Im bitchy, I moan, I groan.....anyway.
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WhaSux??? I feel guilty---except the humane society fiasco Tues, no IOS has happened to me in too many days---should I be listening for a shoe to drop? WTF has bc done to me??? LOLOL now I feel guilty for having too many good days & I'm LOOKING for the bad????!!! Holy crapola!!
Sorry Jane-THAT SUX!! It is bad enough to have to face bc without other wrinkles making our beds more uncomfortable! Maybe your dentist had what he thought were good reasons for his actions, but I'd have a long conversations with him after I calmed down. If it happened to me I wonder how long it would actually take me to reach that "calm assertive place" & not take his head off just for fun.
Do we all need to find some way thru all the bs & red tape that goes with bc & OTHER tx?? In the last 4+ years I can't tell you how many non-cancer related docs have practically bolted from the room when they see my chart! They do not know how to treat me!!! I am too new to their experiences & I scare them. Some do not want to hurt me; some just don't want the bother of me!! I no longer expect them to know what to do for me, but trust my onc to tell me (or them) what needs to be.....IT SUX! I am blessed to be in this relationship with my caregivers--but MOST ppl aren't even close to what I have---(oh no-more guilt!?)
THAT SUX to anyone else who needs it! Be well & stay strong
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Ohmygosh....THAT SUCKS, y'all!
My IOS: Today, I had the distinct displeasure of meeting the biggest a-hole of an oncologist I could ever have imagined. To boot, I had chemo and was sent home with no anti-nausea meds (which they have sent me home with at every other tx so far) and a script to fill that I couldn't because today was payday and the direct deposit won't post to the checking account until tomorrow afternoon. SWEET. Frickin' s.o.b. responded to my plea for help with the fatigue (as in I-can't-get-my-fat-ass-out-of-bed-most-days fatigue) by telling me to join a health club and take a class. He heard my complaint about the dry, cracked, and bleeding corners of my mouth and the burning IN my mouth and throat and told me, "That's taxanes for ya!" Then, he says, "If you had a magic wand, what would you change?" Um..........K? So, he has me thinking he's going to frickin' DO something for me. NOPE. Guess the m-f was just curious. Oh, and he wouldn't order the pre-chemo steroid that my regular onc kept me on because of the frickin' PAIN and ANA-FRICKIN-PHYLACTIC SHOCK I went into a few weeks ago. BASTARD. This is going to be one helluva week. (geez, Diane...cuss much? sorry, ya'll!)
I honestly wondered if this guy was actually a doctor. I can't wait till my onc is back!
((((HUGS))) you guys. I love ya!
Diane
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(((((Hugs))))) to you Diane. Damn doctor. Cussing is not only expected, in cases like this it's required.
Saint - we all feel guilty for having good days, but I'm really happy for you that other than the humane society thing all is well.
Helen - sucks about the chair/scooter good about getting around a bit and going back to work.
Jane - my dentist, who is wonderful, says there are more bad dentists than there are good ones. Finding good ones is very, very hard. Can't believe that about the antibiotics. Someone needs a drilling w/o novocaine.
Minor IOS - a PIOS, if that. Had my period on 16th. The damn thing is back. Is it due to having anesthesia? Dunno, but I was not prepared.
MAJOR SOI - Met with the surgeon today, and the path from my surgery was good. Lots of LCIS in the tissue they took out and plenty of ALH, but nothing, nothing invasive. Big sigh of relief. I'll set up an appointment with the oncologist and start in on Tamoxifen. Hard to believe a person can be so thrilled with a pre-cancerous condition and the opportunity to have hot flashes for 5 years before menopause brings them on again, but I am. Now I can breathe for 6 months til the next mammo.
And I wish more than anything that BC was no more for any and everyone cause it SUX
Pam
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BIG THAT SUX! {{{{Diane}}}} so sorry
Has anyone heard more about Deb at all?
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Diane, I can't believe they didn't have any sample nausea meds to give you to help out til pay deposit goes in. Talk about having a heart! You can always so up and ask for fluids and aloxi so it will bill thru insurance. Not sure if they give you aloxi but it is a nice 3 day anti naseau that is given with your chemo.
I was going to call you today but I was too busy sleeping away another day. I am so frustrated that this pain med adjustment has me so sedated. They offered to move it back some but I don't want the pain again so I just have to learn how to stay awake..... can't win I don't think....
