The Hermit Club
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Bgirl, thanks for the welcome. The rapid-fire exchange is too fast for me to keep up with who's who, so jumping in may be my only resort. I love that each of you has unique perspective, humor, ways of dealing... Yeah, the bus backed over us all, and the bruises are mostly hidden so we're "socially acceptable."
To me, that's a good part of why this thread is so appealing. Everyone stays honest and open. Count me in the group not offended by the survivor and pink ocean of "stuff" comments. When you wake up each morning, and notice the tiniest little lump or rash or new ache, and wonder... here I go again? Mets? More scans, tests, blood work? while most of our sisters on the planet would just ignore the whatever and go on without a thought... Bc changes everything. Our minds, our hearts, our coping skills. Yeah, the bus keeps backing up.
Well... keep pole dancing, loving sweet daughters, and sharing puns/humor/hopes.
Keep smiling if you can.
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skittle - yeah it was a busy day and our conversations wander, but it lets everyone get the crap out of their head and vent to people who understand.
Personally I am not a fan of pink, very careful about where I donate my BC money (mostly local, helping women in our community) Understand some people like the sisterhood promoted by the pink ribbon stuff, but being a hermit I prefer my sisterhood on here at an intellectual level. Not Rah Rah! Just someone who will listen like a good girlfriend but who also gets it.
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Yes, to all of you girls..:) Im in love with you all!! Hehe, please never divorce me, lol i feel comfy here!!! I love the pics! How do you do that?
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Bgirl... completely on the same page. There ought to be an underground hermit movement for an antipink. My donations, too, stay local... and I'm more inclined to give to our state Children's Hospital (have a daughter who works there, and students who have been treated there...)
Camillegal... hugs to you and prayers for lessened pain.
What did the little fish say when it slammed into the cement wall?
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Chey I take them off of FB--but I'm just starting to learn muself--I can't type, I just started comp 2 yrs ago--first time ever--and I can't spell
OMG I need a hug LOL
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Cheyenna-- find what you like. Right click, ctrl c (or right click and copy, depending on computer mode and site)... then right click, ctrl v (or click and paste, again depending on mode and site.) Have fun. :-)
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Camillegal--HHHHHUUUUGGGG!!!! to you, surrounding you.
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(((Hugs))) Camille!
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Oh skittle u know computers I don't even know if that's what I do, but I uess so. LOL
Thank u for the hug--I sent everyone one just in case.
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Camille, I teach sixth grade so have to have a little computery whatsits "up my sleeve." I am wayyyy far behind in lots of ways. (Like this weekend beginning a hunt for my very first smartphone for my bday. Have loved my little flip-phone for years since it does all I need--make calls and send/receive a few dinosaur texts.) Technology is just something I find fun, but can't fully keep up. Wishing you the best, with a good tomorrow.
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Hi fellow hermiteers! I've been catching up on all the discussions and I'll apologize in advance for not remembering who said what...but I remember what was said. I have a few comments.
I don't mind the pink, in fact I always scheduled my mammos during "BC Awareness Month." It helped me remember when to get them done. But in addition to the awareness campaigns, there should be reality campaigns. Something along the lines of "this is what breast cancer does" or "this is the real face of breast cancer." All the ugliness of BC should be brought to John Q Public's attention. Its not at all pink and pretty - it is a disease that robs women (and men) of so much. Each of us could make a list of the current and lasting effects of this f^cking beast. IMO, this is the education people need. Maybe more attention would be paid to finding a cure, not just making us aware. Trust us...we and those around us are very aware.
I agree with the bus analogy. I can look both ways before I cross the street...I can go a completely different direction to avoid the bus. WTH can we do to avoid BC? NOTHING.
I need to join OnandonAnonymous...save me a seat!
camille - you crack me up. Even with all you're dealing with, you manage to cheer us up. You are a strong, courageous woman and you inspire me to keep fighting.
welcome to those who recently found us - this is a great place to be. The ladies here help me every day.
markat - hope you're doing ok.
for those of you telling jokes...please give us the punch line before we forget the first part of the joke! My chemobrain isn't great at remembering much these days.
I think that's it for now...love you guys!
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My goodness it has been busy in here! This working girl is having trouble keeping up.
Pink! Survivor! I Echo...Echo...Echo your thoughts. There are SO many people that don't have a clue about bc or any other kind of cancer for that matter and they make the STUPIDEST, RUDEST, MOST RIDICULOUS, UNEDUCATED comments!!! Not to me or about me because I have not told very many people about my bout with bc. The people at work do NOT know and I don't think its any of their business. Yes, I am a very private hermit.
