Im bitchy, I moan, I groan.....anyway.
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WhaSux??I hate knowing that all the bitchin babes I have come to love have so many IOS's--war & worry,bad IV's, sickness & se's, loss of loved family members, a$$hole husbands, fruitless job searches, too many hours at work,tizzies & stage IV cellulite,............IT SUX!!I have to put in a good word for the men, tho--not all are slackers! My dh ain't perfect, but close enough for me! He has done laundry since b4 we were married!!!! He's a keeper, but I'm not saying anymore cuz like Bonnie Rait says, "Women be wise, keep your mouth shut, don't advertise your man!" (I already told ya about his co-worker that was eyeing him....)I am working at getting over feeling guilty about having no real IOS's---had to stop & think what I'd say to someone else if they felt like that--taking your own advise can be hard! LOL My only IOS's are such small potatoes-like the puppy bite on my chin yesterday that almost needed stitches....or the fact that I can't figure out how to post here without it coming out in itallics.....LOLI am glad to hear the good news --yeah Miss S!!!!!!!!A huge THAT SUX to all who need it & looking for more SOI's--the balance definitely shifted & needs to swing back.......HUGS ALL--be well & stay strong0
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Dream, I wish I could come and help you. Darn it! Why don't you live closer???? Then I could bitch slap dh for you too LOL As for laundry...I've gotten to the point that I ask the kids to switch the laundry and lay it on my bed (bedroom is next to the laundry room) and I will fold it all. I do have to holler for them to come and switch the clothes but they do the rest for me. Maybe something like that might help. I just made my two boys understand I just can't bend and lift anymore!!!!
Flyrzfan you crack me up!!! I would rather live with a female friend but I am just not interested in sex so I guess I couldn't go gay either. What are you when you want to live with your best friend but in seperate rooms with no sex allowed! LOL AusAla and I were talking about that trying to figure out what we would be called?????
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Oh yeah, my IOS, people kept calling today when I was trying to nap, know anything about that saint??? LOL Actually I consider it an SOI that I have friends that stop and call me. Just figured I would harass a bit
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Popping in to say hello.
Nicki
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Chemo ~ LOVE IT...you need to teach me
LuAnn ~ A. roommates
B. Older lezzies who realize there are more important things to worry about, like a good nights sleep and quality of life
Can't check in anymore today, I guess that would be my IOS as well ~ I have a "retreat" at work today. God, I hope I don't have to hug anyone.
bah-humbug.
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Hey, bonnie: thanks for the offer to take the trash, -- It is not all that bad -- yet !!! And I had 2 canes in my garage for what reason I can't remember - prob when I moved and they got shoved in with all the other junk. But I cleaned things out and took to the Salvation Army a couple of weeks ago. Was that "our" Barb -- she is such a sweetie. BTW, by the way, I have been rescheduled to start the every 3 week herceptin beginning Dec 18 - don't need to do it before surgery -- any chance that is your day? And how long did the tx take? We can discuss it more tomorrow.
Dream, I always had my own (small) bank account - kept it in my maiden name even, after we were married. The only problem was having to report the (small) amount of interest earned to the IRS. I also had my own credit card, in MY name only and paid it with MY account monies. After my husband died, it turned out to be a good thing because I had years of my own credit report to use when I needed it. Don't let him bully you into a guilt trip.
Ack to IV needles, son's fighting a war, steroids, lay offs, ouchie ankles, and whatever else is going on. I cannot possibly remember everyone and all the suckiness going on. THAT SUCKS.
TGIF, Nancy
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Hey all and here's a big THAT SUX for those who need it!
I have an SOI today, my ct scan (6 month) came back clear (except for gallstones wth?). My initial bloodwork that was run at the onc's office came back within parameters! It has definately made my weekend. Don't have to see the onc for 6 more months. Hope that the guy upstairs hears everyone's IOS's and gives them comfort.
Gentle Hugs,
Trish
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I went through my winter hats, mitts and scarves, kept 2 scarves, no hats and 3 pairs of gloves. The rest I took to my writing class at Gilda's and they all found new homes. Even the bunny mits found a new home. Everyone hates to wear fur these days, so they were hard to place.
