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Chemo in Sept 08

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Comments

  • LisaF
    LisaF Member Posts: 23
    edited December 2008

    Hi Trude,

    I had my first Taxol a week and a half ago and had weird pains all over.  My bone and joint pain were the worst, but I also had shooting pains in my breasts.  It was very weird.  In fact, I thought the Taxol side effects were worse than the A/C.  I do have a bit of neuropathy which started a few days after the steriods wore off.  However, I felt great over the weekend and today.  I went to my sons' hockey tournament and stayed all day for two days and felt like the good old days.  But, Wednesday of this week is creeping up and it will all start again. 

    Chris!  Congratulations on your last chemo tomorrow!

    Springtime!  Good luck today!

    Lisa 

  • Genia
    Genia Member Posts: 1,055
    edited December 2008

    Trude.....I get those too.......not sure what it's from since I get Taxotere.  I think it's about the same as Taxol......and it is very bothersome.  Doesn't happen often......just pain shoots almost straight up from the ovary to the kidney on my right side! 

    I've never asked about that one.......figure I have enough goin on half the time to worry with it........lol

  • bettysgirl
    bettysgirl Member Posts: 645
    edited December 2008

    i am taxotere too, I think the shooting pains go along  with the neuropathy i guess. I always have had tightness in my breast area after a tx but have had some sharp pains in various places along with some muscle spasms ext since the tax so I think that must be it.

    I am vertical today- went to work for a VERY FEW hours..I can at least answer the phone right most of the time.LOL

    I think once they saw me they knew that i wouldn't be working alot while on the taxotere.

    Have a great evening!

  • theprettiestmess
    theprettiestmess Member Posts: 198
    edited December 2008

    Trude...I had neuropathy the first week..my left arm goes numb and tingly...also, my left hip, femur and my entire pelvis aches like the dickens...so my onc sent me for a bone scan today...I'm not gonna lie to ANY of you girls...

     I'm scared.

    Most of the time, my onc and the nurses would say that the pain is a side effect of Taxol, to take 600 mg of ibuprofen, and rest. But... since I'm such an anomaly (my cardiologists word...and I don't LIKE it), my onc wanted the scan pronto. I'll find out what it says either tomorrow, if I can get my internist to log into the dictation service...otherwise, I have to wait til Wed for my third Taxol. Send up a prayer or nine or ten...if you would...

     As for your crappy oncology staff... I'd tell them, and I'm not the type to mince words...to straighten up and fly right, or they're ALL getting reported to the AMA for abusing a cancer patient. I'm in the sort of mood, I'd be happy to do it for ya, sweetie.. I'll even pose as your legal counsel...not that I'm anything of the sort... but I really would like to sock some of these jacknuts in the melon a few times...

    oO am I hostile today? Sealed 

  • Springtime
    Springtime Member Posts: 3,372
    edited December 2008

    Chris, CONGRATS ON FINAL CHEMO!!!! YOU BE DONE WOMAN!!!

    Turde, I have ovary pain throughout, exp in AC, it was like they were trying to start up or something?? (I was "regular" prior to chemo). Never had the kidney thing though...

    My surgery is tomorrow! I saw all the surgeons today. After all discussions, because I am so complicated with needing RADs probably after, and I am so picky, we have all agreed the best thign to do is bi-lat with 2 immediated implants with alloderm, then await pathology and rads if needed, then come back later to do the "natural tissue" parts. It is so complicated, but this will leave the most options open for later - So Phase I will *JUST* be bilateral Mx's with implants. Ha. Just. Anyway, the recovery will be easier with no abdominal or Glut incisions (for now...)

    spring...

  • Genia
    Genia Member Posts: 1,055
    edited December 2008

    Robin I will send up a 100 if it will help sweetheart!!!  I'm hoping so much that it is absolutely NOTHING to be concerned about.

    Spring......again......good luck sweet lady!  I'll be prayin for you too......

    hugssssss

  • cjh
    cjh Member Posts: 27
    edited December 2008

    Trude,

     Yes I had shooting pain in my ovaries, kidneys, spine and misc other spots a few days after my first Taxol. I am now on treatment 3 of taxol last Friday and have very few shooting pains this time. Neuropathy has been very mild-I take b vitamin complex and seems to help.

    CJ

  • peeps1111
    peeps1111 Member Posts: 70
    edited December 2008

    Chirs:  Congratulations on being done, yeah!!!!

    Spring:  Wishing you the best of luck with a speedy, painless recovery of your surgery! 

    Peeps

  • Juli50
    Juli50 Member Posts: 652
    edited December 2008

    Jane - a big hug and thank you for being so sweet! I hope you had a good Thanksgiving too!

