TIME TO CIRCLE THE WAGONS GIRLS
Comments
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OH MY...not a good weekend for a pj party. Too many sick girls...here's puffy faced half asleep me...maybe next weekend we can all be healthy and ready to party.
Take care all sick girls...lots of liquids, rest, comfy blankets, and love...you will be fine.
Hugs all
Vickie0 -
ahhh...tried to stop that post...I look scary! Sorry girls...better luck next time!
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Blue looks great with your hair and if your eyes are blue they will look blue er with the red hair~~!~!
peace
vera0 -
Vickie--One more insurance "thing"---check with you carrier but you may only be liable for the deductible on the rental car accident. I like your hair!
Robin---meant to add on my post from yesterday that you and Calico need to stay strong. You are being all you need to be for the chemo and you will be able to keep that faith after this is over to handle what comes next in your marriage. Being strong enough to handle your cancer dx and tx lets you learn that you are strong enough to handle anything that comes your way.
Vickie---it must be the week for flu and phone calls. My onc called yesterday----stop taking the calcium and come in for another blood draw on Halloween because some of the blood levels are off. And of course she is shipping me off to the cardiologist Thursday because AIs have screwed up the lipids---triglycerides are way high. What did we all do for entertainment before BC, I'd like to know? Huh? Huh? Huh? At least the eye isn't driving me nuts any more---:-). But the nip is still loose and black and gets dragged back to the PS in 10 days. What a train wreck! But I'm feeling great, I really am! Now if I could just get this #$%^&*@ computer to post pictures for me!
All of the Circle Girls of a certain age---here's a story for you. Went to my daughter and SIL's birthing class Tuesday nite since I will be a labor coach in November for them (I plan on crying thru the whole thing). The midwife used me as a teaching resource to talk about what Lamaze was like in the "old days"----felt like an antique! Hey---only my outsides are---ummm---the new middle aged! The head still thinks I'm 25! And what are all of those children doing having children anyway!?!?
Carry on Circle Girls. This is truly the best place to be.
Jeannie0 -
you are absolutely georgous newvickie..
xxxxxxx
tracey0 -
Vickie, Oh I love that shade of blue and you are a beautiful lady.
Hope everyone feels better tomorrow. Sleep well all,0 -
Hi girls, Just a note to tell everyone how much I appreciate you all. I know when I have a bad day, am depressed or angry I can come here and everyone understands.
To everyone who is ill with the flu or cold and those who are dealing with tests, accidents and anything else - You are always in my prayers.
Thanks girls!
Hugs
Liz0 -
Susan, NS, Vickie, and all the girls who want to take care of me and send me to the medic tent. Thanks for your concern. I will stay and ride the range until the root canal - don't want to be any sicker than I am. Then I have 2 weeks to recover before the gall bladder comes out. I'm told that will be laproscopic and will be out the same day. Am having it done at the hospital that introduced the procedure, so I will be in a good place. Meanwhile the medic tent is full of flu sufferers. Am sending an extra big pot of chicken soup, and a second,one for those who like a touch of dill in the soup to the tent.
For those who can take it - a nice hot rum toddy.
Sleep tight and get well. Pajama party when the flu is gone?
jeannette
Jeannette0 -
Jeannette I can sure understand if you don't want to hang out in the flu tent.
Vicki, your picture is so nice. You are very pretty. I like your hair.
Jeanie, why is your doctor sending you to a cardiologist. My cholesterol is high and my blood pressure is high since I've started taking the arimidex. I'm paranoid. Should I be going to a cardiologist too??
Lynn, you had a endometrial biopsy? I must have missed that. Well so glad it came out negative. and your son's scans also.
For all you flu girls:
Here's a nice cup of tea.
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Vickie I just love that picture! You are beautiful!
Jeannie and Susan, after chemo my cholesterol went sky high. It had always been low (147). My onc told me that cancer itself actually changes the blood. It took a while but it finally went back down- to 185- but it was almost 300 so I was happy.
My blood tests sometimes show low CO2, I think that is what they refer to it as. Something about my blood doesn't get enough oxygen/Co2 to it. My potassium has been off too many times. Our bodies go through a lot and things can get really screwed up for a while! but it is the 'terror' phone calls that we DON'T need!
Jeannie I am sorry about that poor nip! Can they do another one?
Jeannette, I don't blame you for staying out of the medic tent. I don't think I have the flu - I think it is just crud. (Actually I am willing myself to be better by tomorrow so how can it be the flu???)
