Great saying about depression
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Wow take a few days off to recoup and I miss sooooo much!
Barbe-so glad the birthday part-ay turned out well. isn't nice when there is no drama?
Diane-your earlier post about your roomiie. . . I'm still tearing up. You have such a kind soul, charlie is so lucky you are his buddy!! What love you have to share. . .
3jays--you have no more room on your plate! Your poor dear, dear DH!! he truly is a saint. Hope as each day goes by, you begin to fill up the hole caused by Marybe's loss with loving and wonderful memories. It takes time, but eventually that hole will be filled with such good thoughts and memories, the sadness will be a memory too.
Kate--hope your weekend away was a nice romantic getaway. The key word--romantic!! Sounds heavenly. And I hope you allowed your mind to drift away. . .
Mac- Hope your new doc gets you on a healing path. he sounds like a keeper!
Stanzie--how is poor Alfie, still scratching? My muttly pup has dry skin too and sometimes will chew herself raw. It is a battle, if you find something that works, let me know!
Hopeful-hope your trip to the lake helped take your mind off of your surgical issues and helped heal your soul. Sometimes a change of scenery helps more than we know--takes the mind away from the day in and day out struggles.
Delilah--hows the recovery coming? Have you started rehab?Bet you are rocking with that paisley cane!
PDT and Maddie--hugs to you and I hope all is well with you both!
I didn't post the last few days after my surgery, but I did read-- I get such strength from you all. The love and compassion and friendship is a huge part of what keeps me going every day. Am truly blessed to have all of you in my life. funny, how we all rely on our pets too. They do make the day to day so much easier to deal with, don't they? For the last few days, I have been holed up in my recliner--sleeping there so I don't roll over and open my incision just yet(or roll on those ickky bruises) but every night my sweetie Irish has been laying at the foot of the recliner. She's been laying in a different position, so I know she knows there is something different going on--its like she is guarding me.
Hope all have a good Monday, one day at a time, one day at a time.
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Dear Kate33, I have been following you and thinking about you! Even people you don't know (like me) care about you and are waiting to hear about whatever happens and about whatever you care to share. I know this is a privileged place here, a safe sounding board, where I can sometimes find big help that can change the course of my treatment or small morsels that simply lift me up out of the doldrums -- and everything in between. Over the short time I have active on these boards, I have noticed that you have been SO open in sharing about yourself and SO generous, kind, and consistent in your contributions to others. Thank you, thank you, and know that I and many others, I am sure, hold you in my thoughts most positively. Wishing you many glorious moments with your DH, in the now, living love to the fullest.
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Fearless- I was feeling so down today and logged on and saw your post. You just have no idea how much it touched me. Thank you for taking the time to do that and the sweet things you said to me. You lifted me up at a time when I really needed it. (((hugs)))
The weekend get away was heavenly- very romantic and wonderful. Just what my sweet DH and I needed. It's just heaven being alone with him. The weather was amazing with lows in the 40's so great snuggling weather. We tried not to focus on BC or test results but did find ourselves talking about it and sharing our fears. I don't think I have ever felt closer to him.
Coming home we stopped to see my Mom who has a summer place up north and the time got away from us. Coming home past dark, on a narrow twisty 2 land mountain road, we came within seconds of a head on collision. A truck with a trailer was on the wrong side of the road. It was so terrifying. My DH, who was driving, most definitely saved our lives I'm sure. Funny how you're worried about BC when some idiot on a highway is the one you should be worried about. I guess the lesson is enjoy every day no matter what because you don't know what's around the bend.
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so glad you're okay, Kate.. and the news that the weekend was lovely, and romantic, just what you needed, is wonderful.
Mur my hubs, and i, share how we feel about our messes, and sometimes its more helpful than shoving it all under the rug.. i find i think more when i try NOT to!!!!
hoping this week you'll get some answers JEESH!!!
