Talk with others about how to lower your risk of lymphedema and how to manage it if you've been diagnosed with this side effect of treatment.
I'm just getting over a third bout of cellulitis over the past 4 years. I've had LE since 2006 and had not experienced cellulitis until these past few years. I'm not sure why. Maybe because my "mature" skin is thinning - who knows. I'm wondering what advice any of you may have about how to keep infection at bay. Skin care,…
Hi, All — I'm 11 years out from diagnosis and Lx/Mx. I have had issues with LE off and on since, but not much in the last 4 years or so. I wore a more substantial bra on Sunday. I usually only wear it for a few hours and then take it off, but I wore it all day. When I took it off on Sunday night, my cancer-side…
I have LE in my right arm. I had my first Covid vaccine shot in my left arm January 15. My arm was quite sore and a couple of days later I had a swollen lymph nodes under my arm. One was quite large and frightening. The swelling has gone down a lot but still there. I'm scheduled to have the second vaccine next week. I…
Edited since LE diagnosis confirmed... I have seen a LANA-certified PT and gotten my fist full of handouts, plus advised to buy a low-compression sleeve "just in case." I had an hour of hands-on instruction for self Manual Lymph Drainage but I still feel like somehow I'm not doing it right. I get more confused by the…
Hi all, Curious how many sleeves everyone has at one time. I've been told that you should replace them every 6 months but I can't even imagine doing that with the cost! They say you should have multiple sleeves so when one is being washed, you have another. And then replace them after 6 months? Just curious what everyone's…
I'm about to undergo hip replacement surgery and I know an IV will be placed and BP will be monitored at the same time. I have lymphedema in one arm. How is this accomplished when one arm should have neither an IV nor a BP cuff? Thanks.
I was diagnosed with invasive lobular carcinoma in 2008. I had a bilateral mastectomy and lymph nodes removed (a few did test positive). I underwent chemo, radiation and reconstruction. Unfortunately, my original reconstruction with implants failed and so I then had a DIEP flap. I do not allow blood drawers, IVs or BP on…
Hi, I am presently undergoing chemotherapy for a Triple-negative Right Breast Cancer. Very soon, I will have to decide if I undergo a "Lymphadenectomy"! I have been reading a lot about the side effects would worries me a lot - but I understand that it's a lose-lose situation. Because, if I don't undergo a "Lymphadenectomy"…
Background: I do not have lymphedema post lumpectomy and sentinel lymph node removal (May 2023). However I did end up with painful cording a few weeks after surgery which subsided with physio and massage. The lymphedema specialist (who I proactively consulted) said the arm sleeve might be beneficial and wouldn’t hurt…
I recently traveled to the University of Iowa to meet with Dr. Wei Chen a supermirosurgeon/plastic surgeon. I was referred to him by my PS. I had the Indocyanine Green Lymphography done and was amazed at what was seen both in my healthy arm and diseased arm. I was diagnosed under the Campisi Staging at Stage 2 as my LE is,…
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