2010 Sisters
Comments
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Barbra - Hope your brother is doing better.
Im off to a cardiologist.... There was a big change from my first mugga scan... first one was 60 something percent, and my second was 80 something percent. I asked the oncologist, "doesnt that mean my heart is working better?" he said. "technically yes, but it was a huge change, so I want you checked immediately"Geez, will this crap EVER end?
Has anyone else had changes like that in their Mugga scans? I'v heard of them dropping, but rising?
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Sweetaerobabe, were the 2 muga scan done at the same facility/with the same technologist, on the same scanner? Sometimes different facilities have a slightly different protocol. Sometimes the technologists position just a little differently. There can be so many variables. I would not think to that extreme, but I guess it would be possible. I have seen a 10% change, just from a different tech doing the scan, on the same camera. Yes , I am a nuclear med. technologist.
beccad
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teklya and mrsnice- Big congratulations on wrapping this show up! Doesn't it feel great?
sweet- Great info from beccad. I would definitely ask your doctor about accuracy. If there can be such a huge difference, how do they know it is accurate? Maybe he is thinking the same thing and worried that the technician didn't do it properly? Hope you get good news.
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Thanks, everyone, for the food wishes for my brother. Saw his surgeon today and she is very pleased with his progress. Then I went to see him and he was awake! Still had the respirator in but I told him what happened and he was squeezing my hand. They tried to wean him off it but it didn't go too well. I think they are trying again this afternoon. Thanks again!
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BarbA- I love your Freudian typo "food wishes". I'm sending you and your brother good wishes and food wishes too!
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Barbara A---nice news about your brother.happy for you.My SIL is still in a coma.no change
Sweet---wishing you the best.
We are gonna beat this beast.YES WE WILL.
huggggggggggggggs K
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DM, Oops. Freudian slip is right. I am food-obsessed anyway.
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Barbara good new about your brother. So thankful
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Thanks GD, Sherry and DM. Just came back from seeing him. I think he didn't remember me being there this morning because he grabbed my hand and sqeezed it tight. I think he just needs to know someone is there. I had told him this morning what had happened to him and that his doctor and I weren't sure if he would even make it. He probablly forgot that too so I will just keep repeating the same things to him until they sink in. He is still on the ventilator so they had to give him some sedation. He drifts in and out. But boy, did he have a grip on my hand!
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Hi Everyone, Im back from the Cardiologist.... He said I was perfectly fine. That it was good that my numbers went up. I didnt see the post in time to ask about the scan being done by differnet techs, But I think they were done on the same machine. It was a table I layed on and a huge xray machine came over me. She really did mess up my arm though trying to get the radioactive dye in me. Kept blowing my veins then finally after 2 trys, a nurse from interventional meds got access to my port. Even SHE stuck me twice. Wasnt very good at her job for working in the same department that put the thing in me!
Im almost done, Im almost done, Im almost done.
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Hello, Thanks for the info, I just had a conversation with my BS she feels that I should get a second opinion on the Tamox, my Onco is not assoc with MGH he is in NH, my BS offered to send an assoc of hers at MGH a consult request, I will hear from them today. She was strongly saying that I should not start Tamox before I see someone else, so I will. What are the alternative drugs? I was not yet in menopause at diagnosis. I will say my present Onco believes that my clots were a result of chemo and cancer, now I have neither so he wants to go with it as he feels it is the best treatment. Waiting...Kaz
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kaz- I would be reluctant to just go with a doctors "feeling" that your clots were due to chemo and cancer. As I said before, I was surprised your Onc would prescribe Tamox with your clotting history. As I recall your clots were quite severe? Clots can be life-threatening, nothing to play with. I would suggest seeing a Hematologist for a complete evaluation before starting anything. My Oncologist is a Hematologist as well. As she was nervous about me taking Tamox (I have a dormant clotting disorder), she wanted me to either surgically remove my ovaries or take a shot once a month to shut them down. I am perimenopausal. The alternative to Tamox is aromatase inhibitors like Arimidex, but you must be completely in menopause to take them or they can be dangerous. I am glad you will be getting a second opinion.
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Kaz - hope you have gotten a second opinion on your treatment. DesignerMom is correct, clots are nothing to leave to the "feelings" of anyone, even if they are a doctor. And it does not matter what caused the clots in the beginning. Here are lots of prayers and {{{{HUGS}}}} for you. Let us know how things go and what you decide to do.
I finally got the results of my last PET scan and there are no new bone mets and the ones that were there before are unchanged so they said that at least my bone mets are stable. Now to deal with the liver and lung mets. I did the final simulation today for the radiation treatments to start tomorrow. I am so glad that is over with and if the actual treatments are not better I really do not think I can do this. My arms felt like they were falling asleep, except that they hurt so bad as did my shoulders. I lost it again for a little while. They kept telling me to breath normally, but that is next to impossible when you are in so much pain you are in tears. They finally let me take my arms down for a few minutes so that I could get some feeling back in my arms and message my shoulders a little. At least they let me start off by laying on my side then turning over to my back so my back was not killing me too. The said that the actual treatments would not take so long and that I should be fine. They said the treatments should only take 10 minutes max. We'll see tomorrow. I now have 15 tattoos!