Omeggo I think my hair shed for at least 3 weeks. If you don't already have " a Brazilian" you will soon!!! <wink>
Here is my rant for the day...In the hair department... (I am 16 months PFC) and I am on round 3 of losing my eye-lashes. This time there was baby lashes 1/8/ to 1/4 long there when the longer ones all disappeared, but damn, I can not even get mascara on AGAIN! You initially loose all your lashes and they grow back ever so slowly...then every 5 months they shed again. It is my understand this can go on for several years. Boo-hoo! I know this is very minor in the scheme of things, but it is one of my irritations of the moment.
Chey did you find your keys?
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When I grow up I want to be a bus.
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Journey I just read u post and I was laughing, but now i forgot most of it. OK I just went back LOL I know had had to tell Chey she can't start a joke then go to sleep--cuz I forgot to what the first part was. Oh this brain ain't what it used to be. And if I was the posterwomean for BC they'd get a fortune.
FL my lashes are barely there and I csn
t curl what not there and if I put mascara on them it's all over my eyelids so it's still a lost cause and that was one thing I had was long lashes and good brows==not anymore I think that's it.
And resally and trily don't think of me as an inspirstion I look at everything differently than most--I've been called crazy (nicely tho) and one of my best friends said I'm to stupid to know what's wrong with me and I laughed so hard. So I'm not brave I just go along.
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I love crazy. Gotta be a little (at least) to get through this mess.
whaevah--lol...
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ahahaha Step away from the bus, Good one
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FL-Yes i found them, again, haha. Chemo brain
You girls crack me up!!!
Hugs to you all!!
Chey
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Ahh, I can't sleep. Took a power nap after H and stayed up to watch all the political stuff. Too late for melatonin.
Didn't hear from the onc today, so I'm thinking that is good news. Or she'll call tomorrow morning...or I'll call her
I hate waiting.I'm not a fan of pink stuff, but I sub conciously bought my first new bra in a lovely shade of pale pink, haha. It was pretty, and I was probably on pain killers
I'm starting to be okay with survivor. I don't personally identify with it...but if others call me that, then I don't really wince anymore. I feel like my DH and kids are the real survivors. Hurricane Markat was not kind to them.FL- I've only lost my eyelashes twice in 7 months. They are finally filling in...I don't want to lose them again!! They will fall out, because I bought a new eyelash curler.
Jane- Hope you hand is okay and you are sleeping
Camille-Hope the pain passed and you are getting some sleep too!
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me neither markat...it's the steroids for me
came home from treatment, ate a horse and a small pig then passed out for 3 hours. Watched your elections and now I am hooped. The goddamn halloween candy have grown mouths and are calling me all night, I had a all fruit popcycle instead..
Your bipolar comment had kept me laughing , DH thought it was funny too:)
bgirl..I wish I could aspire to a real pole dancer, unfortunately right now have the upper body strength of a newborn
hope you are painfree and sleeping right nowskittle..
for the bus and glad you"get it" . I felt comfortable the first post here Omeggo...love that you are a gym rat, I love to exercise but struggle since chemo, that said I started again and am hopeful...there is a great thread of super supportive exercisers on the forum, I hope to be more active and then be more active;) swear on, rant on...works for me
camillegal; awww, I missed that you have a puppy! Awesome...I think?! You always crack me up. One of my closest r/l friends is stage 4 lung, 'nuff said. I have 2 Taxol left. Then maybe a Metfrormin study plus 1 million rads, haven't had the final count yet.
back to markat...fatty liver as you know is reversible, so you can deal with that whenever. Part of this f'en toll of steroids and chit I think. I see a therapist, actually went to two. First one was a bad fit, the new one is trying, think I will make him cry one day...not like i am trying but he runs deep on compassion and he lets me swear and last appointment I had a meltdown of epic proportions...severe pain, thought I was going to throw up...turns out it was just gas.
So go have some fun!I am back to work, part time from home but hoping to change career in the spring...well see, last time I made a big plan, the rat bastard grew and all bets were off. This coming December (20th ish) will mark my 'wtf is this lump' cancerversary. Dunno how to decorate for that?!
