The Hermit Club
Comments
-
Markat I forgot about the GB thingy---I had mine out after Chemo and rads were done same thing, my sister too. My sister had the robot operation with my old surgeon (who I loved)And she was back to work in no time. For whatever reason GB seem to get affected by all this and I don't know why. I always forget I ad that done.
whaeva--I'm so sorry u'r so down and crabby--If u were with me I'd sing u a medley of every song that was ever written to cheer u up.
Chey ???????
0 -
I forgot to tell you guys that my onc also prescribed a low dose of ritalin, hehehe. So I'll probably be running around town in yoga pants, going out to lunch, adopting new pets
I'm really hopeful that it will work for me.
Yay Camille's posting pics again! I'm a little nervous about tomorrow but I don't think it's mets. If it is gb, I'll only have it out if they can do my nips at the same time
Hi skittle.0 -
Hi all!
Rearranging the store is a MARKETING PLOY...they want you to see things that you have never bought before and buy them...cha-ching... Every time they do it at my store, I complain to the manager and threaten to shop at the competition.
Wishing everyone a peaceful, restful night!
0 -
Please Markat don't think about that, everything just has to be checked out. That's all.
0 -
markat - good luck tomorrow! Hope it goes very well for you.
0 -
I know Camille. I honestly just think it's a fat roll rubbing the wrong way
Thanks FL!0 -
Markat hahahahaha
0 -
Oops! I fell asleep, A Brunette
0 -
camillegal
Loved the jokes ...*clapping hands*markat. LOL the fat roll..but I am more than confident you are ok, crossing my fingers toes and eyes for you just in case..keep us posted!
Chemo/gas/bloat ? tomorrow when I am pole dancin' I will take a closer look at the bag, sometimes I think it is not only Big Pharma filling those bags but Exxon .
Oh my, when chemo is over I think I will have to burn down the house.
I know , TMI 0 -
RE: SNL - I liked the opening monolgue. I thought it was funny without being too much (as Louis CK can sometimes be!) And the bar scene WAS funny.
markat - too funny on the store. Abby likes those organic milk boxes, but only the chocolate ones. I got the vanilla ones once and she couldn't stand them. Good luck with the u/s - my dad recently had to have one because of elevated enzymes. They took him off all his meds for 6 months and they were still elevated. They don't have the officialy results yet but think fatty liver is the culprit. When I had my PET at dx, my gallbladder area lit up and they did an u/s to look for stones and couldn't find anything...so they just kind of let it go...
whaevah - best wishes for taxol #10 - how many left? Sounds like you had a weekend of online socializing, whether you wanted it or not, lol. I gave gotten so awful with the phone - I never have really liked talking on the phone, even when I was a teenager. And now in the times of text and online messaging and email, when I have to actually talk on the phone, it irritates me!
cheyenna - that WM encounter would've been a sight to see. Too bad you restrained yourself!
camille - congrats on Sox - is KatieKat doing ok adjusting? I really worry about Jack - he is the one that the devil cat used to beat up and he is soooo skittish. Harry, his brother, will be ok. But we may not even get this dog, the lady took my application and said that they would be another 4 weeks before they were ready. Then some days I get up early and it is cold and dark and I think "hmmmm, am I really going to want to get up everyday to take a dog out!?!"
FLWarrior - mine is only an inch or two all over but it is already getting out of control - I hate to go pay somebody to trim the tee tiny ends off though!
Well, my Herceptin only day turned into a full day of drs appts. Sarah thought she had another ear infection, turned out to be a "retracted eardrum" - nothing to be done for it but drops. Abby has a UTI - great fun. So I crashed from about 3:30 to 6 yesterday afternoon, then went to bed at nine. At three a.m. I was up for the day!
0 -
pain more under contol last night so slept more - looks like some of you didn't. Really we need to coordinate our insomnia. Boards were dead quiet the night before.
cami - hope funnies mean you are feeling better and not just taking pity on us.
Markat - hoping for dr. to call today too - here's to nothing. Ritalin, don't think it would do much for my insomnia, but the energy would be nice.
K - sorry about the sick kids again. Remember the days when all they seemed to do was exchange germs. (3 kids in 3 schools = 3 germ pools) It was exhausting no wonder you needed a nap.
Whaevah - think you need to stop that pole dancing (you wish) before you end up with a new career when all this crap is done.
Chey - I can never tell a joke, can't remember the puchline anymore.
Skittle - feel free to jump in anytime or just tell us something crazy from your family/day/etc. We are a little schitzo here so we just wander from topic to topic anyway.
Flwarrior - hate in when you just go in for a couple of things and spend half an hour wandering around. If it is this bad for us I feel sorry for seniors with memory problems.
