2010 Sisters
Comments
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granny--how sad. I will pray for her!
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Thanks gals. Here are more pix if you are interested. http://s901.photobucket.com/albums/ac213/barbaraarcher/Cruise%20Pictures/
GrannyD - I am adding your SIL to my prayers. And your brother as well as he will need strength.
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GrannyD, so sorry to hear about your sister-in-law. Prayers going up for your family.
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Granny: Will certainly pray for Judy. Please check back and let us know how she's doing.
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Praying for Judy.
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I am also on Tamoxifin and my joints and muscles hurt all the time. Cant wait till tomorrow when I get the neulasta shot. (NOT) I walk like a 90 year woman and Im only 41. Cant wait for this to be over. Just did #4 of 6 TCH today.
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sweet - I am 9 weeks out from last TCH and it seems to be getting ever such a little bit better. Some days better than others. Now I just have more trouble with my neuropathy.0
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shelly yeah for you
marriedblis I really like your new pick and so glad you have eyebrows again.
GrannyD--prayer are going up for your SIL
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Omaz- my neuropathy, so far, comes and goes. I get the twitching eye after a big treatmeny, and the NP said it was stress,.... but the only time I get it is right after the TC.
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Well I wish this is a club I was not a part of....I too was diagnosed in 2010 with dcis, and ended up with a mastectomy. I am cancer free now, but coping with this long horrible journey these past months.
I was not given a choice with my surgery, there were too many positive biopsy sites in my breast, so mastectomy was my only possibility to beat this. I fortunately have not had to have radiation or chemo though...I had very clean margains.
I am coming up on my *anniversary* with alot of anxiety....
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sweet - eye twitching is taxotere!!0
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Sweet: Yes, the eye twitch is Taxotere. I get really tired of the doctor dismissing SEs as other stuff. They haven't don't the damn drug, WE have. And when 2 out of 3 doing the same drug have the same symptom, wouldn't you think it's the drug??? I think breastcancer.org should be required reading for oncologists. They'd learn a lot.0
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Prayers going out to Judy today.
Good thing I went to my MO office and got my estrogen suppression shot. When I had my blodd work done a couple of weeks ago, it showed my tumor markers were normal but my estrogen went up. On Femara, and the SE are not too bad just joint aches and hot flashes. Today stuck at home and almost everything is closed. At least I am warm and safe. RO office closed no rads today was going to be #22 on the home stretch now.
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GD-so sorry to hear this. Prayers coming from WA...
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mjbmiller, yes stay home safe and warm today. I made it in to work only to have my only case call and cancel after I got here. (Oh the joys of working at a hospital. I am expected to show up.) Please everybody that has our wintery weather, Stay Safe.
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Grannydukes - Praying for Judy and your brother. We went through the same thing with my SIL's mother. She came through it fine and is doing great now. Here is praying that Judy gets better fast with no ill effects.
Now I can post pictures too! Thanks Marybe. This is a humingbird moth. It sort of looks like a humingbird, but if you look close you will see the antena. We get a ton of these in the Spring and they love our flowers.
Hope everyone is staying safe and warm. Joy and blessings, Amy Jo0 -
Oh am I glad I stumbled on this topic. My med onc dismissed my distress over incessantly twitching muscles around both eyes - day and night - and never occurring prior to TC chemotherapy. It's so insulting and dismissive. In addition to the itch that makes me want to rip my eyes out, and the watering and redness. Does it ever clear up completely?? Thanks for the confirmations .. I am going to bring them in with me to the next followup.
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Thank you everyone for the prayers.Nothing changed.She is still in a coma.Please keep the prayers comin.God bless all my sistas.There is sooo many people prayin for my SIL.im hopin my poor brother hold up.thank you again my sistas.0
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Hi Chrissy - my onc nurse explained this to me and said I should use natural tears eye drops. The twitching and the execessive tears are from the taxotere - in fact she called them 'taxotears'. The eye drops helped. I am 10 weeks out from last taxotere and my twitching seems to have finally mostly gone away.0
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Hello BCO friends!
It has been a long while since my last post (Dec. 19th!). I'm not entirely sure why I've been away, except that for awhile there I really didn't want to chat about cancer anymore, especially during the holidays. Then I found myself getting into a major funk for quite some time, especially around the topic of depression, changing SSRI meds to work with tamoxifen, and starting radiation in late December. Sometimes I felt like I was the Debbie downer, and other times I felt myself getting sucked into a pity party, and I didn't like either of those scenarios. My typical response to uncomfortable situations is to bail out, so that's what I did. A bit of information overload, crisis responses, and alarming "what if" scenarios. There's only so much a girl can take!
I went back to work, part-time, on January 3rd, which was about the end of my 2nd week of radiation. The fatigue kicked my booty and "re-entry" wasn't so good. One day I went home and took a nap from 4:30pm to 8:00pm, got up and had a bowl of cereal for dinner, then went right back to bed and slept until 9:00am the next morning. I knew to expect fatigue, but I didn't expect it to be so severe.
Having been back to work for a month, I now completely understand "chemo brain". I am nowhere near the sharp-minded gal I used to be and made several mistakes in those first few weeks. I've been double- and triple-checking my work because I'm so unsure of myself. Just today I went to a meeting that isn't scheduled until Thursday. Then, this evening (Tuesday), I thought it WAS Thursday and wanted to be sure to record Grey's Anatomy. Very disheartening to think I am that checked out.
