Great saying about depression
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I know that if I were to have just gotten one breast removed I would have had recon. I just didn't want Diane to think she'd automatically get depressed when she woke up with only one breast....
I can't believe what you're doing MBJ!! Do you have to do that for two months to reset it????
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GREAT article MBJ!!! It came through for me on the computer this time. Did you double your dose of iodine then? It seems to make sense.
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Barbe: I am slowly upping my Iodoral dose but when I tried this before it made me cranky and I couldn't sleep.
As far as resetting my body temp it takes about 2 weeks of not going anywhere,very difficult dressed like a snowman, and then dressing slightly warm for about a year until the body readjusts to the new temp.
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Oh I hear ya Barb, you know when you start this journey you never know how strong you will be through it. I never got as depressed as I thought I would be and I don't KNOW if I would but I feel like I am done with surgeries and healing and prosthetics and I just wanna go forward not backwards and an infection would be a HUGE setback in my eyes..I know things could be worse I just don't want any setbacks.
MBJ I did not have rads and my PS works with Alloderm a lot and after talking to two PSs I opted to NOT use Alloderm on the mx side but used it on lefty to support the implant and you may or may not recall my PS blew out my IMF so needed alloderm to correct. Like I said I was initially over the moon happy with results but I have days where it just looks squished and sad. maybe with the nip done it just looks that way since its a more defined breast shape. Im not doing anything about it I will give it more time. Maybe my skin will loosen up some and it will relax more. I know my PS did extensive pocket work.He is very well respected and viewed as one of the best recon drs. I think I am just not use to how it looks with the nip...i think that may be it. We'll see
Thanks all for listening. Jury duty is done...we found the defendants not negligent in this woman tripping falling and breaking her arm. She literally was suing the company that laid the asphalt in a perfectly flat surfarce parking lot. She had no case from the get go but the plaintiffs atty managed to stretch this out for a solid week. I was very painful especially as today was 98 degrees and the AC in the 100 year old bldg was NOT working.
Stay cool
it's almost friday!!Diane
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Diane, good for you guys for not automatically giving money to the suer!!! I wonder how some stuff makes it to the courts. What a waste of time and money for all involved.
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@MBJ upping up your lodoral doses can sometimes makes you weak. Try to control it every now and then.
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intelligente, I hope for your sake that isn't a link in your post. That is against forum rules! We are here fighting for our lives, not thinking about buying houses....
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Definetely spamming. Moderators removed that fast!
DiDel: Sorry you had to suffer in court for something as pointless as this. I have heard one of the other women who had her nip/areola done that it took awhile for her breast to restretch after that procedure. Come to think of it, mine looks a bit smaller. Since it is skin, it should stretch. I do remember you being over the moon after your recon and I hope you will come to embrace it as part of your body eventually. I think we are all way to hard on ourselves when it comes to our bodies! I am glad you didn't have to go through rads as that can complicate things so much!
I guess everyone on the East Coast is having a heat wave and we are barely hitting 70. I alwyas thought it was waarmer here this time of year.
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So for anyone who is curious, I did a Body Temperature Reset. I have been running low for about 5 years, ever since a car accident that I think damage my thyroid. With the help of using Cytomel & T4 and a grueling 16 hours of keeping my temperature at or above 98.6, yesterday my body finally gave in to being at this temperature. Last night was the first night in I don't know how long that I was able to maintain a normal 97.4 temp at sleeping instead of the usual 95.6 - 96.6 where I was drenched and freezing at the same time no matter how many clothes I wore or blankets I used. I won't lie, it isn't easy, but today I have maintained between 98.4-98.8 since 10:30 this morning after eating breakfast. Before doing this reset I would hover in the 96.9-97.7 range, always in pain and never comfortable with the slightest bit of heat. At 98.6 I am pain free. The body is a strange thing.
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MBJ- That is amazing! Do you know if you'll have to continue to do this every so often or is it supposed to be permanent once you're reset? When you're all bundled up how often do you need to take your temperature to make sure you stay above 98.6? If you don't mind my asking are you in menopause yet or are you taking Tamoxifen. I have been plagued by hot flashes/chills since going into menopause so not sure if this would help with that or not. I am so sleep deprived, though, from waking up 50 times a night- wake up, get out of bed and turn down the air conditioning, try to go back to sleep, wake up and try to find the blanket because I'm freezing, try to go back to sleep, rinse, repeat. I go through this cycle of hot/cold all night long and sometimes into the day. It is exhausting.
