STFU (Shut the F*** UP)
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I'm there Mary.... sorry about that news....MAYbe something else will work better! I sure hope so..... xoxoxo
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Hey Mary Mary - In your pocket with you. Bringing my blankie for a comfy stay. Prayers that your doc has other chemos hidden up his sleeves.
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Mary I have made a pair of big girl panties which I am bringing with me as so many of you need them, going to give them to Veggy then thought we could send them on to anyone who needs them. Wanted to put pockets in thembut have run out of time but I am in your pocket.
Must get changed as I have to take my sister into town to get a bus as she is going to visit her GD up north.
Big big hugs.
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SweetMary, Sorry to hear your news. There has to be something in the chemo arsenal that will work for you. I'll be in your pocket whenever/wherever.
Welcome, lilsis-I cringe everytime I hear a nurse being stupid. I know they were taught better.
Greetings to everyone else!
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Prayers Mary.......
Welcome Lilsis.....your in the nuthouse now......you will soon learn from everyone that I am the funniest, smartest, prettiest, sexiest.and oldest broad on this thread.......and a member of the "Mile High Club"..............
Everyone here will deny it, but honestly their just jealous........so come on in and sit a spell.....let us entertain you.........plus we beat the shit out of anyone who hurts our ladies, so just say who and where.........hugs.....0 -
Mary I am in your pocket whenever you need me...
Cindy AKA Squishy0 -
Ducky you forgot to mention that you were the most full of sh#%. ha ha. just kidding.
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Mary........LMAO..........and your so right .......love ya girlfriend....STILL LMAO....
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Love you too...
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Mary hugs!!!!
😍😍😍😍😍0 -
Hey Chevy, yes my name is Kathy and I am the little sister, sometimes you'd think I was the older one, still, I love my sisssys. Ducky, I am really glad I found this board, a little venting never hurt anyone! I love my boss, but I have to say he's needs a filter sometimes. This is a great place to get info. I always look up meds and then look up what all of you have to say about it, because you all know better what it does than the doctors I think. Anyways, I told them at work that they need to look this thread up and read all the stupid shit they say to me. Thanks for welcoming me! It's nice to talk to people that know how I feel, for real.
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Mary, I'm with you!
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Welcome Kathy
Mary in your pocket
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Sas, how receptive was your doc to the YouScript? I looked at the site and it looks like the MD has to request it. Do you know how much it costs?
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Savi, Pcp very receptive, also, psych counselor. I introduced both of them to the Genelex in Feb 2010 after I found it. The predessor to YouScript was GenemedRX. The GenemedRx name was changed to YouScript in 2012. maybe late 2011.
PCP attempted to get me tested during 2011. insurance wouldn't approve it so it wasn't done. PCP continued working with Genelex when insurance would approve for her other patients. Slow going at first, but she's into it.
When I received the insurance rejection letter. I could have appealed it, but allot happened around the rejection time. My testing fell by the wayside. Medicare approves it, so my medicare HMO should approve it now. Many insurances follow Medicares lead. The company has a billing prompt, they might be able to tell you if your insurance will accept testing.
Pcp and I intended to do it way before this, we just kept getting sidetracked. We talk to much LOL. I had a DUH moment a couple of weeks ago and went in specifically for the test. No idea of cost, will let you know if i get a none coverage letter. This time my mind is in a better place to do battle.
Pcp offers it to all her patients as she determines need. Don't know if the 6-7 other docs in the practice are doing the same.
My counselor is a Licensed Pyschiatric Social Worker-- LPSW. As such he can't prescribe medicine. He recommends drugs based on his dx to either PCP or Psychiatrists. He has 35 plus years in practice. He at one point thanked me for introducing Genelex and GenemedRX to him. He attempts to get all patients tested. He will make no treatment recomendations unless DNA testing done. In his thanks, he said that his approach to drug treatment had changed entirely since using the DNA testing, thus changing his whole approach to his practice. COOL eh?
A pebble thrown into a pond sends out a wave, what that wave affects is unknown.
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Savi, introduced MO to Genelex@ same time as Pcp and counselor. I'm talking 2D6, 2C9, 2C19, and about a dozen or so other enzyme pathways. MO's mouth dropped and he said "I don't even know this stuff". That was in FEb 2010. In early June 2010, one of the oncology nurses told Dh and I that they just had an inservice on testing people for DNA, to make sure how their drugs worked. We just smiled. Not sure how it has progressed. Forgotten about this Savi, wonder if the wave countinued. If it did that's three practices that I changed. Again, COOL
How did I get into it? DH's Chemo wasn't going well. Did an internet search.
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Oh Mary and Ducky - it does my heart good to be around youse, so, so good!
Mary, Blondiee and Veggy - in your pocket, dont mind the lint at all. Some of the other hoolies are rambunctious, though, not me.
Welcome Little Sis! You knowm Duckster has been MIA for part of the summer, but as soon as we have a new friend, there she is with her mile high club. You would not BELIEVE what a ringer she put us through before she took that plane trip! I thought we would never hear the end of it. She is awfully smart and cute, though.
All you other hoolies, Chevy, Wren, Cammi, et al............................. and sweet Julianna, hope you all are well. Miss my son, getting back into the groove of life, very low energy but it is what it is. No word, yet, on the job. Still collecting unemployment.
💛
Michelle
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Evening all, almost time for bed. Not so much of a hooligan today though I do have a hoodie on but I never put the hood up.
Big big hugs to all.
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Shells, I know I was hearing a lttle Jack Johnson music coming from my pocket...He is my favorite singer...
