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IF YOU ARE WAITING, please let me to share my experience
Dear Fellow Members: I started this thread because I know the anxiety of waiting, of being very afraid of not knowing what to expect, where to start, who to approach, and where to find information etc. etc. etc. I felt as if out of the blue, I was struck by lightning!!! After the initial shock on Feb. 26, 2015 confirming I…
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When is Onc score run?
Bi lateral N/S mastectomy with reconstruction 1/12 - I guess I assumed they would automatcially run the OncDX score but nurse said they wait for results first. Took 2 lymph nodes (SN plus one). Multiple areas of suspicious calcifications (4) all over left breast and 2 small tumors. Not sure why they would wait to send it…
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Surgery on 12/5 and still waiting for Oncotype DX results
I'm mainly writing to vent, but if anyone can explain why chemo (if needed), is supposed to precede radiation, I would be interested to know. I had a lumpectomy and sentinal node removal on 12/5. Fortunately clean margins and no lymph node involvement. Two tumors side by side, the larger is 1.3 cm. Nottingham Grade 3.…
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New Pathology Results - Does It Matter?
I had a BMX on 10/8/21 with immediate reconstruction. At the time, my primary tumor was 2.5cm, grade 2, ER+ PR- HER2-. They found a 4mm macromets in a sentinel node, no additional nodes taken. Oncotype was 25 and I was only 42 years old, so I did 4 rounds of AC, 12 rounds of Taxol, and 25 sessions of radiation. I'm now on…
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Oncotype test in
Just got a call from the Cancer Centre, my oncotype results are in. He wants me to do blood work first on Tuesday and then a video appointment on the 19th where I’ll get the results. Does everyone go for bloodwork? my original test was ER + (3%) and other two negative. So they say triple negative but wanted to check to…
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Waiting on Oncotype test
I'm waiting for the results of my oncotype test. My ER was low positive at 3% and PR and HER2 are negative. So would I be considered triple negative? My RO said technically yes and so does my MO, but sent for the test anyways. What will the test tell me?
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HER2 FISH Results timeline
I was diagnosed with IDC Grade3 HR/PR+ on Monday. I have been followed by a high risk clinic for four years due to a previous wide excision for PASH. My last mammogram in October of 2021 was BIRADS 0. Tomorrow, I will go for an MRI and bloods for staging. I have been told that the HER2 FISH could take weeks due to staff…
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Chemo before or after surgery?
Hello everyone! Can't believe I'm actually here. I was diagnosed with Stage 1 invasive ductal carcinoma in my right breast on 8/26. Then they wanted me to get an MRI done at a real cancer center a month later. I live in a remote area. So, I did on 9/22. Got the results 9/23 and they found MORE masses now in my left breast.…
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Waiting for test results, oncotype I think
I just had my appointment with the medical oncologist. Very nice doctor. So now because my estrogen as low positive at 3% and the progesterone and Her2 are negative, he also mentioned the a test to see the biology of the cancer to see if chemo would actually help or not. I’m thinking oncotype He said if I were all…
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No additional testing / No MRI scheduled, is this normal?
Background: annual mammo found 11mm lump deep in breast, core biopsy indicates IDC + some DCIS. I went in for my initial surgical consult at Dana Farber today. I was told because of the probable staging (1) that I would not need to be tested for mets. I was sent to genetic testing only. Oncotype is after surgery, she…
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Clear margins but cancer in lymph node
A little over a week ago, I had a lumpectomy and sentinel node biopsy. My surgeon just called me yesterday with the results. I was happy to hear that I have clear margins, but then she said there was a 2.5 mm metastatic carcinoma found in one of my 3 lymph nodes that were biopsied. How happy should I be that my margins are…
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Oncotype question
Oncotype question. I had left mastectomy 7/27. Pathology showedEr/Pr + and HER2 equivalent so was sent off for FISH and so oncologist was waiting for that before ordering Oncotype. FiSH came back HER2 low, so for now they consider it neg. My original biopsy was done only on 1 tumor.because the other one was found on MRI…
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Pathology Received-Need Help Understanding
Hi Everyone, Just received my pathology on MyChart. Can’t talk to the surgeon and need help understanding the size of the invasive component? I’m confused on whether it is 28 mm plus DCIS or 20mm of DCIS and 8mm of invasive? Your ValueThe localization lumpectomy specimen in part E has been submitted in its entirety for…
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MRI report
can anyone tell me what all this means please? And yes I had the stereotactic biopsy yesterday CLINICAL HISTORY: 51-year-old female. Recently performed routine screening mammogram from June 2022 showed increase calcifications in the left breast as well as biopsy-proven invasive mammary carcinoma at 10 o'clock, 7 cm from…
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What do these numbers mean?
what do these numbers mean? Left breast ultrasound guided biopsy with clip placement at 10 o'clock, 7 cm from the nipple with pathology showing invasive mammary carcinoma, Nottingham grade 2 out of 3. ER low positive, PR negative, HER - 2 equivocal, FISH performed. Ki 67 = 5%.
