OMG They Found the Cure for Stupid

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  • pixiemuse
    pixiemuse Member Posts: 20

    hahaha yes it was chocolate with chocolate shavings. But the saving grace was a brown pillow case. But the laugh was well worth it. !!!! thank you... Cara

  • Eliz1973
    Eliz1973 Member Posts: 34

    duckyb1- heroic, agreed.... Proactive is a good description... In any event night and day.... Honestly, I have said looking back over the past few months, the surgery was the easy decision. Doing all of this everyday is the hard work. (I say that not to hurt feelings or diminish surgery; it was "no walk in the park!" With surgery the Drs were cleaning out the cancer. With all of these treatments we are walking though an insurance policy that may or may not pay off in the long run. Night and day....

    Prayers for all,

    Elizabeth

  • duckyb1
    duckyb1 Member Posts: 9,646

    Eliz.....agree..........the surgery was not bad........I even came through Rads unscathed but the Femara/Letrozole took a toll on my that I can't even begin to explain...finally after 4 of the 5 years I was to stay on it I quit...........I felt. QOL was better then quantity.........it beat me up............after going off it I felt better, but was dumb enough to try. Arimidex next..............well I got worse SE's from that one, and some never went away...........at least after stopping Femara I felt so much better...........should have never tried Arimidex but wanted to give myself every chance by doing it..........still have some of the SE's......but not as bad as when I was on it..........I stopped Arimidex after 1 month, and still have a bottle full which will get thrown out..........

    So we all have our stories my experience with AI's was a bad one.....some do well......most don't.......can't kill your estrogen, and not expect to pay the price.......

    One positive.......my thinning hair did come back pretty full again, which is good......hugs, and nice to meet you Eliz........
  • proudtospin
    proudtospin Member Posts: 4,671

    morning, we'll got my mo appt on monday, i am considered long time follow up as it is 8 years and I know that sounds good and it is. Thing is everything bad this last year has been on my cancer side, all the stenosis and even the dumb pulled s'more shoulder thing this last week. Have had lots of dumb pains on my side so heading to crazy town for a couple of days

    Hoping I am over reacting, would welcome some folks in my pocket monday

  • Eliz1973
    Eliz1973 Member Posts: 34

    The fact that this disease is so individual to each of us makes it more difficult to fight for patients and Drs. This is an uphill battle across the board. Completely dreading antiestrogen Treatment!

    Prayers for all,

    Elizabeth

  • pixiemuse
    pixiemuse Member Posts: 20

    I live in crazy town "proud" stop by for coffee please Happy!, I'm the corner house off Lock Me Up Lane just before you get to Looney Bin Hill.

  • proudtospin
    proudtospin Member Posts: 4,671

    pixie, i always try to focus on a treat after my mo visits but this time just trying to decide if I need my cane to walk back to my docs office monday, geezer but coffee sounds good to me

  • karen1956
    karen1956 Member Posts: 4,622

    well said Ducky!!! Being a "previvor" is very different than being a survivor!!!! Maybe its not a choice they wanted to make, but at least it was NOT cancer (yet)!!!

  • Lucy55
    Lucy55 Member Posts: 2,703

    Morning all :-)

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  • proudtospin
    proudtospin Member Posts: 4,671

    Wonder if that is the new baby eagle

  • SlowDeepBreaths
    SlowDeepBreaths Member Posts: 6,702

    So good to see you posting Alyson. You've been missed.

    This one is for you. Cure guy???

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  • Alyson
    Alyson Member Posts: 3,737

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    Gus the Asparagus man in the UK. Maybe this is the cure guy and here's his car. image

  • proudtospin
    proudtospin Member Posts: 4,671

    love the cure guys car

    Me hanging this morning and heading to my onco,visit nervous really for the walk from car, gonna do valet service and take the dang cane

    See you all after

  • pixiemuse
    pixiemuse Member Posts: 20

    Good luck proud... Good morning all..Just back from the gym I'm so tired of walking on their track, I feel like I'm on a hamster wheel. But it's the only thing that is keeping me somewhat sane these days.


    I'm getting ready to grind up some Jamaican Blue Mountain coffee beans any takers for a cup of coffee? I sure could use the company...

  • SlowDeepBreaths
    SlowDeepBreaths Member Posts: 6,702

    Good lucky today Iris!! I'll be hanging in your pocket!!

    Pixie, I will keep you company!! I don't drink coffee but I can pretend it's tea. :)

    hahahaha Alyson!!!

  • zjrosenthal
    zjrosenthal Member Posts: 1,541
    • Well I guess I'll be booking a flight to the UK to get the cure ride in the asparagus car. Teehee. Love, Jean
  • proudtospin
    proudtospin Member Posts: 4,671

    well back from onco, al

    Fine on that end but she thinks I should talk to someone about managing my pain better so got an apptw with spine guy for tomorrow, sitting on my butt with heating pad now


  • Lucy55
    Lucy55 Member Posts: 2,703

    PTS.. Great news that your ONC visit went well. :-) I hope the spine doctor can help you with the pain !


  • pixiemuse
    pixiemuse Member Posts: 20

    I guess my bad day just went down the crapper the rest of the way.. I went to join a triple negative breast cancer support group on FB and it showed pending then I refreshed my page and it disappeared. FB help said the group is there but that they must have blocked me. Some support group that is. And all I did was click join the group. I guess that calls for a root beer float.

  • karen1956
    karen1956 Member Posts: 4,622

    Pixie...that just plain stinks!!!

    Alyson....the asparagus car reminds me of the flinstone mobile for some reason, even though they don't look anything alike...either that or the log car for the log flume ride at amusement parks....

  • pixiemuse
    pixiemuse Member Posts: 20

    OMG yes Flintstone mobile...

    The finally got me in that FB group they said was an ooops since I have my wall locked down. Not sure Im happy to be in there... I kind of got depressed after reading posts...

    Coffee, Tea, or brownies anyone? I'm serving....

    Cara

  • proudtospin
    proudtospin Member Posts: 4,671

    pixie, maybe ct town is better for you

    Back from spine doc visit, he is basically down with my current plan, he clarified the meds side effects and I am going to continue my basic plan for a bit it is up to me on when,to go to the shots,

    Feel better now but the social worker at the cancer center did call me back as my onco asker her to do as I was so set

    Gees i a, no good at this shit but spine guy says I can try thr shot and stop if they do not work anyhow

  • SlowDeepBreaths
    SlowDeepBreaths Member Posts: 6,702

    Good news Iris. Glad the spine doc agreed with the plan. Tough decision about the shots.

    pixie, Sorry about the FB group. I'm a sucker for brownies.


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  • zjrosenthal
    zjrosenthal Member Posts: 1,541

    Love the dog guy. I am looking forward to being able to sleep in that position eventually after having my hip replacement last February. Love, Jean

  • Lucy55
    Lucy55 Member Posts: 2,703

    Slow.. Hahaha 😃

  • Lucy55
    Lucy55 Member Posts: 2,703

    A cat in pants 😱😃

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  • SlowDeepBreaths
    SlowDeepBreaths Member Posts: 6,702

    hahahahahahaha Lucy!!

  • SlowDeepBreaths
    SlowDeepBreaths Member Posts: 6,702

    Happy Birthday Alyson!! We love you!!

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  • Lucy55
    Lucy55 Member Posts: 2,703

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  • gmafoley
    gmafoley Member Posts: 5,978

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