0 -
Welp I'm back. Nothing too exciting. Gallbladder looked dark, so that's good. She didn't linger over any spots or make arrows towards anything, so that's a good sign. I really think it's just fat, like the rest of me.
K- sorry to hear about the girls! Herceptin makes me crash too!
Jane- glad you got some rest. Sending good report vibes your way.
Whaevah- hope your tx is nice to you today. I'll be pole dancing here in about an hour, then poll dancing after at the polls. I'll be bi-polar today...hahaha...get it. Cause we vote today...eh.
Tonight I'm supposed to go to the support group. Not sure if I'll make it, maybe if I pop a ritalin?0 -
Market I hope all is well with u and it's some kind of SE thin.
OK u hit it on the nail--I'm a senior with chemo-brain so imagine how rediculous this is--I can literally tell u about my childhood, but I can't remember much else these days--it's so frustrating to me. I hat to say this but my sister and cousin are in the same boat so I don't feel it as much cuz none of us rhink straight anymore. Ugh
And Chey u can't start a joke then GO TO SLEEP hahaha
Oh and markat go to therapy, just don't change to much.
K I'm sorry u'r kids are sick for u--poor babies
Whaevah is this now finishing u'r chemo?
I have said this so often, but I so mean it---I have no idea how u ladies handle all this and have kids to take care of too. I'm on the other end of the pole (get it) my DD takes care of me now--well I do alot by muself, but not like before I got sick. And u guys go day to day with so much going on.
0 -
Hi Hermits! Thought I'd actually post something again. I am a true Hermit although I told my DH about this thread and he actually thinks I've outgrown my hermit tendancies. I've learned how to talk to people, finally, so I guess he thinks my fundamental nature is less introverted. Deep down (and not so deep) I make myself the best company. It is a lot simpler that way, provided I don't go YOU KNOW WHERE will all this cancer shit. Yup, girls, I cuss like a sailor...but only really since dx. Well, I'm embellishing a little. I like language and cussing makes things more expressive (depending on the crowd, though I guess.)
Hey, I have a question: Today is the 2 week post-chemo #1 mark. I'm shedding. I've already done the buzz cut but how long does the shedding last? I feel like I just had a hair cut, you know, the feeling like I need to take a shower because of all the prickles around my shoulders and neck. It was SO weird watching my little 3/4 inch hairs fall into the sink after my shower. And to think that today was the FIRST day without nausea. Ha!
I'm otherwise doing OK now. First 9 days sucked, had a fever, GI stuff (should I say "shit" again?) Today I have some sniffles which will keep me from going to the gym. Still able to work out, amazingly enough.
For those of you who aren't gym rats or who can't, please tolerate my occasional references to the gym. The week before dx I even competed in two bodybuilding 'figure'competitions. I didn't place or anything but I did go on a stage completely leaned down and relatively bemuscled in a tiny, and I mean tiny, posing suit...I was too thin - not like that now, thankfully, but it was a really great experience. Such intense workouts with sprints and everything for 10 months. Heretofore I was a go-to-the-gym-grudgingly for three months and quit for the other nine months of the year kinda girl, for like, decades. Since dx I've kept most of it up except for about three weeks post op. I'm not nearly as strong and I don't do the sprint stuff and don't eat so lean but I sure have found a place to put my anger. Squats! But I also do tons of therapy. I was an emotional mess with dx. The boards have been such a huge help, too. I can't even imagine what this would've been like without the boards. I shudder to think.
So there you go. I posted here. Yay! Another rite of passage!
Thanks for reading and have a good day at the poles/polls, north, south, right, left, whatever your fancy.
P.S. The Ativan for nausea is pretty nice for moods, too, if I don't fall asleep. Have to make sure I don't get addicted! Almost a slippery place...
0 -
omeggo - you can say any crap(pun intended) you like on here. Just came from Y myself - not a dedicated exerciser/can't run anymore due to SI joint problem, but it does get me out of house. I have been rowing lately. Thought my physio person was crazy when she suggested it after working on range of motion strength stuff with her. Don't crank up resistance, but iti s a good all over body workout without impact. It keeps strength up in arm and helps with nerve pain too. Also a great mind clearer and solitary as we hermits sometimes prefer over an exercise class. Not so sure about teeny bikini after 4 kids.
Markat - hope that all is good, best of luck for the rest of the day.
Somedays I think maybe I need therapy with all the crap going on the last year, especially since a stupid comment from a stupid person almost sent me over the edge this week (thanks to you all for helping me feel sane), but really I would have to leave the house and talk to people who use words like "survivor" etc. Actually I do pay a lot of money to psych people but for my kids and that is more important.