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Kate, Restting my temperature changes everything! I went into chemopause and I was having horrible hot flashes but I am not taking Tamoxifen because I am triple negative BC-non hormone receptive. I will say, there wasn't anyway of doing it without using the thyroid pills, but I only used them for one day. The second day was a battle and so was the third and the fourth day I didn't even try as I had errands to run and places to go but then a strange thing happened on the fifth day: My temperature went up on it's own without me trying late in the afternoon and it stayed up until around 9:30 pm and then it just crashed and I had to go to bed. Last night I slept better then I have in 5 years! I only got up once after going to be but only because my cat woke me up and this wasn't until 6 am. I finally ended up getting out of bed around 7 am, fed the cats, made my vitamin/mineral drink and took all of my supplements, had a cup of coffee, made my breakfast and, right after eating my temperature went up by itself to 98,.8. In the past I could only get up to 98.0 after eating and in the shower I could get up to 99.0 but once I got out of the shower withing the hour my temperature would plummet, I would be drenched in sweat and then I would have hot flashes on and off all day. Today, the only time this happened was went I went into a store with the AC blasting--I would just get in my car, blast the heater and my temp shot up again. This has never happened before. I have never been able to get to 98.6 without being on thyroid pills and it would only be for brief moments after a shower. I no longer have hot flashes but if I go from a normal room temperature to a freezing temperature I start sweating, my hands and foot hurt, my brain no longer works and I have 20 minutes to get my temp back up or it's game over for the day. Today, I went to 4 stores and my temp is still, since 10:30 this morning, at 98.6. According to my friend who did this in the UK (also a BC survivor) all her pain is gone, she only has occasional hot flashes but they are mild and she is now going to start on bioidentical hormones to balance out what she is lacking in which is a little bit of estriol & testosterone. She doesn't do Tamoxifen, but she does the Iodine Protocol from breastcancerchoices.org. BTW: I also do the Iodine Protocol, and my mamogram was completely clear. NED. Kate, I will keep you posted but at 98.6 my plantar fascia is gone, my thumbs begin to work better (they aren't healed but I am hoping this will greatly help--they do get much worse and lock into place at lower body temps) and according to my friend my brain should work better, my metabolism should kick in, my hair, eyebrows and eyelashes should get really full, my skin should look better and I will have more energy. PM me if you would like some more info--I also posted a link bodytemp.eu which is a blog and also fixlowbodytemp.com.
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Thanks for all the info, MBJ! Regarding your friend- I thought we couldn't take bio-identical hormones since we've had BC. I could have sworn one of my doctors told me that. Did I get bad info? My hot flashes have been so bad I was considering trying to find a homeopathic that could give me SOMETHING, ANYTHING! I will check out those other sites when I have more time. For now I am off to my 3rd party of the weekend. I'm becoming quite the social butterfly. LOL!
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Kate: I am so happy that you are out and about and going to parties. Just no longer being in pain is really life changing!
Both my friend and I believe what is most important is balancing the hormones. I know that it is controversial but after doing lots of research and taking high dose Iodine supplementation which helps keep the breasts disease free, for both my friend and myself, this makes more sense then trying to suppress something your body does naturally. Call me crazy but to me it makes about as much sense as having a hysterectomy for fibroids--I feel that it is unnecessary surgery and preventable. They wanted to take mine 15 years ago and I still have it. It's not the path that most choose to take, but I have never been one to do as I was told or to follow the pack--I am always asking questions, doing research, trying to get to the bottom of why my body is no longer working and what I can do to fix it. I do believe that reseting my body temperature will be the most important part of my body healing itself and making it so my body is no longer a welcome mat for cancer.
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"Good cancer" - what a joke. DCIS may be pre-invasive, but it's still cancer, has to be treated as cancer, has life-changing decisions with it, and the resulting side effects (lymphedema in my case). Nothing "good" about it. And I look at myself as a cancer patient. I do feel blessed not to have done chemo or rads since I opted for a bilateral mastectomy, 3 surgeries.....and the daily struggle with lymphedema for the rest of my life. If ignored, it can easily be invasive cancer, so it's definitely cancer in my book. Any other terminology seems uninformed to me.
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Who said anything about "Good Cancer"??? am I missing something?
MBJ - You are so smart...duuhhh Diane yes they would have pulled at my skin for my nip.. I am literally lol-ing right now cause of course that's what the difference is and totally makes sense. I do also think my workout bras are squishing me as well. I asked my friend if it looked flat to her and she said no it looked perfect so I guess it's just me. You're right though..i just need to give it a little more time. Thanks!! Mystery solved!!