Welcome,Fearless, you've come into a wonderful group of ladies here.. they've helped me, so much.. also....3jaysmom
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wanted to share this one, and one other, i came upoun doing Marybe's do... for all my sisters here who suffer with FM 0 -
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Wow Kate! I am so glad your DH took that special spy school James Bond defensive driving course!!! Tell him we are glad he saved our Kate for us!
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3jays- My DH and I are definitely being more open now than with the MX and it has been good for us. The circumstances suck right now but it's nice to hear how much he needs me.
I like the fibro sayings. I posted them on Facebook once but didn't get much of a response. Most of my friends know I have it but have never asked about it. It's the "invisible" disease. With my DH's Parkinson's they see the tremor and believe he has a disease but with fibro no one really gets it.
Claire- My DH grew up in Southern CA and his Dad taught him how to drive (at 15!) by taking him out at night on desolate winding roads. So we both said a big thank you up to heaven for his Dad, George!
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Kate - so glad you didn't have an accident - as you say no one knows what's around the bend. Glad you had a romantic and nice getaway - you deserved that. Hope you have some definitive information about your tests this week. You are in my thoughts.
cmbear - Shoulder is OK, doesn't hurt as much as the elbow surgery did. Haven't started therapy yet - see doc on Thurs so will know more then. Haven't had chance to use the paisley cane yet but will use it tomorrow. Haven't left house since came home from surgery on last Wed. Thankfully this evening was allowed to remove the surgical dressings and take shower - AHHH! felt so good. Guess all the crap with the BMX and recon has helped with the past surgeries. Understand the waiting to take showers, used my wedge pillow to sleep and even surgical bras as they were easier for DH to get on me. This sling is going to make me batty by the end of 6 weeks!
Hope everyone has a good week.
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Kate oh my gosh! That is scary. You know in the last year I have lost two friends to car crashes and both times I think gosh last time I was talking to ____ he was telling me how his church group was praying for me. Then literally months later killed instantly in head on collision. Then my friend that died last month was dicking around on the road on his bike with his kids and BOOM bus hits him. You just never know and I know we should embrace each day its just scary. Someone years ago told me I am always waiting for the other shoe to drop (it usually does I am fairly unlucky) and dont know how to change that other than talking it through with all you lovelies. I am glad you had a wonderful weekend and that you made it home safe and sound. We love you and continue to wait with you.
Welcome Fearless...what a lovely post. So thoughtful
Claire so glad you are feeling ok. Sorry you are sleeping in a chair but love that your puppy is guarding you. Dogs know when you are sick. When I had surgery I only had my old kitty Chloe (who has since passed) but she would not leave the bed she went where ever I went. 3Jays I laughed picturing your doggy licking your taxotere head. When I came home after infusion my cat would sniff me like I smelled like doo-doo. She literally turned up her nose at me and made a yuck face. There was no love coming my way until it was out of my system.
Well ladies I am DONE DONE DONE work for a while!!! This was the worst weekend of my career and shamefully the worst client was my friend that owns the doggie daycare was the WORST client of this tax season. If she had been in reach I would have punched her in the face. I worked my a$$ off all weekend and sent her everything..she calls me SUNDAY morning to say "I havent read your emails cause I am afraid"..I was like look at the tax returns and sign the authorizations so I can efile them. She LITERALLY text me at 11am Sunday to say, I think my quickbooks was messed up the income is too high. Call me URGENT ...I am leaving the office soon to watch the game at noon. OK she has a beach house and has been there virtually all summer. I have been trying to get her to deal with this $hit since MARCH. OMG I seriously want to punch her. So I had to go in today and try to help her figure out what was wrong. It took all day. Finally got it done and filed by 4:30 today. UGH!! So frustrating. BUT Soooooo happy to be done done done done done...
Ok have a good night or day..depending where in the world you are this evening.
Hugs to all
Diane
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Diane,
This is for your "friend",we wouldn't want you to get arrested for assualt. . . .
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Di- Here's one, too-
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LOL you guys crack me up...thanks!
