Any 40-ish survivors?

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Comments

  • christine47
    christine47 Member Posts: 846
    edited May 2012

    Kiwimum, I am so sorry for your loss.  How unfair this disease is, I am thinking of you and praying for peace in your heart today.

  • lrr4993
    lrr4993 Member Posts: 504
    edited May 2012

    Kiwi - I am so sorry.  32 years old is far too young.  It makes me so sad.

  • bdavis
    bdavis Member Posts: 3,192
    edited May 2012

    Debbie.. I can't find you either.. friend me at Betsy Schreier Davis

  • sarah1968uk
    sarah1968uk Member Posts: 327
    edited May 2012

     I echo everyone else's thoughts, Kiwimum. So sorry for the loss of your friend.

     Sarah xx

  • bgirl
    bgirl Member Posts: 435
    edited May 2012

    Kiwimum - I think what we share here is life.  Life has its ups and downs.  Happy and sad.  I think is good that we can share it all with people we know will understand.  So sorry for the loss of your friend.  Life really isn't fair sometimes.

  • odie16
    odie16 Member Posts: 1,415
    edited May 2012

    Kiwimum  - my heart goes out to you. I hope your memories will help comfort you during the darkest time.... Hugs.

    Debbie - I am so with you. Why can't it be Friday already? Dang!

  • kiwimum
    kiwimum Member Posts: 460
    edited May 2012

    Terryberry - we are definitely too young for this.  We are supposed to die of old age in our Eighties or Nineties ... and I'm sure we will. I'm planning to!

    There are some great survivor threads in the Stage Three section which perk me up when I need it.  Five Years Out is one of them where you get ladies who are 10+ years posting.

    With all the advances in medicine I wish they'd find a cure. Easy to say, hard to do.

  • chantal10
    chantal10 Member Posts: 34
    edited May 2012

    Hi! I'm a newbie here! I was 40 at dx. I turned 41 last week. I can't figure out my new normal. I am always pissed off, grouchy and in pain. I do not want sex. I just want to be by myself. My 2 young children are busy and demanding. I feel that i have totally lost control. I'm tired yet not sleep. I'm depressed. I was proud and feeling for a few weeks at first, now i feel like I'm sinking. I want to be happy!

  • sagina
    sagina Member Posts: 849
    edited May 2012

    Welcome Chantal. I totally understand your frustration. I lost all control at work....and I was the one IN control all the time at work.  It's like everyone turned in to little kids without a parent to discipline them.  I felt taken advantage of when at every turn I was told "but you said" or "you never told me that" knowing darn well I was having memory issues.  Well pass the hallelujah cause the memory is getting better and I'm back to answering them with, but yes I did tell you, remember you were on your personal phone call and I was standing at your desk.....Yep, I'm back.  I hope things get better for you quickly, from looking at your dx and surgeries you have been thought a lot.

    Kiwi, I am so sorry for your loss. Cancer sucks.

    On the we are very young topic - when I had my thyroid biopsy the radiologist asked in disbelief if I was really a breast cancer survivor...then he said, but your so young. Does the medical profession still think you have to have had hormone replacement therapy to get breast cancer? I've met so many women younger than me battling this beast. Texasrose on this board is 28 with two small children and stage four. No one believed her that she had a lump, they kept discounting it to breast feeding.  She has continued to hold her held up and smile though this whole thing. I had the privilege of meeting her when a few of us got together from the boards.  

  • Eema
    Eema Member Posts: 403
    edited May 2012

    Girls, I'm back in the ER. Doc didnt like how I looked. I'm sad. Tomorrow is my birthday!

  • momx3
    momx3 Member Posts: 126
    edited May 2012

    Welcome Chantal!!!

    Eema, I hope they figure it out!!!

    Whoever feels depressed, can't remember and just plain OUT OF CONTROL, don't feel like you are alone.... Yah right!  I truly wish I could have ALL of you kicking me in the butt when I start feel like I'm in a bucket!!! My daughter, now that she is home, ignores me until I stop saying I'm stupid for not remembering things, inlcuding what I just said or what just happened Yell SOO AGGRAGATING!!! 

