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Comments

  • cheesequake
    cheesequake Member Posts: 68
    edited May 2015

    Imagine that, cards made by someone who has actually been through it and gets it. THAT'S how you do business.

    Would it be weird to send this link to my friends and tell them to send me these cards if they feel the necessity to send cards??

    EDIT: I seem to have missed a the whole last page of comments! It seems like people making stupid comments are getting STUPIDER!! I'm so sorry you all are having to deal with this incredible insensitivity.

  • glennie19
    glennie19 Member Posts: 4,833
    edited May 2015


    coraleliz:  that is just awful. Your MIL deserves a massive junk punch at the top of the stairs and a lovely fall down them. I'm glad you live 2000 miles away! What a horrible thing to say.

  • bride
    bride Member Posts: 121
    edited May 2015

    Well, there I was, having hair, showing NED, and starting to decompress. I had that horrible meeting with my MO who left for private practice. Unfortunately, this was the same day I was in severe pain on my spine. My ex-MO suggested I discuss it at a survivorship meeting to be held in July. That's when I told her to sod off.

    By the grace of God, the nurse-practioner heard me. She makes an appointment with a new MO for the following week. These is my third MO -- I'm getting paranoid. I know I'm assertive and have learned more than my evil MO liked. My new MO looks like she's 15 but is brilliant. She actually talked to me like I was a real, living person and not just a wad of clinical material to screw with. She sent me off for a MRI.

    There's something on the MRI. Now I'm wanting to be told when someone will scrape my spinal bone. For two weeks I've been a total mess. This is so much more frightening than my original DX. I don't know what all this means but I've already got it that they can't just cut out bits of my spine -- it's not a MX and ALND. You don't need a boob but you kinda need a spine.

    I feel like I'm running in circles. I'm barely eating or sleeping. My caregiver/DP is in almost as bad shape as me.

    How do I deal with this? I can't imagine any way to handle this. It took me two weeks to be able to write this: what is written seems more real than what I think.

    Damn. I can't do this. Damn, Damn, Damn. And I've 15 pages of posts to catch up on this thread along. I am so very f-ing tired of this hell

    bride

  • Deblc
    Deblc Member Posts: 154
    edited May 2015

    Coral, this ones for you !!!!! (Your MIL sounds like mine)

    image

  • Deblc
    Deblc Member Posts: 154
    edited May 2015

    Bride....I have no advice because I would be abasket case too, but just wanted to say I'm so sorry u are going through this. This cancer sh*t sucks so much.

  • farmerjo
    farmerjo Member Posts: 239
    edited May 2015

    Me too,  Bride. Keep us posted, and hang in there. 

  • glennie19
    glennie19 Member Posts: 4,833
    edited May 2015

    ah Bride,, so sorry to hear this.  We are here for you!  Rant all you want.  (((hugs))

  • sbelizabeth
    sbelizabeth Member Posts: 956
    edited May 2015

    Bride, I've been your quiet, cyber-friend for a long time.  Your post breaks my heart.  I'm so sorry you're enduring this.  Everything crossed here, and hoping...HOPING for the best. 

  • spookiesmom
    spookiesmom Member Posts: 8,178
    edited May 2015

    Bride, I am so sorry to hear this.

  • lastar
    lastar Member Posts: 553
    edited May 2015

    Bride, hoping for the best and holding your hand.

  • JustJean
    JustJean Member Posts: 170
    edited May 2015

    Bride, I've been where you are and it sounded like you were me talking about the MO. I'm on my 4th one - they don't tend to like outspoken patients who are intelligent and have a mind and are not afraid to verbalize their opinions. I like my current one.


    I recently fired my RO. I used to feel bad when I had to do it but no longer.


    I'm very sorry to hear all of this and will "keep you in my pocket". I get it.


    JJ

  • jazzygirl
    jazzygirl Member Posts: 11,974
    edited May 2015

    Bride- I am sorry to hear about all you are going through. We are here to listen if you need us.

  • hopeful82014
    hopeful82014 Member Posts: 887
    edited May 2015
    Bride, so very, very sorry to hear that. I can't imagine what you're going through but I know it's terrifying - or would be to me. I hate this disease.
  • SelenaWolf
    SelenaWolf Member Posts: 231
    edited May 2015

    Bride... thinking of you.

