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Comments

  • Maureen813
    Maureen813 Member Posts: 1,826
    edited February 2014

    thanks ladies  you truly are the best of the best. I have chemo on thurs and port and pleural drainage on Friday. Bruce took the next couple of days off to go with me. Doc is on vacation so I won't know anything for a while. Needless to say I'm scared 

  • janhart
    janhart Member Posts: 292
    edited February 2014

    Maureen just now checked in here. I'm so sorry you have to go through this again. As Karen said, anything you need, just ask. Glad your hubby can be with you this week. I am close by so know that I can accompany you to any appt. Special prayers that you kick this bc stuff quick. Hugs and prayers......Jan

  • Maureen813
    Maureen813 Member Posts: 1,826
    edited February 2014

    thank you for all the good wishes. I may take some of you up on the offers cause my resources will run out eventually. Hope there is no expiration date to these offers

  • bevin
    bevin Member Posts: 519
    edited February 2014

    Maureen - as you know , I'm here.  I'm lonely now and definately need someone to help again.. I think its in my nature. The offer of help has no expiration. I'll call you in a couple days and see what I can do, bring, shop or cook for you!

  • kindone
    kindone Member Posts: 435
    edited February 2014

    Maureen,  I am so sorry you have to go through this again.  Just keep your faith and your friends and we will get you through this.  I am here for you anything you need just call, appt., talk , coffee or DRINK just call , I can sit with you during chemo. Just call  Love Betty.

  • Maureen813
    Maureen813 Member Posts: 1,826
    edited February 2014

    wow in the midst of this mess I get such a calm from all of you  I love you all so much 

  • Skigirl72
    Skigirl72 Member Posts: 180
    edited February 2014

    Maureen, I am sorry to hear you have to go through this again. You are strong and you have a lot of people to lift you up. I am thinking about you my new friend.... Hold on to everyone....

  • Maureen813
    Maureen813 Member Posts: 1,826
    edited February 2014

    So now on taxol Gemzar and xgeva

    3 weeks on one week off. Tired from long day but doing ok

  • bevin
    bevin Member Posts: 519
    edited February 2014

    Dear Maureen, do they see a need to do a liver biopsy to ensure the tumor hormonal status of your tumors didnt' change?. Just curious if that's something worth checking or if they did already. Praying for you everynight.

  • Maureen813
    Maureen813 Member Posts: 1,826
    edited February 2014

    Already did that with the bone and plan to redo on the pleural fluid too

  • karen333
    karen333 Member Posts: 2,037
    edited February 2014

    Hope it treats you gently Maureen, you had an exhausting day.  Sending prayers that tomorrow the doctor's hands are guided to alleviate any pain.  Sleep well, love Karen

  • Maureen813
    Maureen813 Member Posts: 1,826
    edited February 2014

    Right back at you. Karen. Talk soon.

  • Maureen813
    Maureen813 Member Posts: 1,826
    edited February 2014

    Thank you all for the lovely cards and mass request. You bring tears to my eyes. Really tired yesterday. Slept most of the day away. My friend woke me this morning wanting to enjoy a beautiful sunny morning. As I look at the sun reflecting on the ice, I'm thinking of the wonderful friends I've made on this site

  • Maureen813
    Maureen813 Member Posts: 1,826
    edited February 2014

    stay warm this week another vortex on the way brrrr

  • SusanHG
    SusanHG Member Posts: 455
    edited February 2014

    Maureen-thinking of you and sending out my own offer of any help you need. Either a ride to an appointment, a meal or two to get you through the tough days, or just someone to talk to. Hoping for the strength you need to get through all this! Sending healing to you as we'll...please rest as much as you need and call for ANYTHING at all. Love you!

    Susan

  • karen333
    karen333 Member Posts: 2,037
    edited February 2014

    Dear Maureen, all these offers come with no expiration date, feel free to ask for anything that is needed, you are always in my prayers, top of the list.  One morning we will do coffee and Mu or Amaretto in my case and see where that conversation takes us, just pick the day, I am game, sending love, calming thoughts and heartfelt prayers your way, love, Karen

  • Maureen813
    Maureen813 Member Posts: 1,826
    edited February 2014

    Thanks ladies. I went to KGB today for a wig.

  • LindaJD
    LindaJD Member Posts: 134
    edited February 2014

    Dear Maureen,

    I'm sorry you have to deal w/ this horrible disease again.  You are fortunate to have a husband that supports you.  Try to rest as much as possible.  I'm sending prayers to you, hoping you will find the courage & the strength you need right now.  