Good luck with the gall bladder surgery! You should talk to Naniam- didn't she post about bad gallbladder? My SIL had that done laparoscopically and had almost no recovery time. So it should go easy for you I hope!
Lynne, I am so happy to hear that your and your son's biopsy/tests were benign! Talk about DOUBLE STRESS!!!
Liz, what a beautiful message to write. Thank you for being here for US!
Susan, I don't see any Mallowmars with that tea???
Wondering where our Nicki and Shel are.
Haven't heard from Mena, Penny, or Lisa. Hope they are all ok!!
Robin you are strong and wonderful and will get through this. AND THEN the wagon train will come git your husband!
I am hoping everyone is ok. I am missing a few names but I am not running on all cylinders- need to go back to my couch and sip some more ginger ale....
Everyone is in my heart and I am so lucky to have my circle sisters!
Love,g
PS- Went to CVS today for medicine and they are selling chocolate fountains. I AM NOT KIDDING!0 -
i have rib mets.
i am getting a divorce.
i am drowning.
i think maybe my horse is even dead.
anybody??????
my family is a mess.
my resolve has been busted.
i've lost 11 pounds in 2 weeks (yahoo)
i'm a basket case.
sorry for this post.......i'm lost!
thanks for reading girls.0 -
Shel, honey I wish there was something I could say or do to help you with all you're dealing with. Just know that we're all here for you anytime you need to vent, cry, complain.
Big Hugs
Liz
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Not too many of us hangin' out tonite, huh.
Oh Shel---I sure wish I could come up there and give you a hand, a shoulder to lean on and to stand at your back. Divorce is just awful---I've been there. All I can tell you is that when God closes a door, he opens a window and one day you will look around and realize you survived it and life really is better without the creep. Sometimes it does seem that life really gangs up on us, doesn't it?
Susan---I have the world's most thorough onc. Remember the eye escapade? I have several risk factors for heart disease (which are all under control---BP, diabetes, weight is a constant battle, high cholesterol) but the triglycerides are WAY out of line (367 the last blood test) and she wants me to see the dude expecting he will perscribe a niacin type med. I already take so much crud that she wants him to figure out what might work. Can't drop the cholesterol any more---that's 137! Really whacked out lipids from the Arimidex.
NS---yup, they told me they have done 3 and 4 do overs on reconstructed breasts. I figure if they keep doing a flap proceedure I will never need a face lift on the left side of my face! I don't think I'm willing to do more than 2---after that it's stick on nips for this girl! They didn't seem real excited about the way this looked last week but I really don't understand how dead skin can heal to live skin---the underside of the new nip is not looking pink and pretty right where it meets the breast mound. And it's still open after 5 weeks.
In the giant scheme of things none of this is huge---but it is like getting nibbled to death by ducks. Other Circle Girls have way bigger problems than I do and I even feel a little guilty about bringing them here---but you guys are the ones who understand about the duck issue! It's gotten to the point where my sister rolls her eyes when I talk about anything BC related. It's the ones who love us the most who are desperate to believe that everything is back to normal.
Vickie--I found your picture on the other thread---you are so pretty and what great eyes! I was a professional make up artist in my young and foolish years and I notice those things. (Now I'm old and foolish.)
I think I will go make us a monster pile of s'mores---how does that sound? I actually saw a s'mores set in the Norm Thompson Christmas catalogue today----a cute little sterno grill to toast the marshmallows and comes with all of the fixins'. Only $25 too---somebody's getting one for Christmas---maybe me!
Jeannie0 -
My dearest Shel,
I wish I could bundle you up and get you down here to NY.
Come stay here with me and let me help you- do ANYTING I have to do... anything I CAN do.
I know it feels like your world is falling apart- it is in a way... but it CAN be put back together.
Take one thing at a time.
Your husband is soon to be history. It is painful and sad and even though he was a wretch, you still had that "routine" of being married and your own comfort zone- no matter how uncomfortable he made it.
You being apart from him and taking care of YOU and looking out for your best interest FIRST shows what a fighter you are and also HOW MUCH YOU CARE ABOUT YOUR LIFE AND YOUR FUTURE! So remember you are doing the RIGHT thing here - you do not need to deal with problem number 2 while enduring reliving all the bad past you had with him.
Your rib mets- what can I say? When did you get a scan? How many did they find? They must be VERY VERY new so they are caught early. And one thing we have all learned here is that bone mets can be controlled and stabilized. BUT WHO THE HELL WANTS TO DO THIS NOW???? YOU HAVE ENOUGH SH!T!
