Im bitchy, I moan, I groan.....anyway.
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It really sucks that "is this the beginning of or progression of mets?" is the very first place our minds go when we have the smallest issue with health anywhere in our bodies.
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Howdy, all! And a hearty "That Sucks!" to all in need (especially you, FF; hoping you get some good news - as in "it's nothing!" from your onc soon). Praying for you, too, Lisa...
Life has been pretty crappy for the most part on this end. No major suckage, but itty bitty suckiness just the same. Add PMS to the pile of dung and, well, you get the picture...
But a few SOI to report: my son got glowing reports from his teachers at the Parent/Teacher conferences on Friday. Hard not to beam when they use words like "joy to have in class," "serious student" and "respectful and polite" lots and lots of times. OK, so maybe some of the lectures and info I flung his way over the past 15 years actually stuck afterall, huh?!?
I also picked up my DVD of "Wall E" today from Wally Mart - my very first Christmas present of the season!. Today is DVD Tuesday - the day DVD's are released and are discounted from the regular price, which saved me a whopping $5. Hey, every little bit helps...
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I agree Diane, I worry more about the long term health of that ankle and leg because I also have an osteochondral defect on my Tibia from the injury I sustained 4 years ago. And yes, (PatMom) it is a crying shame we even have to wonder about it. Much like an infection I would think a diseased or weakend bone would be the first place a reoccurrance would settle and I don't like having a weak spot to worry about. Developing cysts in that area is just unsettling at this point...and somehow just like my onc's lack of follow up plan - doing nothing about it just seems wrong somehow. But, if leave it be for a few weeks while I take some anti-inflamatories is what they say I should do, then I will go along with them for now...I did find a hospital up in New York that specializes in this though so if I have to take a road trip ~ at least I know where to go!0
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Hey LuAnn ~ I just saw 1. you heard from your son....YEAH!! so glad to read it
and 2. You were at the only game to end in a tie for the past 6 years!! Lucky You! I applaud you being out in the cold for that one! I can't believe no one scored in OT??? By the time we went into OT I was so disgusted with my boys, I started rooting for yours!
Felicia ~ thanks for the visual of adding PMS to the pile of dung. For whatever reason, my mind pictured it and ...ewww.
Nancy...where are you? How are you? I'm thinking you are going to have to move in with me for a bit so I can stop worrying about you!
Thats it, back to the grind!
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A huge that sux to all.
LuAnn - I don't know, sleeping through a treatment sounds kind of nice. Great news hearing from your son. Hope he stays safe.
Bonnie - hope they're just bone cysts
Wish - you can't win with that boss of your husband's, can you?
I wish we could go back a page, but then I'd lose everything. If I were as good as Traci, I'd be taking notes.
Kathi - first mammo was weird. I didn't know how much it bothered me til it was over and there was a big "whooooooosh and aaaahhhhhh". Rads didn't firm up my breast much and it didn't hurt as much as anticipated.
Felicia - good job on the kid! Do you ever hear 'joy to have in class' and wonder just whose kid they're talking about?
Not much going on here. Will be seeing my internist today to get a prescription for Effexor to replace the Zoloft I've been on forever. Once I get the level right, out comes the tamoxifen.
My IOS - the brother of a good family friend died last week of throat cancer. This is the third out of 5 brothers who has died of cancer. A 4th died in a dock accident. All we do is pray that Mike stays healthy. I do not like funerals for 48 year old people!
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I don't know Pam... someone mentioned moving to canada......one of many thoughts recently. Then again, I'm already tired of the cold and love gardening...not sure a 6 week season would do it for me LOL Love the pics dh has brought back with him from there though when fishing!
Maybe move up there and start a retreat for BC pts from BC.org!
BIG THAT SUX to those in need, hate that anyone else is awaiting scans, results and treatments and so forth. Pam, so sorry about your friends brother.....it hits way too often....
Felecia, give the kid a thumbs up from us too! Nothing better than a good report from a teacher!
Well, almost nothing, considering..0 -
This SUCKS!
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OK I went to try some clothes on and I saw this fat swollen body with black fuzz on the top of my head now I am swollen and fuzzy and right arm swelled, feet and hand tingling not eating anymore probably less than ever and cant loose a pound no matter what and taking water pills so I can pee every 20 minutes and yes lets not forget the finger nails that are ridges and white and black or please someone tell me I am normal.... Sorry I am venting but its been 13 weeks out of chemo and 1 week out of rad. and I want to be me so bad and now they are going to put me on a hormone therapy for 5 years after we find one that will not give me too many side effects ...hmmm if this was a man's disease they would of shot them self's by now I say this I have 3 sons and a ex husband and 2 brothers so I know they cant get a cold without being so full of self pity.. so here I am asking for answers do I drink more water or what is the secret ??? HELP
Maura
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Yes {{{Lisa}}} IT does! Prayers and thoughts as you travel that road dear!
So sorry you are.{{maura}} posted on your other thread and yes, THAT SUX!
