Sign the Petition Against the new Mammography Guidelines

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Comments

  • queenlurker
    queenlurker Member Posts: 34
    edited November 2009

    I do not support the change in mammogram guidelines.  No family history or high risk factors but diagnosed after a "painful and anxiety producing" mammogram with mult cysts.  Fast forward 2 months and was confident my "cysts" were growing thru SBE (classic according to Dr Love).  Would I have gotten seen earlier if not for the routine screening?  Probably, but it still would not have changed my treatment or prognosis with triple neg breast cancer at age 48 years.  Please find a cure!

  • glostagirl
    glostagirl Member Posts: 93
    edited November 2009

    Dorene McManus, Massachusetts.  I am stunned and appalled at these new guidelines!  

    DX at age 51 and had a recurrence just a year later.   I found both lumps myself with SBE, confirmed with Mammogram and Ultra Sound.

    I personally know women who were diagnosed when they went for their first Mammogram at age 40!

    My thanks to you at BC.org for standing up for us, thank you Dr. Weiss!  

  • carolinachick
    carolinachick Member Posts: 135
    edited November 2009

    Jennifer White - Diagnosed on 1/7/09 at age 44.  Stage 1, Grade 3, triple negative breast cancer.

  • agyurnek
    agyurnek Member Posts: 1
    edited November 2009

    I was diagnosed at 40.....  What would have happened if I had waited 10 more years!  Makes me so mad!

  • kdavis1163
    kdavis1163 Member Posts: 1
    edited November 2009

    Karen Davis, dx via mammo at age 45. 

  • denny123
    denny123 Member Posts: 1,553
    edited November 2009

    As a 7 year survivor of Stage 4 BC and a Reach to Recovery Volunteer trainer and coordinator for my county for 6 years, I find this appalling.

    More and more younger women are being dx'd with BC and I feel that we should be pushing for even earlier screening.

    Denise

  • mommy2two
    mommy2two Member Posts: 6
    edited November 2009

    Toyah Bray, dx at age 34 - No family history

  • Brenda_R
    Brenda_R Member Posts: 52
    edited November 2009

    Brenda R. I found my lump at age 50.

  • Anxiousmama
    Anxiousmama Member Posts: 4
    edited November 2009

    Denise Hammett, 38 at rx, no family history.

  • msdicken
    msdicken Member Posts: 1
    edited November 2009

    Molly Dicken dx 46

  • Hopbird
    Hopbird Member Posts: 25
    edited November 2009

    Diagnosed through one of those unnecessary mammograms at age 48.  Not in a high risk group. 

    I guess the wonderful women on this board are statistically insignificant.  I strongly believe doctors lose something when they become too scientific and forget they are dealing with people.

    Sherrena Lee 

  • kbram
    kbram Member Posts: 63
    edited November 2009

    Kathy Bramlett...DX @ age 52 by BSE. No family history.   I have two girls ages 25 and 20.  What does this hold for them in the future?  This is our new proposed "health care system" at work!!  Everyone beware!!

    Kathy

  • CAZ
    CAZ Member Posts: 94
    edited November 2009

    Carol Lind.  No family history. LCIS and ADH.  My latest mammogram at 44 lead to the BX and PBM, but it was the changes in the mammogram appearance over the previous two years that convinced the radiologist.  Fight hard, girls.

  • outnumbered
    outnumbered Member Posts: 1
    edited November 2009

    Sara K - DX age 40 - stage 1 triple negative high grade - lump found with self exam high up in the axilla would have been watched as assumed lymph node infection had I not been persistant.  No family history but turns out I am BRCA1+

  • momoftwo71
    momoftwo71 Member Posts: 2
    edited November 2009

    For my sister Andrea DX at 31 found after preventive mastectomy

    And my MIL Sherri DX at 46 found by BSE

    Kim Matheny

  • monee
    monee Member Posts: 14
    edited November 2009

    IDC on left at 41, IDC on right at 49. Twice under the age of 50.

