The Hermit Club
Comments
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ktlb...you are gorgeous! and your girls are beautiful
sweet familyabout drugs...send your extras to me....ok j/k . There is a huge difference in taking what we need through treatment and recreational drug use. It must be difficult for those in pain who have addiction problems, a slippery slope.
My GP, who I have known for 25 years, says that rest and exercise and are important parts of healing and if we are suffering from pain or insomnia, how can we heal. I am with you Markat, my doses are minimal and really not of any value to a drug addict. This process is a tough one, I won't suffer through it needlessly but thankfully, addiction is not my thang....unless you count kittens
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I love thst picture. I was locked out of our boards for a while I changed a couple of things on my profile included was my e-mail and I didn't know I had to verify it plus I had it wrong. Duh so I'm back---and I'm not addressing the issues about drugs--(just in case) LOL
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locked out...letters...hackers...FBI...drugs...big cats
I love it here
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Thanks all - and camille - you're cracking me up.
I have to stop being so social...going to the football game tonight. It's the last high school game of the regular season/big rivalry with a nearby town and they always do it on Thursday nights. Which makes for tired kids tomorrow morning but oh well.
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Went out and got my hair cut. It was getting coarser and frizzier not sure if from getting more gray or if tami is drying it out as much as my skin. So I whacked about 4 - 6 inches off. Think my hubby may be shocked when he gets home later tonight and crawls in bed with me. lol
Called gyn today - so waiting for a date.
Camille, you rabble rouser you.
Edited to add - I personally have a date with my couch, remote & cats this evening.
K - Halloween, a football game, aren't you the social butterfly.
Our conversations certainly cover a lot of ground. Always something fun and new.
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Cut it out Klt--u are being to social, u'r making us look worse and more pathetic than we are. LOL
Jane good u started the process--I'm so glad.
nd today actuslly WAS A DRUGGY DAY for me--I don't care who reads this, I will when they wear off tho.
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OK I woke up a little bit ago more drugs and zi'm going bsck to sleep, I hope--talk later.
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I'm awake too Camille
Hope you can go back to sleep. It's going to be a long day.0 -
Oh markat I hop u went back to sleep I did around 4:30 so now I'm draggin--Have coffe tho.
Yesterday of course I had D aain, it happens in cycles sometimes alot or I can go aweek or 10 days with it being fine, but lately it's alot and it drains my electrolyes and I do gt dehydrated easiky (I'm older)--I have special meds for it but I end up with a headache from Mars LOL and this is affecting my heart--(that scares me) But what I don't understand is I've had this for 5 years and no one can figure it out--6 Drs. and all they can say is u shouldn't have this, there's no reason to. And zi get so wiped out--that is one of the reasons I'm a hermit I can't trust going out--cuz it's not as tho I feel like I have ro go and then find a bathroom, there's no feeling of having to go--I just go. I'm sorry, I' sorry---I just woke up feelin like crap again and this should be so over--OK I' done rnting.
Now I totally forgot do u start u'r job next month> I think I remember that. If that's tru, u have plenty of time to organize u'rself.
I hope everyone is doing OK this mornng--let us know--I promise no more ranting LOL
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Camille - I think I slept opposite to you last night. I think you deserve a rant. My DH had to do a colonoscopy and was ticked of the big D for his prep day. Can't imagine 5 years. Wish they could figure out a way to make you feel better.
My DH actually commented on my hair and said it looks good. He never says anything good or bad usually. Guess it really did need to be done. lol
went to Y this morning, didn't feel like it, but does help keep range of motion in shoulder and nerve pain down in arm.
After I have a shower I may see if I feel like driving over to next town for my xray (only about 10 mins) If not I think they are open Saturday morning.
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Jane - glad you are happy with your haircut and that your DH likes it. Good for you for getting to the Y too.
markat - hope you were able to get back to sleep.
camille - sorry you had a rough night. Hey, we need more funny pics - with small dogs preferably, lol. I am really thinking of adding to our family with a dog, just don't know how Jack Cat, the Nervous Fat Boy would take it.
The game was fun - we met bro/sil/kids there and all sat together. So crowded and of course we had to get up 2-3 times for bathroom, snacks, etc...and crawl over people. Sarah ditched us at the gate when she saw her friends. Their idea of going to a game is walking around and talking..then her BFF came home with us and spent the night - I'm proud of them for going to bed at a decent hour and getting up and ready for school without any fuss.
I went to the store this morning on a mission - a friend of mine is working on a project to prepare reusable shopping bags with supplies for the homeless as the weather gets colder so I got all my coupons organized on things like toothpaste, deo, tissues, etc...and bought some things to donate. I am going to go again next week and buy for our local shelter. I have just been donating money but I think I am ready to take the next step and buy things and deliver them and get more involved. I don't have any plans of getting a real job anytime soon, with rads still up in the air and exchange surgery still to come in the new year so I am looking at trying to volunteer more.