Kate I am so jealous!! I went out last night until 12:30 drank 4 beers (was sloshed btw) and after running around all day today I was ready for bed by 930 tonight. Hope you're having fun!! You should try acupunture. I did it following chemo as chemopause jolted my body. I had night sweats so bad i would wake up completely drenched, every and I mean EVERY joint in my body ached so bad i felt 100 years old, I was tired all the time, i was a mess! I signed up for 5 sessions but by the third one i was 80% symptom free, by the 4th I was back to my old self!! It was amazing. Every couple of months I do a "maintenance" session. I am a total believer in it. It works!!
Barbe & Determined -- How are you ladies today??
Hope you are all well, aaaahhhhh a coool breeze just blew in .... good night all!
Diane
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I'm baffled about the "good cancer" as well.
DiDel- The acupuncture sounds intriguing as well. Not sure where to start but have to try something. Tonight's party was a bit of a bust. Lackluster crowd, three of us started talking about menopause and hot flashes- man, I miss my 20's! lol! Home by 11:00 and here on the computer. Oh well. Tomorrow dinner with my mom, sisters and other family. It has been one busy weekend! Hope you're all having a fun one as well!
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I thought I had missed something--is cancer ever good in any shape or form??? I think NOT!
Didel: Wasn't trying to be a smarty pants, just remembered someone mentioned it before. If you are wearing something super tight, i.e. sports bra, it can leave it looking squished with lines all through it so I know what you mean. I am betting it does stretch back out a bit--at east that's what my PS told me so I'm sticking to it.
Kate: That party sound like a real hoot! Just wait until we are all in our 90's and talking like, "i remember when I was your age" and shaking our cane or our walkers at some young thing. Oh well, at least you are feeling up to going out and having a social life, lol!
I realized I didn't anwer your question earlier: I have to be very aware when my temperature is crashing because I have a small window of time to "fix" it by either having hot coffee, food, a heater blowing on me. Right after I got off of the computer earlier my temperature crashed and that was it for the day--four freezing stores and being hot & cold, hot & cold, cuased me to get quite sweaty and then it was getting cold outside, I caught a chill, and I couldn't get my temp up and it was too late for coffee. It's pretty obvious when my temp drops--when you start taking your temp and guessing what it is after a couple of weeks you know what 98.6 feels like and what it doesn't feel like. Okay, going to bed--it's late! good nite all!
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MBJ, you know I'm fascinated by the body temp thing, but now you're saying you had to use thyroid meds. That's not fair! I don't have any!!! What I have been doing is seeing at what point in the day I start to sweat. Yesterday I stayed cold all day! Only once did I feel my face getting red, but that was a short shot of heat and then back to normal. What the heck made yesterday different? I'm even monitoring the fabric that I'm wearing. I obviously overheat in polyester, but a lot of my wash and wear wardrobe is made out of that. I didn't have pelvic pain yesterday for some reason, so I'm figuring that pain has a lot to do with my sweating. I had a bone scan on Friday, it'll be interesting to see if anything showed up. The tech asked me questions at the end that I've never had before...maybe they're paying more attention!
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Barbe: I was a tough "case". The theory is that the earlier you have had surgery the longer you have had the body temp problem. I was in a body cast and had surgery when I was 18 months old! Many people. once they start paying attention to what their themerature is, they can bring it up without meds. You start out by checking your temp whenever you feel a change or just for the heck of it. You will start to notice a pattern. To get your temp up in the morning, first you get up and dress over warm: Like you are bundling up to go outside: hat, heavy winter coat, gloves, long underwear under pants, heavy socks. Second you make a pot of hot coffee and drink at least one cup (make sure it's super hot-nuke it if you have to. Third, you make a high fat breakfast as this helps to up your body heat. Since it's the first meal of the day you should burn off the fat. Last, you get into a hot shower and see how high you can get your temp. Mine goes up to 99.9 Then the plan is to dress just over warm to try and keep your temp up. My friend in the UK hung out in the bathroom for hours where it was warm to keep her temp up but she did this in the middle of winter with the worse cold spell in years. See how long you can keep your temp at 9.6, if at all. Mine, no matter what I did, just crashed to always being at 98. Never would it stay at 98.6. We used the pills because I have been like this for years, and years and years! BTW: What is your temp coming in at? Important: I find I have to eat something every two hours to help support my temp or it crashes. I have become extremely sensitive to AC--before I was extremely sensitive to heat. I freeze in AC now. Weird, huh?
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Kate: You were asking about using hormone therapy and I found this:
Campagnoli C, Abba C, Ambroggio S, Peris C.
Pregnancy, progesterone and progestins in relation to breast cancer risk.
J Steroid Biochem Mol Biol 2005; 97(5):441-50.
