Great saying about depression
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Barbe: Crazy, huh? I am also sitting here drenched yet my temp is 96.8 F! When our body temp drops so low our body overheats trying to get back up. According to Steve and his extensive research (he is NOT a doctor) any surgery, injury, having cancer, stress, plain old aging--many things can cause our body to reset at the wrong temperature. The good news? Steve helps people reset for free or by donation if you can afford it. Get yourself an inexpensive thermometer if you don't already have one and start keeping a record taking your temperature every few minutes until you get familiar with how you feel when at certain temps (I can now predict almost exactly what my temp is now). Once you are able to do this you can try dressing uncomfortably warmer then you normally would. This requires lots and lots of clothes and coats and socks--winter wear. See how high you can get your temp to go up and see how you are feeling. Another test is to get into a shower as hot as you can tolerate it and see how you feel then. When I am in the shower my brain works better and my body has no pain! My body will retain a 98.6 F temp for about an hour and then it comes crashing back down to what it is now without trying to keep it up.
You will ultimately have to go off of the pills but I am betting you won't need them if you are able to reset your body temp. What I described above isn't resetting but just a test to see where your body is at. Start reading his info and let me know what you think! My friend in the UK has done it in the middle of winter with snow on the ground, although it wasn't at all easy and took here two months to do. She is also a BC sister which is how we met and she is almost completely symptom free and she had huge heart problems after chemo and thyroid issues, chronic fatigue, fybromyalgia, to name a few.
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Holy crap! I can do that!! Will I sweat even more though? Or not as much because my body will accept the warmer clothes? I literally rip of clothing when I get too hot! It drives me crazy!!!!
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Barbe: Yes, you will sweat more but only until you reset! The weird thing is, once you reset, you can dress appropriately to the weather and not to your body's wims. Again, I sweat profusely when my temp drops not when I am at or close to 98.6. The minute I drop to 98.3 I am a mess. Same as when I go over 98.6 to say 99.00-drenched!
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Wow, that is totally facinating!!! I so belive that is true. My body temp has always been off even when I was like 10 years old. I'm going to try taking my temp as well. Oh Barb - wouldn't this be so wonderful if this worked so you could lose some of those pills!!! That is so exciting.
I know my son with DS was on tons of pills but he still had a lot of difficult behavors ( I know behaviors not life and death things like heart pills) . Anyway, last summer we decided to just see where we were on everything and took him off all meds. Well come to find out there was absolutely not difference at all. Not that it helped us find something to help with the obsessive compulsive or ADHD issues but at least we found out we were giving him pills that weren't doing anything for him
Barb, how long have you been on the Oxycotin? I know I was prescribed that and it was very difficult for me. I felt awful on it, dizzy, nauseous and just really felt bad. I'm sure you have probably tried lots of pain pills if you have been doing this for a long time but just wondering...
Kate - don't worry about the lipo! I've also heard it takes a while for you to see what the true results are so you will probably be thrilled in a couple of weeks with your new body. First time a new normal will be a positive thing!. Also, as you have stayed thin your whole life you will continue to, so don't worry about that part! At least something you can check off your list!
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MJB- I read a good bit of the first link. very interesting. I skimmed the rest and was wondering - I know haven't read all... but does he address the whole thing with menopause and hot flashes.... how does that calculate into everything?
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Stanzie: My friend in the UK also went through chemo and BC--we met on a Yahoo Group right after her MX and right before mine. It took her 3 months and now her hot flashes have become much less intense since she did her reset. An instant cure for hot flashes is Ginseng. I take the Chinese Red Panax Ginseng that comes in a 30 pack for around $12 and whenever I start to heat up, one 10 ml bottle will dispel it quickly.
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Didel this is for you:
NEW PRODUCT: "Organix" Brazillian Keratin "Ever Straight" 30 DAY AT HOME SMOOTHING TREATMENT: I still have chemo curls even though my last chemo was 3/1/10. Today I am trying this product which you leave in for 48 hours. You will need a professional 450 degree flat iron for it to work best. If you feel a bit challenged, get a friend to help with the back especially. It is Formaldahyde, Sulphate & Sodium Free made with cocoa nut, avocado, cocoa butter and keratin proteins. Works best with their shampoos & conditioners to get full results. I will let you know if it works! I found it at Rite Aid $14.99. Steal!
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Their is a discussion board if you want to participate in the boards and ask questions: bodytemp.eu
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Stanzie, beside the Oxycontin (I take about 6 pills a day) I am on Hydromorphon which is a synthetic morphine. I have major pain issues....sigh. I've been on the Oxy for almost a year now. As the dosage went up, at first I would get woozy for an hour or so, but my body adjusts quickly and I drive while on it all. I don't get stoned at all and wonder how/why some people get a 'high'. It was explained that when you are in pain, the drug knows where to go to do good, but if you're not in pain it goes to your brain. Something simplified like that.
