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Black & Hispanic Women May Have Higher Risk of Lymphedema
Black and Hispanic Women May Have Higher Risk of Lymphedema June 15, 2022 Among women who had breast cancer surgery and axillary lymph node dissection, Black and Hispanic women were more likely to develop lymphedema than white women, as were women who received chemotherapy before surgery, rather than after surgery. Read…
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Post Lumpectomy and SNB - 6 days - Shakti Mat use?
Hi And I’m sorry to be joining this group. Six days ago had surgery for 2.5mm lump and sentinal node biopsy. I still have swelling around the incision and a lot of soreness. Don’t have a review until another four days and wondered if this was normal? Have good arm movement. Also wondered if anyone had used a Shakti mat. I…
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Anyone with Lymphedema in both arms?
Now that I have been diagnosed with breast cancer for a third time, in opposite breast, I am so worried about getting lymphedema in both arms. I have one reconstructed breast, will have second mastectomy scheduled in October with SNB and possibly more node removal. Reconstruction with tissue expander and implant. Ugh. I…
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Considering a Tattoo and have some concerns
Hi all! This is my first post after just joining this site. I'm excited to explore and hopefully get some feedback. So here's my sitch: I was diagnosed with breast cancer in 2008 at 22 years old. I had a bilateral mastectomy with reconstruction and also had a negative sentinel node biopsy. Following my surgery I was…
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Sub-clinical lymphedema?
I had a Sentinel node biopsy, radiation along with a lumpectomy on the right side three years ago. I am right handed. After treatment I completed the Livestrong program. My upper body has never been the strongest, but I had my pre-surgery strength on my right side. I actually went back packing in Croatia 3 weeks after…
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Test to confirm and/or monitor lymphedema
Hello, Does your doc order any sort of test (lymphoscintigraphy in particular), to confirm and monitor lymphedema treament, particularly to set a baseline before any therapy is used? Thanks.
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Self message for lymphedema
Hello Precious People! I wanted to share a link to a site that describes self message to help treat and prevent lymphedema. It has similar moves that my Lymphedema OT showed me plus many more. I haven't had it bad, but I do get sore every now and then and this message helps. My neighbor was having more pain and it also…
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Lymphedema and Medicare
I just got home from what was supposed to be my second therapy for breast cancer. I actually had no therapy at the first session, just a consultation with the therapist. Apparently Medicare will not pay anything towards garments. I can't afford them and can't bring myself to use hand outs or funds set up for people who…
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Tingling foot and tightness and swelling in lower leg
Hi I had a lumpectomy, intraoperative radiotherapy and senital lymph node biopsy 2 weeks ago. Now I have tightening and tingling in my foot and a swelling on my lower leg on the side I was operated on. I had to lie in bed for 24 hours after the op and I'm wondering if this is all connected to the operation and if so is it…
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Lymphedema
Has anyone had lymphedema in there breast after breast cance
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Flexitouch Plus vs Lympha Press Optimal Plus
Hello, Does anyone have any comment on "Flexitouch Plus" vs "Lympha Press Optimal Plus" sequential compression pump? Thanks. ps: Comparing the two older (a guess based on publication date 2007) models of both brands. Though perhaps old models, useful to read. Interface Pressures Produced by Two Different Types of…
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LymphaTouch
Are there any updates/personal experiences with the LymphaTouch machine? It appears to use "cupping" type treatment and I see Youtube videos by LE massage therapists on how to use the device. According to the website, "Lymphatouch is a medical device that can be used for lymphatic drainage and lymphedema. It uses negative…
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Arm Pit pain
I have posted on a couple different forums and read responses from people who have LE so decided to post here again as well. I had bc surgery and rads 3 yrs ago. This past Oct. I injured my arm and developed mild LE. Went to a therapist and managed to reduce swelling by a cm but still can't wear my watch on my wrist.…
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Wearing Compression Sleeves Preventively May Reduce LE Risk
Wearing Compression Sleeves Preventively May Reduce Lymphedema Risk After Breast Cancer Surgery Mar 17, 2022 Wearing a compression sleeve preventively reduced the risk of arm swelling in women at high risk for lymphedema. Read more...
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Summer strategies?
Hi, I've had lymphedema for several years, but last summer it got worse and I had the massage and wrapping and started wearing a Tribute night sleeve and the custom flat knit sleeve during the day, so compression pretty much 24/7 for six months. I'm sorry, I just can't see wearing this heavy, ugly flat knit sleeve out in…
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Does Lyphedema spread?
