Any ladies from WISCONSIN??
Comments
-
Thanks vln and zogo for the info. I should probably get on a calcium regimen.
Vln- you are probably right about the isolated tumor cells putting me over the edge into the chemo group. I have an aversion to chemo beyond the normal dislike. My mom, after a lumpectomy and a single lymph node involved had her first round of chemo in August 2007. She wasn't feeling well but thought it was just how chemo made her feel. Finally, the Saturday of Labor day weekend, she went into Urgent care. Turns out, she had a major infection. By that night, she was on a ventilator. She died Monday morning. I had just spoken with her Thursday. I made it to FL in time to say good-bye, but it wasn't the good bye I envisioned. She was 71.......... and a very young and energetic 71. My girls were 4 and 6 and don't remember her. They were her only granddaughters.
Crying now.........it's still hard. Thanks for having a place to let this out.
0 -
I'm so sorry, lifeisgood. I lost my mom 6 months ago. I am missing her something fierce every day.
0 -
Zogo-
I'm so sorry. 6 months ago is so recent. I still think in terms of life "before Mom died" and "after Mom died."
For me, time has helped immensely. I still have moments when I'm sad and really miss her. Mostly though, I have many happy memories. I try to keep her memory alive with my girls by talking about her, and funny things she would say. I also have 4 siblings and we all love to share our memories.
Not sure of what, if any, belief system you ascribe to, but I believe in my mom's energy and eternal presence around me. It helps me.
Be good to yourself.
0 -
Zogo; I got a Vit D supplement that has K2 in it. Having a bone density done in December, so I'll be eager to see if it helps.
Lifeisgood: Are you seeing a specialist in Madison?
The Arimidex hasn't been too bad for me...switched over from Letrozole mid June. The hot flashes aren't too often, but they're killers. Worse when the weather is humid. My right hip hurts, but it always did.
0 -
lifeisgood, thanks for your kind words. They made me cry (again). My DD suggested we buy waterproof mascara for the funeral. 6 months later, I still need it b/c I never know when I might cry. It is getting a bit easier with time.
Nancy, that supplement is great since you also need Vitamin D3 with the K2 and calcium.
0 -
Zogo- sorry for the tears.
I hope your days get better.
Nancy618 - I'm not yet seeing a specialist but I have a consult at UW in early September, after the results of the oncotyping are done. I want to start taking something to reduce my bone loss during treatment. I've seen some of your comments and Zogo's about ensruing there is K2 in the supplement. Is there a name I shoudl look for? Can I buy it anywhere?
Thanks for all the wisdom!
0 -
((zogo)) sorry for your loss. Six months is so recent. Waterproof mascara is a good idea.
((lifeisgood33)) sorry for your loss as well, even if it was ten years ago. Anniversaries are hard.
0 -
zogo and life is good, sorry for your loss, recent or not, it still hurts.
Well, things have been pretty weird for me this last month or two.
I've needed an ultrasound for my kidney, one for under my arm, and a PET Scan among other things.
So, Bad News is/Good News is
(BN)Oncologist finds kindney acting up sends me to my Primary care pulls me off my diabetes meds, my blood pressure meds, and my anti inflamatory
(GN) found it before major damage is done
(BN)Ultra sound because of above, and my kidney still hurts
(GN)ultrasound showed nothing wrong
(BN) ultrasound of underarm shows weird node
PET Scan ordered
(GN) PET shows no metateses.
(BN) PET scan shows KIDNEY STONES?
(GN) Kidney stones are why my kidney hurts. LOL
(BN)I started on insulin shots. 1x a night
(GN) my numbers came down a bit
(BN) Numbers not down enough, so Insulin at mealtimes too
(GN) I'm now taking 6 less pills a day.
Life is fun! LOL
This explains why Ive been out of touch.
On the fun side, the family farm got a certificate for its cenntenial year at the fair.
0 -
Looks like a fun group moonflower! Congrats on the centennial celebration!
Glad you are able to look at the good with the bad. We always have to consider the upside. Thanks for the reminder!