     Chris - woohooooooooooooo!

    Spring - we'll all be thinking of you!

    And to all with shooting pains - big hug! Kiss

  • trudecox
    trudecox Member Posts: 143
    edited December 2008

    Wow,  I feel....soooo....normal ????  Strange thing to say while on chemo.  But, I do feel like I am trying to get a period or a bladder infection.  Thanks for all the info.  I did do the IB and it seemed to help.  No finger or toe tingling ...which is a good sign.

    Good luck Spring,  It will go great, I can just feel it. 

    It just sucks to have a onc office that is so incompetent.....they make you afraid to call....and I work at a doctors office.....I know this is wrong.....I tried complaining to the Dr but she said she was over worked as was the staff....they can't AFFORD to hire.....I say B.S.  Ok  I am cranky today too.  You guys are all so great, thanks for all the help.  I also went to GNC and got the L Glutimin (?? spelling)...will try next treatment.

    Wow this sure is alot mre intense than I thought it was going to be.  I guess I had my head in the clouds or was in denial or something....glad to be done with AC

    Trude

  • bar62
    bar62 Member Posts: 221
    edited December 2008

     Hi everyone,

     I'm not up to it today  but had to come in and send everyone hugs and more hugs. Juli50, I love your hat. It must be wonderful to have energy again. I'm taking the energy you us all sent with gratitude.Smile 

    Singapore Chris, GOOD FOR YOU...FINISHING YOUR CHEMO!

    Trudecox, It sounds like our Oncologists and their office staff are related and not in a good way. 

    I'm delaying my Taxotere, because my Oncologist has driven me mad with his constant conversations, complaints and whines about  my bad insurance, a Medicare Advantage plan, and his displeasure with it.

     Oh well, win some lose some; and  I'm losing him ASAP. I tried to talk to him and  his office staff, but there is no talking to them. I finished my AC, and I'm looking forward to  asking another Oncologist to start and finish my Taxatere, after I get my Original Medicare back along with a secondary insurance.

     Spring and Lei, wishing you all the best.

    Warm hugs  Bettsygirl. I would really hate to miss a wedding. 

    back soon,

    mina 

  • SingaporeChris
    SingaporeChris Member Posts: 460
    edited December 2008

    Hi Girls,

    Finished my chemo!  Had a love time at the clinic, eveyone liked the cake and my oncol really enjoyed the poem I wrote for him and all of his staff. Two of my good  local chemo friends also spend the morning with me, which was nice and my husband took photographs.

    Take care everyone.  Singapore Chris

  • bettysgirl
    bettysgirl Member Posts: 645
    edited December 2008

    chris- HOORAY for you! I know you are thrilled to be done. I dream daily of being able to post those words!!! I am so happy for you and the others that are ffinishing and i pray daily for each of us that are moving daily towards the finish line.

    Have a GREAT day ladies!!!!

  • Genia
    Genia Member Posts: 1,055
    edited December 2008

    YAAAY Chris.......so glad you are finished sweetie!!!   I have two more and I will be done.....thank God!!!

    This one hasn't been so hard........just been fatiqued.  

    Have a great day all

  • theprettiestmess
    theprettiestmess Member Posts: 198
    edited December 2008

    NO BONE CANCER!!!

    It's the BEST Birthday present I could have right now!

    Congratulations, Chris on your last treatment! 

  • Genia
    Genia Member Posts: 1,055
    edited December 2008

    Praise God Robin!!!!!!!!!  That's the best news I have had all day......had ya over on the prayer thread too girl!

    Made my night.....I thought about you all day long....and prayed many prayers for you too!!!

    love ya

  • SingaporeChris
    SingaporeChris Member Posts: 460
    edited December 2008

    Robin, fantastic news! now just relax and enjoy each day and only think about good things!

    Have been thinking about you a lot.  Take Care

    Singapore Chris

  • Jane_M
    Jane_M Member Posts: 932
    edited December 2008

    It's tough being active on more than one thread.  I already posted this on the bitch and moan thread, but I wanted to keep you all updated as well.  I had a follow up with the bs today and she says I have lymphedema and I have to go to PT and see a lymphedema specialist.  The PT will also work on freeing up my range of motion because I have some pulling and stretching under my arm pit.  Just another adventure for me to traverse.

  • theprettiestmess
    theprettiestmess Member Posts: 198
    edited December 2008

    Jane_M!   I forgot to tell you that I got your sweet card in the mail the other day! It's posted on my "wall of strength" next to my bed...I read every single card that I've gotten everytime I get too tired and want to quit chemo....