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Dentist's office called today to inquire as to why I stopped payment on my check. My husband informed them of the entirety of the circumstances. The poor biller said she wasn't touching that with a 10-foot pole and that the dentist would call me. He did call me and asked what happened. He insisted that there was no possible way the work he did could cause an infection - that it must have been a coincidence. I told him that both the oncologist and surgeon documented in my medical record that, in no uncertain terms, my infection and hospitalization were a direct result of his work. I asked him about why he didn't prescribe antibiotics as requested and he said that they weren't necessary because this was a non-invasive procedure. The last time I checked, even a dental cleaning is considered an invasive procedure - hence the requirement for heart patients to be given prophylactic antibiotics. Despite his assertions that he did nothing wrong, I again informed him that my oncologist and surgeon begged to differ. He asked for the phone number for my oncologist which I was glad to give him. I have an appt. with the onc tomorrow, so we'll see what he has to say.
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The guy is a compolete and utter idiot! NON-invasive! OMGOSH!!!!!!!!!!!!!!
I certainly hope you've found another dentist already? Hope the onco doesn't back-peddle with him now. You'll need their notes IF you decide to follow through with suing him. Even IF you don't, you might want to check with the insurance company, b/c if they get those records, they could decide not to pay and make him pay or something? Would be fit for his stupidity! Hopefully this scares him enough someone in his office won't get this lame excuse for dentistry to neglect them!
Good Luck tomorrow, let us know how it goes!
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>>> REMINDER to change clocks this weekend: http://aa.usno.navy.mil/faq/docs/daylight_time.php
Woo peee !!! another hour to deal with BC -- THAT SUCKS...
I am on the post chemo (last one yesterday) buzzzzz. Konked out after tx and up at 5 am... raring to go bite off some heads and throw things at incompetent idiots - especially dentists and oncologists, insensitive relatives and "friends", and any others who mess with me or my BC sisters. Hope I included all who need to be B**ch slapped... and a very loud THAT SUCKS !!!!
Bit of a dentist story: I moved 2 years ago and had to find new dentist. Loved my old one... Knew I needed to have crowns on deteriorating teeth, but it was not to the critical stage. So, before son's wedding in May, I had one done at dentist "highly recommended" by several friends. Key words were "less expensive than most", which should have been a red flag... She did the crown ok, gave me discount for paying in full when done. Then she declares that I need LOTS more work done ( which I knew, but not to critical stage ) and she is looking forward to working on my mouth..
Ok, after thinking long and hard - decided to go to other dentist, also recommended by others who have had lots of dental work done to save teeth instead of having pulled and false teeth. This one does xrays and shows me cracks in 3 teeth, which I sort of knew about. Says good idea to do all at once, because then all done and mouth is healthy... So, work begins and all goes good. She does NOT give discount - but at least mouth is healthy and I can get on with wedding plans, etc. Then I get BC dx... I kid at wedding that I am the quadruple crowned mom of the groom...
So, other day I notice one of the crowns is rough,I look and see that edge is chipped... dang it. I phone for appointment, stressing I am cancer patient and want MINIMAL fix, just file down rough spot. No No she says, gotta remove and replace without even seeing it. grrrrrrrr. I ask what if she just files down - will not do it... Onco visit yesterday, she looks at it, although not a dentist, and says should be able to file down, so I am on the search for a dentist who will do it. Or maybe I will go into the tool box and file it down myself... !!!
Jane, you might contact the AMA, not sure they include dentists, but see if can file formal complaint and if not, where can file. Your insurance company is on YOUR side and they have resources you usually cannot access.
Ladies ... have the best day you can. Stomp, swear, cuss, throw things, and then go have some chocolate or whatever comfort food you enjoy. Take it one step at a time and scream THAT SUCKS as needed. Hugs and Blessings, Nancy
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My gawd, this must be National Stupid, Sucky, Arrogant, D*ck-head Doctors & Dentists Week!
Jane, my dear, here's a link for ya: http://www.op.nysed.gov/opd.htm This will take you to the website for the NY State Office of Professions, which oversees & licenses dentists, among other folks, right to the page from which you can file a complaint about professional misconduct. You go, girl. That schmuck-with-earlaps doesn't stand a chance with your docs going to bat for you. He's a plain ol' flaming ignoramus & he shouldn't be practicing.