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BTW - flyrz, I had broken my foot in two places, consecutively, immediately before my diagnosis. Never had a fracture before in my LIFE. My oncologist, when my sister reallypressed him on the cause or question of mets in this newly weakened, he said - I quote - "I PROMISE you this is not breast cancer!"
So, you're cool.
Quit stumbling around though, ya hear?
Lisa
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Thanks wish -
Not a good day today.
You know how everyone can pull up on their screen at the medical center the various appointments scheduled, the basic diagnosis, etc. Mine says CA - METASTATIC TO BRAIN Yes, big, bold capital letters, even when I go in for blood work.
I get the distinct sensation of "Dead Man Walking'.
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Oh {{{{Sweetie}}}}! No, it's not right they have that listed that way, but you know danged well, with so many prayers and good thoughts going through for you, you're going to beat this lady! You have to believe first and foremost that you will not let it win and will proved the stats wrong and outdated and that all the new treatments they have now, you will do well! Keep that faith and keep on believing....we're here, right here, keeping on with you! Hang in there....so wishiwere there to go with you and hold you up and offer a hand or shoulder when you need it or just want it. Know I would if I could friend!
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Thanks Lisa ~ I'll take your advice and stop stumbling. Used to be I only did it when I had a bit too much of the sauce, now it seems I trip over thin air!
I can understand how seeing that brain mets in big bold type would give you a WTF moment! I'm with wish...all of us lift you up. F'em if they can't take a joke, you're going to cram stage IV right back down their throats! I know, it still SUCKS - but we are here for you my friend!
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Oh Lisa, that so sucks. I remember the first time I saw breast cancer as part of my routine diagnosis, just like High Blood Pressure! When I read my path report for my nodes I saw metatstaic breast cancer in one and that freaked me out. So I can't imagine seeing that diagnosis and taking it lightly. On the other hand, being out there and evaluating people with brain mets all the time - these new treatments are pretty damn good. Sending you a hug, saying that sucks, and giving you a big juicy kiss.
Nicki
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Hi folks..the thing on the top of my diagnosis sheet on the computer
is obesity...on top of everything else and the fact that I have lost
thirty pounds and am no longer obese, I just hate it...
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Lisa, that SUX!!
I remember back in September, when I saw my surgeon about the lump I felt in my non existent breast! On the paperwork he wrote about my visit, it said BREAST MASS.... I said OH SHIT! Here I go again! I was just terrified!You WILL be ok... Just hang in there, and we are all praying for you, as Wish said...
HUGS
Harley
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SoCal: OMG, I know it's not funny, you made me laugh and then send a big that sucks your "weigh" This definitely deserves this
I lost the weight, get rid of the obese already.
Nicki
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She looks like what I would like to do...
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That girl drives me nutty, but don't you just wish you had her to take with you to talk to some of these idiots?
TOo funny everytime I see her!Has anyone heard anything about Deb (in alaska) lately? She's been on my mind and I'm sure so many others and its just really bothering me the last couple days
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New update from John! Whoohooo!
24 minutes ago AlaskaDeb wrote: on the methy thread: http://community.breastcancer.org/forum/6/topic/723503
All,
Thanks for all the Great Vibes!
Deb had Chemo yesterday and we spoke to Dr. Kelly. He would have liked to seen more progress (Duh wouldn't we all!) but says the fact that she is progressing is very good. He also did not feel this would be a permanent thing. Today, she seems to be feeling good for the day after chemo, so we went for our walk. She did great but I decided it was time to head back as I was getting cold! (It dropped below 0 last night & was about 8 degrees at walk time (1:30pm). Time to get out my winter boots & wear gloves.
I also got a copy of deb's blood work numbers. She is due for a week off next week but I wanted to make sure things were not getting too low. I have not kept up on these things as much as I probably should since when I scanned the numbers a curious number jumped out at me. I never knew that they actually rated "BUN"(s?). This begs the question. How do you improve your "BUN"(s?)/"CREAT"(ive?) ratio??????????? Is this a dance move? Oh well, I'll just keep walking.......as Deb alway says, John's Ignorance is Bliss.
Also, Deb's appetite came back the last couple of days. She's been eating very well. This afternoon, she had just finished her lunch. A sandwich, milk, her favorite chips, fresh veggies, and some orange slices....Well rounded I thought. I then gave her some more chocolate milk & went into the other room to change the laundry. I came back a minute later & she had one chipmunk cheek. A week or so ago she was not swallowing without being told so I naturally told her to swallow. She refused! So I told her to open her mouth & there was the plastic lid to the milk jug. I paniced & got her to spit it out. Naturally, I gave her more to eat! All in all though, I think it's a great sign!
Blessings to all & Thanks again for the Prayers & Well Wishes!
John
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Wow, like some shows say, miss a day miss alot! I sat down around 6 with all intentions of getting on the computer and catching up on my friends. I remember one of my sons saying something to me about putting the dogs in their cages and thats it. I jolt awake at 11:15 in the freezing cold room. My fire went out and I was very cold and now I am wide awake????? WTF This new med is so great in helping my pain but this sleep thing UGH!!!!