0 -
Omeggo it's good to see u post more, wow u r a gymnast good for u--that is wonderful for u'r body and mind.And shedding goes on as long as u have hair on u'r body, Sorry but u end up losin all lashes etc. So it's a strugle.And I swear like a truck driver (as they used to say) so I don't know how much u can get away with here but u can get around it. LOL
Now my hair has all grown back. but not under the arms and hardly on my actual arms and legs, I think it transferred to my face. And my DD has a lot of facil hair due to meds (different kinds) so we finally ordered that no no, and we hope it works.
I have to take a shower--it's such a project for me lately hahaha
0 -
0 -
Camille I might. I was just laughing with my nurses about being a hermit and they are hermits too.
The kids are a great distraction. Who has time to worry when you're chasing around a 7 year old trying to tell her that she can not wear her favorite tee shirt over her uniform shirt or telling the 8 yo that her dance shoes are not appropriate to wear outside. Lol! God I love those silly girls.
Omeggo- be careful at the gym with germs after chemo. Remember your immune system is down. I think the shedding lasted a week...some people use lint rollers to get the leftovers. Welcome to our silly group.0 -
Market- that is too funny.. Lol that was good!! Im lazy i don't want to vote but i guess i need to. Sooo who are we voting for? And what? Lol i truly have not kept up!!
Camillegal - i know right! But I was tired, lol
Ok im going to vent really fast ok? it has been two years today that i have been off chemo, and i still can't remember where i put my keys 2 mins after coming in! I still forget my words, i feel dingy, my eyesight sucks because of it, T mox is making me crazy, and im soooooooooooo F 'ing tired of friends saying " its been two years, you should be fine now" Really??? Whatever!!! Ok im done venting and off to voting0 -
I CANT FIND MY KEYS! Lol i really cant!! Oh my stars, Im such a ding dong!! Guess ill nap,
0 -
Chey and "you got a free boob job too"..... people just don't get it !!! Had to spend $627 on new glasses - too soon for my insurance to cover, Have many many ovarian cysts and a uterus that is twice the normal size, need gyn surgery, dry skin that cracks every time I move, fatigue, INSOMNIA, all as thank you gifts from tamox. Hearing your frustration loud and clear.
0 -
Bgirl- yep!! how did i forget about the free boob job!! Lol... Oh wait! I have a good one!! What about the one when your talking to someone and they compare, they say " well you know Chey, I could go out and get hit by a bus tomorrow, ". my response, yes you can, BUT, I've already been hit by the fucking bus, and then it backed up over me!!
Stupid people!!0 -
Chey-hahaha I know that bus thing is so agrevating--u want o also say I'll stand next to u so I can push u then we'll talk.
I'm over chemo and rads too--and some people just don't get it--Most of my friends and fmily of course do-So I'm thankful for that, but my family has mostly advanced cancer so they get it. It's stupid --I've had 4 operations, almost 3 years of chemo and herceptin and SE alore, now aromasin--loaded with DE for me and forgetting Oh please it's a joke and I'm glad my sister and cousin have the same problem so we can laugh about it.--but other people just think it's crazy me and I should be fine now--that's why I don't want to meet new people anymore, and sometimes I feel like I'm in a stupor I get SE's that leave me weak and exhausted from my Diarrhea, my levels are always low, I know u guys all know this but I have days where I want to scream but I come here and vent with u guys--sometimes I vent a little on somethreads but this is where I come to go wild. Cuz u guys not only listen u understand totally. LOL unfortunate for u, but not for me.
0 -
Cami - as I always say - you deserve to rant away!!!!
I think the difference is, yes they could get hit by a bus tomorrow. But really do they wake up every day thinking about it. Is this the day I will get hit by a bus? Often I think we are waiting for the other shoe to drop and for some that ship has sailed and people still think they should get over it. Pinktober has made some people think if we get our mamograms & treatment ... happy hippy skippy we are all back together again like Humpty Dumpty.
Sorry crap mood today. Just sliced my hand open ... with a little fingernail on opposite hand ... if it didn't hurt so much I would laugh. Touched a crack the wrong way and it split. Ugh.
There is a little annimation on one of the threads of the bus ... too funny. Wish I knew how to transfer it here so we could all laugh
0 -
Jane I remember that animation of the bus--hysterical,
Sorry about the cut--it usually takes for ever to heal--make sure u put something on it.
Oh I have been having a pain on my lower right side??? It's not my B so good thing I have some Dr. app/ts in the next few weeks so something else to ask about Blah see I normally wouldn't pay that much attention to this but now I tend to.
0 -
bgirl- this is soo true what you said---
"I think the difference is, yes they could get hit by a bus tomorrow. But really do they wake up every day thinking about it. Is this the day I will get hit by a bus? "
Bgirl- If you dont mind the next time it comes up by someone, i want to say that?!?!
