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Resuming Pump After Cellulitis?
I developed lymphedema in 2016 despite only having 3 nodes removed. I've evaded cellulitis until last week. My swelling & redness have improved significantly at the one week mark, but my armpit is still quite tender. What have others done in terms of resuming use of the Flexi Touch pump? I will double check with my…
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Acupuncture treatment for lymphedema
Hi everyone, I had a dmx and ended up with lymphodema under my breast and to the side area. I went for manual massages, but it didn't help. Recently I had to have ablat flap and the lymphodema area is quite painful. I'm wondering if anyone is going through this and what has helped. Also, has anyone tried acupuncture for…
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LYMPHA (Lymphovenous Bypass) Procedure With Mastectomy?
Hello all. Today I had a meeting with my surgical oncologist to discuss my upcoming single mastectomy. I was kind of bummed to hear that that many nodes will be removed, and mentioned that I have a fear of lymphedema. The SO said that a plastic surgeon will be called in to do the mastectomy close, and he also does a…
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Liposuction/Flying Squirrel
Hi. I have BCR lymphedema. It has been a long and difficult journey for me. I live in Tampa and have had limited success with treatment options and providers in this area. After being told by Moffitt there were no treatment options for me I went to Cleveland Clinic and met with Dr. Chen who recommended liposuction and…
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Wrapping with gauze only?
Hello, I have mild lymphedema in hand and fingers. I wear a glove and a sleeve during day. I would like to wrap my fingers and hand at night. Is it ok to wrap it with just gauze and no bandages? I don' t have much money for bandages.
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Great Videos for Patients with Lymphedema
I had 23 lymph nodes removed due to my first Dx with breast cancer in 2003, and immediately had lymphedema in my left arm. I am getting ready for my pre-surgery appointment in an hour with my PS for exchange surgery for implant and to have mapping of both arms. This is due to my third BC Dx! (was Dx in both breasts, the…
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Nice about lymphedema?
I just got lymphedema and I'm scared it's the end of living life normally and of nice events in my life. I wanted to ask you to tell about nice moments you've got since you've got lymphedema and give us newbies some courage. Are there any nice moments? Are they daily? Is there still a lifejoy? Does it resamble to 'normal…
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Can I take lymphedema glove?
Hello, Yesterday I got lymphedema. I'm starting chemo tommorrow. I want to buy a glove and wear it today. But doctor says I must do lymph drainage first, but he doesn't want to do it during chemo. He says that glove is pointless without lymph drainage. I'll be on chemo for 6 months and I think that is too long time to wait…
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Help! Compression for armpit area?
Any advice on locating compression garments for "trunk" but especially armpit? I had a bilateral without reconstruction so bras with extra room for boobs don't compress on me. I am a small person, so men's compression sizes are too large. I don't even know where to look.
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Dry Brushing Lets talk about it here
A few of us are doing dry brushing to help with our LE. I myself have found that it helps my truncal LE pain alot. I am following this you tube video now when I dry brush. http://www.youtube.com/watch?v=panD5S72Tb0 I find it is quick & easy to do. MLD has not helped me. For me I like to follow my dry brushing with a self…
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LE risk according to surgical team, my fear regardless
I'm about 6 weeks out of surgery (lumpectomy + SLNB where they took 2 nodes), have a BMI over 30 (which is higher risk of lymphedema): I have started doing my daily brisk walks/slow jogs again (35 mins every day). I'm freaking out a bit about the possibility of getting lymphedema because I keep getting mild swelling in my…
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Online Sales on Lymphedema/Mastectomy Retail Sites
I have gotten emails from several on-line sellers of mastectomy and lymphedema supplies and garments about sales for the Labor Day weekend. I thought I'd share them here in case someone might find them of use. There is a code of LD25 for 25% off on the WearEase website; ends September 5. The Busted Tank is also having a…
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LYMPHEDEMA TREATMENT ACT
Breaking News: FULL HOUSE TO VOTE ON THE LYMPHEDEMA TREATMENT ACT THIS WEEK!!!!! If you have lymphedema and do not get their emails, go to: LyphedemaTreatmentAct.org It is a very active advocacy group for those with Lymphedema. They are sending out more information pertaining to this week's vote, but we need all hands on…
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Blister type rash - cellulitis?