The authors review recent findings that show that the production of progesterone
during pregnancy and the use of bioidentical progesterone in hormone therapy do
not increase breast cancer risk, and can even protect against the development of
breast cancer.
Kaaks R, et al.
Serum sex steroids in premenopausal women and breast cancer risk within
the European Prospective Investigation into Cancer and Nutrition (EPIC).
J Natl Cancer Inst 2005; 97:755-65.
In this large multicenter study, higher serum progesterone levels were associated
with a significant reduction in breast cancer risk.
Fournier A, Berrino F, Riboli E, Avenel V, Clavel-Chapelon F.
Breast cancer risk in relation to different types of hormone replacement
therapy in the E3N-EPIC cohort. Int J Cancer 2005; 114(3):448-54.
Combined HRT with estrogen (either oral or transdermal) and synthetic progestins
was found to carry a significantly increased risk of breast cancer compared with
estrogens plus oral micronized progesterone. In fact, no increase in breast
cancer risk was seen in the estrogen plus oral micronized progesterone group
compared with estrogen alone. This large multicenter study therefore suggests
that there is a dramatic difference between the effects of bioidentical
progesterone versus synthetic progestins on breast cancer risk.
Missmer SA, Eliassen AH, Barbieri RL, Hankinson SE.
Endogenous estrogen, androgen, and progesterone concentrations and
breast cancer risk among postmenopausal women. J Natl Cancer Inst 2004; 96
(24):1856-65.
Blood progesterone levels were found not to be related to breast cancer risk in
this first study to investigate this in postmenopausal women. The occurrence of
progesterone receptor positive tumors was the tumor type most strongly affected
by all the circulating steroid hormones measured except for progesterone. Higher
levels of endogenous estrogens and androgens were significantly correlated with
increasing breast cancer incidence. This suggests that circulating natural
progesterone does not increase breast cancer risk.0 -
Hot shower!! I hate to admit to you guys, but my gas has been cut off for non-payment for the past week!!! I have been washing my hair and important parts only, in cold water!! We owe $1,300 and will only be able to repay it because my MIL died and we are waiting for her estate to settle. What the heck would we do if she didn't die????? My DH hadn't paid them for a whole year!! He got mad at them and never made payment....sigh. This is what I live with! One year he paid Bell home phone but not Bell mobility. I caught that one when our phone bill got to $600!!! I can't trust him with money, it's so very, very sad. I've asked the bank if I can get him taken off our debit card but they said no, he'd have to do it voluntarily. I told the gas company about his brain tumours and they now have it on file to not discuss financial issues with him or make any kind of settlement over the phone with him. They won't turn it back on until we pay in full.
What a life, eh???
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Barbe: There are agencies that can help with money. Try seeing if you qualify for some emergency funds. With your husband's situation you qualify. Contact the American Caner society. PM Stanzie as I think she had to do this, too, and got quite a bit of money to help her through. Hugs!!!
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Thanks for the hugs!! I needed them. We'll be okay. I live in Canada and it would take longer to get funded than it would for the estate to be settled!! Go figure....sigh.
Ain't life grand?
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barbe- Is it possible for you to close that account that the debit card is linked to and then open a new one with just your name? I know my DH and I have closed accounts before and I don't think both of us had to be there to do it. Just a thought. Sorry for all the added financial stress on top of everything else.
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There are many links like mortgages on that account. I know I always make excuses to not do something. .. I think I'm in denial....sigh.
I have lived with financial stress seriously like this since 2003. It's getting a bit old. We have down-sized TWICE since then!!!
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barbe- Maybe tell the bank his debit card was lost or stolen. They'll cancel it and send him a new one. You retrieve it from the mail box before him and shred it! (I know- I'm devious, huh?)
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Kate: That is a great idea!!!
Barbe: My DH isn't great with paying bills on time--he is just absent minded about it. I have to remind him to pay the two bills he is in charge of and I take care of everything else. We are linked to each other's accounts but I have a checking account, he has a checking account and then we have a dual savings account. This way we don't mess up by over extending ourselves, we still achieve some anonymity but we still have a shared bank account in case, god forbid, something were to happen to one of us. My DH only gets paid 2 x a year so the savings is where the bulk of his income goes.
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2X a year????? What the heck does he do to deserve that? How the heck are you supposed to juggle and balance THAT kind of a deposit??
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Barbe: It isn't easy! He is a professional writer and that's how he gets paid. So far we have never run out but he gets a bit stressed out toward the end of the money. My income is sporadic but I always have enough to cover food and expenses-he takes care of the rent and eating out and minimal other things.
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Have you taken up some decorating jobs? You were going to do them one at a time and then I noticed a while back you said you were too busy. What's happening?
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