Im bitchy, I moan, I groan.....anyway.
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Hi all - been reading alot but not posting much. Was dog.ass.tired. most of the week - that's my IOS. It's a little better now.
Bliss - Of course you're se's are related to Taxol - what's the matter with her?! I had one dose of Taxotere that wasn't even "full" strength and got neuropathy that was bad enough to stop the treatment. Do not let them tell you otherwise! I have not had a treatment since August 29 (with Taxotere) and I'm still having lingering neuropathy. It's not as bad, but still there.
DebC - Like everyone else, glad to see you posting!
Rock - My mom and dad had this 8-9 foot long couch when I was growing up. I can see us now, all sitting on it - it was one of those velour couches, gold color and was so squishy!! How about adding some eggs to the mix?
Hi to all newbies and to everyone THAT SUCKS!!!
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Bliss - I had a good response (I think?) to L-Glutamine powder (recommended by my onc, who at least had the decency to look concerned about the fact that I was numb up to my elbows and knees.) It is expensive, and if I can call up a historical IOS, my sweet sister kept mixing it into a HUGE glass of orange juice for some reason. I can remember telling her, nicely at first, that all that OJ was doing a number on my already disasterous stomach, and that I really only needed a little bit of liquid to dissolve it in. It progressed to me drawing a line on a solo plastic cup and saying, "just this much, please!" to finally me bursting into tears as she once again brought me a full to the brim glass. LOL At least I can laugh about it now, and realize I was lucky to have someone waiting on me for crying out loud, but at the time, it made me want to punch her in the head.
My goodness, where was I? Oh yes, I bought it at GNC in the mall, and they will not listen to you and direct you to something called glucosamine. It's not that, it's called L-glutamine powder, and my onc gave me the amount to take, but I'm sure there are some ladies on this board who are taking it and can give you the dosage.
A big that sucks to all!
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My onco recommended B complex for numbness. So far I only get in ring and little finger and not for long periods of time. Legs feel like lead though, and some bone pain. 2 more Tx and in 13 days I will done with chemo.
I escaped the one PITA at bridge, but had one at chemo yesterday. My 2 friends who will finish their chemo next week and I were next to each other, discussing their farewell Pah Tee and this lady is having a crying jag because I am in "her" bed - after I am there over an hour... The head nurse asks if I will move and I agree to keep peace. She cames over several times and thanked me as this lady apparently is one royal PITA. On a SOI, the one friend also moved and we played Rummikub.
Oh a poop related story -- this one neighbor kid used to walk his dog, who always left a gift in front of my mailbox, which I usually stepped in. One day I waited for him with a small kids shovel and told him to clean it up. He gagged, etc but did it, as I said to him that you are a big boy and can walk the dog, which means you have a responsibility to do it the right way. It never happened again. I love the stories about regifting pooh. Catapult is great also.
THAT SUCKS as needed. and thanks for the chuckles as we meander thru the unknowns, the waiting, the Pita's, the scans, tests, thoughtless people, side effects, and other IOS.
Hugs and Blessings, Nancy
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Oh {{Nancy}}. I know you wanted to just say TOUGH TITTIES, and not move! What a PITA that lady must be. Maybe she paid for the bed with a gift to the clinic! ROFL Doubt it, she probably doesn't appreciate the nurses that are there for her either
Glad you friend moved too where you could both enjoy the game. Some people are so needed and it surely doesn't stop when they leave home. Sad people...Prayers you have NO SE's this time and get through those next 13 days with increased energy and health! Your sense of humor shines through, You'd think the people around would catch it, but ha! They are too wrapped up in self-pity to enjoy it!
Poor, sad people. Enjoy the day, and no IOS's allowed today for you! 
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I never complain about anybody in the chemo room anymore. We had one man that was so loud and cracking inappropriate jokes. He was just something else and somedays you just wanted to rest but he just wouldn't allow it. After about a month of realizing the chemo room had calmed down and the noisy guy wasn't constantly bugging the nurses I asked if he completed his tx and found out he had passed on. I really felt bad so I no longer fuss or complain about anyone in the chemo room that may be a PTIA.
My IOS I am still in so much pain!!!! I just got back from the pain clinic and they uped my meds in the pump by a whole mg. He wants me back on both Monday and Friday next week if this doesn't help. so far no relief from the pain. He suggested adding Lyricia to the mix of drugs and I am so nervous about taking it. My brother was on fentanyl (another strong narcotic) and Lyricia and went into respatory failure. His wife found him not breathing and he spent two weeks in ICU trying to get his wits back about him. Although diluad is not the same a fentanyl he is being cautious and is starting at a very low dose. I really hope it helps because I cannot stand this pain pulling in the back of my leg.
