Sign the Petition Against the new Mammography Guidelines
Comments
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Mona B. --- Are these people crazy!!! Breast Self Exam doesn't work??? My mom found her breast cancer during BSE and had to almost hit her gynocologist over the head until he sent her to a surgeon who also felt the tumor. She had double MX but survived - healthy and sassy another 30 years!
I found my cancer through Breast Self Exam age 57 - 10 month after mammogram, If I hadn't done BSE and then waited another 14 Months for another mammogram as suggested by these idiots my cancer would definately have spread.
Breast Self Exams Work!!!!!! Mammograms save lives!!! Government committees are what needs to be stopped.
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Kari R- Diagnosed at age 48. In Norway, they start mammograms at age 50 but because of a risk factor I was screened every two years from age 46. If I had been seen each year it would have been found before I was stage III. It was easily seen with the digital mammogram machine. The Norwegian Cancer Society would like yearly screening each year from age 40.
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BREAST CANCER AGE 38. I FOUND MY LUMP 7/09 DID NOT QUALIFY FOR YRLY MAMMO AS WAS TOLD IT WAS 40 WITH NO FAMILY HX. GO FIGURE.1
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My sister-in-law Annette and I were both diagnosed back in 2005. She was only 44 in March of that year and died on May 5th 2006. She was a brave warrior and I think about her probably every day. She had not done a routine mammo...Her mom, the beautiful, Lee, died of ILC BC this past August. Two years ago I was suddenly denied a routine MRI that was previously okayed by my insurance as a high-risk patient. There will always be people ready to seize power, ready to take away our rights...Suddenly they are chipping away at our safety net. Mammos are not perfect, but they do detect so many cases of bc...My cousin Carrie had her first mammo at 40 and they found DCIS...She had no symptoms...just decided to follow guidelines and I am so glad to say she was Stage 0.......I have never been a fan of Dr. Love. Her books are harsh and negative...And now this...She is so predictably disappointing...and wrong.
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Lisa C. - diagnosed at 44.
Lump could not be felt.
Routine Mammogram (digital)
Edit to add: no family history.
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AGAINST NEW RECOMMENDATION - Jaclyn Fletcher- dx age 48 stage II, grade 3 IDC - routine mammogram, felt no lump and thankful this aggressive spread was caught. No family hisory and I came up below normal risk on NCI risk calculator so mammoram saved my life!
Quality Of Life must also be a factor. Not only survival rates are important but also the degree of productivity that is lost due to long arduous treatments including chemotherapy and radiation necessary due to later diagnosis that deprive QOL.
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Crystal Di'Anno. Dx age 43. Lump found on routine screening mammo.
It was already Stage II. I hate to think of what would have happened if I had waited until 50 to get my first mammo.
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Laurie Racine. Dx age 46. Was told that my cancer had been growing for between 5 to 7 years prior to diagnosis. No family history.
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Mary Ibbetson diagnosed at 39 - stage 3. Calcifications showed on mammo 3 months earlier and missed :-(
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I am very much against these new recommendations. In just one year,my mammogram had gone from some calcifications to a less than 1 cm (.95 cm) invasive ductal carcinoma,er/pr-positive,node-negative. At age 61, I was still taking HRT to help prevent osteoporosis,which runs in my family,though at a lower dose than when I first began. With another year of hormones feeding the tumor and without a mammogram,I shudder to think what my cancer would have grown to be! It probably would have meant chemo for a much larger tumor and possibly lymphatic invasion. I have no family history of breast cancer in my family and no genetic predisposition to it. Also,I worry about much younger women,whose cancers can be more aggressive. Why should they risk their lives with this new recommendation. This is a terrible idea,and I appreciate the American Cancer Society's supporting the OLD guidelines!!!! BOO to Susan Love!
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Alice Randolph dx at age 46 Stage II: No family history
Linda Justice dx at age 38 Stage IV: Alice's daughter. Calcifiations seen on Mammogram. Confirmed via Breast MRI. Dx Stage IV 10 months after last Mammo.
We both wouldn't be here standing tall if we had waited until 50!
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Merilee Dodson DX at 49 after having a mamogram 6 months earlier. Had I waited 2 years between I would have been diagnosed in stage 4 rather than stage one
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Forgot to add my name-Liz Cloutman,dx May 16,2008, at age 61 1/2,Stage 1B,Grade 2/ER/PR +,HER2-,clear margins. No family history. Early discovery with yearly mammogram and prompt treatment with wide-excision lumpectomy and radiation (33 treatments,including eight boosts). Am cancer-free 18 months out-even if I did have my mammogram on Friday,Nov. 13!
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Amy O. found lump age 46. Father dx with BC 6 weeks before. Other than that, no family history
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Nancy diagnosed LCIS age 51 for microcalcs on routine mammogram. Weak family history.
