2013 Survivors!!!

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Comments

  • Joanne_53
    Joanne_53 Member Posts: 714
    edited February 2014

    congrats Liefie ... How wonderful.  A little bundle of joy. ... Enjoy every minute and cuddle.

  • Tazzy
    Tazzy Member Posts: 1,442
    edited February 2014

    In your pockets websister - keep us posted.

    Yay... its Friday.   Tomorrow more snow forecast - boo! 

    Hugs xxxxxxxxxxxxxxx

  • juneaubugg
    juneaubugg Member Posts: 517
    edited February 2014

    liefie - congratulations..!!!!  Please PLEASE post a photo or you a nd Emily after the weekend?

    websister:  what did I miss??  I saw you weren't feeling well and took a week off of work... hoping for good test results for you.

    arubua; jealous of florida... i'm here in NJ and taking care of mom and a big ass storm is coming AGAIN on Sunday - through Monday - into Tuesday.  WHAT THE F&@%!!!!  

    Mom's out of ICU, but still has AFIB issue.  Basically she was side tracked by the damn tumor and now we are trying to fix the AFIB.  I've been there every day except yesterday. I just HAD to take a day off and since they took her out of ICU - I celebrated and went to victorias secret and bought myself two beautiful new bras!  I am taking a vacation day monday to DO NOTHING! I can't wait.  I've been run ragged - not eating right, barely exercising and I am sure the scale will show it.  (Well not eating carbs - but damn if I haven't been eating candy here at work! It's all over).  Today I have recommitted and am doing better.

    A coworker from my last job (the one I had when I was diagnosed) had her DMX with immediate DIEP on the 18th.  I text last week and called her today.  She found out Tuesday that she will need chemo. She's devastated.  Said she didn't see that coming.  I did try to warn her to expect the unexpected....  I so felt her pain when we spoke.  F'ing cancer!  She's also so constipated that if she doesn't' go today they are putting her back in hospital. Poor thing.  Please send prayers her way - her name is Ann Marie.

    Thanks ladies... love you! xoxo

  • websister
    websister Member Posts: 405
    edited February 2014

    Juneau - thanks for the update on your Mom - glad she is out of ICU and that you are now going to look after yourself again. I will remember Ann Marie - glad she has you 

    I thought I had mentioned the cardiac concerns here but guess not - sorry - probably nothing but I have been having some arrhythmias/rapid heart rate for a few months, that along with shortness of breath and continued fatigue made my MO suggest it should be followed up. The holter is done, it was 24 hours of monitoring, I turned it in again today and they will analyze it and provide a report back to my doctors. I am also supposed to have an echocardiogram but haven't heard a date for that yet. I have a cardiology clinic appointment booked for March 21st. I'm not real concerned, it just seems that everything is treated fairly seriously now since BC and treatment.

    Wishing all a good weekend!

  • Momof3GreatKids
    Momof3GreatKids Member Posts: 285
    edited February 2014

    congratulations  Liefie!  As others have said, post pictures when you can. 

    I will pray you you Websister and in your pockets when needed. Update us whenyou  can. 

    Juneaubugg - hope Mom gets better soon and I hope you enjoy your day off to do nothing! I will also pray for Ann Marie!

    So I went to ortho again today and found out that my shoulder is still not completely better, but he hopes with 2 more months of PT I should be feeling better. He is slightly conserved since he sees frozen shoulder starting also, but hopes it will resolve once we fix the fluid buildup. I also got a cortisone shot to help. If it is not better in 2 months then it will be surgery time. I am praying my PT can do wonders and I will not need surgery!  I have had enough of that these past 2 years!!!!!

    Happy canceversary Karen!!!!!  We will celebrate together here!!!!!  I can't believe it has been 2 years already. Time flies when we are having fun!!!!!!

    I am so ready for Spring, but am getting ready for a large storm Sunday and Monday. Hopefully this will be the last one!!!!

    Hugs to everyone and have a great weekend!!!!!

  • KarenZ0305
    KarenZ0305 Member Posts: 345
    edited February 2014

    I am so pissed we are getting this snow! I love it and all but I have my MO appt up north and really don't want to reschedule! So many things I want to talk to her about. Grrr

    Juneau I am glad your mom is doing better. Take the time for yourself you deserve it and it'll help your mom if you're rested. How's the douche of a boss?

    Mom of3 yes we will celebrate one more year down of beating this wretched disease 50+ more to go! (I plan on living past 100!)

    Websister take care of yourself. You've gone through alot in the last year. 

    Everyone have a happy weekend and do something for you!

  • Jo6202
    Jo6202 Member Posts: 165
    edited March 2014

    Liefie, congrats on being a grandma. I'm a grandma to 10. So thankful to feeling better and being able to enjoy the grand kids again.

    Juneau, best of luck to your mom. Keep us posted. I have an 89 year old mother-in-law and sometimes I feel like she is one of my kids. She is just so innocent, never had any major health issues so is kind of naive when it comes to doctors and hospitals. She just does whatever they say. Never questions anything. Luckily, she is very healthy.

    Tazzy, great picture!