Today was my last regular radiation treatment. All in all, the 28 radiation treatments over the last 5 ½ weeks were bearable, but somewhat "trying" and exhausting. It took a total of about 2 hours every day, including drive time. Add to that at least 4 hours at work plus an hour drive time for that commute, and the days are about as full as I can handle for now. I started out using Miaderm cream on my skin every day during treatment. As for side effects from the radiation, I developed a 3" oval black spot (yes, black!) in the lower region of my armpit about the end of the 2nd week. That spot proceeded to peel, but started to heal up pretty quickly. By the 3rd week I began to develop more skin "breakdown" in two different areas, which quickly became (and remain) quite raw and painful. My RO gave me Silvadene cream along with a lidocaine gel to mix with it. That combination certainly brings comfort to my sad skin. When the pain is strong enough to wake me during sleep, I take Percocet. The rest of the time I take prescription strength Naprosyn, which is 2½ times the over-the-counter strength of Aleve.
I've had a couple episodes of near-meltdown during radiation. One day, while I lay on the table, I felt like I was sort of floating but also being pushed around the room, which is understandable since the table moves and the machine moves around me. I guess fatigue and stress can make you sort of hallucinate during those vulnerable times. I just felt really light-headed and loony. Another day, my breast was so sore I just did not even want to go to the clinic. It took every bit of grit I could muster to stay still on the table until the treatment was over. The techs who handle my treatments are awesome but I just don't want to fall apart on their shift. They have so many people to take care of.
Certainly there has been so much activity on my favorite topics that I have missed, and I hope you all don't think less of me for being away. I found so many discussions here SO helpful and all you ladies (and a few men!) so supportive; I know that my knowledge resources were vastly improved just for reading all your posts. I will continue to check in occasionally and will post when I can. This has been an indescribable year of changes for us all and I pray each of you are coping the best you can, making the best of the life you have ahead of you, and that all of us will increase the numbers of survivors for future statistics in years to come.
I've copied this same post to my "Favorites" -
How about drinking?
December 2010 Rads
2010 Sisters
Sept. 2010 - Anyone starting chemo?
Stage II w/Lymph Node Involvement
Great saying about depression
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Thanks Omaz ... my last TC infusion is Feb. 4. I will count the weeks hoping for relief! I'll give them the info in case it will help future patients. Best of future health!
chrissy
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MrsNice- so sorry you've been down in the dumps. They say it takes up to a year to get "normal" after chemo and treatments. Just be kind to yourself, rest, indulge, rant, vent....whatever it takes. this too shall pass.
AmyJo- Wow! Gorgeous photo. After nearly skating through 8 inches of slush and ice again today, I am SO longing for Morning Glories (my mom's favorite). Spring will come again, right???
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I am so ready for Spring, missed three days of rads tx. Well at last Phil did not see his shadow and it will be an early Spring. Bring on the flowers.
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DesignerMom - Spring will come again. Soon I hope.
MrsNice - sorry you have had a rough time. Glad you found your way back, so now just take time to take care of yourself and know that we will always be here.
I go see the RO tomorrow to do the final planning for my radiation treatments. I really am not looking forward to this, but I want to get these treatments over with so I can get back to my life.
Hope everyone has a restful evening. Joy and blessings, Amy Jo
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Welcome back Mrs Nice.we missed you.come visit more often.that black hole suks.
6 more weeks till spring GOSH I CANNOT WAIT.
3 tx. left.yay.ill finally get my life back.I HOPE
My SIL is sttill in a coma.please continue the prayers.Thanks everyone for your loving support.
huggggggggggggs K
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{{{MRSNice}}}}} Hugs and welcome back.
(((GrannyDukes))) still keeping her in my prayers.
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Well the RO appointment was not the final planning that I was hoping for. I had my PET scan on Tuesday and then today I went to see my RO and I thought that we would be doing the final planning for my radiation treatments to start on Monday, but the did a CT and then marked me for the right position and that was all. I go again on the 14th to actually do the final planning and I am going to see if they can do the first treatment then. Otherwise I will start on the 15th. Today was awful. I lost it big time. When they had me lay down on the table they had me lay down from a sitting position and going straight back and that really hurt my back particularly one spot that felt like someone had stabbed me and twisted the knife. That started the crying and I have not really stopped yet. I told them that they were going to have to let me lay on my side first then turn over to my back, or I was not going to be able to do this.
I go to the Onco office tomorrow to get my labs done to be sure I can get my Aredia on the 11th. Hopefully I will have my act together again by then. Lately it does not seem to take much for me to kind of go off the deep end and start crying and thinking about how much this has changed my life. I thought I was over this, but I guess not.
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Amyjo - I hope they are more sensitive next time! Hug to you, I hope this treatment goes smoothly.0
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((((HUGS)))) Amyjo! Keeping you in my prayers!
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AmyJo, its awful what we have to go through and sometimes we do just lose it. I hope you feel better soon and they find a way to accomodate you comfortably. Surely you are not the first to need some TLC in the rads room, that table is awful. I wondered why they couldn't warm it up with some blankets or something. You've been so together, it's ok if you aren't sometimes. We can't be tough all the time, even though we try. Hugs!
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