  • jazzygirl
    jazzygirl Member Posts: 11,974
    edited May 2015

    Bride- finding the right doctors who can hear us is important. My RO was good, MO is good (although he had a heart attack and now I am dealing with a nurse practitioner for follow up). My BS is a whole other story, like her the least. Out of the three, she is the one who I will ask questions too and does not like to be challenged. I did anyways, this is my body and my life, not hers. She has her own agenda, and I figured that out too.

    I am glad you have a new MO you like whom you can talk to. I hope you can get your test scheduled soon and find out if there are any concerns with the bones. Keep breathing and know we are here for you.

  • RaiderGirl
    RaiderGirl Member Posts: 235
    edited May 2015

    Bride

    They see "something"? Sh*t I hate that. Tell me there is an alien housed there, or an unborn twin. Dont tell me something. Its too hard to deal with something.

    Its ok to be a basket case. Most get that way with so much less to worry about.

    I wish that encouragement was cyber-transportable.


  • Gingercake
    Gingercake Member Posts: 13
    edited May 2015

    Bride,

    I cannot begin to imagine what you are feeling but I am so very sorry that you're dealing with this. I know that doesn't amount to much, but please come here and vent whenever you feel like it. You have friends rooting for you in cyberspace! We care about you and what you are dealing with.

    Ginger

  • 208sandy
    208sandy Member Posts: 582
    edited May 2015

    Bride - so sorry to hear your news - when are they going to meet with you next? Hate that this sh**t always starts just before a weekend. Sending hugs, S.

  • mel147
    mel147 Member Posts: 291
    edited May 2015

    Bride - so sorry - sending cyber hugs to you. Please take care

  • Jackbirdie
    Jackbirdie Member Posts: 1,617
    edited May 2015

    love that, Spookiesmom!

  • spookiesmom
    spookiesmom Member Posts: 8,178
    edited May 2015

    bump

    This thread is too good to let it go .

  • Beachbum1023
    Beachbum1023 Member Posts: 364
    edited May 2015

    Let me add, from my MO today - When she gave me the best news ever, I went straight into a weepy hot mess. She looked alarmed and asked my why I was crying and so upset. I never cry in front of anyone, let alone my care team or nurses.


    Well I was crying because it was the best news ever, and I have lived 11 months surviving DD AC/T, then a single mastectomy and a failed immediate reconstruction, and then rads. I owe more money than I will be able to make to pay it off, I lost my job and insurance, I was more bald than a bald Eagle, I haven't been this sick or eaten so many meds in my life, I had to drag my foot around in an ortho boot because my foot hurt so bad, I have heart damage from Adriamycin, my eye lashes are falling out again, I am missing my two big toe nails they are still coming back, my hair is 2" long, I have one boob, and 25 pounds of chemo fat. But I survived all of that crap, and I just thought I should have a party. A big fat all about me I deserve to be a hot mess pity party. And I am totally out of head nods and fake smiles.


    I was crying because I just couldn't deal with any more bad news, and when it was so good I just let it go...................that and I was so happy that chemo is off my pole until later! I know we all get it, I just thought she would too. :)

  • lastar
    lastar Member Posts: 553
    edited May 2015

    Right on, BeachBum!!!!! So happy for your good news!

  • SelenaWolf
    SelenaWolf Member Posts: 231
    edited May 2015

    Oh, BeachBum, that is such great news!!!

  • spookiesmom
    spookiesmom Member Posts: 8,178
    edited May 2015

    WOOOHOOO Beach!!!!!!

  • Beachbum1023
    Beachbum1023 Member Posts: 364
    edited May 2015

    Thank You! I am so ready for the break. Too bad we are all so far away, it would be a great party!

  • tjh
    tjh Member Posts: 272
    edited May 2015

    Great news, take time to breathe and enjoy!

  • jazzygirl
    jazzygirl Member Posts: 11,974
    edited May 2015

    Beachbum- that is great news about getting great news at the MO's office. You have been through so much, just like many other sisters here.

    I think a party/celebration is in order. Decide what you want and have others execute on it. You deserve some positive attention for a change.

    You go girl!

  • Beachbum1023
    Beachbum1023 Member Posts: 364
    edited May 2015

    Thanks Jazzy, when I was diagnosed in July I wanted my reward early just in case the news wasn't good. So I bought a new car with 72 payments, so far I made 9 payments, with more to come :) If I get the title I have done well. Cheryl

  • RaiderGirl
    RaiderGirl Member Posts: 235
    edited May 2015

    Beachy,

    Wow, wonderful news.

    Celebrate!

    For me celebrate can mean sit and watch a movie without thinking of the "what ifs"



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