One moment at a time. Breathe. Gather the info you need. Get another opinion if you can. AND REMEMBER THAT BONE METS CAN BE CONTROLLED AND STABILIZED.
You can beat this and you will have your new life waiting for you.
I just want to hug you. Buy you a beer. Throw rocks at something with you.
I am here for you and so are all your sisters in the Circle.
We will get you through this. When you get scared and lonely and think you are alone and there is just too much crap falling on you- THINK OF US. We will all be there with BIG umbrellas to keep that crap OFF you.
You are Shel- you are a wonderful, kind, sassy, take no prisoners gal.
Don't forget who you are- and all that you have become. You have learned so much and you have gained such knowledge and a reserve to help you through times like this.
And if you forget that- WE ARE HERE TO REMIND YOU.
One moment at a time and you will conquer ALL the beasts in your life.
Love you my dear sweet friend,
g0 -
Oh Shel-
I won't quote a bunch of platitudes. I dont even know what to do to help other than to tell you Im here, I will listen and keep you in my prayers. Please let us know how we can help .
Hugs,
Deb C.0 -
Jeannie, they do it five times? I don't know if you had your skin harvested from the same "area" my friend did- but five times seems a might excessive!
Maybe they could do that twist and pucker thing with the exisiting skin....
I know what you mean about being nibbled by ducks.
I have always loved the song Bring On the Rain by Jo Dee Messina.
I will post it here. I think you will like it and Shell- This is for YOU:
Another day has almost come and gone
Cant imagine what else could wrong
Sometimes Id like to hide away somewhere and lock the door
A single battle lost but not the war
Cause Tomorrows another day
And Im thirsty anyway
So bring on the rain
Its almost like the hard times circle round
A couple drops and they all start coming down
Yeah, I might feel defeated,
I might hang my head
I might be barely breathing - but Im not dead
Tomorrows another day
And Im thirsty anyway
So bring on the rain
Im not gonna let it get me down
Im not gonna cry
And Im not gonna lose any sleep tonight
So bring on the rain
Bring on the rain
Tomorrow's another day
And I AM NOT AFRAID
Bring on the rain!0 -
Jeannie-
I have this vision of you surrounded by a hundred flapping mallards trying to take a bite sorry girl, but it made me laugh! I do know what you mean though. This crap is just so cumulative. Each thing adds to the one before until it seems like you cant carry the load any more. I hope things get better soon.
Deb C.0 -
Shel-
Ditto on everything G said....
G-
I nominate you as the circle girls chief motivator.
Hugs to everyone
Deb C.0 -
Shel, my prayers are with you as you meet each day may you find the road a little easier than the dasy before.
Lynn, have just had the same biopsies I'm glad yours was negative too. I still have to have a DNC to remove polyps & fibroids but at least there's no "C".
It was a glorious day here in Seattle. And I even spent a few hours at my sewing machine, haven't done that in over a year. Working on new curtains for the bedroom.
Vickie, you looked so comfy. The hair turned out great, your son have awesome taste.
well it's late I'm sticking a few logs on the fire to get us warm and I'm off to bed.
sweet dreams to all the families in the circle!0 -
Shel,
Just now getting on the boards tonight .
Fight babes ,get pissed !I'm pissed for you !!
I'm here for you ~
ox
Carrie0 -
Hey Shel, I'm here with you babes.
Denise0 -
Shel- Mets? this is something you don't need to deal with. Is this news new? S#it! I was so ready for you to get your life on order, well I guess this is another reason for you to look out for you! Please remember Shel and Mac first, forever and for always. Your daughter will always be there, as will all of us- but you can not always depend on those who have not stood by you in the past.
Shel, I have found my girlfriends and brothers (only sibs)to be my best support- Men seem to come and go...I think it is in their nature. My heart is with you, as I also wait for some scary test results.0 -
"Sometimes I feel like life is leaving me behind."
"My hands are moving faster than the movement of my mind"
"My bodies getting tired, of carrying this heavy load"
"But the sunshines waiting for me, a little further down the road."
Good morning everyone. I wanted to start this post with one of my favorite songs by Jefferson Airplane. It always makes me feel better - and I want all of you who are having such difficult times, I singing it as I walk the perimeter of the circle. I singing it as I go to the middle of the circle. And Im singing it to you as a lullabye to help calm your nerves and help you sleep.
Now! The only problem is I cant sing, but at least Im trying
I have tried to read each and every post, and even took notes, but I think I have some things mixed up. There is so much I want to say this morning to you all. Hope I dont miss anyone.
