Maybe a dumb flat question?
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starting to freak out a little about the procedure itself. Sounds like I will be at the hospital most of the day. Will I be up to an hour and half drive and gambling all night the next day? The anesthesia also makes me panic every time. Blah
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Is it outpatient? If so maybe not much anesthesia. I was good after a nap and something to eat with twilight sleep. Never had a biopsy like this. Don't cancel. You may not be up to all night but it will be fun no matter how long you get to play.
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the party wa a success I think. My feet sure hurt. Just got home after bein there since 8am. The menu changes three time throughout the day due to various issues. We ended up with all BBQ chicken. Made pasta salad out of what was supposed to Go with the chicken part. Everyone raved over the shrimp cocktail. I realized after I had eaten dinner that I had never tried any. My mom invited my ex husband and his family, even after I had initially protested, and then I even "forgot" to send their invites. It was a bit uncomfortable. Poor bf worked his butt off today, he is exhausted and in bed already. I'm growing ever anxious for Thursday. I told my mom about it last night but am waiting until Monday to tell my grandparents, I feel guilty for telling a fiblet that my scan results appt is on Monday. But I didn't want to put a damper on today for them. I'm headed to bed now. Hope everyone is having a nice weekend.
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looks like I'm getting a vacation. I got suspended from work today for three days with no pay. Ha!!! I've been a bit too ballsy lately that I don't really care about working there or not. But the overachiever side if me, the good girl who has NEVER been in trouble for anything has her feelings a little hurt. On the other hand I stand by my decision on what I did and would do it over again because it was the right thing to do. I wish they would have just fired me.
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Sheila, what the......??? Your boss sounds like a turd. Oh well, now you don't have to take a sick day for the biopsy, eh? Stay strong, we are all in your pockets tomorrow, and look forward to a fun weekend at the casino. Oh and the party sounded awesome!!
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Work people suck! They don't have a clue about what you're going through. Yes, bring big pockets tomorrow so we can all fit in there! Glad to hear the party went well.
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With you tomorrow DP, hugs and support coming your way. Your boss is cruel.
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You go girl! Use this time to concentrate on yourself. Do something fun, eat something sinful, sleep late. In the bag for tomorrow.
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Their loss, your gain. Enjoy the time off! In the bag for tomorrow. ((hugs))
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good morning ladies. Made it through yesterday. Feeling ok so far today.Now the waiting. My side is really sore. I felt like I was kicked by a horse yesterday. They had a hard time getting around my rib and had to make many passes to get the right angle. I stayed awake the whole time and watching the doctor keep frowning and acting upset freaked me out a bit, but he said afterward that he got what he needed. They said results should be to the dr by Tuesday or Wednesday but I still don't have an appt. I left a message for them yesterday and they still have not called me back. I may just go down there this morning. I should have an INR test anyway since no one at the hospital could give me clear instructions on resuming Coumadin.
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Glad you made it through DP, and the waiting begins.. that is so hard to do isnt it? The medical community needs to understand how difficult this is. Wishing you the best results!
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Glad you're over that hurdle, DP, but it sounds like it was awful. I would've freaked out, too! Here's hoping you get good news next week!
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Fingers and toes crossed for you! Try to relax now.
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Hope you're getting lucky at the casino. It's good to stay busy and not worry too much. Easy to say, hard to do. Hope you're feeling less sore today.
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DP glad that is now behind you. I've got everything crossed that you get good news next week. In the mean time enjoy your little getaway!! (((hugs)))
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hi ladies. Had a fun trip. Speaking of how the medical community should be more understanding about the waiting... You guys are going to end up with cramps keeping everything crossed until the 21st! That's the first available appointment to get my results. Really!! She has no openings next week and is out of town te week after that. I have an appt with my breast surgeon on Tuesday, and even though it isn't her area, I am going to ask her if she will get the results for me. She is at the hospital where I had my procedure. Meanwhile, I am pretty sure I have lymphedema in my chest. It is so painful and the swelling has gotten worse since the biopsy. Been waiting on the LE clinic to call me for a month. Grrr
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Hope your BS comes thru for you! That's way too long to wait.
Do you have other hospitals near you? I called another one about my LE and got in that day. I had to wait three weeks to get into the one associated with my hospital. That appt would have been tomorrow and the weather is bad. My arm was swelling a quarter inch a week. Don't wait. It's miserable. I just love the new one.
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there is another LE clinic that my MO referred me to but they took three weeks to call me also and meanwhile I heard not great things about it from my BS. So I figured since I had not heard from them I would have my bs refer me to the other one. Now I've been waiting over a month total. I am sure that LE is what the problem is. I've been meaning to ask everyone if the pain I've been having is normal for bmx and/or rads, but I have a hard time describing it. During the day it isn't so bad but if I sit too far back on the couch and when I am in bed and try to move or get up, it is terrible. It is on bc side. It's not really a burning pain but more like all of my muscles or tissue is being ripped apart. There was a lot of swelling from my side under my arm towards my chest for the last few weeks then a big lump of swelling above my scar line. Since the biopsy the side swelling is gone and it is all sucked in looking and huge swelling above the scar line. It resembles my "mini boob" created by my port on the other side. I try the lymphatic massage sometimes but am confused because I know I should not direct it towards my arm but want to direct it away from my chest. Really worried about taking two 8 hour flights in May.
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Sounds like you have some scarring from rads. PT will help along with swelling. May need a sleeve for flights. You need to get in ASAP so you'll be in good shape.