I started with spots/rash/blisters something on my lymphedema affected forearm yesterday which has continued to spread - first on top of arm, today spreading to bottom of forearm, couple spots just above elbow. The last several days I have been physically overworking my arm so it is more swollen and sorer than usual - only…
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Mosquito Bites
I had an axillary clearance procedure in 2011 and haven’t had much issue with lymphedema. Yesterday I got three mosquito bites on that arm. The bites got enormously red and swollen and several different areas on my arm, upstream from the bites, developed mosquito bit-y looking hives. I took a Benadryl and they gradually…
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Undiagnosed-- Seeking tips on how to manage Lymphedema symptoms
Hello lovelies! What're you gals/guys taking or doing for pain relief outside of compression/elevation for lymphedema? Does Prednisone help?? Other meds?? Tips? Tricks? Is icing ok? Is it safe to wear pharmacy compression when I await testing?? I have to wait 2 1/2 weeks to be seen by vascular doctor for evaluation/tests…
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Sleeve for Flying
It's been so long since I've been on a plane that I forgot how long to wear the sleeve after getting off the plane. I have a 5 hour flight coming up soon. Can someone remind me about how long to wear the sleeve once off the plane? Thanks.
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Black & Hispanic Women May Have Higher Risk of Lymphedema
Black and Hispanic Women May Have Higher Risk of Lymphedema June 15, 2022 Among women who had breast cancer surgery and axillary lymph node dissection, Black and Hispanic women were more likely to develop lymphedema than white women, as were women who received chemotherapy before surgery, rather than after surgery. Read…
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Post Lumpectomy and SNB - 6 days - Shakti Mat use?
Hi And I’m sorry to be joining this group. Six days ago had surgery for 2.5mm lump and sentinal node biopsy. I still have swelling around the incision and a lot of soreness. Don’t have a review until another four days and wondered if this was normal? Have good arm movement. Also wondered if anyone had used a Shakti mat. I…
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Anyone with Lymphedema in both arms?
Now that I have been diagnosed with breast cancer for a third time, in opposite breast, I am so worried about getting lymphedema in both arms. I have one reconstructed breast, will have second mastectomy scheduled in October with SNB and possibly more node removal. Reconstruction with tissue expander and implant. Ugh. I…
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Considering a Tattoo and have some concerns
Hi all! This is my first post after just joining this site. I'm excited to explore and hopefully get some feedback. So here's my sitch: I was diagnosed with breast cancer in 2008 at 22 years old. I had a bilateral mastectomy with reconstruction and also had a negative sentinel node biopsy. Following my surgery I was…
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Sub-clinical lymphedema?
I had a Sentinel node biopsy, radiation along with a lumpectomy on the right side three years ago. I am right handed. After treatment I completed the Livestrong program. My upper body has never been the strongest, but I had my pre-surgery strength on my right side. I actually went back packing in Croatia 3 weeks after…
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Test to confirm and/or monitor lymphedema
Hello, Does your doc order any sort of test (lymphoscintigraphy in particular), to confirm and monitor lymphedema treament, particularly to set a baseline before any therapy is used? Thanks.
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Self message for lymphedema
Hello Precious People! I wanted to share a link to a site that describes self message to help treat and prevent lymphedema. It has similar moves that my Lymphedema OT showed me plus many more. I haven't had it bad, but I do get sore every now and then and this message helps. My neighbor was having more pain and it also…
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Lymphedema and Medicare
I just got home from what was supposed to be my second therapy for breast cancer. I actually had no therapy at the first session, just a consultation with the therapist. Apparently Medicare will not pay anything towards garments. I can't afford them and can't bring myself to use hand outs or funds set up for people who…
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Tingling foot and tightness and swelling in lower leg
Hi I had a lumpectomy, intraoperative radiotherapy and senital lymph node biopsy 2 weeks ago. Now I have tightening and tingling in my foot and a swelling on my lower leg on the side I was operated on. I had to lie in bed for 24 hours after the op and I'm wondering if this is all connected to the operation and if so is it…
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Lymphedema
Has anyone had lymphedema in there breast after breast cance
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Flexitouch Plus vs Lympha Press Optimal Plus
Hello, Does anyone have any comment on "Flexitouch Plus" vs "Lympha Press Optimal Plus" sequential compression pump? Thanks. ps: Comparing the two older (a guess based on publication date 2007) models of both brands. Though perhaps old models, useful to read. Interface Pressures Produced by Two Different Types of…
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LymphaTouch
Are there any updates/personal experiences with the LymphaTouch machine? It appears to use "cupping" type treatment and I see Youtube videos by LE massage therapists on how to use the device. According to the website, "Lymphatouch is a medical device that can be used for lymphatic drainage and lymphedema. It uses negative…
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Arm Pit pain
I have posted on a couple different forums and read responses from people who have LE so decided to post here again as well. I had bc surgery and rads 3 yrs ago. This past Oct. I injured my arm and developed mild LE. Went to a therapist and managed to reduce swelling by a cm but still can't wear my watch on my wrist.…