0 -
((Monica)) you've had a busy summer G&B. Congrats on centennial! Is the pic on yr shirts of the founders?
0 -
I'll echo badger's question about the folks on those centennial shirts - since becoming a genealogy nut in the past couple years, I've also learned to value vintage photographs! We made a research trip to New Ulm Minnesota earlier this summer and found some relatives in the files of the historical society who sat for portraits so long ago. Love the old dresses and hairstyles too. Wonder what people in the future will think of us...
0 -
Vytautas and Barbara Guokas0 -
Sorry it took me awhile to reply. Since I was here, passed another stone and now have the flu or a bad cold, with stuffy nose, headache and fever. I cant catch a break.
But so I get some sympathy, heres a pic of the latest stone. I sure hope its the largest one... LOL
oh, the glitter is actually my sink, i wasnt decorating my kidney stone for you! LOL0 -
OUCH0 -
((Monica)) it's been a helluva summer! Thanks for sharing the pic of the family farm founders.
0 -
Monica sure has her grandpa's smile!
All pathology photos should have some golden sparkles in their background...
I drank another glass of water in your honor
0 -
LOL! Finally feeling better. Only 2 weeks of feeling like a truck got me. Ugh. Probably hit me so hard because Im so depleted from all the fun Ive been having. LoL.
Hope everyone else is doing well.
0 -
Just noticed Nancy is from Sussex, a little north of me in Waukesha county - sent her a private message regarding our weekly Encore support group which began originally as a YWCA program in the late 1970's.
This warm dry weather causes me to think summer is returning instead of ending. Monica, it will be autumn soon so it's tme for serious things: no more fun for you (unless you want another kidney stone!)
0 -
ok. I finally feel better after another 2 week ilness. Ugh. Then my DH git sick. Ahhhhhhh!
But finally feeling better. LOL
0 -
hi all, gosh it was beautiful here today. Is anyone participating in this event in downtown Madison next week?
When?
The Race²: It Ain't Heavy, it's 350 yds Run/Walk will take place Thursday, October 26th, 2017 at 5:15 PM. Check in at 4:30 pm, with Cool Down at 5:30 pm.
What?
Enjoy the view of the capitol as you run or walk around half of the square, beginning at The Coopers Tavern and finish at Brocach Irish Pub & Whiskey Den!
The sights of State Street, West Carroll Street, West Washington, workers heading home, along with a pop of costumes!
Costume Contest: Best Race Outfit!
Any type of racing outfit, examples: Running, Car Racer, Horse Races, Derby, TrackThis is the inaugural event with proceeds from Race²: It Ain't Heavy, it's 350 yds Run/Walk will benefit two organizations:
Breast Cancer Recovery: For 20 years, the Breast Cancer Recovery organization has never wavered from its unique mission of helping breast cancer survivors heal emotionally by offering retreats designed to both inspire and comfort.
Wisconsin Women in Government: A bi-partisan volunteer organization that recognizes and supports women who choose to pursue a career in government by providing scholarships as well as educational, mentoring and networking opportunities.
Where?
The Coopers Tavern check in begins at 4:30 PM with the cool down of snacks and drinks at Brocach Irish Pub.
http://www.bcrecovery.org/events/EventDetails.aspx?id=1007847
0 -
Well, cold damp conditions have replaced our long stretch of sunny warmth so I guess it's time to think about getting Christmas lights up outside! Trouble is, leaves are clinging tightly to most of my trees so there will be more raking needed before the snow flies...
The initial round of orchestra concerts now behind us means rehearsals are underway for seasonal programs which all occur during the first ten days of December. Hope everyone is staying healthy. Got your flu shot yet?
0 -
Cold rain is my least favorite weather! I should have gotten the lights in the bushes already, but was fooled by the nice fall we had.
Keep us posted on your holiday concerts, I 'd love to get to one some time :-)
No flu shots for me, nope.