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Klthat is so nice to volunteer u'r time and u guys are great with what u do.
And Jane let's face it no fun with a colonoscopy so I don't blame u'r DH, but that'a so nice to hear a compliment even tho he's got that ro go thru he notices--how sweet.
I ran of of my meds for my D today---so I'm still going LOL I'll get them tomorrow==but this is the 2nd day and I'm really knocked out--I wrote up first. Rhat would be a miracle.hahaha Love u gorls
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Hey ladies. I was a zombie today! Took a big nap this afternoon. DH is sick again, God help me! He did go to the doctor.
Camille, hope you're doing ok. I'm supposed to start the job in December- I hope!
Hi bgirl- hope you had a good day. And yay about your hair!!
K- sounds like you had a great time! Good for you with the donations! Giving is such a selfless endeavour. I wish I had more to give. I did the $10 donation to the redcross thru text.
Hope we all sleep tonight!0 -
Oh markat u'r DH must really be sick, Oh I hope he starts feeling better soon. But I'm glad u ot a good nap, u must have needed it.
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camille - hope you get off the D train soon .... it must feel like it is sucking the life out of you.
Markat - I'm sure you will be terrific. Hope DH better soon
K - good for you, but take care of yourself too.
Did go get the xray yesterday afternoon, so waiting again. Someone asked me one day what I did ... I told them this last year I have been a profesional waiter .... wonder if there are jobs doing that ... sitting around waiting for things for people. Had lots of practice.
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Jane hahaha we'd be rich for sure. but I'm glad u got that done---they should have u'r results by Mon./Tues.so that's not so bad. (well it is actually to WAIT I know. Well as soon as u get them let us know right away.
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Why is it stupid people get in our head. Someone made a comment (not cancer related) a week ago and it is still bouncing around in my head. Maybe it is because I don't know what to do about it. Sorry just venting!
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bgirl, Remember it is "stupid people". When I hear those "stupid people" comments (cancer or not), I tell myself "consider the source, consider the source" and try to be like a duck...and let it roll off my back. I work with some individuals that are not nice and sometimes just down right mean. Yes, I am looking for a different job. Hope you can clear your head soon.
camille, hope you got ur meds and that they stop the D train!
kltb, your plan to help out and volunteer sounds very kind! There will be a great need at this time of year! Good luck on finding just the right dog if you do decide to expand your family. I LOVE my dog!!! I got her 12 1/2 years ago, she was a rescue dog.
I finally have normal looking hair again! I got the chemo curls cut off the first week of Oct. YAY! (New hair-dresser did a very nice job.) A couple of weeks went by and I got a little too adventurous and last Friday I decided to use a darker shade to color (Medium Natural Brown) I have colored my own hair for years........... whooooo the left over chemo hair just devoured the darker color and it turned out way darker than I wanted or expected! So, I thought...hmmm I'll go get a light brown and do it again to lighten it up. NO...color doesn't lift color, I have now learned! My hair was even darker, more like black. I went to sally and they told me to use this rinse stuff to lift out some of the color, well it did nothing. I wanted to go to the girl who had just cut my hair to get it fixed and her first available appointment was lastnight. So, I looked like a witch all during Halloween week! The people at work don't know about my cancer...none of their biz...so when I showed up at work on Monday with my "goth" black hair...you can just imagine. (There are a couple of people that I work with that are less than nice, more like mean!) I ended up being a smart a** and telling them it was left over from a Halloween party! LOL! And, never told them any different! hahaha... Long story to say, I got some highlights and toner and I now have nice (darker) normal looking hair again. Lesson learned! Don't mess your hair up when you just spent the last year trying to grow it back!!!!
Have a Happy Weekend Fellow Hermits!
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Hi ladies - just finished catching up on all the posts...whew, gone for a couple of days and so much happens!
kltb - love the pic of you and the girls!
markat - congrats on getting the job! We all knew you'd do well
camille - so sorry you still have the big D. You'd think by now they would know what's causing it. Have you had all the tests like colonoscopy, endoscopy, etc.? What a pain in the a$$.
sissydi - you started this thread, yet you haven't been here for a while...you must really be in hermitude!
I know what you mean when you were talking about ppl who think we don't have cancer any more. I've had surgery and finished all treatments. When I told someone the other night that I had breast cancer, she said "oh, I thought you didn't have it anymore. Do you still have it?" How do you all answer that question? Do we still have it?
I'm still in jammies at 12:40 pm, drinking coffee and reading posts on BCO. Is that hermitude or what?
love to all
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ugh! The million dollar question! - Oh for a crystal ball. Sometimes I just insert a platitude like "from your lips to god's ears". Leaves them confused sometimes without really answering the question. Don't want to talk about ongoing crap with everyone.