Diane, your story makes me wonder, for the umpteeth-gazillionth time why some people who are clearly misanthropes, which is a nice way of saying they're freakin' sociopaths, even go into a healthcare profession. Don't know what state you're in, but there is an American Society of Clinical Oncologists (http://www.asco.org/) with a patient resource page (http://www.cancer.net/portal/site/patient) that has a contact link at the bottom.
Also, I wouldn't hesitate to email this site & ask the docs on the board for some advice.
Also, I'm pretty tall, post-menopausal & really scary when I'm pissed off, so maybe I could deck someone for ya, either of you, any of youse girls!!
Kathi
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Kathi,
Another tall (well, 5'8", so tall for a girl) post-menopausal, and a Jersey girl to boot (we have a tendency to open up a can of whup-ass, although my whup-ass is the verbal kind :-)
Yes, it's like teachers who don't like kids, what's up with that?
Sorry for the suckiness, hoping the only sucking that goes on today is on a lollipop.
Eye roll at my self - trying to make a little Halloween joke there, I know, don't quit my day job...
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Duh, it would have been nice if I had finished my first sentence! Got distracted by my sidenote about being a Jersey Girl. Thank you chemo!
I was going to say, "...chick here that is happy to help any of youse guys too." Or as I would say, "all y'all" I have no idea where I got that one from, or the one that drives a friend of mine crazy, "who's all going?" LOL Sadly yes, English is my first language!
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Oh, and PS., I feel kind of weird about this, but I decided I do want to share it. I don't know how to put in a link, but if you go to the ACS website (www.cancer.org) and scroll down to the bottom of the page, the Story of Hope is about me and my son.
I know how a celebrity feels now, as there are a few misquotes, and one in particular that bothers me (about catching cancer early and being fairly confident that you'll be OK) because that isn't what I said. I don't think a regular person would notice it, but a bc survivor would. What I actually said was that before my bc, I only knew what I learned from the media, which was that if you catch it early and do your treatment, you can be fairly confident you'll be OK. Once dx, I learned that while that is the case much of the time, it's not the case all the time, and even those caught early can recur and spread. I can understand how they need to boil things down for the article, but it makes it sound like I'm saying everybody else's cancer is cured by their treatment, but mine is not. (At least is sounds that way to me.)
In any event, overall I think it's a nice article, and for me, the main point was the amazing support I received during my dx and tx from my family and friends, and the wonderful experineces my son and I have had from being associated with the Making Strides Walk. And I think those 2 points come across nicely.
OK, I will officially get back to work now!
Halloween Hugs to you all
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LuAnn
Some times the percocet &/or the oxycotin knocks me on my fannty and I sneak a vivarin. I have found that it needs to be brand name and not some sort of generic equivalent. It gives me just enough ofa boost to let me drive to work safely. I dont take them on a regular basis, but they are nice to have around.
Helen
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Awwww Colleen! What a beautiful story! (I don't think that misquote affects the message, hon) IT feels SO doggone good to be proud of our kids! Hugs A GOOD post that does NOT suck is a wonderful thing (& still allowed here-LOL)
As for the dentistry thing---maybe it is a good "heads up" for others who read here. A while back in the chat room Helen told me about her jaw. It alarmed me (being on similar tx's) so I talked to onc AND dentist B4 next visit. They talked to each other, shared some written info & agreed on what was considered "standard/OK" for me now & that any changes in my tx could mean another talk for them........thank God for Helen!!!!!!!!
Tho we would expect them to already KNOW, maybe dentists & other health care providers need to be made aware that how they treat their average patients does NOT apply to ppl in tx for cancer! Having mets for 4+ years I have learned not to expect any med types to automatically KNOW what I need. Yes, sometimes I sound like I am condescending or stupid when I ask something obvious, but I have learned the hard way. Of course, there are times I don't know what questions to ask!!! IT SUX!!! WE all need to learn to give up on blind trust of medical professionals!!!!!!!!!!!!!!!! It has not been part of our culture, but remember: their poop stinks, too!! (oh no, not back to poop??)
Be well & stay strong & howl at the moon tonite while the kiddies are trick or treating!! Hooowwwwoooooooooo!