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Pet Scan Mania
Hello.. I am a nine year survivor of BC from 2013. I recently had a Pet Scan and there was a lymph node in my liver that showed 7.2 SUV uptake which my oncologist is concerned about. He did not say it was cancer but that I now need a laparoscopic liver biopsy to get to the bottom of things. I have already had a regular…
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Fish test?
Yesterday I got diagnosed with Breast Cancer, Invasive mammary carcinoma. She said that not all results were in. The ER was low positive, PR was negative and waiting for the HER2 but they had to do another test, a Fish test? Anyone know what that is?
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Question for Triple Positves
Was your Her2 positive from IHC or upgraded to positive from FISH? I am asking because my biopsy showed Her2 negative. But, I had a SMX on 7/27 and IHC came back as equivocal so has been reflexed to FISH test. I am awaiting results. I was reading some medical journals and articles mentioning that they are currently…
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Stereotactic biopsy
i have IDC and was suppose to have surgery on the 28th. The day before, my surgeon called to cancel. There are suspicious microcalcifications that we want to test first. On the 29th I had an MRI and was suppose to have a stereotactic biopsy on the 10th. Today the nurse called to say they want to do it sooner. She will call…
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Surgery cancelled
The doctor called me this morning, and my surgery is cancelled for tomorrow. She spoke to another radiologist and they want to check on the calcifications before they do the surgery. Some of the radiologists didn't seem worried and some were. My report from the biopsies, mammograms and ultrasound said: "There are…
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MRI results
I had an MRI done today and have results already. I was diagnosed with IDC after 22 years from my DCIS dx. I.cant find the place where someone will help interpret results and have a question on if they now see 2 masses? Can anyone help me? REPORT EXAMINATION: Bilateral MR of the Breasts Without and With IV contrast EXAM…
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Oncotype delayed - 3 weeks
I think this is just a vent! But I had surgery May 12th. They said 2 weeks for oncotype score results. I called last Friday and they said they still didn't have results and as soon as nurses get it they let doctor know then I should know. So now its 3+ weeks post-op and still no score. I have my MO appt scheduled for next…
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Is ER+ PR- common?
Hi all, I was diagnosed at the end of February with Invasive carcinoma with lobular and ductal features; 18mm spiculated mass. ER+ PR- HER2- I've had lumpectomy and they did find macrometastases in one sentinel lymph node. Awaiting Oncotype score now. I have a few questions/ wonderings about others' experiences... * Even…
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Triple Positive - Losing It
Hi All Found out this morning that I’m triple positive. Grade 2. Really high ki-67. And I’m absolutely terrified. I’ve spent the last 2 weeks losing my mind over the possibility of being triple negative, only to find out I was freaking out about the wrong thing. My tumor is 1.1cm in my right. Biopsy apparently took some…
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Oncotype Score for ER+/PR-
If you were highly ER+ but PR-, HER-....could you please post your Oncotype Score? My mom was recently diagnosed with this and I'm curious about the range of scores. I had a low score of 10, but I was highly positive for both. Thank you!
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Meaning of ER/PR scores on Oncotype Report
Hi everyone. Before I call Genomic Health with this, I thought I would check with the wise people on BCO…what is the significance of the ER/PR scores reported on the Oncotype report other than confirming + or - receptor status? Also what is the range for strongly positive, moderately positive etc? I’ve tried to find some…
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Cancer in lymph nodes=Chemo??
Hello In 2020 I was diagnosed and went through it all! Now, a dear friend has been diagnosed and is waiting on her oncotype results. She had a lumpectomy and 2 lymph nodes removed. There was cancer in one. Her dr. is waiting on the oncotype results to determine if chemo is needed. I thought if cancer is in the lymph nodes,…
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Anyone with enlarged mediastinal lymph node?
I was diagnosed with IDC 11/14/21. Surgery has not ben completed but biopsy showed HR+, HER2-, grade 1. Recent PET/CT showed enlarged (2.5cm) superior mediastinal lymph node. There was no metabolic activity shown on PET or, FDG uptake was low enough to classify it as non-malignant. The Radiologist made no recommendation…
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Waiting on HER 2 results
Hello everyone! I am newly diagnosed with Invasive ductal carcinoma, grade 2, and ductal carcinoma in situ (DCIS), nuclear grade 3, solid and cribriform patterns with focal necrosis and microcalcifications. I just received word that I am ER+/PR+ and my HER 2 results with a score of 2 and so now I am waiting for additional…
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Im Back after 16 years!
Well, here I am again . First diagnosis was 2004, ER+, PR+, Her 2+, chemo (Adriamycin/Ctyoxin/Taxotere, Herceptin), radiation, removal of scar tissue (and breast lift) 5 years ago. Now new cancer ER-, PR-, Her2 2+ waiting for FISH results and PET scan. I was hoping to have the option to use the immuno onc drugs which seem…