    Ramols, can relate to your story. Those days in our lives of great joy and great sorrow must be planted in our brains differently than all our ordinary days. We remember them with so much clarity don't we? 

    I just celebrated my birthday on the 19th and the word celebrated has such a different meaning to me this year.  Happy February birthdays Juneau, Marian and Momof3.

  • marianelizabeth
    marianelizabeth Member Posts: 1,156
    edited March 2014

    Yes Jo6202, I do think that birthdays have a different meaning as do other reasons to celebrate that would not have meant so much back in 2012. Tazzy, looks like snow here too but I don't mind~~it means no rain maybe!

  • ireland20
    ireland20 Member Posts: 175
    edited March 2014

    Congrats Liefie...cant wait to see the photos.  

    Websister in you pockets always.

    Momof3 I have had frozen shoulder apparantly this is quite common...I have regained movement but still have a bit of soreness....the disease that keeps on giving!!!

    Janeau sending all my love to your mom and friend.

    My bro got good news...after a long few says he has been told there is no spread, he has been offered radio or observation which consists of scans abd bloods every 3 months for 10 years...this is what he has opted for and is even back on set today...so hopefully its all behind him.

    Love to u all...have a geat weekend.xx


  • Momof3GreatKids
    Momof3GreatKids Member Posts: 285
    edited March 2014

    Congratulations for your brother's good news Ireland!!!!!!!

  • lisa2012
    lisa2012 Member Posts: 288
    edited March 2014

    New grandbabies... enjoy, I hear they are fun. I am savoring the pleasure of two sons employed as of January ages 25 and 27. One it is his second year as a teacher and he loves it. The other just passed the bar and is a new attorney. Thank god he found a job, not easy these days!! AND has a lovely new girlfriend, after 3 yrs alone. Mom is happy!!!!!

  • websister
    websister Member Posts: 405
    edited March 2014

    Sounds like happy grandparents, a happy sister and a very happy Mom - sharing in you happiness :)

  • lostinmo
    lostinmo Member Posts: 332
    edited March 2014

    I'm trying hard to keep up with everyone but it's been crazy here. I had my port put in on the 21st and Wed I woke up with my neck and face swollen. I have also been having pressure in my chest and a strange choking sensation when I bend over.  Ct scan on Friday showed one of the tumors in my chest is pressing on the main vein going into the heart narrowing it. It also showed a blood clot in the same vein. So Friday night after I had drove 65 miles back home they called and said they were admitting me. 65 miles back. 7:30 check into hosp, 8 needle sticks later iv is in. at 2 am finally get started on heparin (?) to thin the blood and stop the clot from growing. So I have been sitting here since Frid, my port doesn't work so they have to draw blood from one arm every 6 hrs and my veins keep blowing on them. Steroids to reduce inflammation. Will have the port team decide tomorrow what to do with the port, it's believed that the clot is at the end of the catheter and that is what is keeping it from working. Then radiation to tumor in chest to shrink it back. 

    So far that is all I know and not even sure about all that. I do know that I have cried more this weekend than I did most of my 2012 treatment combined. Mostly because I am away from my family and starting to look like a heroin addict that is very bad at hitting the mark. When I see them walk in with the lab bag tears just start to fall no matter how hard I try not too. :(

    Thanks for letting me vent. 

  • KarenZ0305
    KarenZ0305 Member Posts: 345
    edited March 2014

    Lostinmo there is nothing I can say to lessen your pain and anxiety so I will just send you big gentle hugs and know we are here for you to vent whenever and however you need to. 

  • Joanne_53
    Joanne_53 Member Posts: 714
    edited March 2014

    lostinmo, nothing I can say will make it easier ...

    You say you are away from family .. Where are you?  

  • lostinmo
    lostinmo Member Posts: 332
    edited March 2014

    Joanne my treatment center and hospital they use is 65 miles from my house. But they are suppose to be one of the top in the state so I do the drive. But hard for my husband and son to stay down here much. They came to visit today for a few hrs.

  • ramols
    ramols Member Posts: 310
    edited March 2014

    lostinmo - sending you some gentle hugs and some happy. We're all here for you. Good luck with the veins/port, etc and keep us posted please!

  • aruba
    aruba Member Posts: 276
    edited March 2014

    Lostinmo, know we are all with you and hope and pray you get relief quickly!  Hugs to you... Keep us updated as you can..we are here.

  • Momof3GreatKids
    Momof3GreatKids Member Posts: 285
    edited March 2014

    Lostinmo - Huge gentle hugs for you!!!!!!  I am in your pocket as long as needed also! Vent as much as needed as I know it always helped me when I did!!!!

  • loral
    loral Member Posts: 818
    edited March 2014

    Lostinmo...Praying all goes well..........

  • staynsane
    staynsane Member Posts: 196
    edited March 2014

    Lostinmo- I check in on this thread periodically, but haven't posted.  My avatar/story will not be familiar to you, but please know that your situation has touched my heart and brought me out of the shadows.  You sound scared and pissed off and emotionally spent, which is all understandable.  I am thinking of you and sending hopeful thoughts for a good outcome.  And virtual hugs... even though from a stranger, I hope you don't find them creepy, as we are all touched in some ways by this "f"ing disease.

