The Hermit Club

kltb04

I can't keep up with y'all - I am just on here real quick and will catch up in a bit.  Just wanted to update I had another rads consult yesterday.  Second opinion, second "yes, you need to do rads." So rads it is.  Starting after Thanksgiving and hopefully finishing up right before Christmas.  It is going to totally screw up my reconstruction.  I had an appt with PS yesterday to let out 120 ccs on one side.  I really wish I would have just delayed reconstruction totally but what's done is done.

Promise I'll catch up later.  We had an election night watch party with bro/sil last night and I was SO tired from getting up at 3 a.m. that I fell asleep before the results were even in!  (well, and there was the wine too) I woke up in a panic around 2 a.m. and checked my CNN app with great relief.

More later.

markat

Yes fatigue is terrible. I used to think having a 15month old and newborn was fatigue- doesn't even compare!



K- sorry to hear about the rads and reconstruction I'm glad they agreed though! So no second guessing.

bgirl

K - glad to hear you have a plan.  Hope kids are feeling better.

camillegal

K I'm glad u did get a second opinion now u know for sure without questioning u'r decision.

Markat it is a different type of fatigue, now sleepy so much as whole body stuuf goin on. With babies it like Oh I'm so tired I just want to sleep--with this it's like Oh can I make it to the other side of the room LOL

Yes I had every single allergy and test there has been--maybe something new is around--I just ot it back a little while ago--I'm so exhausted from this this time--lasting to long even with meds.  I have a call in to the nurse to ask some questions. Oh well.

whaevah

harsh camillee..literally draining

hope you get relief soon *hugs*

camillegal

Thanks whaevah me too.

camillegal

camillegal

Another day turning to fun---My Dr. called me and wants me in the ER now--so I probably won't be back til later so I'm fine. Just letting u know

whaevah

geezes camillegal...that  sucks...thanks for telling us, we would worry

. ((((((((((((((((HUGS))))))))))))

markat

Oh Camille, sending you hugs and good thoughts.

bgirl

Cami - sending you healing thoughts and prayers. Hope they give you some help!  Will check in on you later!  Wishing we could toss that big D under the bus, but it might get messy! lol

One of the ladies in that group I volunteered in this morning had that poop transplant... got c diff.... went in for repair to ankle and ended up with it and an iliostomy and colostomy ...  certainly was a crappy deal.

No call from Dr. today but they are usually a no news is good news place ... but will probably call them anyway .  Going to neighbours for a little while tonight  A steady force this past year.  Wish everyone was as great as she is.

Whaevah - seen you on Canadian thread, what part of country are you from?

Omeggo

Cami, in my thoughts and prayers, too. 

Skittle

Camillegal--prayers and hugs.  And more prayers and hugs.  And re your picture--my black kitty is winning.  Eat it!  My next onc appt is the 21st, and he focuses in on weight gain...  so I tryyy to be good.  Am weak.

bgirl--if I'm cracking up on bus duty and the kids all look at me like I've lost it, it'll be all your fault!  Won't be able to watch school bus traffic with a straight face for a while!  (thanks, I needed that.)  :-)  Hope your no news/good news continues.

Wishing each of you strength.

camillegal

Hi guys I'm back--I didn't get stuck in the hospital but of course they can fine one readon why I have diarrhea --I have to call a gastrologis tom. and start testing again. I do have some stupid infection (that's why the pain) either bladder or urinary (I forgot) but he said it was pretty bad and they don't wsnt it going to a kidney cuz one of my kidnes weakened during chemo ad he gve me an anti- gave me one right sway so we didnt have to stop on the way home which was good---that's what my sister and I were laughin so hard about if I had the c-diff and she couldn't donate her sh*t, cuz hers isn't so good either hahaha--what a way to cure someone OMG to tell anyone u had that transplanted cracks me up. LOL--Thanks guys at least I had one answer the pain part hahaha  Damn I'm tired and crabby as u can tell. OK I wanted to let u know I'm home, fine and tired,

Skittle

Wishing you restful sleep, healing, and lessened pain.  You have every right to be tired and crabby.  Hermit crabby... 

bgirl

wishing you a good night's rest cami ... hope infection better and you get some answers.  More tests suck though.