Mostly I just say well "there was no evidence of disease at my last apt, and I'm fighting every day to keep it that way". No specifics. I feel like I am jinxing my bone xray I'm waiting on, or my next MRI in a couple of weeks if I say yep, just fine. All gone, Happy Life
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Morning all - oops, 12:03 it's afternoon.
Lisa - Still in my pj's here too.
We are going to "town" later - that is a leftover habit from when I was young. My mom would always say "get dressed so we can 'go to town'" as if we lived in Little House on the Prairie. Anyway, we still have a couple gift cards left from surgery for restaurants so we are going to go out to eat. I also want to go to Barnes and Noble to look for a book - I am having such hard times trying to read since chemo - it's like I can't concentrate on my Kindle. I need a regular, physical book. Then I want to find some kind of craft or something to work on for the holidays...can you tell I am bored??
markat - ugh on the sick DH. Hope he is better soon, for both your sakes!
Jane - I hear ya - I am already dreading the scans my MO alluded that I would have after chemo. I see her again in late November. I remember reading on here where someone said "don't worry until you know for sure you have something to worry about" but it is hard to put that into practice.
FLwarrior - glad you posted that about the color...I am so tempted to put something on mine - it is coming in dark with gray and white...but I guess I shouldn't do it at home. I have always colored at home but I best leave this to a professional.
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Jane - those are great replies to the big question. I just hope my chemobrain will let me remember them when asked again!
kltb - I can relate to your comments about reading. However, I'm having problems with a physical book too. I find that if I put it down for a day or so, I have to go back a few pages to try to remember who the characters are and what they were doing. Its so frustrating.
I started knitting when I was in tx. Since then, I've kept it up and have made several scarves to take to the cancer clinic. i don't know whether anyone will take them but I find that its relaxing and my mind doesn't have to concentrate on anything. My sister is coming to stay with me after my surgery on the 20th. I'm hoping she'll teach me how to crochet. I may venture into making something other than scarves!
Lisa................Pink may be pretty. Breast Cancer isn't. BRCA1
Dx 11/11/2011, IDC, 2cm, Stage IIa, Grade 3, 2/22 nodes, ER-/PR-, HER2-Surgery 01/31/2012 Mastectomy (Right); Lymph Node Removal: Axillary Lymph Node Dissection (Right); Prophylactic Mastectomy (Left); Reconstruction: Tissue expander placement (Both)Chemotherapy 03/13/2012 Adriamycin, Cytoxan, TaxolRadiation Therapy 07/05/2012 ExternalSurgery 11/20/2012 Prophylactic Ovary Removal (Both); Reconstruction: Breast implants (permanent) (Both)0 -
Journey don't count on anything to remember about u'r hair--u'll forget. LOL Damn i just read the posts 2x, and I forgot what I just read.
Oh yea hair---I'm lcky my dgtr does hair cuz I can get it colored, cut all that stuff when I feel like it. Of course she has to feel like it too. We're having a battle right now about it so I haven't gotten it dyed yet. My hair came back silver and can be, and I want it foiled burgandy she won't do it that color--brat, she says to ME I should just go with brown so it'll be brown with silver--Blah so boring.
Thanks everyone I got my meds this morning and they are starting to kick in.And yes I have had every test imaginable and I was wide awake for my colonoscopy and watched the whole thing and it was actually as the Dr. said Perfect and I said then it's tru I'm a perfect asshole, Drat. as I expelled gas in his face--perfect timing--anyway I had up the ass and down the throat and more. Now they want me to do it again, cuz this isn't stopping and it's bring all my electolytes down way low and now that's why I have to go to a Cardiologist. It's a circle So when people have said to me Oh u'r cured--I've said u cure a cold, but cancer is probably in there somewhereJust hangin out having a good ole time. And most people don't have a clu whst SE's it causes and even Drs. get stumped. So that's one of the reasons we pick hermitude it's so much easier, at least for me.I'm so bad around people and I never was. Not the ones I truly love just people in general. LOL
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Hi all! When I color my hair I go two shades lighter and stay away from any red shades because I'm afraid it will turn out orange. So for instance, my hair is really dark brown, so I buy Garnier Herbashine Medium Golden Brown. So far so good.
Stupid people suck. I think that's half of why I tend to hermit. I can't deal with them anymore. I tend to show exactly what I'm thinking through facial expressions, so they get the stink eye.
Camille, so glad you got your meds. Sorry about the tests!
Journey, it's 630pm here and I'm still in my pjs, lol. I don't think I'm changing
K- hope you had fun in town. I sent DH out to get us some steaks and potatoes to fix at home.