    Tomorrow is the muscle/nerve test. UGH!!! Did I ever mention that I hate drs & needles???? Well guess what? Loraz, here I come!!!

    I will look you all up on FB tonight and see if I can find you!!! 2 of my kids are hm and so is my niece, YAH!!! tech help :)

    Have a great.... WAIT... what comes next???? LOL

  • chantal10
    chantal10 Member Posts: 34
    edited May 2012

    Thanks for the support ladies! It's so nice to know that I'm not alone in the lack of memory dept. I have had a friend recently upset about my not returning her phone calls in a timely manner, I plain and simple kept forgetting to call her back. People/family think everything is back to normal now and it simply is not true.



    Does anyone have experience with fat grafting? I am concerned about disrupting other body parts to improve my breast area. Specifically, does it deform or mishape or leave unsightly scars from the donor area, let's say from the thighs or abdomen?



    Happy birthday Eema! Fellow Taurus girl! :)



    Thank you!

  • burley
    burley Member Posts: 248
    edited May 2012

    Welcome Chantal!  Wonderful group of ladies here :)

    Eema-I'm so sorry you're back to the hospital!  Ugh.  No fair on your birthday-I hope they don't have to admit you.  If they do, make someone bring you cupcakes.

    I was posting to our group on Facebook, and here's what I have to say about nipples:  go with 3D tatts.  These nipples of mine are "on" all the time, and it makes it hard to wear a tight or light colored shirt.  So I end up wearing a lot of black loose shirts.  I can't wait until my kids go to bed at night so I can put on a tank top.  Just my opinion.

    When I started this group, I was still having sex on a regular basis.  That sounds funny to say, but it's just you girls.  As time as gone on over the past year, we are hardly having any sex at all.  My fault.  I have absolutely no desire-damn forced menopause.  My hubby has been really patient, although he kids me about it every couple of days.  Like right now, I broke my wrist on April 2nd, and we haven't had sex since.  I honestly don't know when the last time was.  Poor guy. 

  • kmur
    kmur Member Posts: 849
    edited May 2012

    Hi Girls,

    Eema..Hope you are home so you can wake up in the morning on YOUR birthday in your own bed....I hope you are better.

    Kiwimum...I head to the stage 3-- 5 years out thread too sometimes. Can you believe the last one 7 years out with a huge tumor and horrible path report...and she is doing great. It does my heart good,but makes my heart ache for the girls like your friend...sometimes all this BC stuff seems far away and sometimes not.

    Welcome Chantal, Some of us  here have had fat grafting ..some twice. I will most likely have another round soon. I had fat taken from an area above the rear ( kinda love handle). I have no signs/scars. The fat was placed around the implant to give more shape. I had nipple/areola surgery with a skin graft taken from the bikini line and they look very natural, I am pleased with the result. I do still have some rippling but it is minor. With time, I think you will feel like you again. The livestrong program at the Y was a real help for me to begin to get my body/mind in the right place.

    I have to tell you all a funny story about my increasing goofiness ...I took cookies to my new co workers. I was getting ready to leave and one of my co workers (who makes the most beautiful flower arrangements and is difficult for me to understand,as she speaks Spanish and I wish I could) ANYWAY...She asked if I was leaving and I said yes..so she said "see you later alligator"  and....in my George Bush moment ...I said "See you gater alli-later" What???? Oh gosh, somehow all that just could not come out correctly...I felt like a dingbat ( again)

    anyway...hope you all are doing well tonight,

    Kim

    Have a good night you all 

  • momx3
    momx3 Member Posts: 126
    edited May 2012

    :/ So I can't find you on FB Kim.

    According to FB, you should be able to find me at www.facebook.com/jimdeb86

    Hopefully that will find me!! I hate being lost!!! LOL

    OK, time for ambien, although I might already be headed that direction.

    GOOD NIGHT!!!

  • kmur
    kmur Member Posts: 849
    edited May 2012

     Happy Birthday Eema, Hope you are much better today....it is too early to toast ( drink I mean) LOL...later though......I will raise a glass and wish for only good health and just all good things.

    Love to all,

    Kim

  • burley
    burley Member Posts: 248
    edited May 2012

    Happy Birthday, Eema!  Let us know how you're feeling :-)

  • Eema
    Eema Member Posts: 403
    edited May 2012

    Thanks for all the birthdays wishes ladies! I'm home and weak, but feeling a little better.