0 -
-
Yes, she will be missed. Such an inspiring woman, and so very talented! Nancy Zieman went to Stout, and i know 2 of her dorm mates, and they said she was as nice as could be, even way back then.
0 -
im so glad to see my thread going and thriving. Im almost 7yrs from diagnosis. I had tamoxifen side effects so had to stop it. I developed uterine polyps and genital skin tags. I had a uterine ablation procedure. Ive had a multitude of health issues. The worst being open geart surgery 10 months ago. I still fear cancer reccurrence for several months each year as im er and pr positive. Now that recent report came out about early cancers that are er positive....im worrying again. Has anyone switched from tamoxifen to something else?? I wonder if I would get any benefit from that. I no longer have periods due to the ablation so not sure if I'm technically post menopausal??
0 -
hi Lisa, good to see you! Sorry to hear of recent health issues. I'm eight years out. Did five years of tamox and now three years of anastrozole, generic for Arimidex. I was 50 when dx and had had a period within the past year so was considered in peri-menopause. That's why I got the tamox. But when the five years was done, my onc said no more as by then was in full menopause. Chemo nuked my ovaries then had an oophorectomy a few years later so no more periods. I'll get the AI for another two years then not sure but think I'm done with anti-hormonal meds. Two years is a ways away and a lot could happen in the interim. I don't think we ever stop worrying so you're not alone there. ((hugs))
0 -
thanks badger ! I'm so torn as to whether I should remove ovaries, take a NEW med or just do the wait and see. With an Allred score of 8 I would think Dr would expect me to be on meds. Especially now that the report regarding ER positive risk of recurrence came out. I had hot flashes with the tamox. I am having them now sometimes. What kinds of side effects come with the AIM meds??
0 -
Hi bws! Although recurrence and even metastasis is possible with DCIS, since you did not have invasive disease, your risk of progression is probably less than many of us. Try to take comfort in that, along with pursuing healthy lifestyle choices including regular exercise especially after having heart surgery at such a young age.
With aromatase inhibitors (which are very good at reducing estrogen) side effects such as joint discomfort and osteoporosis might occur. To combat the loss of bone density, oral bisphosphonates like weekly Fosamax/monthly Boniva or certain injections may be prescribed. Be sure to take calcium with vitamin D also.
Your doctor can check hormone blood levels in order to assess menopausal status, unless there is another reason to have ovaries removed - a confirmed genetic mutation for example. Do you see specialists in Madison?
0 -
vlnrph..... yes I've been getting treatment and followup at UW Madison. I don' like how they havrbounced me around between oncos and follow up Drs. I really was not happy with my recent interactions with the nurse at the breast clinic. I have lots of cancers in my family that I get screened for. My mom died from thyroid cancer. An uncle from colon cancer. My aunt and her daughter have had thyroid cancer like my mom. Another had a salivary gland in her face turn to cancer. I was very surprised that the clinic would no longer suggest I have 6month screenings given my high estrogen and progesterone Allred scores and because I'm not on any hormone inhibitors. I have excess weight around my middle. I'm borderline type 2 diabetic. I' on thyroid meds because tamoxifen messed up my thyroid and caused weight gain of 50lbs. No one ever told me about antiestrogenic diets or any nutritional suggestions. My life is high stress the past 15 years. I feel like I'm a perfect storm waiting to happen.
Going to see if I can get a nutritionist to help me get my health in order.
0 -
Wow, that is quite a family history! Has genetic counseling been an option? Typically, thyroid cancer is not terribly dangerous. Your mom must have had one of the bad kinds. I can see why you’d be concerned, being aware of those other situations. My primary care MD is an internist who helps coordinate things like colonoscopy, etc.
A dietary consultant is a good idea. It sure can be hard to shed pounds and maintain a significant weight loss.
I have a theory about our fat cells wanting to stick around because they are the place where estrogen manufacture takes place after ovarian function is gone. Since that important female hormone is so beneficial to overall mood, bone and heart health, having it decrease at menopause results in many challenges...
0
RIP Nancy Zieman.