Talk much on 'roids"? Me...nah
((((((HUGS))))))) to all, and thanks for sending them to me
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{{{{{HUGGSSSS}}}}} to you cami. Slept fairly well - drugs seems to be working for pain. So much to comment on .... back later .... off to take another pill to manage pain symptoms ..... and then I am off to weekly volunteer at craft group at church .... ditched them last week and the are a funny bunch of women in 70 & 80s ... mostly
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Figured out how to bring the bus over. This is for you my favourite hermitsEdited to add: throw whoever you like!
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Love it bgirl--Geeze I hope u feel better. This pain stuff is sh*t
Markat we can;t take naps anymore--LOL it scews everything up at night-which is More sh*t, sometimes I fight a nap so bad cuz I know in the long run I'll be up all night.
OGH I'm just ettin my coffee I'm not awake yet---I don't remember telling u about my pain LOL it's not gone--I don't know what it can be damn. I always try to justify it and I tell my sister and we talk except I should know better she's an alarmest and gives me horrible conclusions LOL---u think she calls the Dr. when I tell her to--NO BUT I have to tell u this. OK She asked me if I was tested for C-diff? and I was this summer in the hospital cuz they have a very easy cure for it--for my D. here it is. U get a donor whith good poop and replant it in u'r system either with a colonoscooy or down u'r nose. well after we kaughed forever she told me (I knew) she can't donate her poop cuz it's not good--so this would mean I need a sh*t implant If this is what I have I need sh*t donations hahahaha. Should I make a blog? about a donation site LOL
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Ultrasound was clear! So I'm just crazy or pulled a muscle from leaning funny on the couch.
Whaevah- for some reason I thought you were in the US. Are you a Canadian? According to my facebook feed, you are gong to have an influx of American conservatives, which doesn't really make sense, kwim? I hated 'roids. I was seriously a monster on them. Eating, and yelling, then eating more. Eating while yelling...you get the picture. I'm not in therapy, just supposed to go to a support group that I keep ditching because it's on my H days. Why must these people do things so late? 7pm seriously?
I've tried therapy a couple times before and it didn't really work out. I know sometimes it takes awhile to find a good one. I try to be a 'get overit' type of person...but we all know cancer doesn't work that way. Hope your plans work out with the career change!Bgirl- glad you got some rest and wer able to volunteer! The bus graphic is awesome!
Camille- I've read about that cure for C-diff. Could you imagine? AHHH. So they are for sure that you don't have it, I'm sure. Hospital superbugs are scary. Part of the reason I am done with surgeries for now.
I need to start excersing more. I know I always feel better when I move more and eat less. It's really an amazing idea...I'm thinking about marketing this little known secret
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Again Markat u crack me up. Yes it is u that figured out the excercise eating thing. Wow what wisdom. market did u forget I had this D thing for over 5 yrs. now with no one figuring it out. I am not ony a medical mystery, but also a medical misery-and it started with chemo before I was ever in the hospital for surgery. The onlu question that was not asked of me was if I ever went on a space shuttle. And I've had every test under and over the sun--Now they want to do it again. I'm sorry I' ALWAYS complaing about this but it's with me so much it's part of my schedule now. ooooo
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Oh no, you can complain whenever and however you want! I meant that I'm sure you don't have C-diff, because they would have known that already. I didn't word that right! Love ya and big gentle (((Hugs)))!!!!
i wonder if it's some kind of allergy or autoimmune thing? Like Crohns or a gluten thing? It just seems so miserable, no one should have to go through that all the time--ESPECIALLY you Camille!
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camillegal..that is so aggravating, no cause and no solutions. I am sure all the big conditions were tested, but what about Gluten? Had to eliminate that and more after a 6 week bout of D, no known cause then 6 months later I ended up in hospital where it was discovered I had a bout of Diverticulitis, after eating toasted whole flax seed in my salad. IV antibiotics and then home with more.
After that the D episodes were diagnosed as Diverticulitis, inflammation but no infection. My diet was always high in fiber, food allergies take care of that,( Msg would kill me) so it was a surprise. Just throwing it out there. 12 months later BC. More autoimmune chit, seems to be common in BC.
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Oh and as for exercise, hate to say it but I lurk in the after treatment threads and have some fav blogs I read from BC peeps here, some say that they excercised all thru and after treatment...it makes no differernce to their energy levels. THAT is fatique and I for one believe it is real. Treatment affects everyone differently and bravo to those who can and hugs to those that can't. I hate cancer.
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Keep smiling if you can.