Hope everyone has a wonderful day I am going to take a nap while I get the chance!
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Oh {{{Sweet LuAnn}}} Darn it all. Not only the pain you are enduring but the fear of the combo drugs. I can't imagine what you go through with all these decisions you make each week just to get a little relief (or none as currently) from your pain. Dang it all! BIG THAT SUX, but more imporantly, many prayers and many more gentle {{{hugs}}}. Shoot, shoot, shoot. Does it take time for the extra drugs to work, or should it have worked right away? Sorry, I know nothing about them. I hope it's the latter, and that tonight you will get relief finally. Try to rest and let them work if you can. I know you have a busy life, but try if you can to let them work today and not overdo it.
{{hugs}}
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To Ms S.
Yes, I live in Warrenton, VA. I haven't taken the time too see if there are post for people in this area. If you don't know where Warrenton is, it is close to Manassas about 50 miles from DC.
Ms Bliss,
I think you should take the advice from the ladies. My sister had bad reactions to her first chemo, I don't remember what it was, but her doctor changed it and she got better. In spite of everything else, your doctor should be sensitive to how you are feeling.
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Sorry lefty about your SE's. The doctors really don't focus on the side effects unless they are affecting your vital signs. I know for me personally WALKING was the best remedy for chemo fatigue. I noticed I felt lousy some weeks no matter how much rest I got, At that point I started treading almost on a daily basis. I noticed I started feeling better if not immediately than the following days. Once I got into routine my recovery from chemo time was lessened more and more. After final chemo on Sept 10th I was feeling totally back to normal by week 4. I was walking 4 miles a day and got a few REAL training sessions in. Now I down again with post op from lumpectomy and auxillary clearance, but once this drain is out and surgi strips fall off I will be back on track literally. I want to get thru radiation with as little SE'S as possible and if I do get them I don't want them to last.. Muscle aches were a real problem with the taxotere but I worked thru that too. Chemo fought me but I fought back harder...take control and get sum fresh fall air..
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Miss S
I live near Warrenton, VA which is about 50 miles outside of Washington, DC.
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Shelly, for most rads from initial bc isn't too bad. Some people react badly with fatigue but a majority of the people I know do well with them.
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Wow! I can't believe how long it has been since I was here. There are 3 whole pages to read.
No IOS for me. Just tired from working all week and glad the week-end has arrived.
MissS: I wanted to check in on you first. Was wondering when the PET scan is scheduled. I too failed Herceptin after 3 months, You words really struck home. The fact that we have to go through these fears over and over again sucks.
Bliss: Sounds like you are having a terrible reaction to the taxol. The open sores are awful. I had one round of Taxol and I got severe bone pain and numbness in my legs and feet. So much so that I wanted to quit chemo. Onc changed me to taxotere. Still had the side effects but not as severe for some reason. I like your idea about getting it every 3 weeks. Hope your onc shows you a bit of support and alot more attention.
LuAnn: I just read your post about your dil. What an awful situation. Glad you talked to her after you calmed down. It sucks that your still having issues with the pain pump. The story about the poopies on the drive way cracked me up.
Saint: Discharging my public duty by not posting here regularly? Thank you for a good belly laugh. I miss my computer time.
Traci: So good to hear from you. Typing 75 pages...it's alot. The weight gain sucks. I too have gained weight and I went window shopping. So many cute things that I would look just awful in.
DebC: It's so good to read a post from you. Even though things are tough, you are one special lady, cause you always manage to make me smile.
Trish: I didn't see that wedding post and I'm glad I didn't. It's cold here in the Chicago area also. This morning when I was getting ready for work a helicopter flew over. For once split second it reminded me of the snow plows!
Wish: Hi to you. You made me laugh. My dog Mister is half black lab, half border collie and all monster. I love taking him for walks and will be doing that this week-end. Mind you he has a huge fenced in yard to poop in. Anyways the last time I took him for a walk he pooped and it did look like a pile of horse poop lol.
Pinky: Sorry to read about your friend. Sucks big time.
Cmb: Hello there my friend. It seems like forever and a day since I we have talked.
Hi to Cristine, Sue - and everyone else I missed. Suddenly it's dinner time.
Nicki
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Girls, I gotta tell you....catching up I've been LMAO!!
