Im bitchy, I moan, I groan.....anyway.
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I'm so way behind! Popping in and a big that sux for everyone who needs to hear it today.
Nicki
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My son has head lice! Again! What the hell? Apparently, it is some sort of epidemic. The first time I dealt with this was just this past spring. I never got it, but I was SO freaked out about it that I did the Nix treatment to myself, despite the fact that I was having radiation to my ear at the time, so things on my ear and the side of my head were a little sensitive to say the least.
I know it's not a big deal in the grand scheme of things, but I have just been so tired, and to be honest, a little depressed lately, and I'm just sick of things being crappy.
A big that sucks to you all...
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Traci,
Can you let me know how to get to Amber's blog. I just had Gamma Knife Surgery 3 weeks ago. I would like to read/see her experience. My skull still hurts in one spot where they screwed the helmut in. There is a indentation. Wondering if it will heal!
Thanks!
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AHHHHH CMB--that so sux! Yes, it can bounce around the school for a while. All it takes is ONE student not getting the "cure" I know, I worked in daycare for a while.This is the time of year when we start to see it again!
My dd had it in kindergarten & she has the thickest hair on the planet (also very beautiful hair) I seriuosly considered cutting it all off! It took me HOURS every nite for a week to comb thru her hair with that damned little nit-picker! (hahah --always wanted to use "nit-picker" in a sentence & not refer to somebody pickie!)---heck--when that week was over & all the pillows & stuffed animals came back into the house it was gone!!
HUGS-----even at the best of times head lice SUX the BIG WHAZOOOOOOOOO!
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Pinky, sorry to hear about the alcohol problem with your friend. That can be so rough, one of those things people don't even realize is a problem til they lose it all. I lost a very close friend over her drinking. She became such a nasty drunk I just couldn't do it anymore...
Saint, please don't spit on me when I'm having a bad day I might spit back!!! LOL LOL
Cmb, headlice are the worst. My daughter has more hair than any person I have ever met in this world. She would have them almost once a month in elementary school. I forever was doing all four of my kids heads with NIX along with me and my husband, cleaning the bedding....the works!!! Oh I feel your pain L
Let's see....where do I start???? I got up early to tx today. Was a little nervous going back on zometa, since I've been off it awhile I was a bit worried I'd get those flu like s/e again. Well I get home 2 hours later than planned and the neighbors had their dog running lose and my friend driving me almost hit it. When I hollered over to the young man (daughters loser boyfriend, unemployed, talks like a thug) to get the dog we almost hit it and he got smart with me. It was a very nasty confrontation and I had to have my piece that the least he could do would be to respect anyone older than him!
Then I realize it is the 27th and my private disability check is due around the 17th of the month and thought I better call and check on it. The customer service said my benefits were suspended due to lack of documentation from my onc and they put me through to my rep. This woman screwed up my claim when it started last year, very long story but had to report her through the state insurance commission. Anyway, they put me in her voicemail and I left a strong message to call ASAP before I call the insurance commission again. In the meantime I call again a leave a message for her boss because I know that motivates her. Then I call my onc office to find out what medical info that didn't give to them.
The rep for my account called and kept giving me the standard line of how they pay the benefits, I kept asking why I didn't get my check and she said if you let me finish I'll explain it. She kept restarting at how they pay the benefits. Well I got angry and said are you going to tell me why I don't have my money? Is it because I didn't die fast enough for you? She was so offended she said by my stmt like I cussed her out. WTF, I'm the one out the money and she has no reason and finally she admitted she forgot to submit my check for release this month. Oh did I get hot then, as I'm starting to lose it her boss returns the call on my cell phone. So as she hears me losing it on her boss I just hung up my phone call with her. I am getting my check FedExed overnight tomorrow needless to say but this is ridiculous. I asked why my acct is under scrutinty on a monthly basis when I arm diagnosed with a terminal illness? They had no answer, so I rephrased it this way, if I am dx with an illness that there is no cure for and we know it will kill me why do they have to continually reviewing my account monthly? Still no satisfactory answer but was reassured that my claim is approved until next September and she has made a task to personally oversee that my medical documentation is requested in a very timly manner to not mess up my benefits. Can you say pi$$ed off!!!!! That doesn't even come close. Then I have kids come home from school with problems and dil needing the kids watched due to an emergency. Just what I needed. I sure hope tomorrow turns into a much better day!!!!