  • breastcancersista
    breastcancersista Member Posts: 1
    edited November 2009

    Please don't change the current guidelines. My sister was 38 years old when she decided to get a mammogram due to our 38 year old sister in law having breast cancer. It was through that screening that my sister discovered she too had breast cancer. If it were not for that mammogram at age 38, she would have never discovered this very small, very agressive, Grade 3 tumor growing in her breast. That mammogram saved her life!!! How could anyone ever question the current guidelines, even if it is one life that is saved. Maybe one day it will be your Mother, Sister or Daughter it saves!!

  • 2lkh538
    2lkh538 Member Posts: 7
    edited November 2009

    DX age 42... not considered high-risk... found lump mammo and US confirmed, mammo 6 months earlier was negative... probably wouldn't be celebrating this Christmas if these new guidelines were in effect.

  • whippetmom
    whippetmom Member Posts: 6,028
    edited November 2009

    For my aunt Marcia - diagnosed age 41 - IDC, Stage IV - died age 42.

  • don23
    don23 Member Posts: 213
    edited November 2009

    I was diagnosed at age 51 - my lump could not be felt but was found on a mammogram. If I had waited until age 52 who knows where I'd be today. I hope they do not change the guidelines. I think early detection is crucial!

  • neesie
    neesie Member Posts: 1,110
    edited November 2009

    Denise diagnosed at 49 via routine mammogram.  No Family History.

    These guidelines are crazy...................now we'll even have to fight harder with Insurance Companies to get testing and treatments.

  • nancy258
    nancy258 Member Posts: 1
    edited July 2010

    Nancy diagnosed at age 47 with DCIS found on mammogram.  No papable lump.

  • CinD
    CinD Member Posts: 13
    edited November 2009

    Cindy Hebe, diagnosed at age 49 by mammogram.  No lumps were felt by doctor or by me.  Mammogram before age 50 may have saved my life, since I don't know how big my cancer would have grown by waiting one more year.  The specifics of my cancer are still unknown, as I'm just beginning treatment.  When you're one of the 3%, the number seems much larger!  

  • rinna40
    rinna40 Member Posts: 33
    edited November 2009

    Corinne McNaughton - DX 40, found lump through BSE

  • dlb823
    dlb823 Member Posts: 2,701
    edited November 2009

    Deanna B. ~ I'm over 50, but my sister and 2 cousins not on BCO were all dx'd in their early 40s.  While going through tx, I met several beautiful young mothers not on BCO who were in their 30s and early 40s.  This new guideline to remove screening that clearly saves young lives defies civilized thinking. 

    P.S.  The every two years after 50 guideline is also WRONG!  I had annual mammos and my bc was still node+ when discovered.  I shudder to think where it would have been if I'd waited another year.

  • Unknown
    edited November 2009

    Diann Martin - age 67 - dx 3/31/09 DCIS. Self exam followed by mammogram (which was negative), but tumor showed up on a sonogram.

    Mother - age 56 - SBE. Died at age 58 of mets to bone.

    Aunt - age 52 - SBE. Died at 63 of recurrence

    The new Mammography Guidelines ring a death bell for hundreds of thousands of women across this land. Why would you NOT want to check early and often for breast cancer? This is so regressive when we have made so much progress in both early dection education and awareness.

  • LittleC
    LittleC Member Posts: 69
    edited November 2009

    Carol Husak - found my own lump at 37 (doc ignored)

    Mamogram found breast cancer tumor (smaller then tumor in lymph)

    DX  one month after my 40th birthday.  Advanced Metastatic.

  • magob
    magob Member Posts: 242
    edited November 2009

    My name is Mary.  Diagnosed at age 46.  Found lump myself.  The new guidelines are OUTRAGEOUS!

  • texrn
    texrn Member Posts: 6
    edited November 2009

    Therese Daiy - diagnosed at 46 by BSE - ST IIa, grade 3, 0/9 nodes;  TN-IDC. No family history.

  • smithlme
    smithlme Member Posts: 383
    edited November 2009

    Linda Macahilas diagnosed with IDC first at 47 and a year later with DCIS at 48. My sister was 36 at diagnosis and is a 20 year survivor.