  • Tazzy
    Tazzy Member Posts: 1,442
    edited March 2014

    Lostinmo - there is nothing we can say to ease your fears.   But we are here for you and will cry and rant and rave with you.  In your pockets for as long as needed,


     

  • Believe777
    Believe777 Member Posts: 540
    edited March 2014

    Lostinmo - we are here for you and in your pockets!  Are you still in Tucson?  Sending lots of positive thoughts and gentle hugs. Vent away. Is there anything that you need?  

  • shorfi
    shorfi Member Posts: 437
    edited March 2014

    I am done with my chemo treatment as of 1/10/14 and waiting for my exchange surgery on April 9th.

    I'm afraid of it coming back...so what do I do? I try to find on the internet all the success stories of women with TNBC and don't find that many. After reading, it seems me to a dark place and I get so depressed. I'm always promising myself that I will not read the horror stories, but I find that I still do it. I'm just angry because initially Pathology said I had DCIS, ER/PR positive and Her2 negative. Then after the mastectomy I also had IDC triple negative. I am so insecure, but my MO says my prognosis is excellent, those were her words. But I am still afraid. I am 59 years old and happily married for the past 5 years. I don't act like an old woman, but my body feels it. In fact, I feel mentally young. I am finally happy in my life and now I have to worry about whether I will be around for the next 5 years. Fortunately, I am taking Lexapro for depression because of this, but sometimes in my mind I am so afraid.

    I don't find too many success stories and that makes me anxious. I'm sorry I am being a Debbie Downer, but I am so afraid.

    Maybe I should just stay off the internet reading about TNBC and just stay here.

    And I do apologize if I am posting in the wrong forum...


  • marianelizabeth
    marianelizabeth Member Posts: 1,156
    edited March 2014

    lostinmo, am wondering just where you are so that if any of us BCO women or friends of, could come spend time with you?  Hope they can get the port sorted out as that is such a help. I know when I was hospitalized during chemo, having that port made such a difference. 

    Shorfi get off the googling! My two best friends are TN and one is 7 years out and the other 6. I had my exchange in December and must say that finally am feeling like I can move on~~some of the time!

    Still here for all the great support though.

  • KarenZ0305
    KarenZ0305 Member Posts: 345
    edited March 2014

    Shorfi I agree! Stay off the internet but stay here. These forums have been a godsend! You want reality you'll get it here along with all the live, support and honesty you can handle. And my sister's friend is a TN 6 year survivor and going strong!

    Lostinmo how are you?

    Juneau how's Mom?

    Websister how are you?

    Well we missed the bullet by a margin and didn't get hit with alot of snow. Just enough for a delayed opening which I found out about via a singing voice  mail from our superintendent of schools. I wish I could post it here because that is a fun way of getting woken up at 5:30am!

    Since we have no snow I am heading up for my MO appt so hop on in ladies -road trip! And because of all of you I have some great questions to ask about zometra and compression sleeves while flying. Nothing is ruining my trip to Aruba! Ain't nobody got time for that!

  • journey4life
    journey4life Member Posts: 223
    edited March 2014

    lostinmo - you may not remember me but we went through chemo at the same time (March 2012 Chemo was our board). I'm saddened to learn you're having a rough time. I'm sending you healing vibes and strength to kick cancer's a$$! Hang in there and post updates when you're able.

    Lisa

  • lostinmo
    lostinmo Member Posts: 332
    edited March 2014

    Thank you for the encouragement everyone. Today was a very busy day, but I think we are on the right track. They removed the port and put in a stent to help keep the tumor from narrowing the vein. The swelling started going down as soon as they had that in. They placed a picc line for now and trying to get me my chemo tomorrow. They want me to have a bout 10 rads to the tumor in my chest causing the problems but it sounds like I can do those in my hometown. They have someone they trust to work with there. Other than a slight headache at the moment with is a combination of no food for 24 hr, dehydration and lots of sleepy drugs, I am feeling SO MUCH BETTER!! 

    Again thank you all for listenting. 

  • websister
    websister Member Posts: 405
    edited March 2014

    LostinMo - what a time you have been having - so glad yu reached out and updated us, hope you aren't in hospital long and that the blood thinners do what they are supposed to do. Glad family could get in and see you, consider us family also - sending hugs your way 

    Karen - in your pockets for the MO visit, let us know how it went

    Staynsane - hope you post again here

    Shorfi - welcome, the others gave you great advice

    Today I was back at work after two weeks off, tired this evening but wanted to check in on my 'sisters'

    Take care everyone 

  • Tazzy
    Tazzy Member Posts: 1,442
    edited March 2014

    Shorfi - I agree... stay off of Dr. Google.  There is a great TNBC thread on this board.

    Lostinmo: happy to hear of your positive progress

    Jumping in pockets - geesh with all this jumping I should be losing more weight Winking

    I was at the Docs yesterday - referral for Ovary removal so no I wait.   Dad's Mum died of ovarian cancer so advice is to have mine removed.   Least the recovery seems not so bad,   Anyone out there had an ooph?

    Love and hugs to everyone xxxxxxxxxxxxxxxxx