May i say something that might be wrong to say? Im sorry if its wrong..
I don't want to offend any of my new hermits friends im sorry if i do....here it goes.
i have a hard time and don't like being called a cancer survivor... ive met people and they say, " oh your a cancer survivor" or they say " your a survivor ". usually i just smile, but sometimes i tell them,..." no i am not a cancer survivor " " im surviving! " "you can call me a cancer survivor when i get to live my life and see my babies grow up "right now im just surviving "
Does that make sense? Im sorry if i hurt or offended any of us, but i do feel that way, i don't dwell, or feel sorry for myself. Its just it makes no sense to me.. And i hate pink!! Lol
Lol On my b-day i was in a chemo chair all day and that night friends came over with some gifts, all pink!!! a breast cancer book,a book about boobs, little BC pins.. Lol im thinking really?? Lol oh well..
What do you think??0 -
Chey not a fan of the word survivor either. Just doing what we got to do! If you want to see someone get tossed under bus - look on omg the found the cure for stupid about Sept 11th this year
Really what were they thinking... you need pink crap to remind you every day.... guess they thought they were being funny?
If I've actually said something worth repeating ... feel free.
Cami - after I do dishes tonight I will rub anitbiotic cream in and wear some cotton gloves for awhile. My neighbour gave them to me, they use for final inspection at GM.
Ugh a lot of pelvic pain this afternoon ... may that is why I feel so b - whitchy.
0 -
I sure hear everyone, loud and clear. I try not to be cynical but this has been a hellova ride, needless to say.
My cynicism is mostly about 1) people are stupid. Not everybody is stupid I guess but 'way, 'way too many are. I have a friend who reminds me that the average IQ is only 100. 2) most people when talking about cancer when they don't have it or who are trying to 'help' are satisfying a need of their own OR experiment with their own oddball taboos. OOOoooh so you know me so f***ing well to actually SAY something like that, totally crossing boundaries. They don't know. What people don't know, they don't know. The lack of awareness continues to blow my mind but I try, really try, to cut them some slack. It is a little easier to do that now that I'm not quite so angry now. I was so pissed for so long (for two months).
A wise person (BC person) told me very early on "Be careful about trashing your relationships". One sarcastic crack from me (I gave up being wicked when I was 16 in the sarcasm department) and I could RUIN many a friendship, or so I like to think. Maybe my friends would be more forgiving but I just wanted to go to my cave and lick my wounds for a couple of months. With my anger, I turned into someone I didn't even know. That's why I got therapy, really fast. I was imploding.
As for the 'survivor' identity and pinktober and all that, it has always bothered me. My mom died of BC when I was a kid. It has been a huge scar and issue in my life. My dx opened up a big can of PTSD worms. But, when I'm being cynical about it, I believe even the 'survivors' kinda play that trump card to a personal advantage. Hell, with my 'story' maybe I even did the same thing! You got me thinkin'... Anyway, not every BC person I've met does that but it seems kinda martyr-like. Personally, I don't prefer to be like that and smacks of its own brand of opportunism, just like commericializing 'breast cancer awareness'.
I also hope I'm not offending any fellow hermits here. Maybe when I'm a year out and this little Vision Quest is over (which is what I primarily think of it as), I'll have a different philosophy about it all. Can't imagine that but life has been so full of surprises for the last five months, one can never tell.
I wrote all of that and didn't say 'fuck' once. Well, almost. See, more surprises! I try not to swear too much on the other threads...
I'm really wearing my 'omeggo' cape right now. Gee whiz!
This is a good thread for me and I appreciate you all. Thanks for being here.
0 -
A little post script: I won't make such long posts in the future. I belong to the 12 Step group: OnandOnAnonymous...I just had a relapse! Sorry!
0 -
Hey Omeggo that's why we're here say what u want when u want and as much as u want. And personally I don't blame u--so this is a great thread for u AND
Chey my sister (Stage IV) and I have talked about this we can
t stand the word survivor and the color pik, like this is cute and happy time-We don't wear pink on purpose. Surviving is good---but even in remission WTF who's a survivor or if u NED u worry about every ache, pain, and lump u ever see again no matter where it is. Shis is all BS to us--we just need to get thru day by day and hope, pray for the best--and people don't get that. When celebrities go on and they look beautiful it irks me. They can hir someone to keep them in shape and cook for them properly--have their make-p put on hair fixed etc so it doesn;t look so bad. Sh*t that's not what I look like. I have diarrhea half the time, every bone in my body hurts most days and I walk crooked. LOL So we're all in this stupid boat.
0