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Holy crap, ladies....there sure is a lot of suckiness to go around! Here's a ginormous, "THAT SUCKS!" for all who need it.
I've been away for a while because this stinking chemo is getting the better of me. I don't feel all that horrible, but I am so freakin' exhausted that it seems like too much of an effort to type! I have been reading every few days, but the "oomph" to reply just isn't there. (btw, Luann, I AM real! LOL You managed to call while I was in the potty dealing with one of the lovely side effects of this damned tx. ICK)
I've had my share of big and little IOS, but don't even have the energy to go into it now. Today's IOS is that it's my 19th wedding anniversary and my DH did something stupid. And, not only was it stupid and irritating....he thinks he did something wonderful and deserves a big ol' pat on the back for it! UGH!!!! But, the SOI: ds #3 went on an outing with his church group tonight. They stopped at Chik-fil-a on the way back. Ds knows how much I love cheesecake and of course knew that it's our anniversary. What a sweetie he is: he spent his "extra" money to buy me a slice of cheesecake! He even put a candle in it (LOL!) and sung a "happy anniversary" song for me. Gosh, that kid has a tender heart...
So, ladies...will ya quit racking up the IOS please? It's time for a break from all the crap for all of us.
((((HUGS)))
Diane0 -
Daine, am I supposed to buy that line you were in the potty????
Well I didn't PM like I said I would....oops!! I'll get to you I promise!As for your son, now isn't he the sweetest young man!!! You did good diane!
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Oh LuAnn.
I feel so sad for you.
I remember when my sister was in her terminal stage and we were fighting with Veterans Affairs to get her disability. She was still on active duty and not able to work. Finally when I rolled her in the benefits office in her wheelchair weighing about 50 pounds they decided to backpay her to the date of her diagnosis. Its a damn shame that we have to put up with these assholes along with dealing with being sick.
Today i will drive 30 miles to take paperwork including my doctors records, birthcertificate and things to the SSI office. I don't have short term disabiltiy or any leave so to get any assistance, I must go thru social securtiy. I know that I will probably be back tro work before they even process the papers but I am going to try.
I also go a FedEx package from my great government job asking for additional proof that I have a FMLA certified condition. Hello, I have cancer...I think that qualifies.
I keep lookingin the mirror and hoping that when my ps finished I look better than I do now.
These expanders are lumpy and uneven and my nipples don't even appear to be in the correct place.
With all of this, the last thing we need is companies messing with out income.
Have a good day ladies and a big... LIFE SUCKS
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Holy mountain of suckage everyone!
We all need some "Costanza" effect in our lives (you know, do the opposite of what you would normally do, to have good luck...)
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Marking my place with a gigantic THAT SUCKS !!!
Had a letter asking for details for first chemo treatment back in June --- and they have already paid for 10 I had since ... go figure... Like, I had nothing better to do that day but to go over and get poison dripped into my veins. Grrrr.
Diane - I am sadly lacking in the "oomph" and energy department also. I did get one more bookcase cleared off - now I need a cart OR a strong, handsome man --- to get the trash to the dumpster. But I am not picky, ugly would also do !!! What a sweet son you have - give him an extra hug.
Pinky, good luck with the paperwork. Hope you have an appointment or you may be sitting there until tomorrow. LuAnn, glad you finally got into the "system" of getting your check on time. Healing hugs, egal. cmb - lice GO AWAY and dont come back. Traci - tell others you are doing your own thing and bug off. Not sure I remember anyone else. THAT SUCKS as needed. Sorry If I missed anyone.