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HADwith all the goings on this weekend, greiving Marybe, an angel came to my side...
i got a BIG box from our own Claire; we had talked about it.. she sent her "foobs" to me, and they fit!!tonight was my first night out in them.. im going to have to get used to the weight, wearing foam for over 2 years, but WOW they look good, if I do say soo.. DH gave them a "try" and approves.. wink wink...
and BIG surprise.. in the box, I found two wigs.. a short reddish brown (which i WILL wear Claire ) i n the summer heat: and a perfect red haired bob in the color and cut i wore, when i HAD hair!!!
thank you again.. you are really ARE the best!
Kate, i'm glad you liked the fibro stuff. i hear that all the time, as both fibro and ms are "invisible " diseases..
once a cop stopped me in a parking lot, and asked to see the "paperwork" on my disabled sticker.. he was really apologetic, and we talked about "invisible diseases.. turned out, he had "kin" that had ms...
hope you are healing well, both of you gals, from surgery.. my chiuhaua does the same as your red, claire. but i bet yours is scarier.. pretty "empty " having a 5 lb dog growling at you.. but he CAN get ankles pretty good hahaha.
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Claire, thank you for my birthday cake! I didn't get one here at home so this one is extra special to me. Guess that's why I bought the ring as I felt I would be angry and resentful to have my 60th birthday and my husband and son just treat it like nothing. Since being diagnosed with BC, I now relish each birthday as it means one more year I win and BC stays out of my life.
You all are true friends as so many of you wished me a Happy Birthday, makes me cry...........
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Heck, Debbie if I knew it was your 60th. . . .
hehehe, i love maxine. and don't feel bad, my 2 teenage boys got me 2 candybars for my birthday and my DH, uh well, I'm still waiting. My b-day was a month ago, I might as well wait till next year!!!
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We all just have today, is so true! I was at biofeedback today and we discussed that very subject. It is very hard to keep my mind in the present moment. I am practicing breathing along with a bell recording, to learn to take longer breaths and keep my mind on the breathing. I have to admit that the higher dose of prednisone is helping the wheezing , I just hate how it makes me feel. I am on so many different meds I don't know how they are going to figure out which ones are working? Anyway, I am excited about this new doc. I have a slight dilemma about my trip to the city for CT there is suppose to be a bad storm Wednesday morning and I am suppose to get the first boat ( won't run if high winds) to get there by 10 am. Trying to decide if I should go off Tuesday night instead? The joys of living on an island.
I think we should celebrate our birthdays everyday. Or at least celebrate every day.
My dog Cinder is quite the fire cracker. She is so exuberant, it is catching. She celebrates every moment she is not sleeping. Her favorite activity is going to the dog park and chasing the ball. And of course meeting the other dogs. I buy these lighter weight balls which I can throw with an apparatus called a "chuck it" without throwing out my shoulder or hurting my arm. Almost every other day she gets distracted by another dog and runs across the park to meet another dog and drops the ball in the long grass and I spend most of my time searching for the ball. LOL I think she is just helping me keep it in the day. The owners of the pet toy store love her, cause I'm in there every other day buying more balls.
Hope all are healing, celebrating, laughing, loving, living life to the fullest today.0 -
mac, i vote for going tuesday if it is important. we also live in an area that can present problems with weather. i kept phone numbers of hotels and a bag packed last winter when i was having rads so that if needed we could stay by rad center which was forty miles away.
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PT, you are probably right. I will have to get cracking on the travel arrangements in the morning. Sigh! Thanks for providing some clear direction.
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mac, you are welcome. good luck. i have my cast removed today and the pins are suppose to be pulled. not looking forward to that.
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Good morning ladies!!
PT...you just made me hurt. YIKES good luck with everything today. I hope its painless and that you are healed!
Mac we are getting those storms today. I would say if you can get them done today do it cause the forecasters are calling for high winds and heavy rain. I hope they can fit you in today!!
