Im bitchy, I moan, I groan.....anyway.
Comments
-
Hi y'all,
Big {{{{hugs}}}} to everyone for your wonderful compassion and good advice to me during my recent trip through the land of se's courtesy of Taxol. I have returned from that place I call 'Leprosy Land" because my onc refused to believe open weeping sores on the body could be a Taxol se, even though websites about Taxol mention it. Come to think of it she kind of has that reaction to the mention of any se's. I can't decide if she is stupid or thinks as long as she doesn't mention any se's, then I can't have them.
It occurred to me during this lovely time that it was probably good that I was long married and not in a dating situation, because nothing would quite say "Wanna get it on with me, huh? huh?" like open, weeping sores over the body. Hugs {{{Traci}}} on wanting to retreat when your friend was visiting. I haven't had my surgery yet, it will probably happen sometime in November or December (depending on how long it takes to get me through Taxol tx or other chemo if I can change her mind.) I don't want to think about anyone seeing me, including ME. I don't know how anyone gets to a completely peaceful place about this whether you have recon or not. I am hopeful for both of us (and anyone else struggling with this) that we WILL get there.
Nicki, I love the picture of the sneering blond. Did you bop me over the head with your wand and put her inside me or something? When I am trying to look all calm and collected, while doctors are trotting out some new bs I am supposed to accept without question, I swear that blond is on the inside of me mumbling, mocking, sneering and shaking her head.
Or maybe I ate her, and forgot I did. {{{cmb35}}} I have upped my Neurontin meds in hopes of making the neuropathy better. Neurontin has the same affect on me as steroids. My normal smallish appetite suddenly knows no bounds. I eat something, and want something more immediately, or I am eating one meal thinking about what I am going to eat at my next meal!! I hate it. I do not need this as I can gain weight just watching people on tv eat - eek.
{{{Pinky}}} I'm a little late to the pity party, but I want to say we all know what it feels like. Come here and talk about it whenever you need to. This has been the loneliest time for me of anything I have gone through. Family or friends may try to understand, but they just can't. I cry for any and no reason these days. I am totally schizophrenic-like, as I still have my wacky sense of humor, but even it doesn't keep me from collapsing in tears at times - or lying in bed wishing someone was there who understood. The night time hours are the worst for me. I don't sleep much, and they seem to last forever. These gals DO understand, and without them this journey would be so much harder. This is the one place we don't have to suck it up and be strong - we can rant, we can cry and we can laugh together.
(((Nancy))) my eyebrows fell out last week. I have about a half-dozen eyelashes holding on. So I went from looking like Dr. Evil to Uncle Fester. They can park me on the front porch this Halloween, and scare the bejeebers out of the neighborhood children. To top it off my skin has gotten horribly blotchy lately too. To amuse myself, I put my hand on top of my bald head, which makes it look like Thing is visiting (or sucking out my brain.) I always crack up, because I have very long fingernails and this week they are painted OPI "Yoga 'til you're blue" - which is a dark navy. My caregivers cheer me up by painting my fingernails and toenails for me. I haven't resorted to drawing on my eyebrows yet, although I have stencils. I have considered putting one high up with the letters "high brow" and one low down with the letters "low brow." Or maybe I will match them to my nail polish color, since I have no hair color to match them to. Bald, bloated, blotchy, and browless - I'm a looker - hooboy!
{{{LuAnn}}} yay for pain relief! I too feel like I have narcolepsy at times. Between MS fatigue and chemo fatigue, I have occasional days where I just fall asleep constantly during the day. My caregivers tell me I even answer them, but I don't recall any of these conversations. It can be funny and frustrating at the same time. I hope wakefulness returns, but the pain stays controlled.
To everyone else, I love and appreciate each one of you. Each story, fear, setback, triumph or joy adds something that makes this place "home" for those of traveling this road together. I wish I could speak to each one of you, but my brain has reached it's limit. Know that you are noticed and loved.
A big THAT SUCKS to all who need it, followed by gentle hugs.