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Wha Sux?? Answer: -chemobrain made me forgot to write:
Wish & Rock--gotta believe that just being here & posting support helps----sometimes more than we know........& you both make me LOL which is the BEST help I can think of-hugs
Diane--THAT SUX!!! How can we learn to get in the face of someone our culture has taught us to revere so we can get what we need --AND DESERVE!!!!! Thank God he is temporary in your tx!
Pam---that unexpected period thing really SUX--but YAHOO for the SOI!!!!!
LuAnn---Maybe talking on the phone will keep you awake for a few hours!---I'll call soon, hon------Love ya!
AKA--You continue to make me LOL even when you are telling of horrible things------you are a hoot & I pray you are free of A holes & se's SOON! Changing the clock adds another hour to LIFE!!!! **** I'm a 5' 6 1/2" (bone mets shrunk me almost 2"!) Menopausal NY girl - Between you, me, Kathi & Colleen we could start our own bitch slapping bc mafiosa!!!!!! Stephanie Plum fan, anyone?????
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Just got a clearance from the insurance company for an open ended stay in a skilled nursing facility. The hosp that was unsucessful in bumping me off was planning on sticking me in a nursing home. I wouldn't even discuss it with them, but they went a head anyway just like I was going to agree with them. Jane at least you could bite your dentist if given the opportunity again
I am supposed to go to this same hospital as an out patient to get my port replaced. If something happens, I am an immediate inpatient-- I don't think so!
I will see my regular PCP and will have him rx a different surgeon. The drs thata did my mastectomoy and first port were fantastic surgeons, but I am not going back ever as an inpatient to Centerpoint. Supposted to se the orpthopedic surgeons about my arm in 2 weeks- all they will do then will be compare healing from original setting of the fx to current healing rate. Orthos at St.Lukes ( pcp new hosp) can just very well do the same thing as the xrays are on computers now and all they have to do is forward them. I sound like a broken record, but I am not returning to CP for any reason what soever. They have had 2 shots at me and this time they almosst succeeded and I am still traumatized from it. Was beginning to wonder if I was ever going to be able to get out of bed. If that had happened= I would probably just give up. Used to think that I would "pull my on plug" but I am of the opinion now that I couldnt do it. Gonna take a while for me to quit beign scared.I know this is long, but you guys are the onlly ones that I can talkto that understands
Helen
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Saint, sounds like the start of an excellent posse!! Love Stephanie Plum, by the way. Love her grandmother!! (Love Ranger, too, I have to say....)
Words to remember: "Don't just get mad, get even!"
An awesome woman I know who happens to be a doctor (thank goodness they're not all brains-between-their-legs d*ck-heads) once told me that BITCH stands for "Babe In Total Charge of Herself." Maybe we could name our posse the BITCH Squad.
Kathi
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Kathi--I'm in--what will our super-hero costumes look like??????? LOL
How do we cahnge this to a "B" ?????
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Saint, I have a modest talent for animation, so I'll get to work on it!! Ka;thi
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Hey, bitch squad, I wanna play! 5'7", from the hills of Tennessee and MIGHTILY PISSED!!!
Who gets it first? The idiot dentist or the onc with no bedside manner, much less any real medical help....that all really, really, sucks.
No major IOS, just can't seem to get well---finished rads 10/13, burn got really bad 10/20, it's finally almost well and now I have bronchitis!
WAAAH!
Sue
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I like this thread...and kudos to all of you for keeping it going, lol.
Can I bitch too? I have a port...done with chemo/radiation, but cannot get a vein for bloods, so keeping the implanted port FOREVER if I can...new *rules* at oncologist's office: Bloods will be taken from the ARM (can't use the lymph-diseased arm, so we're limited to ONE ARM)...ONLY meds will be put into the port...well, DUHHHH, I KEPT my port DUE to bad veins...so I have to now ARGUE every time I go back (every 2 months, zero prognosis still right now)...for bloods taken OUT OF MY PORT...to get anything out of my ARM, is to try 3-4 times, then run under HOT water, use HOT packs, then give up...and use the port anyway....so I'm NOT going to the lab, I am fighting for the USE OF THE PORT. Just had CT's this week (cough//tumor was against chest wall, have to keep eye on lungs)...so will get results Monday...and I WILL HAVE MY BLOODS taken from MY PORT...!
THANK YOU for the rant...feeling like crap doesn't help, and nice to just have a place to rant...even if no one reads this, I'm writing it, and don't feel better...lol...HAPPY HOWL-O-WEEN to all....yeah, riiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiight....juli0 -
juli rant and bitch away...............someone is reading it. Hope you feel better.