This by far is the coldest day in the circle. This is Winter. Woke up to snow flakes! Im holding my cup of coffee just to keep my hands warm. Got a huge campfire going and I feel like making good old fashioned flap jacks today. Yummy - eat all ya want! Walked through the forest a little bit ago, so we have fresh maple syrup to put on top of the flapjacks.
Cookie: Hot tea with tang and honey. Now thats a first. I might even try it. I love the taste of orange in my tea. How did the fish fry go Saturday? Sounded like lots of fun. I loved your description of the Patriot Guards.
Susan: Sounds like you had a great time on your BD. I thought it was my computer. Things have been slow on these boards for about a week. Takes forever to get on, write a post, and then save. I hope Neil sang 2 of my favorites. "Breaking up is hard to do" and "Calender Girl."
Brenda: I love the email idea, and Im glad you got a phone call. But hey - he should have called you himself! Having his nurse do his dirty work says alot for him. He should have cared enough to pick up the phone himself. So anyways you have 2 choices. Stay with him cause he knows your history and accept his personality is warped, or find a new onc. Like I said before. I changed oncs in the middle of my chemo.
AROMATASE INHIBITORS: WEll what can I say. When I was first diagnosed I was heartbroken when I was told I was er/pr negative and her2+. I was all ready to start tamoxifen. Thats what my mom was on and she did great, or so I thought. Its seems that the side effects to these drugs are pretty awful. My sister is on them too and she is having the same issues many of you are having. So I have set up a special medic tent. Its called "The Spa" - and I want you all to come on down. We have very special things there to help you all feel better.
Jeannette: Im so glad that they will be able to remove your gall bladder by laparoscopy. The recovery time is much short. So is it your or Jeannie who is having a problem with triglycerides? Triglycerides are sugars that have turned to fat. Normally you see them become elevated if you consume to much candy or alcohol. But sometimes we produce them ourselves. And that gets us back to those Aromatase Inhibitors. So very necessary in our treatment, but filled with side effects. So good luck with the elevated triglycerides. Make sure you do not take Niacin if you are already taking Cholesterol medication. Can have a pretty bad adverse reaction with the combination.
Robin: I have a special area in the Spa just for you. Its called "Inner strength and fortitude." You are so strong - a great role model for the rest of us.
Liz: I am so shocked. What the heck is wrong with your MIL doctor. She is certainly eligible for home health services!! A nurse to watch her symptoms, a physical therapist to get her strong (got decondtioned during her hospital stay) and a nurses aide to help her bath 3x/week. You need to pull back. I really mean it. Too much stress. How easily people forget we are in the middle of fighting a life altering illness. And we are still in the recovery phase.
Jeannie: You are so funny. Im just like you. Im a kid at heart, but have the body of my mother!
Cheryl: Warm OJ, Lemonade, and Gatoade? Hmmmmm - somehow I cant picture it lol. But I do like warm apple cider brewed with oranges, cinnimon sticks and when appropriate Captain Morgans spiced rum. Oh its so good.
Tracey: Im hoping you feel are feeling better. And Im so sorry about your friends husband. Hope he continues to get better.
NS: Just remember there are all different strains of flu out there. It sure sounds like you have it. Bodys aches, headaches and nausea. Got some fresh ginger ale and saltines to nibble on. Ya know, I just love CVS pharmacy. They treat me like Im so important when I go in there. They even call me by my first name. Guess thats cause I spend a fortune there! On so many medication. For the rest of my life, whenever I see a chocolate fountain Im gonna laugh and think of all of you.
THE FLU SHOT: Yes its important and we all need to get it. Just remember the flu shot is only for the respiratory flu. There is not protection from the stomach flu!
Brenda: I love the email idea, but he should have called you himself instead of leaving his dirty work to his nurse! Like I said before, I changed oncs in the middle of chemo. So good luck in your search. Ahahahah - I am so upset about your experience I wrote about it twice. Its definitely a chemo brain morning.
Vickie: Toxic Air Bags? Oh yeah, thats just what we need. It amazes me that we are surrounded by so many toxins. No wonder we got bc. Your picture is adorable and I love the hair color. Looks like mine after I colored it.
Lynn: So good to hear you had good news.
Shel: What the hell? When did the mets come into the picture? Right now life is like "Wham Bam Thank You Mam."
I am so sorry to hear about this, you must be devastated. So whats the treatment plan gonna be? Of course you are losing weight. In the list of top 10 stressors in our lives, well you have at 4-5. Stop by the Spa tent. We need to relieve your body and mind for a while.