Love to all,
~Bliss
0 -
Hi LuAnn
Any suggestions regarding neuropathy are welcome. My onc has basically cut me loose and said there is nothing else that she can do for me. I spoke to a physical therapist today and he is sending me some exercises to start trying. We don't have any local and this one is provided by my insurance company's Condition Care Program. He says that it is obvious that I am depressed and very weak. He is also sending me some referrals for counseling. Imagine that! I am apparently finished with cancer treatments and finally getting some counseling about it! All of my antidepressants were prescribed by my GP without counseling.
In fact any suggestions are welcome.
Pinky, If you haven't driven... I am not sure when you had your surgery... but... My docs told me not to drive for a month after surgery.... of course they didn't tell me this until my second follow up appt. after surgery.. when I told them that it really hurt bad when I had to make left hand turns. My drains were in my jean's pockets and pulled on my chest. You see, I had already driven myself to the hospital twice. 2 weeks later I had emergency surgery to replace the expander. I never did find out if it was related. I know my expander was overfilled to capacity when it was put in the first time. I had it put in during my mastectomy. The second one was put in empty and I didn't dare drive or move.
Bliss,
Doc had upped my neurontin meds earlier this year and had severe problems with edema so the docs almost took me off it completely. Same thing happened with Lyrica. I am taking 900mgs daily now and they say that is it... no more.
Also, a trick for eyebrows... I learned from a drag queen... use a mascara wand, it gives the illusion of small hairs. I have 14 wigs in all different colors and changed my eyebrows to match each one. Losing hair in my nose was a bit disconcerting. And I didn't really notice that I had lost the fine hairs on my face until.... one day long after chemo stopped.. I was standing in bathroom brushing teeth.. and the sun shining thru the window caught the hairs on my face and I thought I was growing a beard! I went back to bed and cried for an hour. My niece came for a visit a couple of weeks later and I told her about it.. and the new gray hairs growing on my peach fuzz head and the wrinkles that weren't there before the chemo. She said
"Aunt Connie, you have always had a beard except during the chemo treatments. That gray hair you never knew you had because you always dyed your hair. AND as for those new wrinklles... you can see them now because you finally got glasses!"
LOL! Hope that cheers someone's sucky day! It didn't make me very happy. I thought I had aged well for 49 - no beard, no gray hair, few wrinkles... hah!
0 -
I've not enough time to catch up on everyone, so I'll send a big THAT SUCKS out to anyone who needs it...have been out of work again for 5 days with SE's from this darn Taxol and all I can say is get it the f over with!!!! Down to the end now and I can not wait.
I"ll try to catch up some more at lunch time!
XO
0 -
one note for you cmharris.....I has same issues with neurontin and lyrica...my GP finally suggested Cymbalta, which is primarily an anti-depressant but also used for nerve pain/neuropathy. Prior to starting Cymbalta I was on nerve meds AND morphine and had no use of my left hand other than my pinky. 4 out of 5 fingers had no motor function or sensory function. Within 6 weeks of starting Cymbalta I was completely off of the nerve meds, use pain meds occassionally, have full motor skills back and 90% sensory back. It's worth a try!
0 -
cmh - I learned the mascara for eyebrows trick at a Look Good, Feel Better session (I know, they really need to work on their names!) and it really does work. Hilarious that the fact that you've always had a beard was meant to be comforting.
A big that sucks to all today!
0 -
Did someone say NEUROPATHY?
I put my feet up, and on an icepack which provides some relief. Sadly, the @#($*&@#$(& crocs are the only shoes that I can wear without paying the price in pain later. If you're done with chemo and rads, then you can try taking 200-300 mg of B6. That helped the neuropathy a lot, but I had to stop taking it when I started radiation.
*****
A hearty Sorry about the Sucking to everyone. (Though your sense of humor seems none the worse for wear, women, I gotta say!)
I have a couple PIOS (picayune issues o' suckiness), nothing major:
* They drew on me again yesterday at rads (boosts); I hate being drawn on with a Sharpee. It makes me feel about as human as a dry-erase board. I half-expected to look down and see "Rads, Class of '08"
* My head is cold. Every hat I try on makes me look like a thumb that's been dipped in something fuzzy.