     Thank you ALL for your prayers...It's funny... I've been lucky enough not to have any of the "regular" side effects of chemo, but I wind up with the ones that no one can figure out where they're coming from! I tease all of my doctors that I'm actually MAKING them EARN their money...that I'm the one that they'll never forget...that I'm their very own Rubik's Cube.

    I swear...when all of this is said and done, anyone that's had their hands on me or my file is going out for a party!

    Tomorrow's Taxol #3...Nine more to go!

    Rah! Rah! Ree! Kick cancer in the knee! Rah! Rah! Rass!! Kick cancer in the A#*!!!!

  • BreastMan
    BreastMan Member Posts: 2
    edited December 2008

    My wife, Laura is halfway through Taxol, which is proving to be much more difficult than the first four weeks of AC.  Once the Taxol is done, how long will it be before she starts feeling better?  I know that she will have breast reconstruction, but I was curious when she would be ready for surgery.  She doesn't even want to think about surgery now!  

  • SingaporeChris
    SingaporeChris Member Posts: 460
    edited December 2008

    Hi Girls and Breastman,

    Generally you get at least 3 weeks after any kind of chemo before they will start surgery. I had my taxol upfront, then 3 weeks later surgery, followed by 4 rounds of AC. It takes 3 week for the chemo to clear out of your body which is why they choose that gap. Infact they don't like going any longer as dr's like the treatment to follow on quite quickly if possible.  I found the taxol much worse than the AC too, but any side effects, and I had lots, didn't actually last long, just a day or two, so tell your wife to hang in there and it will all be a distant memory soon.

    Good luck for tomorrow prettiestmess!

    Best wishes, Singapore Chris

  • theprettiestmess
    theprettiestmess Member Posts: 198
    edited December 2008

    ok... my question on waiting periods...how long of a break between chemo and rads?

  • Lili46
    Lili46 Member Posts: 102
    edited December 2008

    Hi Prettiest...I finished chemo on Nov. 10. My docs wanted me to wait 3-4 weeks before I started rads. I had the markings done 2 weeks after finishing chemo and start rads on Monday (4 weeks from my last chemo). 

  • Sue508
    Sue508 Member Posts: 81
    edited December 2008

    Prettiest - I finished chemo on Nov. 17 and will probably start rads next week.

    My eyes are so watery right now.  And my upper lip and chin keep sweating???!!  When do the SEs end?  Anybody else having these?  I guess I shouldn't complain though, huh?

    Susan

  • Springtime
    Springtime Member Posts: 3,372
    edited December 2008

    Hi All, it's me Springtime.

    Surgery was yesterday and was 5 hours, but I popped right awake after. Was talkative and happy when wheeled back to the room where Richard (dH) was awiting! Walked the halls, drank, ate, peedl pooped, -- all the good stuff!

    I met with PS's the day prior to surgery, and to leave the MOST options open for later, we decided to *just* do the bilateral mastectomies this time both with immediate implants with AlloDerm. We're saving all my fat and flaps for after radiation. This way, we'll see how my skin/fat does with Rads and also how I like or dislike the prophylactic implant on the right. 

    anyway, I am FINE!!! Just wanted to thank all you ladies for your thoughts and prayers! Yay Chris for being done with Chemo. YOU BE DONE GIRL!!! Yay Robin!!! YAY YAY YAY nice clean bones!!! Thank you God!

    Genia, thanks for lifting me up, and all the others who have been thinking of me. I am convinced all these prayers really work.  :)

    Love to my girls!!! Spring...

  • theprettiestmess
    theprettiestmess Member Posts: 198
    edited December 2008

    Congratulations, Springtime for plowing through surgery! Isn't it weird to know that they're "saving" your fat & goods for later? Makes you wonder WHERE they're keeping it? Does anyone talk to it, make sure it's warm enough...? 

    I'm in the middle of my 3rd Taxol as we speak, and they just rolled lunch around...but I missed the popcorn! 

    It's snowing again!! 

  • Springtime
    Springtime Member Posts: 3,372
    edited December 2008

    The fat is still on me, safe and sound!!!

    LOL, no worries!

  • theprettiestmess
    theprettiestmess Member Posts: 198
    edited December 2008

    oh! ~blushes profusely~

    Why didn't I know that?! LOL 

  • Springtime
    Springtime Member Posts: 3,372
    edited December 2008

    Robin, no worries!!!  I'm just glad all those times I threatened to do Lipsuction that I didn't do it! LOL.

  • Genia
    Genia Member Posts: 1,055
    edited December 2008

    Good to hear from you Spring.......and glad you are doing so well sweetie!!!!

    Genia