Mine feels like after the BMX that tight band feeling around chest and around upper arm. It's my armpit that bothers me the most and my chest is swollen. It appears to have gotten stuck at the end of the scar.
My PT said the movements are designed to open up the lymph system and have to be done in a particular order. It's a very light touch surprisingly. It's making a difference. Lost 2 cm first week.
In the bag for your appt tomorrow. Hope she gives you some good news.
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oh man. Waiting at he BS office. I told the nice admin that I wanted my results. She pulled them in less than 30 seconds and now they are sitting in my chart. Starting to feel sick...
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In the bag with you DP. Hope your results are good. ((hug))
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my appt was at 1:30. I am still sitting in the room waiting for the dr. I sat still so long that the lights turned off a while ago. Before that I had a little weeping session. Now I'm pondering leaving. I know my report is in the box on the other side of the door. I want to just take it and leave. Or at least look at it while I'm waiting. The nurses were very somber today after that report was printed. So not really feeling hopeful. Siiigh
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Oh DP, big hugs to you! I am sorry you are there alone and you're feeling that way, and teary too. I wish there was something we could do.
Everything crossed and thinking of you, wishing hard for a good result for you! M x
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well all the report said was that the pathology was still pending. But I guess I made such a fuss that somehow the bs thought I was thinking they were hiding something from me. So she called down to pathology and talked to the dr. So I have half news. It is cancer but they have not determined what it is. She said the dr was thinking it was a lung cancer but she seems to think I am too young for that and given my history. She said he didn't know my age and history which seems odd since I know it is all on the ct report. I don't know what to think. I tend to side with the bs, even given my history of smoking. I think the timing is too coincidental and the growth rate so fast, just like my breast tumor. Even though I really already "knew" it was cancer, I am just devastated. I don't want to do this anymore. I just don't. I want to worry about trivial things again. The bs battled to get me in to th Mo this week before she goes on vacation. So hopefully the rest of the pathology will be in and I can get yet another treatment plan right away instead of waiting.
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I am so sorry to hear this and my heart goes out to you. Great big hugs and hoping they get more information to you and quickly.
(I'm a lurker who's been considering PBMX and going flat. I haven't felt like I should be posting here since I'm not in treatment, but your story really kind of struck a chord with me for some reason and I was silently crossing my fingers for you that your results would be benign.)
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I wish I could give you a big hug DP. I've been in your shoes. It easier once you have a plan. Hope the BS is able to get you in this week and start treatments next week.
Hang in there. You can do it. No matter what they tell you, you don't have an expiration date that only they can see. You're a fighter.
Is there anyone that can go with you to the appt? We're here rooting for you. Holler, cry, scream. Whatever you need. I cope better after washing floors and listening to loud music. Maybe you can enter another contest.
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DP, I am sorry that you don't have the whole picture, and the "wanting to worry about the trivial things" just breaks my heart. I was so moved by that statement, and so you should, just be worrying about the trivial stuff.
I hope you get your results in fast and get started on a kickass treatment. Big breaths, again. I wish you all the very best!
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(((DP))) I am so sorry that you have to go through all this. I am crossing everything that you get into the MO this week and have a plan in place to start next week. Thinking of you!
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hugs and support to you DP, damn, sorry you have to face this, hoping you get a plan soon. You can beat this like Zills says. There is no expiration date on you or any of us. Loved the trivial things comment too, I remember thinking before bc I would sometimes think things were "boring".. We'll I have come to know that there is nothing wrong with boring! Sending you very positive thoughts and prayers.
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good morning ladies. Thank you all so much for your thoughts and support. I am ok today I guess. I get distracted and stop thinking about it for a while. Made it through telling bf and talking with a friend last night without crying. Then I wonder if I am in denial? No I don't think so. Acceptance maybe? But I don't know if I'm there yet, but really that must be it I guess. My appt with the MO is on Thursday. Hoping the full path report is back by then. Any of my family would go with me to the appointment but I kind of prefer going alone I think. It makes me edgy to have them with me because I see how upset they are. But on the other hand, then I don't have to explain everything afterwards which is difficult for me. I also find the dr seems to explain more when someone else is there.
I really wish the MO had been more upfront with me in the beginning about what it meant to have TN. I know they don't want to scare you and have to stay positive. But I would have liked to have known all the possibilities. Everyone made it sound really simple. Do this treatment, devote this one year of your life and then your fine and put it all behind you. I also know that these outcomes aren't restricted to TN but the stats are so much worse. I was looking on YouTube Monday night for hairstyles for chemo hair and stumbled across this video titled "why I rejected chemo and radiation", the screenshot was a pretty young woman and I had to watch it. It was from 2010 so I was compelled to look for more of her videos to see how it worked out. The video titles progressed through "I have cancer again", "starting chemo tomorrow", "I have terminal cancer", "it has spread to multiple places", etc. The screenshots also progressed from that hopeful beautiful girl to one with no makeup and haunted eyes, to having a moon face and a wig, and on to a smiling but markedly grim face in her last video about all the places it has spread to in a short period. I was heartbroken by watching these. Our initial diagnosis are similar and she is just a bit older than me. I was angry at this disease taking so much from her and in the back of my mind wondering if her story will be mine. Anyhow, I don't know why I rambled off on that tangent, but her story did have a profound effect on me for some reason, her name is Christina Newman.
I wish it wasn't so darn cold. I feel like being outside today.
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