0 -
{{Rock}} Sorry you're feeling so bad about being bald. I so remember that fuzzy head from hats. Until chemo, I never wore a hat, even when skiing in 0 degree weather with windchills below that. Just hate them. But last winter, I was soooooooooo thankful for hats. Not having hair, really puts a chill through you. Hope you get yours back soon dear!
BIG THAT SUX TO you ladies in need of it! ;(
0 -
Rock,
Try a (wait for it)......fedora.
Love,
Sue
0 -
A hearty THAT SUCKS to all.
Neuropathy - that must be what my mom has in her feet. She was dx with type 2 diabetes several years after BC, so she has to be careful all the time. Tried orthotics, made the problem worse. What seems so bad is that - for her anyway - the SEs of treatment really weren't discussed, like Bliss says - if they don't mention it, it won't happen. The whole lympedema thing was totally ignored back then (18 years ago). Chemo brain? forget it. Never happens. She's imagining it. She can't remember any books she read, discussions, situations from that time. So funny - last week she pulled out a huge trash bag that was in her closet. Was sure it was papers to be shredded. Instead it was a ton of yarn and at least 6 unfinished knitting projects...all from when she was having chemo (what can I say, she's a pack rat). She had no idea who or what these were for.
PIOS. A new acronym. Love it. Mine for today are definitely PIOS.
A horrific cold & surgery on Friday morning. The PA said a decongestant is fine as is Tylenol. They will still do the lumpectomy as long as I'm not feverish.
Part of the cold - taking on lots and lots of liquids. My drug of choice is Florida's Natural Orange Juice with Calcium and Vit D. Mmmmmm. But I sneeze and cough....I'm peeing when I'm sneezing. (those damn kids!) This is not fun. At least I'm working from home today so I don't embarrass myself.
Minimum of IOS you all.
Pam
0 -
You know sometimes I just want to f...ing give up. For the first time since my surgery I went for a walk. I can back in and my "man" had cooked some shrimp. I thought that he had eaten so I ate the ones that were left. He came in the kitchen and said that I must want to go home. If I could be at my own damn house I would. What the F..... over some damn shrimp. Life can really suck.
I am walking around with drains scabs and lack of energy. I have been cooking every day since the second week and I get blasted for eating some reheated frozen shrimp. Doesn't that sound like he was looking for a reason. Now since I can't be at my house by myself, I have to find a way to apolize for eating something that was on the stove.
Life really sucks.
0 -
PinkyLee,
He sounds like a real gem -- NOT. Is there somewhere else you can go if this type of interaction continues? Have you tried to talk turkey with him about how you feel? I'm sorry if I've missed reading about it if you have... I'm sorry you're drainy and scabby and listless. It does suck. What can you do to lift yourself up? Get lost in a good book or a good movie? Knit? Chat on the phone with a friend? You are not alone.
0 -
sharil232
He is basically a nice person. He has been taking care of me since my diagnosis. The last few days have been a little difficult for both of us due to my mood swings and his accustomed to not sharing his space. He stood by the bed and tended to me while in the hospital, including holding the pan for my to throw up for two hours after surgery.
I don't know what his attitude is about the last couple of days. Maybe it is the lack of sex or the way I look. He sent me to the hair dresser and nail shop yesterday and we were laughing right before I went to the store. If I were to diagnose him, I will call it bi-polar.
It will be a month since my surgery tomorrow and I start my expansion on Friday. I am out of leave at work so I am no longer getting paid. I can't very well take the attitude that I normally would. If nothing else, this disease has made me deal with being Dependant, something that I have not been since I was 17 years old. It is very difficult.
I resent not being able to do for myself and I rent feeling like I am an imposition. The reality of the situation is that I an totally Dependant on someone, right now him, and it probably is an imposition. But the bottom line is he volunteered for this and I am not leaving until I feel like I can do for myself.
0 -
Hey everybody,
Just poppin' in before leaving work.