    Going to take a nap.



    Xoxox

  • kiwimum
    kiwimum Member Posts: 460
    edited May 2012

    Happy Birthday wishes Eema. I'm so happy you are home and will join Kim to raise a glass to you! Here's to good health!!

  • momx3
    momx3 Member Posts: 126
    edited May 2012

    Hmm, I just read our forum<<<<< We have a growing friendship during treatments too!!! LOL

    Happy Birthday Eema!!! I hope you are feeling better!! Did they evr figure out what was going on???

  • odie16
    odie16 Member Posts: 1,415
    edited May 2012

    Happy Birthday Eema! Hope you're feeling better!

  • chantal10
    chantal10 Member Posts: 34
    edited May 2012

    Happy birthday Eema! I hope you are sleeping soundly and get this note tomorrow.



    Burley, thanks for the info on the nipples. Do you regret getting them? Did it make the reconstruction feel more complete? I love not having to deal with wearing a bra at home cuz the no nipple, but when I look at myself with out nipples I feel strange, kind like having a face with out a nose. Kinda. Sigh. Anyone else have any nipple news? Ha!



    Kmur, thanks for the fat grafting info. Would you say that you are pleased with results and suggest it? There's been no comprimise in appearance of fat donor area? Part of me, a huge part, just wants to leave things be if only to avoid the trauma of another surgery. The thought of coming out and off of anesthesia makes me shiver... Yuck!



    Kiwimum, I love your name! I want to eat you up! :)



    Sagina, my sister's name is Gina. :) She is 38 and went for her first mammogram early in my honor and all looks normal and clear, phew!



    Momx3, hi! I know what you mean about needing a kick in the arse. I was listening to myself talk today to 2 of my mom friends and I just wanted to tell myself to stfu! I feel like my mommy friends (my kids are 2 and 4 years old, hence "mommy") that I see almost daily are so great and supportive but i feel like everyone is ready to see the "old" me again if only to make them more comfy around me, but unfortunately I don't know where that person is anymore... Here I am again, wah, wah, wah, wah. Like Charlie Brown's teacher talking! Lol

  • joanneasiata
    joanneasiata Member Posts: 305
    edited May 2012

    Hi there ladies I'm 47 dx 3 yrs ago I'm now on 6 mths visits with my onco and on tamoxifen and now in the middle of doing ct scans pelvic region ultra sound and full body bone scan been having trouble with hip so I'd say after this and all clear results I'll feel a bit more free to finally get on with my life it's hard to move on and not to be scared that it's going to come back I would like to hang here from time to time and get to know you lovely ladies a bit more

    Jojo

  • momx3
    momx3 Member Posts: 126
    edited May 2012

    Chantel, I know how you feel (CRAP<<<< tears) about wanting to be ME. I don't even know who me is. Guess that in my mixed up memory places...LOL

    One day we WILL look back at all this andit will truly be a memory that won't be forgotten, BUT one that will show just how strong we can be!!!!!

  • sagina
    sagina Member Posts: 849
    edited May 2012

    Hello moderators. Can you please add a like button to the comments one day? Sometimes there just aren't words to answer back, but a little check mark "like" lets us know others get it.

    So for now, like, like, like, like, and one more like. You women are fantastic. 

  • kmur
    kmur Member Posts: 849
    edited May 2012

     Good Morning,

    It has been just beautiful for days here in Kentucky. Getting ready for graduation/vacation.

    Chantal...I am pleased with fat grafting.  It did not leave any indication from donor site.  For some ( me) additional grafting may be needed. Before I forget, wanted to ask, have you heard of the patch for surgery nausea? I also would become very very sick post surgery. They began using the patch that goes behind the ear ( for mine anyway)...huge improvement. I can not remember what it is called???

    Hi JoJO ..welcome to this group of great ladies. They are funny...and one never knows what the next topic may be. Good luck with the scans. I really can relate to your post....think that is why I am still here. I am two years out as of April 12th.....I think most people think I am all done with this BC business..and are ready for me to let go....I am not holding on to it,but have found a group of people who know what I think ( if that makes sense) so....I know what you think. I hope we can help and listen!!