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Hey all WhaSux??Dream--I was thinking about your dilema--I remembered a few years back when I got fed up with my whole family & nothing worked to get them to help----so I went on strike! It was hard for me to live in the mess, but I just kept a space cleared for my own peace of mind--I quit doing EVERYTHING for them--said if it didn't involve blood or fire not to call for my help!!!! I remember the kids looking over my shoulder as I cooked myself dinner one nite asking if I was gonna eat all that......could they have what I didn't eat--------it DID work--after I did it a second time a few months later...lolol--was hard to let myself do it & get over the guilt-but I did & it was worth it--so YOU GO GIRL ....hide that monry too!!!!!!!! (did you get my message on your voice mail?)LuAnn---Sorry--I guess some people just sleep all day & post all nite--I can give as good as I get!! LOL & HUGSDH is here to show me how to do more cool stuff with this laptop---so hopefully more later!You all be well & stay strong0
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The message that said you were busy busy busy? Yeah I got it. I have been calling to let you know that I am home and you can call. But we seem to be not crossing paths. Story of my life.
I have gone on strike. I have not told them but I have. If I get an urge to clean I can always clean my room which is craft central.
So far there is nothing in the account except the $10 I put in to open it. But I am sure that it will grow over Christmas. One of my good friends said that it makes it easier
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Hey, all & a massive THAT SUX to everyone.
I've been reading but not posting lately because I'm STILL really tired. In fact, I started to slide down the ol' sucky slope of psychic paralysis this week. Then finally, a light bulb lit up (one of the few still burning in the busted marquee that is my brain at present) and I realized part of why I feel like this is because I had to change anti-depressants because I started tamoxifen a few weeks ago. So, the SOI is that I've had tame to no SE's, but the IOS is that I've had to taper up slowly on the new antidepressant. So, depression has started to creep up on me & try to get the upper hand, just when I thought I might be taking enough of the new stuff. Anyway, I started to up the dose today when I discovered I was only on the minimum therapeutic dose as it was. So I'm hoping I'll be able to crawl outta the ditch soon.
And you know what else SUX? If you met me, you'd think I was generally a cheerful person & you'd be right, except that I inherited my family's propensity for chronic depression. What a sucky disease. Oh, and not like I've had anything EXTRA to be depressed about lately -- you know, like having CANCER, or something!!!
Oh, bite me. That's all I have to say about it all.
Hugs to all of you ladies. You help this crazy b#tch stay sane. Kathi
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Hey, Kathi: ((((((HUGS))))))
otter
(Hi to everybody else, too, and.... THAT SUX!)
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P.S. I'm sending everyone a big fuzzy-wuzzy from one of my cats, Chloe, who is very therapeutic in any situation. Feel free to stroke as needed.
"PRRRRRRRRRRR....."
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Thanks, otter.
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Kathi --
I'm sending you lots of hugs -- I've only just "met" you, and it's obvious many others here really care about you. This depression thing is something we need to acknowledge (thank you for your response to my call for help), and then plow ahead working on.
My dh was initially less than supportive when I first told him I was messed up. I came here, went to a really good fam prac dr, and was supported. I went back to him with a really big talk, (aka "Come to J meeting) and the next morning, he addressed the really big thing that was upsetting me. He didn't really say much, but he had obviously listened, and took care of it. I thanked him very sincerely, and he did get it.
I think the ability to really YELL here is just so helpful. Everyone else who has not experienced what we've gone through, has all kinds of homey things to say, but here, we find real understanding and support. Yay, Team.
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YAY Miss S!!!
I am so thrilled your scan came back clear!
Whooo-hooo! We needed some of that kind of news around here.
Lisa <---who is a little late coming to the FABULOUS news because she's been in LA
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I'm back. LAWD, I hate LA traffic!
I spoke at length with the radiation oncologists. Of course, there is a (1) new study that compares Whole Brain Radiation followed by Gamma Knife (or stereotactic) and that has thrown a bit of drama into the mix. I am still leaning toward the Knife and claiming the opportunity to do more if later lesions should appear. The WBR has risks of physical, intellectual, motor deficits because you are frying the whole brain. Not to mention another round of hair loss. Also radiation burns. However, it does give a broad spectrum of tumor 'kill' and I think my kid wanted me to to choose that just because she doesn't want to go here again. Well, this is a defininite risk, no matter what the tx. There's a recurrence rate of 40-50%. But there's no saying I can't do more knife and/or WBR at a later date.
Currently I am scheduled for a more definitive MRI on Dec 2nd. This will later be coordinated along with a CT scan for precise mapping, and a wax mask will be made of my skull utilizing the measurements. No Sharpie markers here! I said that that I was going to tell the curious that I was going to LA for a paraffin treatment. Then I go back on the 3rd for the Gamma Knife itself.
I, uhm, will not feel like traveling. Fortunately they have an apartment nearby for out-of-area patients, with kitchenette available. It is one of those where you bring your sheets and pillows, dish detergent, paper towels, but it is FREE for both nights!