Pinky, I feel for you girl. I guess I was lucky. I was amazed at how little I needed help after my bi-mast. My sister came down from Atlanta for a few days right after my surgery but I was driving in only a week. Those drains were a pain in the *ss though. I guess I was "lucky" cuz I helped my little sister after her mast so, I really new what to expect. I had a roommate at the time but, she was pretty much never home which, you can tell from my original post, was fine with me. I like living alone. I hope you feel well enough real soon that you can say "C Ya!!" to your man and get back to your house.
((((Rock)))) your fuzzy thumb made me laugh out loud. You are too funny girl. Have you tried bandanas??
((((Pam))))) We'll all be thinking about you on Friday. Please post as soon as you can after and let us know how you are doing.
Bonnie, good to see you girl. How have you been???
I wish I could back page.....argh.....
Anyway, friend is gone, got some great sleep last night and I'm looking forward to another night of just me and my cat!!! Oh, and, the Tampa Bay (my old hometown) Rays start in the world series tonight. My brothers both still live there and have been texting me all day so I don't forget (lol) to watch.
Hugs everybody,
Traci
0 -
Thak you Traci:
I truly wish I could go home. But, I have to suck up the fact that I live in themiddle of no where and I have difficulty getting around at this time. Additionally, I can't afford to be on my own right now, which really sucks. But believe me, when to time comes I am out of here. I can't wait to sleep in my own bed, sit on my own sofa and be around my things. Half my clothes are here; half there. every time I think about putting on some clothes, I don't have a complete outfit. But, I am on the way to getting better. I am blessed to have health insurance that has paid for most of this. I am blessed that I have not had complicatgions and I am blessed for this man who is taking care of me, even with his crazy moods and drinking. Life could be worst. I could still have cancer and not know it.
Regardless, right now I feel like I could scream because this just is not fair.
0 -
WhaSux??
I am so PO'd for everyone's IOS's! I had planned to respond to everyone as I was reading to catch up earlier, but I ran out of time & left to go to choir practice-----now MY IOS is not really "mine": A huge family adopted my dh & me years ago. Their youngest dd is 21. We have watched her & her siblings grow up & they are totally the most wonderful family. Recently she had to give up the chance at a job she CRAVED due to the fact that she had a seizure of unknown origin. She moved back in with her parents & has continued to have them. They do not know why she is having them, but the docs all say--there is nothing wrong!! Oh really?? Well, tonite at choir practice she had one. IF I didn't already love her parents I totally fell in love with them all over again watching as they stopped everything & bent over her talking & crooning. (Dad is the director & Mom is the accompaniest) As she was coming out of it they started singing to her quietly. I spent 30 minutes with her older sister in the chapel trying to comfort her. THIS SUX!!! I don't know what to do with this feeling I share with her sister--so I told her to use it & get mad & kick the docs in their butts til they get an answer! (I'm hope her parents aren't mad for my input!) It hurts to watch someone else go thru this shit! "Better me", I say!! THIS SUX!!!!
Hugs all---glad we are all here to bitch & moan together----be well & stay strong!!! THAT SUX!
0 -
Hi, all--
WhaSux?
PIOS = picayune issues o' suckines; MIOS = minor issues of suckiness; TIOS = trivial issues of suckiness; LBIOS = little, bitty issues of suckiness.
Rock, I agree. My ears are cold. My neck is cold. My head is cold. At night, even with the heat on, I have to pull the covers up over my head and stick just my nose out to breathe. Charming, and very sexy.
I am so sorry to hear that you're still wearing crocs. Not that crocs are bad, of course--it's just that winter is coming on, and I'm not sure crocs are all that warm. What about the snow? OTOH, I did see some crocs the other day that had a soft, fuzzy lining and fur around the top.
I only had neuropathy in one toe, but it was really weird. For my last chemo tx, that toe (the big toe on my left foot) was tingly and numb. Then, about 2 months after chemo, it started to hurt--it was almost as if I was constantly stubbing it against something. Now, though, I think it's okay. I think it might take a really long time, sometimes, for the neuropathy to resolve.
Pam, best wishes for a quick recovery after your surgery. We'll all be waiting here, thinking about you. That was so original--I should write cards for Hallmark. Really, we have extra hugs stored up for when you're ready for one.