Shelly, glad you found us. Your post made me laugh laugh laugh. I know it all sucks but, you have most definitely kept your sense of humor. Hugs girl. I gotta tell you....take at least one ativan when you do get your drains out cuz that procedure was gross for me. It didn't hurt but like you, they grossed me out.
Miss S, thanks for the compliments girl. You are too kind. (((((((((((((((((((hugs)))))))))))))))))))))))
Wish, I almost spit out my drink when you said (not house)....lol....that was funny!!!!!!!
Nancy, your on a role too! LOL!!!
Trish, where do you live in TX? We need to do a get together on here! I would just love to meet you and Sue and Twink and all the other girls that live 'round here!!!
TGIF.......((nikki)).....this has been a long week.
My poop story: When I left my ex, I moved into an apartment. Well, one day I came home to a flier on my door saying they were going to start imposing fines for those of us that didn't clean up after there dogs.
I went straight to the office to see the girl who leased my apartment to me (can't remember her name...imagine that) and who I had become "friends" with. I said "hey you, can I go ahead and just give you $500 now because I have tried and I just can't pick it up...it makes me gag". She thought that was pretty funny. Maybe it's a good thing I didn't have kids!!! Just for the record...I would drag my poor, little mutt to the spots where nobody ever walked before I would let him go....
Well, this work day is finally over. I'm out of here!!! That ex boss/friend/lover is coming into town again.....deep sigh.....I prolly won't see y'all 'till Tuesday nite.
Love you girls!
Traci
ps Why, oh why, didn't these f*ing guys like me this much when I was thin, horny and had breasts????
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Traci, get the 2 of you tipsy and you'll both think you are 20, svelt and horny as bunnies!
Breasts are just glands honey...there sooooooooo much else to enjoy under the sheets, on the patio, in the car, or gazebo, or green house...or....well, you get my drift! Let go of that thought you have of not being thin, horny and breastless and take advantage of your mind and a good glass of something you enjoy! Have fun this weekend!Nicki!
I should have prefaced that comment by saying, the dog was always welcomed in the house/ yard, but it just ticked me off that his owner had 1/2 acre and then 37 acres out back of us and the idiot allowed him to come over (we are about 100feet from his back door where he pooped. The owner had to have seen numerous times dumping in the hosta garden. Not to mention that I had spoke to him about before, several times 
His previous dog was an old guy that used to pee on my bushes! UGH! Male dog pee is potent! Kills a lot. Anyway...after we moved in, we didn't have our 2 acreas fenced yet and this dog would walk the 37 acres on his own, then come across our front yard, p*ssing on my bushes as he passed! I started spraying him with the hose when he did it. About the end of summer his owner was in the garage with dh and I and I was in the back area. The dog had been on his walk and stopped to see the guys. When he saw me, he high-tailed it home! ROFL It worked at least when I was out there! LOL
I loved both dogs, just not their using my plants as potty chairs. We had 2 girls, they've only had boys....UGH!!!!
Whew...that was a long one! Sorry!
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Thanx Luann, I am looking forward to starting rads because it means I am that much closer to the end of this circus.
And Traci, Picking up the poochy poo isnt that bad, I HATED at first too, But they sell pretty little bags in Pet stores and walmart (Mine are fushia) that you can hook right on the leash. My secret to picking up the poo is I leave it till my return walk so I dont have to carry it all over the neighborhood and it also dries up a bit so its easier to scoop up, I double bag than and reach and grab it every so gently to avoid squishege. Then I hold the bundle between my thumb and forefinger with my arm extended as far away from my body as possible till I get home. When I come in the house i scrub my hands like i just handled a nucleur bomb. Then I kiss my little bundle of fur and tell her how much I love her
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I have seen people with a pooper scooper, like a shovel that grabs it and then can toss into an area where no one walks or into a trash can. Here in this apartment complex they have cans just for dog poop and dispensers with bags. And a company (think it is "Doggie Doo") comes every so often and empties the cans. Obviously this is a very dog friendly area. There is no kiddie play ground, but the dog play ground has chairs, fenced in very well, toys and balls and frisbies and several bowls for water. I do not have a dog...
No moanies today, so far. Hugs for everyone. Nancy
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Nancy, where do you live to have such nice things for dogs and not people?
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I am in Alexandria, Virginia. this is a very dog friendly town. Most shop owners put bowls of water out and LOTS of people walk dogs around the town. Even a dog dress up Halloween parade, contest in the town square. And you see many kinds of dogs, even Mastiff (I think that is the name) -- BIG... For the Scottish Day parade there were probably 100 or more people and their Scottie dogs, dressed in tartans. Really cute.