BTW - they were going to offer me the day before Thanksgiving but we were busy.
Going to San Francisco for family - and it was all planned before this happened!.Lisa <-- updates R us
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Good morning everyone. My addlepated brain is not processing all the names and types of suckiness, so here goes: THAT SUCKS. My fingers are soooo sore withe dead nails lifting and I can almost watch the progress from hour to hour. Dang it, chemo was done 2 weeks ago - delayed reaction? The head has more fuzzies, but not totally filled in yet. Most of it is white or gray. Chin hairs are abundant however !! And bone, muscle aches... I feel like the tin man in Wizard of Oz - creaking along.
My SOI (good thing) for today: late lunch with my chemo buddies. But one SOI, son and his new bride are busy both this weekend and next - think they are purposely avoiding me and my moaning and groaning and surgery worries. They do not ask much and I try to not dump on them. But we will all do Thanksgiving together at the bride's parents. I am so not ready for this to be the "holiday season"... Tomorrow I do the breast MRI. Then next week the surgeon and I fine tune the exact plan of attack for Dec 5.
Forgive me for not addressing each of you individually. Hugs and Blessings, Nancy
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Hi everyone ~ happy Saturday. It's cold and raining in the Northeast - but I don' have to go to work and I have a lunch date with my chemo buddies today so it's a good day!
saint ~ I love you soulution to dreams problem. I find passive aggressive to be very effective myself.
KAK ~ love your kitty, I would love to stroke her until my bp came down!
Lisa ~ so glad to hear you got to LA already. Very cool they have an apartment you can use so you don't have to travel when you're not up to it. I totally get your reasoning...I think I'd be inclined to do the same thing in your shoes.
I have no IOS besides the ankles still giving me trouble but compared to what our vets are dealing with, it ain't nothing but a thing.
Speaking of which....LuAnn...any word from your son? Can you share that link with us again - the one your son and his friends made? I forget where I saw it on the tread and I couldn't access it from work?
Have a good day alls
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ISn't that the truth!Hope everyone's having a satisfying saturday, but IF not...
A BIG THAT SUX to you
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Well, my good news got overshadowed by more car trouble. My car was in the shop last week and now this weekend it's my son's car. It also seems dd may have broken a toe. It just seem we can't catch a break. At least none of this crap is my health related (knock wood!)
Gentle hugs
Trish
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Adding my IOS to the batch! Dh just called and it seems his check was short 33% b/c his boss decided since his (the boss's) amount he was getting for a gas surcharge or whatever they use in the trucking industry is being cut, he's cutting the guy's pay he agreed to, per load!!!!! IS this EVEN LEGAL AFTER they've hauled the loads? While I have no idea, it surely shouldn't be! To top it off, they are working for a 1/3 less on each load now, only home ONE day a week and working 70/week driving. All with hazardous materials! This is just nutty! No holiday pay, no vacation pay, nothing except wages and insurance, which are going up the first of the year as well as copay increasing 25% and scripts increasing 33%. Might as well live in a box and eat it!
What a miserable winter this is going to be again! Oh man...LIFE can surely SUX after cancer too! HATE IT! FOR him on the road and everyone else in fear of losing jobs, or being cut back or just never knowing day to day! 0 -
WhaSux?
KAK---I am so glad you found this thread-both for you & US! I love you attitude--you rock!
AKA--hugs- I found my lump the Wed after Thanksgiving so I can empathize. I hope it is encouraging to know that the holiday happened in spite of my dx. Mostly is it a blur, but I don't think I ruined anyone's party (but my own)...hang tight hon--you will find your way & it will all be over b4 ya know it!
Lisa--lots of prayers & blessings for your decision making & tx. You are not alone in this-we all need to walk it together! HUGS
Wish--that just plain SUX! Even tho we know it is going to be hard on most of us for a while, knowing someone else has it tougher just doesn't take away our own pain/troubles-----big hug & prayers that things take an upward turn for you & dh!
Bee--welcome! I have found this thread to be the most "real" & helpful! I, too, am in love with all the cyber b*tch*n babes here!
Flyrz--passive aggressive--sounds JUST like my MIL!!!!! OH NOoooooooooo....LOL
Dream---I saw that you called a few times, but it always seems to be hours later & too late to call when I see it..I'll keep trying. The one good thing about my being busy-it means I feel HUMAN again so that is a major SOI for me (after the last year I need a break) I'm sorry & I'll catch ya sooner or later........YOU TOO LUANN!!!!!