Pinky. Oh, Pinky, what can I say? It is so sad that you are stuck somewhere you don't want to be, but don't have any choice. Soon, once those stupid drains are out, you should be able to manage your own life again. And get some of that Simply Orange orange juice.
Traci, everybody locally is cheering for Tampa Bay, too. Montgomery AL has the "Montgomery Biscuits", a not-so-bad minor league team affiliated with the Rays. Lots of guys who played here are now playing for the Rays. I haven't made it to a Biscuits game yet, but the video coverage makes it look like a great place to spend an afternoon with a family.
Time to crawl under the covers and pull them up over my furry-but-cold head. G'night. Hugs to everybody...
otter0 -
Hey...I keep reading, but sometimes it's hard to catch up.
Pinky - You're killing me! I just want to go and snatch you up outta there!! Okay, I'm just really feeling for you and your situation, which I really hope gets a lot better.
Saint - That absoutely sucks! And, yes, somebody else may need to be the "mouthpiece" for them, sometimes parents are just too in shock. Of course there's something wrong - adults who never had a seizure before don't just have them for no reason!
LuAnn - Glad you're pain pump is working properly!
Pam - It so sucks to pee when you sneeze! And good wishes for your surgery...
Otter - Love the play with the acronyms!
Rock - Yes, let's talk neuropathy. We've been having a heat wave (mid-90's) here and the other day I thought I could wear the shoes that I had banned myself from wearing in late summer. Especially since it has been almost 2 months since my partial dose of Taxotere, but noooooooo! My bad. I wore them and paid dearly for it that night. Crap. Sending you warming thoughts for your head...
My IOS today is work SUCKS!!! I was drawn back into an emotional place there that I haven't been for quite some time, but it is hard to not feel paranoid when people are clearly out to get you! Basically, somebody put out a voicemail that gave the impression I was not going to be around for awhile and, given my diagnosis and treatment, I had colleagues asking me all day if I was okay. And my students were a bit shocked, too! The voicemail was supposed be a call for anyone who was interested in learning my job to be my "backup" for all emergencies (not just cancer related stuff). What was actually said was rather stunning and, like I said, left people with the impression that I was leaving. WTH?! This is not rocket science, just voicemail!!!
Okay, after I wrote all that, it now sounds more like an MIOS. Venting is good...
And "hey" to Nicki, Felicia, Traci, Nancy, Bliss, Sue and anyone else I missed. THAT SUCKS!!
0 -
I had a nice post going but the cyber gods needed a sacrifice, so I will just mark my spot and give a WTF and THAT SUCKS to those who need it. MIOS - it is cold and i am off to my next to last chemo. Is it fitting that my last tx is day before Halloween?? Did I miss HIOS - HUGE IOS?
Gentle HUGS, Nancy
0 -
Woohoooo NANCY! Last one! Take a blankey with you to curl up and stay warm while getting that chemo lady! Good luck today and prayers you have NO SE's this time and can rest well after!
0 -
My first IOS posting............ GRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRR at this damned hole in my boob with this damned tube sticking out for this clinical trial which was going to be so great for Mammosite instead of whole breast external beam. GRRRRRRRRRRRRRRRRRR that I had my surgery to insert the balloon a week ago and the paperwork is still "in process" so that I cannot start treatment. SCREW the worry because the thing leaks and I'm worried about infection. I have panty liners lining my bra, I feel like I stink. Oh, and happy frickin 44th birthday to me. Did I mention I have my period? BWAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAA. I am a mess, but here at work where I am just smiling and no one knows.... it's all just groovy. I am officially postponing (or removing) my birthday this year. I don't want leakage from another friggin hole anywhere near me. GRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRR.
OK. I kinda sorta feel better. Thanks for listening.
0 -
Oh {{{Shari}}}THAT SUX! Menses, Holes in breast, Pads SUX regardless of where of they need to be, Pouch in Breast that can't be used and removed yet, Birthdays we don't want this year....BIG THAT SUX! HAng in there, it will get better!