One mini SOI - it has stopped raining, so I will venture out to see what food appeals to me at the grocery store. Maybe I will opt for a McD quarter pounder with fries to avoid cooking for just me again. I used to be creative with meals, but living and eating alone sucks.
HUGS, Nancy
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You are so right pinky and Louanne my boss made it possible for me to be paid this week, benefits is review ing it waiting on disabilty from the onc. gave them the papers last thursday. still at oncs office she has 8 other ones to do. If they are not done by 11/10 i can be terminated by company after 12 years and all benefits denied One would think that a terminal illness would tend to speed up things.
pinky my sister treats me like your sig. other., when ppl are around she is so sweet and nice, y ou can go ino a sugar coma. but as soon as thye leave- Mr hyde comes out.
now for a (finally) a nice big SOI--- I walked to the bathroom w/ the aid of a cane and walker. Sis was in a good mood and helped me do my hair and get a bath been nearly a week since the bath. I have been doing whore baths, but by hair was driving me crazy. It feels so good to be clean and non stinky- even my cat wrinkled his nose at me and he licks his butt what a comment.
It was cold and 20 degrees this am. and will graduallly get into the 7 0s for Halloween, may the rest of the week be as good as the weather.
Love Hugs to all
Helen
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WOOHOOO Helen! It must be such a relief to be able to get around a little bit. I had to laugh at your cat licking his butt comment!
((((HUGS)))
Diane0 -
hi guys. to say the past weeks, no months, hell whole year (not to mention the 2 before that) have been tough. at any rate i haven't had an easy time of xeloda and tykerb...i've surely bitched about this before. well my 5FU toxicity came back low risk. so we were going to stay on xeloda 2 per day and very slowly try to increase to see if i could build up tolerance to it. this was to be off week and i was very anxious to see what se's i had with just tykerb since i've blamed everything on xeloda. not to be. have been having for weeks what feels like bad gas with lots of burping, stomach ache, either constipation or diarhhea and just generally really crappy digestive system. then of course since my mets are in nodes in abdominal area, you know where my mind was going. well nothing was helping, gasx, pepto you name it i took it. also concluded i was just putting too many things in my belly and it was rebelling so i started cutting out everything except most essential drugs. even some vitamins i was told to take for being deficient. so sunday night it was worse and went to er. they did chest ct to rule of pulmonary embolism which was negative. all cardiac tests were ok but they wanted me to stay overnight so they could check again in morning. oh forgot, sodium and potassium were very low. i finally decided to - which is a big fam. problem since hub can't stay alone. oldest son has to come down to stay, take off work. it's not good. after the most miserable night i finally came home yesterday afternoon but am to have a dobit. stress test tomorrow so now i'm convinced that i have cad. still have some of that discomfort but generally feel better (off xeloda and tykerb?) i know there are other things to try in place of xeloda but tykerb? what else is there for her2+++? so the stress - and increasing fear go on. i wish that if it's the heart i was having more definitive symtoms instead of those that could be something else. the joke of it is that working so many years with cardiac patients and asking them to descibe what they were feeling in their chests, now i can't seem to. heaviness, pressure, gas, who the hell knows. anothing that is upsetting me is fam situation. i'm getting close to putting hub in a dementia place near my son because it's getting to be too much for me. but the cost is so high i would have to move and besides i would want to be closer to dear son. it's so expensive by where he lives. now after what happened he wants me to go to assisted living near him. i don't think i'm ready for that. the cost would be probably 12,000 monthly for the 2 things. besides many only have microwaves and fridges. i can't cook anymore? can't bake? that what italian mommas do.
when i feel better i'm very independent, take charge, get things done, determined person. i'm 64 which seems y oung for that living situation. i think if i had to do that now i'd want to just stop treatment and let things be as they will be sooner or later. i don't want to be such a burden on my son so i'm not in a good place right now. so once again i've written a book but must stop now...i'm getting myself more upset. thanks for listening. maria
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Traci & everybody, TOTALLY WITH YA! This site has saved my freakin' sanity, what there is left of it!