OK back to lounging....today I am not doing a thing. Maybe shop..thats it. Its a raining icky day good day to lounge.
Happy Tuesday
Diane
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Kate, LOL so true, I hate when docs smile and nod at me while I am pouring my heart out to them
pt good luck with the pin pulling! Hope they slide right out.
I changed my travel arrangements and am leaving this evening and checking into hotel near hospital for appts tomorrow. They gave me a late check out, so I can hang at hotel between appts. I'm a little nervous about driving by myself, but will take it slow and easy. This is the person who use to drive up and down the east coast by herself all the time. Where oh where has my courage gone?
It is starting to get a bit windy here now, already lost a plant off the deck, then the dog dragged it around the yard for a while, so bringing the rest of them in for the near future. Really, the winter already?
Diane, so glad you got through the deadlines and can now lounge.
yes happy day!
Nancy
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Mac- Glad you got your travel plans worked out. It sounds like it will be less stressful than trying to arrive the day of the appointment. I know what you mean about courage. I think it's because we've all lost some innocence about life and are now more cautious- at least I am. I don't know- BC has made me feel suddenly old. I feel as though I am shuffling, not skipping, through life now waiting for the floor to give way once again. I hope to get the skip back in my step again some day! Hope you have a good trip. I can't believe you're looking at winter and we can't get rid of our %@&*! summer here- lol!
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Kate, I'm bringing the plants in more because of the wind, because this is more of a tropical storm, but it is going to drop into the 60s during the days later this week. It is a change of season for me tho, the whole bringing in of the plants.
I do feel older, but even more than that is the inability to focus and recall stuff easily. I just feel so different. Maybe I just have to bite the bullet and step out in faith. If I can't do it the way I use to, I can do it to the best of my ability now.
So thanks for hanging in with me.
mac
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good attitude, Mac.. it's true.. chemo DID age my looks, and the partial alopecia did even more to my self esteem.
since i've been so sick, I wish we could afford a nurse during the day: but I don't Really need one. I never was hesitant, or afraid.. but now, i AM more afraid..
I just go with it.. and i do sleep alot in the day, anyway..
sinve the "choking" incident, i can't eat with noones here, so my diabetes is wonky as well.
I know my life will never be the way it was.. i have so many things that were messed up with the chemo..
I too, just try to go with the flow these days, and find happiness in the little things. Like my garden, dogs, and the grands. I haven't seen them in like forever.. so i'm trying to set up a meet with them.
My son and DIL keep them so busy, we have to check their sheduale!!
Good luck, with the pins, PT.. and I'm glad youre going early, Mac.. let us know what happens, gals.....3jays
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HapPy BiRtHdAy DIANE!!! AND MANY MORE!!!!!!
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They PULL the pins OUT??? I thought they stayed in???? I wonder how they compare to drains coming out...please let us know!!
3jays, so happy you have new "toys"!! Amazing what pleases us these days.
I was at the outlet mall the other day with my SIL from out of town. She is 66 and is trying on darling little shoes. I looked at all these pretty girly shoes and then at my cane and got a bit teary eyed to be honest. Got some hot pink flats, though....sigh.
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Diane-
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Happy birthday Diane!
Hot pink, barbe, you go girl! I study shoes daily, and flats are in. All the college girls are wearing them. don't remember what thread I read it on, but glad the party went well, and the "ice" is broken.
3jays, glad the new accessories are going to be put to use. We really do have a special group here. My mom had choking issues and we all were trained in Heimlich and CPR. If I lived close enough I would come over for lunch.
So I managed to get myself into the city and to the hotel on my own. Well with the GPS, saying turn here, turn here, oh recalulating. LOL. Now I can just take the shuttle bus back and forth to the hospital. I had the scan this morning came back to hotel for breakfast and a nap and then this afternoon the doc appt. I feel like I need a GPS when I am inside these big hospitals, at least I know when to ask for help. Then I will drive back to the island tonight. the storm has passed and it is a beautiful sunny day.
hugs to everyone else!
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