    Take care girls..I am working today. Lisa...I hope your flowers are still purty...LOL

  • lrr4993
    lrr4993 Member Posts: 504
    edited May 2012

    Good morning ladies.  Laying here trying to drag my ass out of bed.  I figure posting here is good procrastination of actually moving my body.

     Kim - so far (two days) my new flowers are still very pretty.  This is one day longer than the last set, so I am feeling pretty good about it.  LOL.  I think the miracle gro was the culprit.  This type of plant is supposed to grow fast into hanging vines with hundreds of little flowers.  I can't wait!!  I will post progress on FB everyone once in a while.

    I have two weeks left until trial.  Working every single day at this point.  Made time for dinner with a friend last night and dinner tonight with two others, so at least there is a little fun going on.  

    I know what you mean about never really getting over BC.  99% of the time it does not even cross my mind anymore.  But still, a day does not go by that I don't think about it.  It is usually only for a few seconds, but it is still there.  Now that my spanx cami/no bra approach as COMPLETELY done away with my rib pain, I think about it a lot less.  For a while there I could not help but think this stuff was all in my ribs.  Other than those few brief moments, I think I am still my old self.  I look the same now; act the same.  The only difference is no period and old lady aches that I presume are from the period loss.  And more doctors appointments.  I will apologize in advance for say this, but I thank God I was able to do a lumpectomy.  I think the entire experience would have been far more traumatic with a mastectomy.   

    Well, I am going to get up and enjoy breakfast on the porch with my happy new plants.  Then it is off to work. 

  • blueyez
    blueyez Member Posts: 73
    edited May 2012

    Hello everyone!  Been weeks since I've been on.  So crazy busy. 

    First, welcome to all the new ladies!!  Hate that you all have to jump in our boat, but always glad for the company :)

    Happy Belated Birthday Eema!

    Kiwi, so sorry for your loss.  It is so scary when we know someone that loses their battle with this crazy disease.  For me it brings the worst fears to the surface.  (((Thinking of you!!!))))

    Chantal, don't mean to jump in mid conversation, I like Kim, had fat grafting and nipple reconstruction.  The grafting was 2 weeks ago with good results.  I had atrophy down to the rib cage all around the left implant, definitely helped plump up the caved in chest appearance, but my PS says the fat can melt and be absorbed by the body so it can be an ongoing process to keep things looking normal.  The donor areas were very sore and the bruising was bad, but everything is healing well.  I agree with you with the nipple thing.  I felt like Barbie without my nipples and was thrilled when I got them.  I still haven't had the areola tattooing yet but it definitely makes me feel a lot more normal with the nipples.  My PS used my breast skin to create the nipple, so no donor site and no pain, because I really don't have any feeling across my breasts anymore.  But definitely glad I did it!

    just noticed I'm a page behind so I'll post this and read on a little more.

    love and hugs, tracy

  • blueyez
    blueyez Member Posts: 73
    edited May 2012

    Have to agree, sometimes it feels like I lost the old me, but somehow maybe a better me has emerged.  I am almost a year out from my diagnosis.  I had to have a dmx with tissue expanders, so the last year has been full of surgeries, but full of blessings too.  I am closer to my family, I've learned not to knit pick at my kids about the little things and appreciate my kids, husband, family and friends so much more!  I know the road is so rough when your going through this crazy cancer thing, but time really does heal all things.  I hardly think of bc anymore either, thankfully!!!  I've tried to turn everything into a positive.  I just had a fundraiser yesterday at my house for the American Cancer Society Relay for Life I'm doing in June with a fellow cancer (kidney) survivor and my 2 best friends (Team T n T)and raised almost $1000 and nearing $4000 for our team total.  Here's the link if anyone wants to read my story or donate:

     http://main.acsevents.org/site/TR/RelayForLife/RFLFY12NE?px=26903882&pg=personal&fr_id=39735

    Momx3, you are so right!!! we are stronger than we ever know!!

    Anyways hope to be back posting and checking in more often with the fundraiser behind me.  So much work, but so worth it! 

    have a great sunday!!!

    tracy