    You mentioned about shopping for a wig.  I know @ Pluta Cancer Center where I go, when I first started my treatments, I received a huge handbook that listed several resources, which included places offering FREE wigs.  You might want to check into that @ your treatment center.

    Since I live in Rochester, all I can offer is if you need someone to talk to, please feel free & call me.  

    Take care of yourself!

    Love, Linda

  • Maureen813
    Maureen813 Member Posts: 1,826
    edited February 2014

    Thank you Linda   

    All thank you for the beautiful cards and offers. I am truly blessed 

    Today was disability papers drop off and off to ent specialist  have to have further ear testing for ringing in my ears. Napped all afternoon. So must be getting ready for round 2 on thurs  in sick of all this already

  • Maureen813
    Maureen813 Member Posts: 1,826
    edited February 2014

    Ps. So glad to see you posting again Linda. 

    So we appear to be in for another polar vortex too. Wth is this Antarctica ?  Wish there was something else to talk about than weather and chemo I'm tired of both. 

    How is everyone doing? 

    Btw can't make the 8th crap it's just not in the cards 

  • karen333
    karen333 Member Posts: 2,037
    edited February 2014

    Definitely tired of this polar vortex, I feel like a polar bear hibernating.  I just grab a book and snuggle into a few blankets with a SAD   light bulb they sell at Home Depot turned on, only venture out on short have to trips.  How many of you ladies are in for the March 8th at 1 o'clock, I count Betty, Jan, Cheryl, Susan, me, bevin and Debbie how about you?  I'll make reservations as soon as I hear from you.  Maureen - you will be dearly missed, can we bring you a take-out meal or desert, we will send the healthiest person in the bunch to deliver?  love, Karen

  • bevin
    bevin Member Posts: 519
    edited February 2014

    I am sorry, I can not come on the 8th. I have a noon christening to attend and then a friends birthday party in the evening. Have fun without me though and I'll see you all soon.

  • Skigirl72
    Skigirl72 Member Posts: 180
    edited February 2014

    Possibly.... I will check tomorrow evening. Go ahead and make reservations. I will chime in and confirm if I can come...

  • DC197
    DC197 Member Posts: 58
    edited February 2014

    If some of you have not heard this news, I thought you may be interested ....

    BATAVIA, N.Y. (WIVB) – Rochester General Health
    System is forming a partnership with United Memorial Medical Center that
    will make the Genesee County hospital an affiliate of Rochester
    General.

    Officials revealed the joint venture on Thursday, saying it will
    allow them to expand services at hospital in Batavia. Over time, they
    say residents will be able to stay closer to home to get medical care.

    United Memorial will maintain its name and a local board after the affiliation is formalized.

    United Memorial CEO Mark Schoell said, “The real reason for choosing
    Rochester General Health System, first of all, we are very culturally
    aligned with Rochester General Health System. We have the same sense of
    community and the same sense of being a community asset.”

    The two organizations have worked together for the last five years in
    several areas, including cardiology, pathology, and surgery.

  • Maureen813
    Maureen813 Member Posts: 1,826
    edited February 2014

    that's great news. I know some of the women on this site who receive care from both places. 

  • bevin
    bevin Member Posts: 519
    edited March 2014

    Interesting news on Rochester.. seems like its a good move.

    Hope eveyrone has a good weekend.. time to start wearing ' O the Green, and cooking Corned Beef and Cabbage..!!!  St . Patty's day around the corner, Fat Tuesday coming .. many good eating events until I need to give up sweets for Lent!! YUM

  • Maureen813
    Maureen813 Member Posts: 1,826
    edited March 2014

    st. Paddy's day. One of my favorite holidays. I love the boiled potatoes too. Which one do you cook Bevin the brisket or round?  I like the brisket with the season pack that wegmans stocks. The smell of boiling corned beef and cabbage yum  when is the parade this year?

  • bevin
    bevin Member Posts: 519
    edited March 2014

    I get the one w the packet from wegmans as well and love the seasoning packet.Soo easy. I like Yukon gold potatoes and carrots. .. I'm not a cabbage fan but husband is so I will generally cook it to add to the flavoring.  

    Mmmmm I may need to go buy one at wegmans tomorrow now. My mouth is watering :)

  • kindone
    kindone Member Posts: 435
    edited March 2014

    I hate corned beef!!! 

  • Maureen813
    Maureen813 Member Posts: 1,826
    edited March 2014

    Betty !!!!!! WHAT!!!!!!! Lol. Just suck it up hehehehe

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