And I agree, not many kiddie play grounds, but lots of dog areas. However, the park down the road is very nice with walking trail and bike trail. Very well maintained and a little fishing pond.
On a bitchy note: went to Sephora to check out eyebrow stencils. They had some live musical group and I could not hear myself think. Walked out without looking at anything. The world is gonna have to love me without "perfectly stenciled eyebrows"... lol
Ohhh, and the leg aches... only 12 days till I am done w/chemo. Hugs, Nancy
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WhaSux??
Hugs aka---I found that after a bit I didn't even have to think about WHERE to draw my brows---it was as tho my brain automatically filled in where they were missing....
Speaking of pooh----you squemish girly-girls crack me up!! I volunteered in my kids' infant & toddler daycare when they wre little---maybe it's aversion therapy, but most poop does NOT bother me anymore! LOLOL
Speaking of dogs---I saw Cesar Milan, the Dog Whisperer yesterday--he is so damned cute I coulda put him in my pocket & brought him home...but then, since I feel like Traci, what would I do with him??? LOLOLOL eye candy NEVER looses it's charm (I HOPE!)
Speaking of eye candy---I went with dh dd & son to a new Mexican restaurant Fri nite---talk about EYE CANDY!! no need to order food!! LOL DD is almost 16 & we both had a ball cecking out the staff there--not a bad looker in the whole place--smiles with dimples, buff work-out types in tight polo shirts -- all had moosed hair-----ohhh baby--somebody stop me when ya got all that & they add an accent!!! hahahahahaha
Been a mostly IOS-free week til today when TWO ppl at church were referred to me with new dx's--one is a dear friend who beleives her tumor markers are warning her it's back--the other is my opthamalogist's dd---14 yr old--benign tumor on her sternum----will need extensive bone grafts. Her mom (a very serious stoic type) sobbed on me when I hugged her! They know so much I sometimes think docs scare themselves worse than WE do------ IT SUX!!!!!
Busy week ahead! Until I can get back----Hugs to all--be well & stay strong!
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Morning Ladies!!
I can't believe it's been a week since I posted...I tried to catch up with reading everyone's posts but to no avail....I had four pages to read and so tried to print them out, got half way and printer ran out of ink. Finally had a few minutes last night to relax but then couldn't get online.....so, I am woefully behind on everyone's suckiness...but wish everyone in need a big THAT SUCKS anyway!!!!
Started working full time and rads last Monday...my SOI is that I finished the week feeling really well and not at all exhausted like I thought I would, but my IOS is that by the end of the week my breast was hurting. Skin is fine but it hurts deep inside and at the scar line. Didn't talk to the rad onc about it cause...what the hell is wrong with me? I was afraid he'd think it was all in my head cause I haven't really heard of anyone who had pain in the first week!! But by Friday night/Sat I was taking round the clock Motrin, so I better say something.....
Anyway, gotta run! I'll try to catch up! Love you all!! HUGS to all!!!
Everyone have a blessed and IOS-free day!
Sherri
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A big THAT SUCKS to anyone who needs it.
Moving right along - I'm having the lumpectomy to remove the nodule that has the LCIS in it on Friday morning. So of course I wake up today with a scratchy, kind of swollen throat. Given that the husband is getting over a massive cold, this does not bode well for me. I don't have a list of what meds are ok to take - I think it's just Tylenol.
Looking through the booklet from the surgeon, I see it says that I'm having MAC anesthesia....I thought it was going to be a general.
I don't want to be awake! Now the freaking out begins. It was bad enough last year having the wire localization and being able to see that....being awake while they're cutting into me is not my preference at all. So, 7:15 on Friday morning I start the journey all over again...wire localization and all. Just hoping they don't see anything else when all's said and done. After the path is in I'll go back to the onc and start in on Tamoxifen. It's starting to sink in that I'm not done with this at all...that it will continue for years to come. Looking hard for SOIs. Hope everyone finds one here or there.
Pam
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{{PAM}} IT all sucks, having LCIS, having a MAC rather than knocking you out, and having to do just anything that causes more worry after one treatment is totally SUX TIME! SO sorry you are going through this again
{{Sherri}} That SUX about the pain from RADS! Hope you get an answer a way to find relief soon!
{{Saint}} SUX about the girl and the woman in your church. I'm glad though that you are able to talk to them
{{Nancy}} SUX loosing your eyebrows. Sorry you are putting up with that without a find for something to tx it, ie, drawing stuff. I just went without, then again, I didn't use a wig or other things that many did. I'm lazy I guess, figured I was going through it and didn't really care what others thought at the time
Hoping you all find some SOI's today!