Kathi
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I have really turned into a week-end friend! Sending a big sux to everyone that needs to hear it.
Colleen: The bizarro world.
My IOS today is that I just read a post from John, DebC's husband. She is not doing well. She has swelling of the frontal lobe of her brain and those darn doctors are just saying "lets wait and see." This sucks the big one.
Nicki
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WhaSux???
Hugs & a huge THAT SUX! for all who need it. Whoever said it (I think Diane) it is time ppl here got an IOS break!!! Damn--too much @#$%%^^&@# going down! I think we have filled the quota for a good long time.....wish there really was one--cuz that would be SO true!
My IOS seems small, comparatively---bad day at the humane society---I'm so royally PO'd & stunned at the enormity of people's stupidity & ignorance!!!! It is NEVER the animal's fault----NEVER, but some butt-faced moron!! Just can't go into any of it--but TOOO much bad went down there today------I'm OK. I have a week b4 I go back (thank GOd!) But--it SUX!!!!
Hugs--you all be well & stay stong
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NICKI? You out there? I didn't see a post from John (Debs DH). can you direct us to it, or let us know what's up? Prayers for her tonight!
BIG THAT SUX the rest of you that need it tonight!
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Toe nails lifting was bad enough and the onco said it was ok to snip them off to prevent any problems - only half of them are gone. Crocs are the only shoe that is comfy. Today the finger nails are starting to lift and they are sensitive -- UGH... Tomorrow is the last of Taxol, so hoping this goes away soon. The fuzz on my head is more visible so WTF ?? hair comes back but nails go awol ???? Normal is only a setting on the clothes dryer ...
If one more person (without BC) tells me I look good, I am gonna smack them. Does that mean I looked "bad" before ??? Not much of a morale booster to hear it -- right ?? Creaking along as I walk, bald, and I look "good".... give me a break !!! Then ask me how I feel -- like a frigging beauty queen - ??????
Then again, I am pretty lucky in the grand scheme of it all. Live alone, so I can moan and whine and stomp (when I have the energy). Sit around in the recliner in my ratty robe, eat what I want when I want if I have the energy to cook or do a drive thru or take out, retired and do not have to get out there in the real world and if I rant and rave, no one answers me back and tells me I am being a B*#ch !!!!
Thanks for letting me go on - may you all have a day/night with minimal IOS or NO IOS. and THAT SUCKS for any kind of IOS. Hugs, Nancy
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{{{{Nancy}}}} I'm so sorry for the awol nails, but happy you've got fuzz. I think that's the first sign I remember thinking.....maybe there is an end to this dark tunnel I'd found myself in! Hope you get feeling that way soon too!
And I remember (when my hair had grown about 3/4 -1 inch). I was sitting at the bar (where dd works) waiting for dd to get a break, and the a lady she works for, comes up (actually 2 women did this, that day at different times) to say how they LOVED my hair and I how looked so much better in short hair and on and on, how I should keep it that way. Last fall (pre-bc) it was down to my waist nearly. My response was, 'Gee, I must have looked really bad last fall, hey?" Oh, no they stammer, I just....ladida....I wanted to give them both that 'b*tch slap' someone posts on here!
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Nancy - I used to say, "gee, I must have really looked like crap with hair, eyebrows and eyelashes!" I had the nail thing happen, and I just hated it. I kept "cutting" them as they lifted off, so they wouldn't snag on something and come off entirely. I lost 1/2 to 3/4 of most of them, but they did eventually grow back. One on each hand has never been the same, just didn't seem to connect all the way back to the top, but not something anyone else would notice. Sucks!
A big that sucks to everyone.