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Oh, forgot, I also take Tramadol which is another pain med but deals with inflamation. And my Cymbalta which is supposed to help the pain from FM. As you can see, I'm a mess!!!!
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Hi Barbe: I really hope you investigate the links I posted above as I think the reset could really help you. Today I started my reset so I will be your ginny pig. Just so you know, I am wearing a ski cap, wool fingerless gloves, two wool coats, a turtleneck, heavy sweats, over the knee thick sock, wool slippers and I am not sweating at all which is unusual for me!
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I'm sitting here in my office with a floor fan 2 feet from me and I'm still sweating!!!
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Barbe: Like I said, try to start taking your temp every few minutes to see where you are at. I find when I sweat the most profusely I am at either 98.3 or waaaay below 97 F. Once you can start guessing what your real temp is, you can experiment with over layering yourself with winter clothes including hat and gloves. I find when I can push myself and get to 98.6 the sweating in non existant which is like right now. I am still wearing all of the layers and I am sitting in from of a heater. BTW: it is 68 F outside right now yet I am not hot. This is the evidence that my internal thermometer is off!
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Holy crap! Next trip to Walmart gets me a thermometer!
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MBJ - so so interesting.... so are you using digital or mercury thermomoter? I read that the digital read low but gosh they are sooo much easier. Didn't really understand how you figure out the real temp with digital. Just got back from the grocery store and had to take my son with me. Always takes much much longer and no clue what all I end up with at times. Between trying to get him to pay attention and stay with me to him freaking out as there was a baby in the store( hates the pitch of cries) to non-stop talking I am totally worn out. He really isnt' so bad it is just trying in public and questions non-stop so I can't think.... sorry for rambling ...
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Stanzie: Most of the cheap thermometer are converting Celsius to Farenheit so they tend to be off. I have one of those and I also have a Vick's which is a bit more expensive but it gives a Farenheit read out without the conversion. You need to put the thermometer in your mouth for 1 minute and then turn it on to get an accurate read. I use the cheap one to compare if I think the Vick's is off. If the Vick's takes a long time (it shouldn't) I turn it off, start all over and it's usually accurate.
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Thanks MBJ!! I will investigate it almost sounds too good to be true..but I will try anything.
Stanzie I feel like that sometimes with my puppy. He is soooo territorial and protective (which is why I wanted him) when we go to the park or anywhere..he's a little angel and everyone comments on how good he is...until he sees another dog!! OMG he almost broke my wrist trying to get at this teeny tiny poodle. It can be beyond trying at times...I finally had to change parks to walk him cause i felt like everyone was giving me hairy eyeball with his LOUD barks and growls. Oh well...now he feels much more special being the only doggie at the park...no worries to him that I drive a 30 mins each way to get there when the other one was 5 mins away.
MBJ I just noticed you got the Alloderm sling on your mx side?? I didn't cause my PS said I didnt need it but as I go on I feel like my right side (mx side) is squished. Were you worried about the increased risk of infection?? I can't decide if I should care and change it. I am definitely going to give it time but I was curious if you are happy with the results.
Diane
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DiDel: I tried the Even Straight yesterday and woke up with curls today--nothing a flat iron couldn't fix. Have to leave it in until tomorrow and then I willl shampoo with their straight shampoo product. I will keep you posted on that.
As far as Alloderm goes, my PS has always used it and has never had an infection ever. That being said, Alloderm is just used as a sling for women, like myself, who had really this skin after all the breast tissue was removed. When was your MX and does it only feel squashed or does it look squashed, too? Also, you should come and join in on Exchange City thread where all of the veterans of implant recon are and you can also PM Whippetmom on Breast Implant Sizing 101 who is an expert if you are having issues. Do you have access to the Picture Forum? That's where I go all of my info while undergoing adjuvent chemo. Mine is a pretty close match and I can share my pics if you would like.
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It looks squashed. I think it looks more squashed after I wear my work out bras. I will wait for the drop and fluff, my final revision was end of December. I'm kinda over the EC thread..some people think they have become MD's and get a little testy when you don't agree with them.
I just ordered that product for $12 on Amazon. I will let you know how it works. Thanks for sharing.
Di
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DiDel: Your drop and fluff should have already happened! It took me three to four months. Did you have radiation? This can make it take longer or not happen at all and so do the gummie implants--they don't drop and fluff, they just get softer. Encapsulation can make the implant hard, like what Kate had. Again, I would be happy to send you my pics--I had MX on one side and an augmentation to the other. I think it's very helpful to see other's results. BTW: Whippetmom is the only one who's advice I would take--she has almost 30 years working in the medical research field and has an extensive medical vocabulary and can help direct you to another dr to get a second or third opinion if something has gone wrong.
$12 is a steel!!! You have to get the shampoo that goes with it for around $7 because the shampoo you use can't have sodium or sulphates in it to work best.
