2013 Survivors!!!
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Hey all, saw this info on another thread (can't remember where, chemo brain and I haven't started chemo yet. LOL).
goodwishesscarves.org they send you a free scarve/wrap. Check it out, the ladies who were posting about it said that it comes and with best wishes from all the staff, not a scam.
Sheryl
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Karen - count me in your pocket, too!
Think a questionnaire would be a good idea - sounds like there are potential competing agendas - would be a good idea to find out whether we can find a compromise or whether we need two gatherings:-)
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Karen; I'm in your pocket too, but I put on a lot of weight in the past month, so I might hog up all the space!! 😜
Ok ladies, so here is where I am at with this. It's getting WAY to complicated. I am going to try organize a weekend for some of us to get together. I will do my best to take cost and distance into account. That said; I am not creating and compiling questionnaire responses. If the weekend doesn't appeal to you, for whatever reasons, then you are not obligated to attend and are free to organize something that allows for dancing, site seeing, pub crawling shopping... Or any other event you are interested in. I don't mean to sound snarky, but I just want to plan a quite place to recouperate from a crazy year, with the women who know and understand that need and who I desperatly want to give big old hugs to!! So, yes I suppose for me, at least this first year, is sort of a retreat. It doesn't matter WHERE we go; I am retreating from my world and into the private world I have shared with each of you over the course of the last year. I don't want to shop, I want to sit and talk and laugh with my 2012 Sisters/2013 SURVIVORS... and share LIFE... Instead of sickness... FINALLY. and BREATHE!!! 😋
Hope that isn't too harsh, I'm sorry if it is... I'm hoping all the familiar faces can make it... Whatever IT turns out to be.
Outdamnspot may be on to something. Maybe in the greater NY area. We shall see.0 -
Juneau - I'm in total agreement. We are all in different stages of treatment and life and have different vacation/time-off agendas, not to mention budget constraints. I know for me what I am looking for is some quiet, relaxing time with the group to just be. Willing to travel, but obviously would be thrilled to be in driving distance. Since we are so far flung, I agree that multiple locations with Facetime or Skype or some other online meeting option could be a way to still all be together somehow, even if virtually.
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Sorry, I was just trying to make it easier for people to get together. That said, I'll delete my post so no one gets offended.
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On another note... I had my MO follow up appointment today. She said I look great, except I've gained weight and thats bad. Last year i lost 20 pounds using Loseit! and My new job has free weight watchers on site. I just have to recommit. Went to MO today. Not good. Up 20 lbs. I stayed the same through all this until AFTER treatment. I've been eating my feelings instead of processing everything I've been through. Now I'm actually four pounds heavier then I was a year ago when I lost the 20 and I'm getting close to the most I've ever weighed (which was 2 years ago following 4 months on Prednisone for my Crohn's disease), which is only 6 lbs more.
SO I went and bought a treadmill tonight. This was not spur of the moment. I've been thinking about it for weeks now and did my research. An inexpensive one; so I can walk while watching TV at night. Putting it right in the middle if my living room. (I also belong to a gum and have a small one at work) but I can't find the time to just walk. I'm not cleared for Pilates and other exercise post exchange yet.0 -
2fried- that makes sense and explains (not that you needed to) about you not feeling right about sharing. Sorry if I sounded anything but concerned. I guess really even though A lot of people knew what was going on with me only a few were really there for me.
Mmm? Got me thinking about a trip! So hard since all of us live all over the place! I have traveled a lot in my life but my favorite places are some where where I can sit by a lake and have a little piece. I absolute love AK and it was the most beautiful and peaceful place I have been. I like the group 3d tat idea lol! So let's think about it and throw out five suggestions or less to vote on? Should we create a way to do this? I have never been to the east coast past DC and NC. I love savannah,GA but can be pricey! Man we have a whole world of options so how about Minneapolis LOL at least I know that city well:) it is actually pretty fun in the summer! LOL I really like the retreat option if there is things everyone can do and enjoy whether shopping, relaxing etc so let me ponder too. I just want to see all of you and give a big hugs so I don't care where it is or what we do:)0 -
Juneau- good for you on treadmill! Let's keep each other cheered on! I was so dam proud of myself last two days because I actually went to my home town YMCA and got on the treadmill! It felt good! So better than beating myself up for not doing it:)
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Hey just saw Juneau post about retreat and hey now remember we all made it through this crap because we are strong independent women:) so go figure we would all have opinions but I love the fact that someone is willing to just plan something and all I have to do is sign up:) I am willing to assist if needed in planning but I am much better at showing up and bringing the wine or tea
just let me know where and I will try my hardest to be there! 0 -
Mcook; it's a deal. I'm going to PM you about it!!!
