I have my MO appt scheduled for next…
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Is ER+ PR- common?
Hi all, I was diagnosed at the end of February with Invasive carcinoma with lobular and ductal features; 18mm spiculated mass. ER+ PR- HER2- I've had lumpectomy and they did find macrometastases in one sentinel lymph node. Awaiting Oncotype score now. I have a few questions/ wonderings about others' experiences... * Even…
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Triple Positive - Losing It
Hi All Found out this morning that I’m triple positive. Grade 2. Really high ki-67. And I’m absolutely terrified. I’ve spent the last 2 weeks losing my mind over the possibility of being triple negative, only to find out I was freaking out about the wrong thing. My tumor is 1.1cm in my right. Biopsy apparently took some…
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Oncotype Score for ER+/PR-
If you were highly ER+ but PR-, HER-....could you please post your Oncotype Score? My mom was recently diagnosed with this and I'm curious about the range of scores. I had a low score of 10, but I was highly positive for both. Thank you!
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Meaning of ER/PR scores on Oncotype Report
Hi everyone. Before I call Genomic Health with this, I thought I would check with the wise people on BCO…what is the significance of the ER/PR scores reported on the Oncotype report other than confirming + or - receptor status? Also what is the range for strongly positive, moderately positive etc? I’ve tried to find some…
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Cancer in lymph nodes=Chemo??
Hello In 2020 I was diagnosed and went through it all! Now, a dear friend has been diagnosed and is waiting on her oncotype results. She had a lumpectomy and 2 lymph nodes removed. There was cancer in one. Her dr. is waiting on the oncotype results to determine if chemo is needed. I thought if cancer is in the lymph nodes,…
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Waiting on HER 2 results
Hello everyone! I am newly diagnosed with Invasive ductal carcinoma, grade 2, and ductal carcinoma in situ (DCIS), nuclear grade 3, solid and cribriform patterns with focal necrosis and microcalcifications. I just received word that I am ER+/PR+ and my HER 2 results with a score of 2 and so now I am waiting for additional…
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Im Back after 16 years!
Well, here I am again . First diagnosis was 2004, ER+, PR+, Her 2+, chemo (Adriamycin/Ctyoxin/Taxotere, Herceptin), radiation, removal of scar tissue (and breast lift) 5 years ago. Now new cancer ER-, PR-, Her2 2+ waiting for FISH results and PET scan. I was hoping to have the option to use the immuno onc drugs which seem…
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PET scan yesterday, worried
I'm still waiting on HER2 results, and I had a PET scan yesterday. The results are not in mychart but my MO's office said they're available and that the doctor will discuss the results with me at my appointment on Friday. I messaged the nurse to ask if the doctor can call me with the results or if I can be seen sooner but…
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Biopsy on Opposite Breast
Diagnosed 1/10, IDC ER/PR+, HER2- on my right breast. Had my MRI this week. Right side looks how they were hoping -- no additional spots/ spread. Left side comes back as a 8mm spot on my left breast. BIRARDS 4b. Scheduled for an ultrasound on Tuesday and potentially a biospy later in the week. I am so upset about possibly…
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Pathology Report Help
Is there anybody who can help me decipher my pathology report? I had a lumpectomy on 12/7, but I don't have an appointment until next week to discuss the results and possible treatments. Does it look bad? Breast - RIGHT BREAST MASS (OUT OF BODY AT 1111) FINAL DIAGNOSIS Right breast mass, lumpectomy: -MULTIPLE SMALL FOCI OF…
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CT scan
Hi, For over 6 months, I’ve been having rib pain On my lower left side. I has an X-ray and bone scan- all normal today I had a CT scan with contrast and I got my results: “ hypodense cystic lesion on spleen with well circumscribed margins. Appears benign but probably cause of rib pain”. This was a simple cyst last year and…
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Pathology Report Help
Hello, is there anyone who can help me decipher this pathology report? I had a lumpectomy on 12/7. I don't have an appointment until next week to discuss results and possible treatments. Thanks. alt="" style=""> alt="">
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Oncotype wait
My wife has been waiting since 10-20 for the results of her oncotype and they just called and said won't be available until end of November . She is staunchly against chemo but said if it shows a great benefit she would be open to discussion .We have been reading over everything together and can't seem to figure out if she…
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Mammaprint and Oncotype Dx