Skittle - just smile sweetly and think of who you really want to toss under it.

I was so shocked that this 72 yr old straight laced lady from church admitted that she had a crap transplant ... still cracks me up.

journey4life

sleep well camille...tomorrow will be a better day!

Are you guys really serious about the transplant thing? When I read the first post (I think from Camille), I thought it was too funny - and full of sh*t. But now...I'm not so sure.

Draining afternoon at MO's office today. Too tired to talk about it now - will tomorrow.

Thanks for making me smile...I needed it today! Night

markat

Camille hope you are sleeping and pain free!



Journey- yep the transplant thing is true. Hope you're okay tonight after your appt.



I just woke up and can't get back to sleep. I'll straighten out over the weekend.

bgirl

Morning Hermits - hope you are ok Camille.  Thinking of You

camillegal

Morning lafies--I slept all night--Felt good--pain is still hangin around but I SLEPT

And yes the crap shoot is real--hahaha I still laught at it--OMG if that's what I need ooooooo

I'll catch up with u guys later--I still feel crappy LOL LOL LOL

camillegal

camillegal

whaevah

Camillegal, glad you are feeling better...OMG is that your puppy??? Adorable!!!

markat

Hey, hope all are feeling good.

This herceptin kicked my butt. Obviously no where near as bad as chemo, but I'm super tired. Maybe the old heart is ready to be done with this year too!

I'm officially hired pending the results of the tests for the job! Woohoo. That should be okay...I think!

camillegal

On No that's not my doggie, just a randome picture for napping LOL

Teka u've come the the right place I'm just starting to learn a little about a computer, I'm computer diasabled but I'm slowly learning since I'm home all day. LOL

Markat right H isn't like chemo, but it's not always as easy as everyone thinks, just like rads sounds easy and it is and fast but knocks the hell out of u.

camillegal

I had one job--just one job.

Skittle

markat--congrats on the hiring!  Hope all goes well!

camille--love, love melting puppies... sooo relaxed.  Hugs to you, and hoping you feel better soon, soon.

journey--thanks for asking...  I was wondering too.  Real?  wow.  Had no idea.  My sixth graders would be snickering all year (after the goggle eyes subsided.)  They love fecal puns, the more inappropriate the better.

Teka--I have a running daughter, too!  I admire her passion for it and persistence.  (Ah to be 5'11" and so fit.)   :-)

camillegal

Skittle we're adults and we're laughing about it--Imagine if I need that--hahaha my grandson BTW I won't tell would be laughing his ass off too. Like me.

bgirl

Cami- hope you are well and get some sleep again.

Markat - congrats ... I'm sure everything will be fine.

Teka ... and the sun sets so early this time of year.

Seems like they are happy with xray not being mets .. yeah ... but doesn't totally explain pain issues.

FLwarrior

LOL!!!  You guys crack me up!!!  I did not log on yesterday and I come here tonight and have 3 pages to read! You have been busy!

Bgirl thanks for bringing over the bus!  Just don’t tell that it was me when they find the pile of bodies under it!!!

Yes, there are days that “I hate everyone because of everything!”  LOL Camille love your “art” work!!

Markat Yeah! On the clear US!  Maybe the pulled muscle is from laughing at Camille’s “art” work.

Roids…Oh, my I had the WORST case of ROID RAGE imaginable.  I was so mad and bad and mad and bad and mad!  I hated myself!  Not to mention what anyone else thought. I complained to my MO that I was “the bi**h from hell”  I could tell by the look in his eye that he “knew” all about this ROID RAGE I was having. He very “sweetly” reminded me that there was just a few more treatments. I contemplated quitting chemo it was SO bad!  AAAAAAAAAAAAARRRRRRRRRRGGGGGGGGGGGGG!!!!!!!!!!!!!

Boy the whole transplant thingeee gives a whole new meaning to “someone giving you a bunch of sh*t”.  I have never heard of that either and I work in the medical field.?.?.?.  Camille I hope that they are able to help you SOON!  Bless your heart for having to deal with this for so long! 

Bgirl - Good news on good x-rays!