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Morning Chickers! Are you still in bed with little Cooper? Wake up! Wake up! Don't know why, but it sounded good...Wait Ducky! You have a hot-tub in your bathroom? One of those 8 foot round ones? With room for what? 6 or 8? Do you have a deck around it? Who knew?Geez! I ALSO didn't know our little Phylliphotoperson was so talented! She is entering a show! Dang! I Can you post some of your pictures here? After they are shown? Or is it a secret?
Oh! What are they of? Can you even post them here? Ha!
LittleGardens... So most of don't even have a clue what you are talking about.... like installing firewalls for some sort of people.... except I, of course, do. You must work for a IT business that helps those of us who are too clueless as to how a firewall benefits us... on our computers. It's to keep the bad guys out.... right? And that is your job! Man, I HATE to do stuff like that, and then try and un-screw what I just did. Much LESS, do it to people I hardly even know!Spookie! You are right And I'm gonna meet my misharamio! Ha, ha! I know craw-dads.... kind of like a big ugly shrimp... that live in the mud. Oh yum!And of COURSE you have "palmetto bugs".... You live in Florida with my DD....I think that's a relation to a CR? You also have "love-bugs" and those cute little gecko things...I just went outdoors this morning, before dawn, and I could hear crickets all over! I think it means Autumn is on it's way... I'll really be happy when it cools off.Veggy.... hope you are feeling better this morning.... thinking about you!And Sassy! Did you see our "new" gal? She got mad at someone for something.... We have to be armed..... for these brainless people... they roam around EVERYwhere! We have to take care of her.And yes, I was a Camp-fire girl too! And we cooked hamburgers on the tops of those tomato juice cans, with a little fire underneath! Do you have ANY idea of how long that takes? Like we could have STARVED to death waiting for that thing to cook! And we sat around the camp-fire singing 99 bottles of beer on the wall?Oh Ducky, you blabbed about us to Lilsis! She is just a little squirt, so go easy on her. I wonder if she can tell you ARE full of s**t? But yes, you ARE the cutest!
Lilsis, if you tell people to read this, they will think we are ALL nuts... Just Ducky is. She is a rebel... She walks around with sword and a shield..... she's just that way.Morning Shells, Mary, Alyson and Lilli! Talk to y'all laters....xoxoxo0 -
Chevy......it is a jacuzzi tub......you twit....how the hell could I puta "spa jacuzzi" in my bathroom.......lol
Problem is with LE you can't use a hot tub....sad cause the jacuzzi part helps with aches and pains, and is so relaxing.........so there it sits..........unused.......oh we'll....shit happens...0 -
I know this is stupid and has nothing to do with here except it hurts my grandson's and my bonding time. I am devastated over something so stupid as a game - Been playing this game with grandkids, grandmas, grandpas and parents for almost 10 years. It is like part of me has just been ripped away... First I lose 2 of my best doctors and now this... http://toontown.go.com/closing.. I will STFU now and in the future...
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Sas, I wonder if these pathways are part of the reason some of us have such problems with drugs and others don't. Aromasin gave me fits after 4 months. I'm on a break now and will try Arimidex next.
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Mary, this guy is going to beat up your cancer....
Chevy, yeah, I work in IT - have now for WAAAAYYYYY too many years. I design and implement network security including firewalls and other devices and techniques - not the kind that run on a PC, but the kind that are supposed to secure enterprise wide networks. It used to be fun, I am sick of it, though.
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Someone Said they were missing my pictures - so here is a moment for you all to breathe, relax and enjoy.
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GMA - beautiful, just beautiful.
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Welcome lilsis. Seriously I think the nurse should be beaten up - and we're willing.
Mary, In your pocket. Bringing magically shrunken teddy bear. She's awesome.
Gma, I'm getting the impression that the town has a lot of fog. Am I right?
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Savi, Yup. I'm waiting for my paperresults in the mail. The gal gave me my lab record number over the phone and I entered it into my record at YouScript. I didn't know they did the DNA for coumadin. I'm abnormal. An intermediate metabolizer. If I have coumadin I will have to have a lower dose, otherwise i could get into a serious bleed. Anyone that knows ChrissyB ----Yoohooo Alyson----knows she had a bleed for the same reason and was in the hospital. Twice. It was a real cluster f**k. Then they tested her for the DNA. I did research for her on the same genetic abnormality. That's ironic.
Foley--Sorry about your game. I knew a nurse who did the same thing with her GS. They had great fun. Their's was a medieval game though. Maybe you can find a substitute something?
Chevy no soupcan fires for me. Must admit though having a clue what to do about without power and services does help in hurricane area. I always prepared. DH thought I went overboard. Until he spent most of the night in the pool trying to stay cool during one of the "blows" in '04. BTW I'm an hour from Orlando. You have my phone number. I'll scoot over in a heartbeat when you visit DD!
LSK-Report her, she's needs an intervention.
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Mary how are you doing with the chemo...
Chickie thinking about you.
Veggy thinking about you!!!
this is my week off, thank goodness.....wanta run something past all of you treasure you opinion......from the beginning...the onco sent me to a lung specialist to find out why I can't breathe....went and he was going on vacation....got 3 tests and the rests came in, the onc told me the results.....some results didn't come in so the onco said call the office and tell them which I did... He came back from vaca and called and I was sleeping, I returned his call and he called back the next day which was last tuesday and I haven't heard from him since....He never told me what the deal is and I called him a total of 4 times...I want to tell the onco that I don't want him involved anymore and find me another pulmonary specialist....feeling like he is not taking me not able to breathe serious...he was made cause when he called I wasn't available. and that wa LAST monday/tuesday, what do you think...
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I think some doctors are too big for their britches... I'd talk to your MO about the pulmonary guy. If possible move to a different doctor.
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