I had an oncotype dx conducted and the results came back with a high score in the low reoccurrence range, which means I won’t benefit from chemotherapy. Given my age, family history, and Ki-67 of my tumor another oncologist ran a mammaprint test. The mammaprint results showed a need for chemotherapy. Has anyone else had…
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IDC with Lobular Features — looking for resources
JUST diagnosed and this is my first stop. MRI is happening next and will continue workups, but I was given this diagnosis of IDC "with lobular features" and having a hard time finding information specific to that, especially the "with lobular features part." They also biopsied one lymph node and it came back positive. Does…
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Terrified continued
Here's my update continued from the " not Diagnosed but worried"section I did get the call yesterday - the doc said they found a small cancer (1/3 inch biopsy but 1/2 inch on mammogram)that doesn't seem very aggressive.He did say it was a hormone sensitive cancer(something about a grade 2) and that it's not good news but…
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Oncotype vs Mammaprint
Looking for info on both of these tests. Both Dr. Susan Love's book and the breast surgeon's office I went to said these are good tests to learn more about the tumor. However, when I met with an oncologist for a "meet and greet" he said I "did not qualify" as my tumor is less than 6mm. I don't really see why that matters.…
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Oncotype Recurrence and Distant recurrence scores
Have noticed many have the same Recurrence Score but different Distant Recurrence Scores. Wondering what causes the difference. I requested the raw data from Oncotype DX, hoping for answers and though it was informative, I still wonder what causes different Distant Recurrence percentages. I had assumed the lower the RS,…
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The MFing Waiting Game
Hello from Philly... Happy to have found this forum. I apologize ahead of time for any profanities (again, I'm from Philly). 35 y/o son here. 65 y/o mom was diagnosed with breast cancer on 1/13. The initial conversation was a blur, and new tidbits of information has been trickling in over the past few weeks. Here's what we…
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New here, left side IDC, right side biopsy scheduled
Hello, First time posting, I can't thank everyone enough for posting questions and answers. This forum has been so helpful already. I'll try to make this short and please moderators let me know if I'm posting in the wrong place. I'm 45, small dense breasts, NBN gene positive, strong family history. Diagnosed (ultrasound…
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Overwhelmed and heartbroken.
My wife has been diagnosed with breast cancer on 1/7/19, and we are completely overwhelmed and unsure of every decision that will have to be made in the very near future. Her tumor is very solid and painful and has increased in pain over the last month or so. Her tumor is attached very solid to her ribcage along the left…
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i have more delays...is it bad or i am overreacting
Dear all, I had biopsy on right breast and result :DCIS as of now After that i had an appointment with my surgeon and he ordered 2 more biopsies of calcification: the same breast and also left breast. Today i called to find out if i can have biopsies sooner than 11/25. Instead: found out about more delays today... please…
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Oncotype Dx
(having computer trouble so I had to delete and repost) Waiting for the Oncotype results to come in but was wondering - do they give a score in "years" like CancerMath online tool? For instance to need chemo how many "years" benefit would it have to have for the risk benefit ratio on the Oncotype . I am 65 and plugged in…
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PETSCAN results over the phone
HI everyone... I had my first PETSCAN. The Nurse told me I can get the results over the phone!! My tumor is large and is in the lymph nodes.I am scared the PETSCAN results. Is that normal that they would give me the results over the phone? Should insist on an appointment with my breast surgeon? I have not met with an…
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Oncotype Test Not Covered... worth it to pay out of pocket?
I was diagnosed May 30 and met with MO mid June. She has been trying to get the oncotype test approved to decide on treatment but when I met with her yesterday it still had not been approved. She would like me to decide about chemo without it and I am leaning towards not doing it. I feel like the oncotype test would be a…
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Has anyone had this happen!!! Oncotype DX test
Hi ladies this is my first post. Reading all your stories has given me strength and knowledge, and I know that I'm not alone in this BC journey. I'm 47 married with 3 young children. Found a lump in my left breast on Oct 4th, I knew it was cancer, just my gut feeling. Diagnosed with IDC on Nov 4, 2014 had a lumpectomy on…