OK: I dont remember who, but someone mentioned people rolling up their eyes when they talk about bc. That happens to me all the time. The other day at work I was whining because so many other employees are getting what I had, and they are recovering in 3-4 days. It took me 3 weeks! So I mentioned maybe my immune system is still compromised from the chemo and my boss actually said "Arnt you playing that cancer card a little too much." Oh she is such a witch. Thank goodness I deal with the owners and corportate more than her. I just looked at her with my mouth open. People who havent gone through what we have, well they just dont understand.
Well its time for me to go. Last year I made everyone scarves and hats for Christmas. This year its gonna be plastic canvas. Im working on a snowman who is gonna have a big belly filled with candy. Hope everyone has a wonderful Sunday
Puppy: I just read your post Depression is part of our journey. Sounds like you are feeling like your hitting bottom. Only way to go now is up! Pity parties are allowed.
Nicki
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Dear CG'S, just wanted to check in, and let you know, MY only problem, is i have been having a Big pitty party for myself! I, come to the boards, and check out on all of you, and Pray for You ALL!!! So many going through So much, My heart, breaks for every one of You!! for those of you having heart problems, PLEASE, do not end up like me, make them check, to see if you have any dammage from meds. mine didnot start from, tamoxifen, But it played a Big role in making it worse!!! not trying to scare anyone, and we have to take our meds. But the doctors need to check, for EVERYTHING, so insist they do!!! Bless You All, i am to depressed to help anyone, so i wont be posting for a while, You have enough on Your Plate already!! Puppy
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First I will second the nomination for G to be our circle moderator...you are such an inspiration and give so much good advice and hope. You keep us grounded on on the right path.
Shel...I'm so very sorry. I too wish I could fly you to New York and just take care of you for a while. Don't know how to help but you are in my thoughts and everything NS said is true...I've been there, I know first hand exactly what your going through. Sending you a warm and gentle hug.
Thanks all who commented on my pictures. I feel like such a totally different person inside and look like a totally different person on the outside. Lost lots of weight, used to be blonde (long hair)...sometimes walking past the mirror I have to stop and say "wait...that's not me, who is this women" but I know that this women I see now is so very much stronger than the women I was and I am blessed.
(((Debbyfive)))...this is the place to bring that depression...we are here for that very reason! Come to the center for warmth, hugs, companionship. Spill you guts...cry and rant...do whatever you need to do to feel better. We can't help if we don't know.
Vera...my eys are weird...mostly green, sometimes blue and sometimes gray. Strange...my mother could always tell if I was sick because my eyes would be gray. It also depends on what color I'm wearing.
As usual I have missed so many...I will write more later.
Everyone have a wonderful Sunday and we will banish this nasty flu by the end of the day!!!
Here's to the beginning of a new week and a new start with good news, health, no accidents, happiness and LIFE!
Love to you all,
Vickie0 -
my thanks to all.
i'm a mess again today. i cry and cry, leave mike crazy messages (he stopped answering his phone after i begged him to come home!!!!!) i don't have a treatment plan yet, will know more on tuesday. i haven't told anyone but you girls, my best friend and mike. i have no real pain, just the occaisonal twinge.
my worst fear is being alone........somehow i have it in my head that i'm better off to settle for mike's antics than to be alone. i am devastated that he's looking for an apartment, when in reality i should be relieved. i'm so lost.........he told me that my mets news is devastating him because he cares so much about me.......he sure has a funny way of showing it!
thanks for listening to me ramble........and thanks for all of the kind words.0 -
I am so sorry to hear about your mets. How did they find it? What an awful mess you are in, but I'm glad you trust us enough to share. I hope we can be there for you and lift you up through this tough time.
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Shel: Hey girlfriend. I know, you know, that I know, what your going through when it comes to your DH. And I would probably be wanting in my heart, what you want. Just sending you some warmth and strength.
Nicki0 -
I didn't really post about this before, but I just had a follow up with my radiologist. It was fine, back in another 3 months. I also have a mammogram tomorrow. It's at 10 am and I took the whole day off. How's that for spoiling myself? For once I'm not too worried about the mammogram because I just had a PET scan a few weeks ago. In fact, I'm kind of surprised to have it so soon after that. Does someone need to burst my bubble and tell me that they can still find something on a mammogram after a PET scan?
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Shel,
I don't know what to say. This is so not you, huh! You are clever and quick on the draw and now you are lost. I'm so sorry. You will get your sass back. It might take a while. In the meantime thanks for letting us in on this. We can help take care of you.
Here are some friends who wanted to say hello.
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