Sue
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Helen and Juli (and all)
I read all of the posts and I thank you for sharing with me. As strange as it sounds, the people on these boards have become like a second family to me.
I saw the onc and bs today. I can restart chemo on the 7th of November. The surgeon said I will still need visiting nurses for another week (at least) which means I am confined to the house other than MD appointments. She said that it will take until at least December for this wound to heal. Can everybody say MALPRACTICE SUIT? I e-mailed an attorney yesterday and he called while I was out today. I called back and am waiting for him to call me again. Maybe he will say I don't have a case but that is not the consensus of people I have talked to. When I was at the doctor's office today, I stopped in at the medical records department of the hospital and signed a release to have all of the paperwork from my hospital stay copied for me. I have to go back next Friday, so I will pick it up then.
I AM STILL PISSED THAT THIS IDIOT HAS SET ME BACK SO MUCH WHICH WAS ENTIRELY AVOIDABLE AND UNNECCESSARY!
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Sue, I'm telling you, there ought to be a club for us women who caught respiratory infections while getting rads! Me, too, & Sharon, too, & a few others from the September Rads groups. Jeesh. I had to go on keflex. Felt like a truck ran over me having a sinus infection & getting zapped at the same time. It SUCKED!! Also, I broke out in these big, fat acne cysts while on rads, so I had these red headlights on my face, the last one right in the middle of my nose, just below my baby blues. And I'm 54. Made me feel like a kid again........NOT!! But I did recover & you will, too. And a great big Welcome to the BITCH Squad!
Juli, we might need to add your onc's office to the BITCH Squad hit list. Keep us posted.
Kathi
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juli--welcome----have at it----that is what this thread is for---not only will ppl read it, but we will also say THAT SUX! for you too!!!!!!! ASK onc WHY not use the port??? I gotta wonder about that too.
Hugs sue---when you put on one of our new BITCH POSSE costumes (yet to be designed) you will feel GREAT!!!!! It sux that you still have se's but they WILL end! The bitch-squad so deems!!!!!
Jane----Hugs that you have this to add to what is hard enough.....
A big, fat, slimy, spider-webbed, screaming, slobbery, smelly THAT SUX! for all who need it! BOO!
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julio- your port needs to be flushed once a month. Time your blood draws to a flush on other days. dont' take NO for and answer and dont' let them charge you a $100 to do a blood draw.
I think I pissed every one off that day. I have only one vein was scheduled to have scans- 2 sticks same area plus a blood draw. looking at 3 sticks same day and another blood draw 2 days later. the only vein I have is crappy. charged me 45.00 plus the blood test- insurance wrote it off. I have to get a new port before I can restart chemo any am going to get the one you can use for the contrast medium. If you stand your ground they will eventually give in blinking back some tears helps too
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SIC EM JANE !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
HELEN
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Hi All and a big that sux to everyone that needs to hear it. Finially it's the week-end, I feel so out of touch and lost. Will catch up with everyone in the morning.
Nickster
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Wow - what a fabulous write-up, Colleen! You had some great people on your side going through this. That article gave me goosebumps! PS - good for you being this far out from triple neg. - you've even got long hair!
Now listen to my crap: I went to the onc. and demonstrated to him that I cannot speak to save my life. It's affecting/afflicting me both professionally and personally. My San Diego BC.org buddies that I get together with each month noticed it, too. How could they not? I was stumbling over nearly every third word. This is not a case of chemo-brain like he's ever seen before. Well, the upshot of it was the orders for an 'URGENT' MRI of the brain. And of course, it's nearly 5pm on Friday and the Urgent Scheduler hasn't returned my call from this morning.
Phooey!
Btw - I am a 5'10" woman and I can wield a big shovel, bitch-slap, or whathaveyou. Oh, and I'm freshly post-menopausal! I wanna be on the team!
Lisa
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Lisa,
You're in!!! I think we can also call on all the shovel-wielders from the "can't get my act together" thread...at least I think that's where they're from. (You know who you are!!!) It started from an innocent comment Alaska Deb made concerning bears--you're not allowed to shoot them, so if one is eating your chickens, etc., you can use the Three-S rule---shoot, shovel, shut up!
BTW, she's not doing so well. Prayers for her and her hubby John and their two girls.
Sue
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