Trish--car troubles just fry me! I hate how they end up doing 2 or 3 things b4 they hit on the right one!! It SUX
Where is Traci, Nicki & Pinky??
My only IOS is that I'm not sure I belong here while things in my life are going so well. My sisters pointed out recently that even at the worst of times I tend to see the glass half full (which often pisses them off.) I don't want to anyone to be offended or feel I take your suckiness lightly....it sux that feeling good sux! (Now there is a prime example of what screwy things mets does to a life!!! SHEESH!)
To everyone who needs it----big hugs & a whalloping THAT SUX!!!
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Hi everyone, welcome BEE
If I take you to sewing class would you be a sewing bee..... tee hee tee hee
couldnt resist
Husband has backed off the account thing. I told him no more laundry then negotiated that dear daughter will do it up to the folding..... putting it all on the folding table, then WE will fold and bring upstairs.... and he is paying her for this. Snort.
My friend Cindy took me out for dinner (and I took my chemo buddy Johanna) and we had a nice dinner. Then she gave Johanna and me tix to see.... The Sound of Music
My girls are jealous as hell.
I found out that when the doc says you will have a down day, it means dont get out of bed. Silly me I thought it meant get your shopping/retail therapy done by 4.
Overall no SOI to report.
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Oh Saint, of course you belong here. Lots of the ladies that post here are of the optimistic mindset. It's just nice to be allowed to complain without getting rebuked..... Also, half the complaining is done in jest! We may as well laugh, right? SO you just post away and if it's all happy stuff... then bravo!
Wish, having the check shorted after the fact should be against the law. If I remember correctly, your hubby was the one that got the shaft before, too... was it insuirnace cancellation? All that reeks! My insurance went up, but I was glad I didn't have to choose a new company (my company got split off from the mother).
Lisa, I know these decisions must be terribly difficult. I hope this works out well and that is cool you have a place to stay in LA. I will continue to pray for you... I'm glad you have a family Thanksgiving planned. Hope that goes well. I remember the sweet baskets you used to get sometimes while you were getting chemo. Were they from your sister?
Nancy, good luck with the breast MRI. I hated that!
Love to all,
MissS
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I went back to work on Wednesday and my ass is dragging today - and I have a desk job! All I did today was fold 1 load of laundry and sweep the floor and then I had to nap from 1 - 4. I never actually lay down and nap. Sometimes I'll close my eyes for a little bit in my chair, but today I got right in bed. I feel like I wasted a whole day.
I'm also perterbed because I wonder if this mast site will ever heal. It's been 10 weeks what with the setback from the infection. Back when life was normal, I didn't wear a bra to bed. It's bad enough that I have a port on one side and no boob on the other, but being wrapped up for 10 weeks, hasn't helped.
Minimal IOS - so I'm glad I have a place to vent.
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Oh Saint, I think a lot of us see the glass as half full, it's just that sometimes the glass is half full of crap!
Dream: Your observation ("I found out that when the doc says . . . ) cracked me up. As my students are fond of saying, "True dat."
Lisa: I've been anxious about having to learn to drive on the left side of the road (and shift gears with my left hand). But -- and I hope this doesn't sound impertinent because I am sincere -- I'm going to tell myself "Lisa drives in LA traffic with brain mets" and I will DEAL. You rock.
My IOS: I'm trying to pack up some stuff so the super can fix my ceiling and the apartment is in that stage where it looks a million times worse than when I started. But I did move the piano all by myself (like I had a choice). Sing it with me: "I am woman hear me roar..."
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WhaSux??
Dream--You do more than write exceptionally well! You always make me LOL My favorite roomie--I love you even if you do snore!! (I know, I do too) HUGS-
Rock & MissS--YOU rock! (what kind of super hero costume can we design that will symbolize: piano-moving-bitchin-babe??) Thanx for your responses--yep-sometimes what is IN that glass makes a world of difference! Tonite I realize that I am in the eye of the storm. Odds are this will not last, but I am SO blessed to be where I am right now. I have decided I should not apologize for it, but accept it & celebrate--so someone refer me to this page if I come back bald, sick & bitchin in the future & I will be reminded that I didn't waste this by feeling guilty!! HUGS!!
I was at a local concert tonite listening to some wonderful singing. 2 sisters who sound like angels were singing "Because I Knew You" from Wicked when this thread came to mind....because I "know you" bc sisters I HAVE been changed for good........
Be well & stay strong
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I mostly read these threads as I am still in the throws of treament, surgery,, rads... I really like this one.
I just happened to notice.. as is me.. that Rock just hit 1000 posts. Does she win a prize..:)
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