Hope everyone has had a great Valentines Day and gets a good nights rest. Joy and blessings, Amy Jo
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amyjo - I am sorry that was so uncomfortable/painful! And glad it is over with. Can you take some pain medicine before you go? Would that help?0
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Omaz - I already have a 25 mcg/hr Fentanyl patch, but I think an Aleve might be a good idea. I will definately try that tomorrow. Thanks, with my brain so flaky these days I sometime cannot think to even do the obvious.
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yay for SWEET...ive been prayin real hard for you.....glad the heart is doin it job....so whats the next step for you now??
Amyjo----still prayin for you too.....hugggggggggggs to everyone.God bless.
I am still in need of prayers for my SIL...26 days in a coma....this is real scary and the Dr does not want me to go to any hospital YET.I am one week finished with the rads...this BC sure does suk.
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Grannydukes - still praying for your SIL as well as for you to heal quickly.
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amyjo- The simulation really was the worst for me too. Holding that excruciating position for so long was just brutal. It was the first time I cried since diagnosis. I am praying your treatments are much more comfortable. They should be. Maybe they torture us like that so we are relieved and grateful for "just" the treatment!. Praying for you sweet lady!
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DM- thanks for all the prayers and the friendship we share. I will let you know how the treatment goes tomorrow.
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amyjo so glad you did not have any more bone mets and hope the radiation goes smoothly for you.
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AmyJo: Yeah on the stable bone mets!
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AmyJo - sending hugs and prayers that the pain will go away and you are able to do rads.
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Amyjo---thinking of you today.praying that everything goes easier.I remember that simulation too.It hurt my good arm but after that it was ok....hang in there sista/friend.0
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Thanks for all the well wishes. I took an Aleve about 30 minutes before I went to try and keep the pain down and that seemed to help. Everything went okay and I managed to make it through and I think I may be able to do this. One down and 27 to go. I have started doing the exercises the physical therapist gave me after my first surgery to see if that will help my arms this time too. I will "just keep showing up" for the time being.
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Amyjo--glad it all went well today. I remember my simulation and how painful it was to keep my arm above my head. I told them to please hurry and by the time I was done I had tears running down my cheeks. Thankfully the tx themselves didn't hurt too bad because they were short. I still have trouble with that shoulder and it seems to be getting worse. I'm sure it was worse for you with the back pain also! I hope the exercises help you. I'm praying for you!
granny--I'm still praying for your your family too. Hope there is some improvement soon!
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amyjo- So glad that it went a bit better for you today. Those simulation sessions are miserable! There were only a few of my treatments that seemed to be uncomfortable, but not as bad as the simulation. Each week they had to take extra x-rays to make sure of the positioning. Those sessions took longer and the"hold still" postitions were uncomfortable. When I needed to distract myself, I would start singing...alone in that room, singing like crazy, weird songs too, like Tom, Jones, The Who, and Mick Jagger. Must have been the radiation going to my brain. I'm sure all the techs on the other side of the big lead door thought I was nuts (they never mentioned it), but it helped me get through those rads!
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HELLO Ladies,
Last chemo was 01-03-2011, I am now 6wks out, and I have tried running again.. I find I am still feeling sore, like a stiffness when I sit too long or run.. I am sure this is normal? How long before you start feeling like your old self again? Started taking tamoxifen 1 wk in.. I haven't noticed any problems with it so far, so I am hoping this is the way it will go for the next 5 years..
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grizzly1 - I am not for sure if you ever feel like your old self. bumer but it is a new self.
Some times it takes months before you feel the side effect. I have been on Femara since October, and I started feeling joint pains within a month. You may not feel much difference on the hot flashes if you started getting them during chemo. I didn't feel much difference, but the night sweats are a killer at times. Eventhough we have different AI's, I have not had any real bad SE. Good luck.
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Amyjo - so happy that you are feeling better. Positive thoughts:) Grizzly1 - I finished chemo in October and rads in december and am still not back to "myself" I still feel tired more often than I used to but am able to do more and more as time goes on. Actually have taken a couple Zumba classes. Those are killer. Just found out that I have slight lymphadema in my left arm. Not severe but going to PT and getting a sleve. Does anyone know if this every goes away or will I have this for the rest of my life. What we have to go through.. WE ARE WOMAN HEAR US ROAR........:)
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JenC - I was just diagnosed with LE too. My impression is that it is lifelong management. I am glad I am getting a sleeve. Sorry you have it too.0