It's my birthday today, and strange as it sounds, the fact that I don't have my rat bastard ex-fiance here to make me feel like crap on my birthday because for whatever reason he had this really weird thing about not being prepared for my birthday by ALREADY having a card for me and knowing it was my birthday as soon as we woke up which for some silly reason was a big deal to me here to do that to me is making this a really good birthday. OK, I know that sentence was completely ridiculous. I applaud those of you that actually managed to read it! The bottom line is, I'm having a pretty good birthday. My son made me a card, and a friend took me out to my favorite diner for breakfast. So that doesn't suck!
Also, it is exactly 3 years ago today (Wed, not the date) that I had my last chemo. So that doesn't suck either.
Trying to counter act all the suckiness!
Oh, Wish, yes, right along the same lines as what I used to say!
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My bitch today is I slept in pretzel crumbs last night. My husband really needs to stop eating in bed after he's taken a sleeping pill. One night I woke up and found him sleeping with a bowl of cereal balanced on his chest.
That's a really tiny, trivial bitch, but thought in the face of all the TRUE suckiness that is happening, it might provide you all with a smile. I'm so very sorry and sad to read about Deb in this thread and will go look for her husband's post.
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GSG - That would make me CRAZY!!!!!!
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Oh my....yes, b/c WHO would be changing the sheets when said bowl dampened/soaked them? UGH!!!!!!! Food in bed, is my bite of life! NEVER! I had a dsd that used to eat in the bathroom while she was sitting! I didn't know it, till I found spoons in the cupboard from pudding she'd snatch on her way in! I WAS SO DISGUSTED! UGH! Who allows a child to EAT in the bathroom? Ick!
Good thing you can't really hear this, but ahem.....
HAPPY BIRTHDAY to YOU!
HAPPY BIRTHDAY to YOU!
HAPPY BIRTHDAY to YOUuuuuuuuuuuuuuuu!
HAPPY BIRTHDAY TO YOU!
Hope this becomes becomes a great day for you and you have NO SUCKINESS in it AT ALL!
All the best for 50 more!
Or 70 if you are really young!
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Happy birthday, CMB! And, yes, it does make me crazy.
I'm guilty of eating in bed sometimes while I watch TV, but not stuff with crumbs and have NEVER fallen asleep while eating. I have a bed tray that I use...actually, we both do...and sometimes we watch TV in there while we eat dinner. I don't know why we don't just go to the family room for this, but whatever. His falling asleep mid-munch at midnight has to stop.
Wish: My son used to eat in the bathroom, too. Usually cereal. GROSSSSSS! I'd harp about it, but I'm sure it continued behind my back. Thank God for sterilizing dishwashers.
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happy birthday cmb!!!!
On a good note I got my disability check by fed ex around 8 am today
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WHOOHOOOO! LuANN! Great news!
Gsg....I hear you about sanitizing, but my worst fears, was her (she was young, like 8) grabbing the side of the seat or something and then taking a bite of a sandwich or what ever she had. Plus, the door knob, the toilet lever, the sink faucet...so many germs, waiting to infest her! UGH! Funny thing though? This is the kid who RARELY got sick! Never could figure that out. Her mom never fed her right, never made her brush teeth, or bathed her, anything. I used to have to literally cut the rubberbands out of her hair b/c they'd been in so long at her mom's over summer vacation. Strange lady!
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OMG (as the kids would say) that is so completely disgusting I can't even stand it and yet it is cracking me up!
Was it CHOCOLATE PUDDING?!?!?!!?
OMG, apparently I'm 7, but I am laughing hysterically at that!!!
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PS. Yes, a big woohoo LuAnn, I am so freakin' sick of cancer, insurance and all the associated cr@p I can't even stand it.
OMG, I seriously can't stand it, where did she put the sandwich down? Too horrifying!
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I must be 7 too because chocolate pudding was my first thought! EWWWWWWWWWWWW That is so gross.
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