0 -
Hugs Shari -- I think you get the HIOS award today. (Huge IOS). Gotta run, or waddle like a duck with crocs and sore feet and temp outside near freezing. Brrrr
0 -
Shari -- Woah, there, missy! You're postponing your birthday?? I DON'T THINK SO. Because here at "Bitch, Moan, Groan", we celebrate birthdays a very special way. (Quick women, help me out! What DO we do for birthdays on this thread??!!!) For instance, ummmm, we sing you the Happy Un-Sucky Birthday Song... Yeah! That's the ticket! The Un-Sucky Birthday Song!
Happy Un-Sucky Birthday to Youuuuuuuuuuuuuuu.
It SUCKS that you have a hole in your boooooooooooob
We're sorry that you think you smell like pooooooooooo
HAPPY BIRTHDAY TO YOUUUUUUUUUUUUUUUUU.
***********
Shari -- you mos def get a do-over on the ol' birthday. Personally, I recommend celebrating all birthdays for at least a week, and sometimes a month. The "biggies" are yearlong celebrations during which I get REALLY annoying because everything becomes an excuse to celebrate the fact that somebody was born (and no offense, but I'm not talking Jesus). Eating a hotdog from a street vendor with a friend? I declare it a birthday meal (for one of us). Sitting on a parkbench? Same thing. Find a dime on the sidewalk? You get the idea.
HAPPY BIRTHDAY TO YOU, Shari. I'm sorry that it's sucking, I'm sorry you have cancer, but I'm glad that you found us.
0 -
Cris, re; voicemail. OH FOR CRYING OUT LOUD. It's been awhile since I've pulled out the ol' shovel but baby, I can still swing it! (Do I LOOK like someone who's leaving? *Whack*) GOOD GRAVY.
0 -
lol....(hope my boss doesn't walk in but I just had to chime in!!)
Rock your soooooooooooooooooo funny!!!!!!!!!
Shari,
Happy Un-Sucky Birthday to Youuuuuuuuuuuuuuu, Happy Un-Sucky Birthday to Youuuuuuuuuuuuuuu. Happy Un-Sucky Birthday Dear Shari ,....... Happy Un-Sucky Birthday to Youuuuuuuuuuuuuuu.
Shari, this was soooo funny: I am officially postponing (or removing) my birthday this year. Sorry girl......(((((((((((((((((((((((((hugs)))))))))))))))))))))))))
0 -
Hey all, reading, but not having the energy/focus to post, so a big that sucks to all.
Rock - that made me laugh right out loud, yes LOL, I think that needs to be our theme song (do we have a theme song?)
Pinky - hugs to you
Who has the bad neuropathy? I forget, my damn toes are still numb 3 years later (but only the tips) and it is getting better. Once (every time I start a sentence with "once", my mind fills in "at band camp") I made the mistake of going for a walk on the beach without shoes. This was about 6 months after finishing chemo. Came to a part where there were these rocks, holy excrutiating pain Batman! Freakin' neuropathy. But serousily, it really has gotten better. I haven't gotten up in the middle of the night to immerse my feet in the tub with cold water in AGES!!!!!!
0 -
Good morning surviors.
Sharl: A big that SUCKS to you! I am thankful for menopause.
Things are starting out somewhat better this morning. I forgot to take sometime out of the microwave last night, so I had to deal with that this mroning. I don't know what happens to my memory. Can't seem to keep focus from one minute to the next. I have crust on one of my drain holes. Hopefully its not getting infected. I go tomorrow to get my frist expansion and hopefully remove my drains.
It has been exactly one month since I underwent my marathon surgery. It feel like years. Maybe this weekend I can get some real rest. My supporter is going to his 40th college reunion, so I have to find someone to check on me while he is gone. I may just get in my car and go home for a while just to be around my own things. It is really amazing how much I miss my worldly possessions. This is a nice, better and newer than mine, but it is not my own and that matters.
After the shrimp incident yesterday, I apologized for not know he hadn't eaten and fixed dinner. I don't think he really liked what I cooked, but he ate it and didn't say much. I try to keep things light with him, because he is a moody individual. Lord, what we must endure to make it thru this journey. When this is over, I know I will be able to handle anything that life throws my way.
have a good day to all and do the best you can to keep you head held high.