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Maryah930; no NO, don't delete your post! You are totally entitled to your thoughts, feelings and opinion. I just don't want to organize a weekend that requires so much work before I start to look at places. And I was not offended and dearly hope I didn't offend you!
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Maryah, you didn't offend anyone ... I was right there with you.
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Karenz0305- I'd love to take a pocket ride to the city. Ativan is a wonderful traveling partner for days like these! Here's to a speedy and pain free "tug"
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Hi Ladies,
Been reading all the posts, but up to now just haven't had a chance to post. Was at the cancer agency pretty much all day yesterday. I am part of a blind clinical trial drug so the morning was taken with blood/lab work, seeing the nurse and my MO. MO is very happy with my recovery and all aches I feel (mainly in the hips) are chemo related and the headaches are down to the tamoxifen. After this year, if that is all I have to worry about I am OK with that.
As for the weekend away together, really I am happy if I can make it to do whatever. I mean if some want to sight see then they can sight see whilst others laze. We can always meet up for dinners etc.
I love the fact that we can all have our own opinions with no judgement. Juneau, thanks for taking this forward.
Karen... jumping in your pocket as well.
Love & big honking hugs to you all xxx
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Karen thinking about you and hope all goes well in the city!
McCook if it were anyone on here but me that wasn't telling anyone, I would probably also be concerned so don't think a thing about it. I appreciate your concern but I just felt it was the best of 2 evils for my situation so as not to jeopardize Dad's well being.
Nice Juneau you would bring a treadmill into this whole picture. I too have gained quite a bit of weight over the year. I first tried to blame it on the TE's, then on my implants and now on my new and improved implants. I've had a real hard time getting the darn doctors to buy into it though! It doesn't help that since Christmas I've been sitting here gorging myself on Christmas cookies because I'm depressed that I don't fit into any of my gifts! Haha like that will help the situation right? I'm about to rethink my goals; it would be alot easier to go buy clothes that are way too big and try to grow into them. I have no ovaries and take arimidex so how much estrogen can my fat produce. lol I most likely will not be at the reunion unless I miraculously brave up (or you all pitch in your left over ativan!) . Also McCook is only bringing wine or tea and I like beer and coffee. But I do hope you all get together and send me some pics. Juneau your comment " I want to sit and talk and laugh with my 2012 Sisters/2013 SURVIVORS" sounds great. Right now though your last word sounds wonderful -"BREATHE!!!" -I would love to breathe but I have a horrendous head cold this week and my best friend has been a kleenex box .
Have a nice weekend everyone!
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Juneau - I'm with you! I have done WW for 15years off and on and last year lost 25 lbs. then cancer happened and took this year off but still kept my weight steady. Now I will be starting it again next month. I love the program and don't know if you ever did it or not but it works well. I'll join you on the 20lb off ride even though I need to do more than that. Small goals!
PS - do you think some of the new weight is from the new tatas?0 -
2Fried: hope you feel better soon - nothing worse than a head cold.
Maybe, for those of us that wish to shed some pounds... we could post weekly/bi-weekly our weight loss on this thread - bit like a virtual weight watchers. I did lose 15lb over this year and at my weigh in yesterday at the hospital gained 2lb... which I know isn't a lot, but that's how it creeps back on. Anyway, that's my thought for what its worth.
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I was going to ww before I was Dx and then lost control. I went back in october and am down 16. Xmas gave me the excuse to eat but I held on. Back on track now. Good luck to us.
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Great idea Tazzy! We all offer each other so much encouragement to get through this wretched disease why not to lose weight? A healthy weight is key to beating this disease.
