2010 Sisters
Comments
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tashalobo, I am sorry you are having to go through this, but you have found the best place for support and information. Once you get a good oncologist, get a plan in place, it will get better. If your tumor is ER positive, and your nodes are clear, ask you oncologist about getting the OncoType DX test done on the tissue. It will give you a score from 0 to 100, that will tell what your chance of recurrence is and if you need chemo. The lower the number, the better. My score was 8, so my oncologist said chemo was not needed. Only your oncologist can order that test, and it takes a few weeks to get results. Also, the breast pain and tenderness will last for a while. Mine was sore and stiff for at least 2 months, and then after radiation, it was tender and stiff for a few months as well. It will heal. Physical therapy helped. Since I didn't have chemo, I can' t help you there, but I can tell you radiation is not bad. You do get a burn, but if you take care of your skin, as they tell you to, it will be minimal. After radiation, there may be drug treatments, and the side effects are different for everyone, but not unmanageable. You will do great, and realize you are stronger than you think. Hang in there. Use this website for support. We're all in the same boat. Wishing you luck and sending you {{{HUGS}}}.
Sandi
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Hi Everyone,
My internet has been out at home (fixed by next Friday? Yikes!) and I'm so busy at work there is not much time to goof off.
Glad to see those who have been through recent surgeries are starting to feel better. It's such a roller coaster of treatments and recoveries, argh. Hugs!
I had my quarterly onc and rad onc appointments this week. All is well. The rad onc suggested a chest x-ray, CA 27-29 and sent off a BRCA test after I asked about getting a scan. We had that discussion on this board a couple of weeks ago. I didn't ask my onc because I already know his opinion (no symptoms, no scan), but the rad onc was game (sort of). At least she listened to my concerns after I reminded her about my 10 cm tumor. She suggested the alternatives tests, but didn't see need for a CT or PET unless something in these preliminary test come back with concerning results. The chest x-ray was clear and I'm waiting on the blood test results. If it comes back clean then I think I will sleep better at least for awhile. I'm already expecting a negative genetic test with no strong family history.
Also, just thought I would share that Quest Diagnostics has a great patient information area on their website. I found it while looking up info on the CA27-29 test. Here is the link:
http://www.questdiagnostics.com/hcp/intguide/jsp/showintguidepage.jsp?fn=CF_Breast_Cancer.htm
It has a good explanation about what each test is for and the normal ranges. I found it very helpful.
Have a great weekend!!
Shelley
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Glad to hear you are getting good news, Shelley. And thanks for the link to the website! Very informative. I made sure to bookmark it.
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Shelley, great website. Thanks!
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Shelley - thanks for the link. Very informative.
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shelley - Nice link thanks.0
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yes shelly thanks
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HI all- missed ya while Ihave been out celebrating turning 55 today! It has been a magical weekend and I hope everyone out there has had a good sunday:) I am dogbutt tired but that is ok:) I love you all:)
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annettek - Happy Birthday!!! My birthday is tomorrow, the 19th, and I'll be 56!!!! It's great to celebrate another one.
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Happy BDAY Annette and Linda!!
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Happy Birthday ladies! annettek I will join you for the 55th in 20 days!0
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Happy Birthday Annette and Linda and SpecialK coming up
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Happy Birthday sistas.....seems like a lot of Sept birthdays....Wishing all many many more happy and healthy years .....huggggggggs K0
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Happy Birthday Annette and Linda! Hope you both get spoiled real good on your special day!
God bless us all and grant us all many, many, many more birthdays to celebrate with the ones that we love!
Tori
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sherryc - thanks - although I had reached the point of trying to ignore the birthdays and my age, I have realized that they are all precious now and should be celebrated!
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Looks like a lot of our parents were celebrating new years 50 plus years ago:)))))
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Happy Birthday Annettek and Linda and SpecialK in a few more days. Birthdays are special no matter how old or young you are. I will be 62 in Dec. I think my DH will be taking me on a trip someplace nice.
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Hello everyone and happy birthdays to all who have recently had one as I turned 55 in july and after cancer it was a very special event I wsh you all a better year as I am hoping and praying for the best for all of us .... for those of you still struggling with pain or suffering my prayers go out to you...Hang in there it does get better or we cope with it better...as my husband said when I first told him the results of biobsy ... he said it is what is is, and you can deal with it , you are strong and a fighter ... I will never forget those words... so I am looking forward to dec. when the herceptin stops and I can finally get this Dam port out...HUGS to ALL and especially to granny and barbra and annetteck.and amyjo and many more I could list here..you sent me words of support I will never forget, THANKS, CATH:>
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Cath - Thank You! We all need to hear words of encouragement from time to time and you have provided that to so many of us. Dec. is getting close so it won't be too much longer before the herceptin will end and you can get rid of the port. {{{{{{{{{{HUGS}}}}}}}}}} to you too.
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I went for my first mammo since i did the rads.....was scared out of my head as i have DD dense breasts.....1-2-3 it was over and ALL CLEAR.YAY.
Thanks Cath--boy you remember all of us...Thanks...sistas helping sistas.
Amyjo----looks like you are havin a blast.YOU ROCK!!!!1keep goin sista.xoxoxo
Hugs and God bless all of you. K
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amyjo - thanks! I hope you get to go someplace fun - then tell us all about it! At the moment I am living vicariously! Still waiting on end of Herceptin and exchange surgery, then DH and I will go on a trip somewhere relaxing. He has worked so hard and been so good to me through all this - he is tired too and needs a vacation.
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Thanks Amyjo... you have a special place in my heart... and Granny WHOO HOO congrats on getting thru the next hurdle... ((((HUGS ))) to all the Sistas... Cath:>
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Yay, great news granny!
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Granny - great news YEAH So glad good news is going around now.
Prayers and {{{{{HUGS}}}}} to all those still struggling with treatments and pain issues.
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grannydukes - excellent news!
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{{{HUGS}}} to all my 2010 susters. Real busy now and SpecialK, Happy BDAY!!
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BarbaraA - Thanks!
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O.K., so not healing well after my ooph, 2 weeks ago now.The right side incision and the lower one are infected and there is suture sticking out all 4 incisions. The lower one is also not closed all the way yet, and still seeping. WTH?? Who closed me, the janitor? Not very happy. Now I'm on antibiotics, and it seems a little better today, but geez, what a circus. Still can't wear anything but loose sweat pants, it's so sore. Oh well, it will heal eventually. Can't wait to put this behind me.
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Panmars - so sorry you are not healing very well. Hang in there girlfriend, it will heal eventually. {{{{{{{{{{HUGS}}}}}}}}}} and prayers for you.
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