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Ha ha I did get the shampoo too! Yes I have a Chi flatiron. Can't wait to get it! I guess my skin is just too tight. My implant doesn't feel hard and I have massaged it it doesn't look horrible it just looks flat at the fold sometimes. Maybe its just what I am wearing. I notice no change from my latest implant exchange to now..oh well no fluff for me.
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Didel: How long did your PS expand you for and what is the difference between the expander size and the implant size he/she used? What I have learned through what my PS told me is that if they don't expand you long enough or big enough before exchange you can end up with a permanent "hamburger bun" look. I don't know if this is what you have but it was one of the first things my PS explained to me about how he was going to achieve a match to my natural side. I know that my MX side is slightly tighter and slightly smaller then my natural side but it definetly dropped and fluffed. I would only have know it though by taking pictures every week because it's kind of subtle. The only thing an excersise bra or any bra for that matter does to my MX side is leave marks in it because there isn't any breast tissue left.
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hmmmm I will ask my PS. I was definitely expanded enough and for long enough. I was filled to 800 ccs from February to September and ended up with 650ccs on that side. I have a friend whose BF is a PS at UMMC and he looked at my mx side before my final revision and he thought I should have the Alloderm sling on the mx side. My PS and I discussed the risk of infection and I wasn't sure it was worth the risk. BUT I did get Alloderm on the other side to support the implant. PS said he did a lot of pocket work to fix (it was really flat before my last procedure) I dont know maybe I am just too picky. My implant has not changed since he put it in. I definitely had no drop or fluff on either side.
Thanks for your input.
Di
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DiDel: Many PS's overstretch & put in a much smaller implants and women are unhappy with the results. All surgery runs a risk of infection IMHO. If you are unhappy after 6 months I would get a second or third opinion. If insurance covers it NOLA does gorgeous work. There is too many great PS's out there to settle.
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DiDel- Even though you may have been expanded correctly there's always a possibility your PS made the pocket too small. Are you having any pain issues or is it just the appearance? Are you wearing a really supportive bra? Right after exchange it's really important because it keeps the implants in their pockets as they're healing and keeps them from gravitating towards the arm pits. Have you gone for a bra fitting? If it's not uncomfortable but you just don't like the way it looks fat grafting may help. It made a huge difference for me. Everything looks so much better now.
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Just wanted to share this with everyone. I am taking an iodine supplement and I was curious if I could overdose taking it:
http://www.optimox.com/pics/Iodine/IOD-09/IOD_09.htm
MBJ-Unilateral MX with Alloderm Sling, Fat Grafting + Implant on natural side to match plus Grafted Areola & Modified CV flap Nipple
Diagnosis: 9/16/2009, ILC, 3cm, Stage IIb, Grade 3, 0/2 nodes, ER-/PR-, HER2-0 -
I defnitely don't have pain...implant hasnt migrated it is FIRMLY in place. I'm wondering if I had alloderm on the left side would and had no issues healing do you think I have a better chance of healing without incident. My thing was both PS's told me that if I got an infection from the Alloderm the implant would have to be removed for 6 months and I didn't even wake up from my mx flat chested on that side. I know I would never be able to handle that, serious depression would set in so I've been afraid. I will give it more time. I see my PS in August. Like I said its not terrible just not perfect ...like it was..
MBJ couldnt open your link.
Kate havent gone for bra fitting. I'm still fiting into my old bras.just a little bit more snug.
Diane
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Diane, you might not get depressed if you knew you were on the road to correcting something. I woke up totally flat on both sides 2 1/2 years ago and I still feel okay....
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Didel: Did you have that side radiated? There always seems to be complications with radiated breast tissue and if your PS was concerned there had to be a reason. That said, all PS's have different comfort levels with the Alloderm. I specifically chose my because he only worked with Alloderm and I had heard so many good things about it and he has never had an issue with it. The first BS I went to had never used it, refused to do implant recon and insisted on radiating me which I didn't need. I really hated this BS which was the motivation for finding another. That said, my MX side is firmer to the touch and slightly smaller then my augmented side. Not perfect but pretty close visually. I had two unmatched breasts before just in reverse.
Barbe: I was terrified of the impact of my inability to handle only having one breast so I opted for recon, but I have to say, once the cancer was out I was soooo relieved. Ecstatic even.
I am on my third day of resetting my body temperature. It has been gruelling and exhausting. One plus: I have Plantar Fascia in my right foot and when I got up in the middle of the night and also when I got up this morning I could walk without pain because my body temp was higher then the usual 95,6-96.8. I don't have pain in my hips or my foot at 97.4 but my thumb pain and working ability only happen at 98.6 F.
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Didel: Sorry, just fixed the link above. It seems that I double posted it for some reason
MBJ-Unilateral MX with Alloderm Sling, Fat Grafting + Implant on natural side to match plus Grafted Areola & Modified CV flap Nipple
Diagnosis: 9/16/2009, ILC, 3cm, Stage IIb, Grade 3, 0/2 nodes, ER-/PR-, HER2-0