He seems to be feeling better today, thankfully! I was really confused because his doc ordered bloodwork for 4 months from now. Isn't that weird? I know we are all so used to everything being done quick, but that just seemed odd. Maybe something to do with insurance? Who knows. He's 16 years older than me, yeah I know...so he's coming up on the big tests in a few years, prostate, colon. His doc didn't seem too concerned about anything now. He sure never thought his young bride would be the one sick,lol! Poor guy
Tomorrow is technically my 1 year cancerversary. The day of my diagnostic mammo when the radiologist told me he was 95% sure I had cancer and my whole world changed. Of course the later dates are when I found out for sure. Jeeze it seems like yesterday!
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markat u crack me up all the time. I'm glad u'r DH is feeling better and YOU sent him to the store.hahaha
I'm still in my PJ's are you surprized, does that shock anyone??? No huh--I didn't have the energy to take a shower today ick I know I' disgusting just to exhausted. See this is another reason for not leaving my house LOLI keep on coming up with reasons.
I hope everyone had a good day today
U know that December is that 5 Sundays, 5 Sat. and 5 something else and it's been 847 years since the happened before. Who kept track of this. Did someone actually get paid for this research or just do it on their own. See whst I think about I love stupid stuff. I can write a book at all the stupid stuff I know---and call it Stupid Stuff I know--Now if I could type, I have the time (I hope) it's the kind of stuff that people would actually want it it's so stupid. As we've all said there are a lot of stupid people out there. LOLIt's been quiet today, but it's Sat. and some of the women actually leave their homes not just for Dr. STUFF.
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I didn't go out yesterday, but I did talk on the phone with my sister for a couple of hours to catch up. Trying to sort out the stupid thing partly. As it involves someone we see socially every couple of months, it makes me not want to go. Already making up excuses for why not to go out 6 weeks from now. Couple of people I would enjoy seeing, but just don't have the energy to deal with drama and crap. Is that the ultimate hermitude ... planning weeks in advance why not to go out?
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Hi everybody. I'm definitely an introvert hermit person and have struggled with that forever. I've read a lot of your posts and love them. I can relate so much. Seems when we aren't out there pretending to be 'normies', whatever that would be, we actually cultivate a little depth. It is no wonder to me that I tend to have an unhealthy amount of contempt for my fellows on Planet Earth. But I'm working on that these days. Dx has changed everything, of course.
My best to you today and may you have comfort and order (and maybe some ice cream) in the midst of whatever chaos. (i.e. Why I'm A Hermit).
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omeggo - welcome to hermitude - only a few people post on this thread. It is a fun, safe place to laugh and share with others who don't judge and understand. Hope you come again. Ice cream for breakfast .... hmmm.... my med says to take with food!
Edited to add: congrats I think Markat. I did one year on Oct 27 - wasn't sure if I was supposed to celebrate being diagnosed or not. Happy to have the year, but yeah a little strange.
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I observed (not really celebrated) my anniversaries too - mammo on Halloween that showed the "mass" and ultrasound on the 1st that pretty much sealed the deal with the tumor and at least one swollen node. The cancerversary is November 11 when "it" was confirmed. It is hard to believe its been a year...and what a year its been.
I am planning to have a heart-to-heart with MO and chemo nurse on Thursday. He still doesn't believe that I need any kind of scan because "protocols" don't indicate that one is needed. I plan to outline how this f^cking disease has completely changed my life, including my work...and all I'm asking him for is a little peace of mind. Other than an ultrasound of bc breast and mri of both, I didn't have a scan of any kind to see if the cancer had spread beyond my nodes and breast. I just want someone to tell me "as of today, there is NED." Is that too much to ask, considering all the sacrifices I've made? I don't think so...
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Welcome Omeggo! The hermits here are very kind, supportive and FUNNY! Glad you joined us.
Hey Camille, can you autograph my copy of "Stupid Stuff I Know" when you get it written? I would definitely need a copy or two.
bgirl, I have a laundry list of excuses of why I can't or shouldn't or won't go to some social events. Some simple, some elaborate. I am sorry the creep has made you feel so uncomfortable, but it is good that you have your sister to bounce it off of.
Markat, time does fly! Glad you are 1 year out from that dreadful day! We are so busy with this test, that test, this treatment, that treatment, oh and all of the SE, time just FLIES!!! I made it past my '1 year since dx' without realizing it until days later. The day I wanted to celebrate was '1 year NED', forgot that one too...how long does chemo brain linger?
Journey, it is my impression that knitting is more difficult than crocheting. I hope your sister teaches you how to crochet. I bet you will pick it up really easy. My DGM (most favorite person ever!) taught me to crochet when I was in third grade...granted it was the most simple crochet stitches, but I can still do it.
kltb, I colored it myself from the time it grew back in after chemo until now. It was changing to a darker shade that caused the problem. I have had 1 cut. So 1/2 my hair (ends) is old damaged "chemo" hair and 1/2 of it (roots) is back to normal hair. Good luck to you on getting the color you want and are happy with.
To all hermits, have a lovely day!
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