Hi ladies, Do you know if arm lyphedema can spread to the leg? I had a total masectomy last year and had 1 sentinel node removed. I was diagnozed with lyphedema in the right arm 3 months later. Earlier this year, I had DIEP flap reconstruction. Just 1 month after the surgery, my right leg starts to swell. My right toes get…
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Constant fear of lymphedema--VENT
Ok, lumpectomy + 3 nodes removed, and radiation to ALL the lymph nodes. I have already seen a lymphedema therapist twice as part of an ongoing monitoring program (she takes measurements every 3 months or so). No swelling yet. Yet I live in <<constant>> fear of lymphedema. The list of precautions is almost overwhelming,…
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Triggers
Hi there I am still quite new to this, so I thought I would ask fellow cancer survivors/patients what they have found has triggered their lymphedema? My one collarbone is currently swollen and I have some pain all the way from there till down my arm. Thanks
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Truncal Lymphedema - can it make ribs jut out/change shape?
13-14 months ago I had mastectomy, no reconstruction, 2 nodes taken. I was 35. I had a slight bout of swelling 2.5 months (March) after surgery due to going on a long walk while wearing a backpack, but it resolved itself. It felt more like fluid.... 9 months after surgery (August) I was traveling and in a city getting…
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Tendonitis or Lymphedema?
Background: bilateral mastectomy in June. Left sentinel node removed. For the past 7-8 weeks I’ve been having pain in my left forearm/elbow/bicep. I originally thought it was tendonitis but last night my forearm was swollen. If my elbow is bent it’s not bad but it hurts to straighten or hold anything. I also have a puffy…
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Looking for glove recommendation
First off, sorry to invade the lymphedema board with my non-lymphedema question, but I figured if anyone would have an answer for me, it would be you ladies. I started having neuropathy symptoms with my first dose of Taxol, even with cold therapy. I’ve been reading everything I could find about preventing the development…
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Abandon LE precautions? Not me!
A discussion in the Bone Mets topic on Stage IV forum regarding lymphedema was veering away from the central focus of that board so I announced that it should be moved here. Basically, I shared my Zometa infusion protocol and got this response: “There's no evidence that being at risk for or having lymphedema means you…
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Circaid Reduction Kit
I have the Circaid Reduction kit and have been trying to determine how tight to make the velcro straps. Does anybody else have this? If so, to what number do you tighten to? I started at a 1 but didn't see much improvement so went up to a 2. I'm a bit nervous to make it any tighter than that.
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Prophylactic Mastectomy and LE... Your Opinion, Please
I had a single mastectomy last August with ALND (due to IBC). 32 nodes removed and none of them cancerous...ack. Concurrently I had a lymphovenous bypass with 4 good "connections." So far I'm doing well but I have started the Lebed opening and learned MLD from a LE PT "just in case." My plan was to have a prophylactic…
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advice re: flat knit sleeves and gloves
Hi, all, I've mainly been lurking, but have been finding this group so helpful. Thanks for all the great info and support everyone gives each other. My lymphedema has been fairly mild but I've been dealing with a flareup, and my PT think I may need to move to a garment that's more containing than my Medi Harmony, which…
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Mammogram and Lymphedema
Good Evening All, I had a lumpectomy ,chemo, and radiation. I also had axillary nodes removed (7). ,I am now diagnosed with lymphedema. My question is, Has anyone had any mammograms or scans scans since your diagnosis of lymphedema? Did the results show suspicious findings because of lymphedema Thank you
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Herbs to help with Lymphedema
I've developed a large seroma in my thigh three months post my TUG flap. So today I started researching supplements that might support my system and help with the swelling and I came across this: http://www.lef.org/magazine/mag2005/mar2005_profile_glasser_01.htm?source=search&key=lymphatic Life Extension Foundation (LEF)…
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Additional lymph node dissection after finding micromets?
I recently had a mastectomy and sentinel lymph node dissection surgery with reconstruction. When pathology came back, the lymph node was found to have micromets. I've been struggling with the decision of wether to push for an additional surgery to remove a few more lymph nodes to be sure all cancer cells are gone. My…
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easyTAI CHI BREATHER EXERCISE to move Lymph fluid out
Posted this in kick butt thread but thought it would be great for all. Super easy. Pictures at bottom of post Ok girls, This could be done if you can't get exercise in. You probably could even do it in a public washroom,well, maybe not the small stall,but the big wheelchair stall! My MLD girl said TAI CHI exercises have…
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Swollen arm, elbow, wrist, hand
Hi I haven't had any swelling issues since surgery however I fell 4 days ago and broke my shoulder/humerous. will see orthopedics on Monday. the swelling has been moving down my arm a little bit more each day. I'm really scared about this hand swelling, its so puffy. I wonder if missing 7 lymphnodes in the arm pit is…