I am so glad to see good reports on Deb, she is really going through a rough chemo and I hope they stop the chemo soon. Her counts were down to 5 or lower not long ago. Whoever talks to John, find out how long they plan to keep administering this to her. You can't do that forever or it will eat your brain up. I am so worried about that without the advocater being inable to speak for themselves... Anyway, I wish her the best and want to see her back to the boards soon!!!!!
Geez, crapy days, PMS days and routing for my team (I liked that one YEAH TEAM LOL) and did I catch something of broken bones.....I couldn't keep up and was drawn in to keep reading instead of taking notes....note to self, take notes! LOL
Lisa, don't sweat the little things like words on a paper. I have found as I have been dealing with the medical community over the last few years they have no clue what your dx means or says. I honestly don't think some of them can read more than the prompts on their computer screen. It's totally unreal!!!
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My brain cannot remember each of your IOS individually - - - a hearty THAT SUCKS. I know each of you will agree that life's little annoyances can really get to you. But the BIG issues just keep coming and coming and once one is taken care of, another pops up. Some days I am ready to yell "uncle", " enough ", stop, go away... And of course, it all is "doable", but no one says we/you/I have to like it. One foot in front of the other, creeping slowly forward. A few steps backwards, also.
I am trying to wrap myself around to a happy mood, even though it is cold outside and the first flakes of snow fell yesterday, but did not stick. I hate cold and seem to feel it more with no hair. My glass is half full most days. Here's to a really Good day/night and no big IOS.
Hugs and Blessings, Nancy
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Another pop in. Sending a big that sux to everyone who needs it. Another busy work day for me.
Nicki
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Greetings Ladies,
Holy Jamoly, 48 posts!
I'm stopping in to say a big THATSUX to all, no time to read even this morning. Know why? OK, I'll tell you why... because lay-offs, being tired, that rotovirus (or whatever the hell it's called), and most of all cancer totally sucks, that's why!!
Will have a chunk of time tonight, and am hoping to catch up on all y'all then. (Makes me smile every time I say it. As a matter of fact, I think I'll say it again. All y'all. See? Big smile!)
loveya/meanit,
cmb
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No time to read everything but isn't that great news about Deb???
YOU GO DEB!!!!!!
Thanks for posting wish!!
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OK, couldn't help but read a tiny bit - when Warren was little, and started whining, I taught him this little gem - when you whine, you get the opposite of what you're whining about. Now I will freely admit he wasn't much of a whiner to begin with, but this worked like a charm. And yes, the key is to keep a smile on your face and not loose your cool.
And yes, I also take the stuff that's left on the floor and put it "away", where he may or may not get it back. And now that he's 12, any laundry that is thrown on the floor, instead of the hamper, he gets to wash himself! (It's a life skill, and I kindly remind hiim of this fact as I cheerfully help him figure out the buttons on the washing machine.)
My piece de resistance (sp?) When he says, "all the other kids get to FILL IN THE BLANK" I respond, "that's because their parents don't love them"
Hey, no one said you can't have some fun as you love them and teach them to do right!
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Hot flashes suck (esp. when they come every 90 minutes)! Cold New England weather sucks! Work sucks! Dog hair sucks! But, chocolate fixes most of it. Oh, yeah. Sugar fuels cancer cells. That sucks!
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Big that SUX to {{{Nancy with the cold head and tired body/mind/soul}}} and everyone else that needs it!
CMB, your posts remind me of raising our 2 girls! Oh my! I well remember dh getting upset at the girls not listening to my reminders to clean up there room (clothes I did pick up, but toys were my problem, barbie and all little pieces and parts for the dogs to digest in the backyard UGH). Anyway.... HE took a large trash bag in to their room while they sat playing and just picked up everything and anything except school books and bagged, and put it in the garage storage overhead. It's only accessible with a ladder at that at that time. They had to EARN their toys back.
Then there was the time dd as a pre-teen went through her dramatic stage and would slam doors. Last time she slammed a door was about 1995 when dh (Love that man) removed the door from her room, thereby solving the problem with his quiet charm!
WORKED great! Within days she gave in and promised to NEVER slam if ONLY he would put it back on. She of course had to help him at HIS convenient time replace it and I'm not sure, but I don't think she even slams them in her own place yet Kids....they do grow up too fast in some ways....but those teen years can change our hair color faster than any chemo thought to!
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I've had to tell my son the same thing when he gives me the crap that his friends don't have to do this or that, that their parents don't care enough too! LOL I do love the door removal, can't remember what movie I saw that on but it was hilarious!!!
Well I hope everyone has a good day!
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I've had to tell my son the same thing when he gives me the crap that his friends don't have to do this or that, that their parents don't care enough too! LOL I do love the door removal, can't remember what movie I saw that on but it was hilarious!!!
Well I hope everyone has a good day!
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