0 -
Pinky, you are a trooper, for sure. I'm sure he has no clue how wonderful you are. You really are!
I went to my boss this morning after posting (and leaking through my shirt) and told him I needed to run to the doc to get something checked out. He was very understanding. I called the tech on the way there and TOLD her I was coming. She completely understood (feels bad about how long I've had to wait, etc.) and said she'd be expecting me. I got there, and she, with bare hands no less (rare these days), saw my fluid filled pads, smelled them, told me it was normal leakage (to which I said I had no idea what normal would be...), changed them out, did a CT, showed it to me to show that the balloon is still in tact. No, still no approval from the clinical trial people, so she couldn't treat me... but maybe this afternoon... and they keep checking... and blah blah.... So, unless I get a call soon, looks like no rads on my non birthday.
Thanks so much for the singing and do-over allowance, guys!!!!!!!!!!!! You all are the bestest!
0 -
WhaSux??
Oh Rock--you made me spit soda on my screen-NOT the first time, I might add-I now know NEVER to read a post from you with ANYTHING in my mouth!!! LOL
Neuropathy sux! I have it in both feet & certain shoes can really aggrevate it. I have been taking 300mg B6 daily for over a year & it seems to help, tho onc told me the last big onc-onvention had a report that it does NOT--funny how I get my OWN se's on some tx's & tx that is not supposed to work does for me!! Why oh why did my body choose THIS forum in which to demonstrate how unique it is?? Could I not have been talented or beautiful or or or.......?? (Now I sound like Tevia in Fiddler on the Roof!!)
I have been bald twice-last time was for 16 months----winters in Wis are cold!! IT SUX!! But I bought the SOFTEST flannel I could find & made a sleep hat out of it-----it really helped keep the dome warm, but dh & I LOL everytime I turned my head on the pillow. With flannel sheets I got the Tootsie spin (like in the movie when the wig stayed where it was on the pillow as he turned over!)
Pinky--your last two posts sound stronger! You go girl--you are emerging from the depths & you CAN handle whatever is thrown at you--just don't have to like it & that's when you can turn to this thread! HUGS
LuAnn---no pain: good/being awake to experience it: priceless! hugs--hang tight---you will find a balance!
Cris---how about a retaliation voice mail-----over the PA system----THAT SUX!
Pam & nancy---I keep a candle burning-----big hugs to you!
Shari---we do NOT allow birthdays to be removed! Getting older is the goal, girl! (but I remember loosing my hair on one bd-so I know how ya feel) I will join Rock in celebrating with you!
There once was a beauty named Shari
Who wanted to off the good fairy
But the Birthday Sprite knew
What she needed to do
She sang birthday songs like a canary!
It still didn't fix messy leakage
So she opted to calm Shari's freakage
She got out her best wand
Cuz of Shari she's fond
And sent her a man with a "package"!
Happy Birthday! GIve it time, hon---it sux, but it WILL get better-next year this will be a faint memory! Do something really nice for yourself for you bd--that is Dr Sain't mandatory Rx! HUGS
Be well & stay strong
0 -
sharli: You go girl. But don't worry about the insurance. i went thru surgery not knowing if they were going to pay my ps. They were complaining that he wasn't a participating physician. In the end, my general surgeon's referral was enough for them to pay him. they haven't paid him what he charged, but they paid him at the rate they pay in-net work and he settled for that. The only ps that was in-net work is being sued by at least two people I know of. So I had to take a stand.
My niece came by and picked me up this afternoon and brought me my juice.
I can't wait to open it and pour a big glass. I went out with her for awhile and feel better for getting out of the house. I hope that tomorrow when I go to the ps, he will remove these drains and give me the clearance to drive my car. I do feel better today. I have found that I have to take it as it comes. I never know how I am going to feel from one moment to the next.
While I was out, I stopped at the grocery store. The cashier ask if I wanted to donate to breast cancer, I informed him that I did, both of my breast. He was left speachless as I took my bag and left. I know that was mean, but I just didn't feel like hearing about breast cancer at that moment.
0