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Karen C. diagnosed at age 44, stage 3. Found the lump in BSE, mammogram + ultrasound confirmed. No family history, no risk factors.
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Lisa, with no family history--
Round 1, age 35 --Found lump in L breast, went for mammogram which ruled out cancer; was told "you dont need another mammogram till you're 40."
Round 2, age 39 --Found lump in R breast, went for mammogram which showed it to be highly suspicious for cancer. Biopsy showed invasive ductal carcinoma with foci of DCIS. Lumpectomy, axillary dissection (1/22 positive) chemo, radiation, Tamoxifen.
Round 3, age 48 -- Yearly mammogram picked up suspicious calcifications in lumpectomy breast. Biopsy showed local recurrence. Was sent for bone scan, which found mets to cervical spine.
And I still havent turned 50...
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That announcement left me speechless. Sign me up - first dx at age 39... No risk factors, I was in amazing physical shape (ran a marathon less than a year before) and no family history.
Second DX at age 52 (sorry if that doesn't help the case )
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Donna - routine mammogram at age 42 revealed a cluster of microcalcifications, which turned out to be IDC. There was no lump, no family history.
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Deborah- found lump in breast by SELF EXAM! Had my mammo and was scheduled for lumpectomy/chemo/radiation. Asked for PET scan and found out I was already stage IV with mets to bone and liver.
The article on the AP states
"Starting at age 40 would prevent one additional death but also lead to 470 false alarms for every 1,000 women screened. Continuing mammograms through age 79 prevents three additional deaths but raises the number of women treated for breast cancers that would not threaten their lives."
I am 45 years old,and have NO family history. I am in the fight of my life. What is my life worth???
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Laura Calappi dx with IBC age 36. No family history of bc on either side of the family. I know that IBC does not show up on mammogram but to change it to the screening age to 50 and only every other year is so unacceptable.
forgot to put last name
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Warren Creamer, age 13, not sure if this is legal as I'm not 18. My mom was diagnosed with breast cancer when she was 41 and I was 9. Today I'm 13 and she's 46 and doesn't have cancer. Please don't change the screening guidelines for all the other kids out there, they need their moms.
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Add me as opposing this change. Nancy - age 62 @ dx, but routine mammo since age 33, due to family history.
Self exams are essential. We are the ones who know our bodies and when something, like a suspicious lump, is there. I have met more women in their 30's and 40's with Breast Cancer than I ever thought possible. In fact, almost ALL the women I know with Breast Cancer are under age 50.
Ask the oncology nurses the 'average' age of those getting chemo for Breast Cancer... What a slap in the face to "modern medicine".
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Susan Berger - diagnosed age 44 - BSE, then mammogram, ultasound and biopsy same day. Lumpectomy soon after meant the cancer was gone within a month of self exam. No family history.
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Anna A., diagnosed at 51 due to minute changes in mammogram, nothing palpable, HER2+++
edited to add: no family history
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Juannelle Miller, age 59, Lump found on normal mammogram. I know I am within the new guidelines, but I have been getting mammos since I turned 40. Early dx is the key to survival with this monster. We need to fight to keep the guidelines as they are.
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Gert Lentz, age 45. Had palpable lump that I found. Have invasive lobular, stage 3. My paternal grandmother had breast cancer. My lump did not show on mammogram. I don't think women should have just yearly mammograms, they should ALSO have yearly breast MRIs, and these should start at at least age 40.0
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Sue, dx at age 61 BUT mammo was inconclusive and thought I had a cyst in the other breast. MRI confirmed CA in both breasts. I think we should step it up a bit and demand MRIs!
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I opposed this change!
Diagnosed THIS YEAR, at age 37 with no family history of ANY types of cancer and no lumps or concerns to even get a mammo. My doctor just suggested I get a baseline since I was between 35-40. She SAVED my life! Not so lucky for my good friend, Robin L. who was dx'd STAGE IV at 37 also with no family history and died at age 40 leaving behind her four children. I think mammos are cheaper than all the chemo, operations, and other crap women will have to go through when they are dx'd at a later stage if they are refused early detection! And what about women dx'd at younger ages typically having a "more aggressive" cancer as the doctors tell us? Basically, the task force is issuing death sentences to these women!
I have four children, and I would have been DEAD BEFORE 40, much less 50! They talk about early prevention and detection as the answer, yet they want to move it 10 years?! How many zillions of women on this board who are in their 30s and 40s with breast cancer! What a non-sensical thought!
And what about the many women who got a mammo one year, and the next year end up stage III? How does every other year work in these instances?
I have already contacted my state legislatures to say no to this change. UGH, I cant believe they would even think about doing this!!!!
Laura R
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Diagnosed at 50, screening mammogram. No risk factors, no family hx
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