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Howdy, all - and a big That Sucks! to all those in need. Especially you, Pam. Surgery sucks, big time...
I haven't posted much, but I have been reading. Sorry to hear the suckage-fest still rages on...
Two SOIs to report today: a good friend - 26 at diagnosis - had her last chemo today! Whoo-Hoo! And today when I got to my office, there were four HUGE deer munching the foliage at the top of the little slope that connects to our parking lot. They were beautiful. As I was watching them watch me, a blue jay flew by and landed on a branch just past my car. He or she was beautiful as well. So humbling to see such magnificent beings up close, it really is (as you can see, it doesn't take much to make me happy, LOL). Sigh...
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Nancy - Seriously? She has an emotional connection to a chemo spot? I like to think of myself as compassionate and understanding of the quirks that make us who we are, but really now. Bless you for moving, I'm sure the nurses appreciated it more than they could say.
LuAnn - I'm hoping the pain is seriously improving, and that you got that nap.
Nicki - hilarious picture, as always, I hope all is going well with you
Saint - did you see him in person, or on TV? I am obsessed with him for some reason, I just think he's so cute!
Sherri - the one thing I have learned is that despite the pages and pages of detailed descriptions of the "most common side effects", is that I could always manage to be struck with one that made my onc kind of scratch her head and say, "hhhmmm...." I hope you're feeling better, and I'm glad that your skin is holding up well.
Pam - arrrgghhhh! sorry, that sucks! can they give you some valium (or whatever they give you) to calm your nerves? One of my surgeries (I forget which?) they told me I'd be having "light anesthesia" (whatever the hell that means) and although I thought that meant I'd be awake, I really wasn't. I hope that happens to you.
Felicia - there really is something about seeing a deer isn't there? Every so often (maybe once a month or so) we happen to catch a mom and baby strolling through our yard, and it never gets any less exciting (which might be a statement about how exciting my life is I guess!)
I know I missed many, sorry about that. My IOS is my son is sick AGAIN! This is the 5th or 6th time in the last month or so, and we're both getting really tired of it. Although a friend just clued me into the wisdom of taking his mouthpiece for football and sterilizing it (this is the first year he's played, and it never occured to me), which might be contributing to the fact that he keeps getting sick, who knows?
Traci - I hope all went well last week with your friend, and you crack me up as always
A big that sucks to everyone I missed
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I know, I know its a repeat picture. But I just love it. Marking my spot and shouting out a big that sucks to everyone who needs it today.
Nicki
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CMB, don't use bleach on that mouthpiece, it'll taste HORRIBLE! I stupidly tried that one time with something plastic....OH MY! Had to throw it out! EEEk!
Nicki! EVERY time I see that pic, I just want to B*TCH slap that girl! ROFL
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Wish - Yikes, it wouldn't occur to me to use bleach, but now that I think of it, I'm not sure what I'll use to actually clean the darn thing - the dishwasher maybe? I hope it doesn't melt. I guess at least soap and water would be better than nothing.
Nicki - that really is such a funny picture!
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cmb35, soak it is Listerine. That will kill the germs.
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Mouth wash might be a better solution, but perhaps one that doesn't use alcohol. Not sure what those things are made of, but the alcohol might be too drying for them. I wonder if those denture tablets would work? I really don't know. I had a mouth piece, when I went through a time of grinding my teeth years ago and would use tooth paste and my toothbrush on it every morning. I wore at night only when I would grind.
Ask your dentist, they probably would have a good idea what is safe or enough to keep it clean.
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Mouthwash sounds like a great idea, I think I'll go with that.
Wish - I'm a terrible clencher (I don't grind, I just clench), but I haven't gotten the mouth guard as I have no dental insurance, and don't want to spend $300 to find I can't keep the thing in my mouth all night. Did you get it from your dentist, or did you use one of the ones you can buy yourself? Did it work well for you? I wake up with excruciating headaches from the clenching, which sucks! I tried one I bought at CVS for about $25 dollars once, but I screwed it up (you had to boil it, then bite down on it, and they said you could "trim it" if it was too big, but it was all uneven and sharp and I couldn't keep it in my mouth for more than 5 seconds before I started gagging!)
Has anyone else been eating like it's going out of style? I can't get enough of giant bowls of pasta with lots of cheese, brownies, etc., it's like I have a tapeworm!
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cmb,
Also, replace his toothbrush.
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