Thank you for being with me yesterday. I'm so glad the tube is out. The sucky news I got is that I have to make up my herceptin treatment that I missed when I was in the hospital and of course they schedule is for Monday! And I stead of 30 min it'll be a 90 min boost! Normally I wouldn't care but we do a big party on NYE because its my daughters birthday. Thank god our friend is in from AZ. He is my right hand in the kitchen so if I'm stuck in good old 287/turnpike traffic he can get the preparations underway!
What a crazy day it will be but I will be glad to start 2013!0 -
Helloooo Ladies! I had a couple of good nights at home with my hs girl friends . One who was my best friend all through hs and we lived together through college and for some reason we have not seen each other for 10 years! It was so nice to go out with her and have a sleep over:) she dyed my hair and trimmed my hair then we went out for a bit:) it was a lot of fun and no BC talk:)
I made myself go to the YMCA in my home town three times this week! I am so proud of myself! I actually ran three miles! I used to be a pretty good runner but have not done a dang thing since June except the walks through the clinic for appointments. So hopefully I can keep it going.0 -
Im pasting this from my post on my chemo thread so I don't have to type it all over again.
Hi ladies, sorry I've been off the grid lately. Life has been busy. I've had 4 rounds of TC and my MO said she wants 6. I had a fill in my TE's last Monday and on Christmas Eve when I woke up, my right breast was double the size of the left one and had blood blister like bruises all under it (near my port). My PS opened his office that afternoon just to see me and to find out what was going on. He said it looked like I had torn some internal scar tissue and it bleed out. He talked to my MO and she postponed my next TC treatment so he could do surgery to wash out the blood to prevent infection. Since I was where I wanted to be with regards to my expander size (650cc), he went ahead and exchanged my TE's for my squishies. I had the surgery yesterday. I'm pretty sore and my chest looks so much smaller than I anticipated. I was always big busted but didn't want 800cc because I figured they'd be perky and higher so they'd be TOO large. My PS said we can go back in 3 months or so and he can make them bigger if I'm still not happy.
Anyways, there's an update on my happenings. I hope you all had a wonderful Christmas.0 -
Oh mrs. Cich that is no way to spend Christmas. I'm glad you have drs that are nice enough to open their office. And that all went well and you are home now. Rest up!
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Wow, Mrs.Cich - glad things have worked out but you sure didn't need all that drama! Hope everything heals well!
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MrsCich.....what a way to go into 2013......heal well!!!!!
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OK, I propose that on Jan 2 those of us that want to post our weight and goal for weight loss. Think Jan 2 is best cos I am sure that 2 weeks of Mum's cooking, Xmas and NY - I have more than 2lb going on
Karen: Nice you have a right hand man in the kitchen. Have fun at your daughter's birthday.
MrsCich - as I responded to you on the other thread, I wont repeat but send you honking huge, healing hugs.
Mcook: You ran 3 miles ??? I am impressed and shamed at the same time. I haven't done a thing all year. Sounds like great fun and quality time with the gf's.
Well has been snowing here pretty much all night, DH has just finished shovelling the driveway and we are off out to the shops.
Hope you all have a wonderful weekend.
xxxxx
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Tazzy, I'm trying to gain some weight......I know, but I'm really not bragging.....lol
So will the weight check in work for me too?????0 -
Tazzy, That's a great idea. Will there be a separate thread for this? I have belonged to WW in the past with good results. The group part of it is so important.
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Scottie: Drink more pints if you need weight gain... and I do believe I heard the bragging in your voice
How about I create another thread called 2013 Survivor Weight Program under the Moving Beyond Cancer Forum? That way for those not worried or trying to lose (or gain) weight dont have to listen to our woes (or not) on our eating habits. Let me know your thoughts??
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Tazzy...too funny....and I do like the idea of a new thread.....BUT will you be able to stand my whining about not gaining..💃🍺🍕🍺🍟🍺
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Tazzy- i think that would be a great idea.
Scottie- I wish I had that problem lol. I look at food and I gain 20 lbs. What is making you lose weight is it the Femara or something else?
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